COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  DVT Weight gain at least 15lbs in three months, cold all the time, hands and feet are always freezing. not much brusing i dont like having to remember to take it everyday but i am greatful to be here. so it is a part of life for me at least for now. it is comforting to see that others have experienced weight gain as well. i was so worried and unsure as to why i had gained so much wieght in so short of a time period. i have been told that it has a high sodium content which makes you retain water. doctors may say it is not a side effect but i say they have never taken it themsleves. how else can you explain 15lbs in three months with no change in diet. i also hate having to get my boold drawn all the time. the lab techs have a hard time finding my viens now too many needles. F 20 3 months
11/20/2006
 4  Mechanical Aortic Valve Excessive fluid build up in my lower legs. Pain in both knees like a burning sensation. I've been on different doses of coumadin since Mar 2003 and it seems like when I have to take 5mg or more per doctors orders I get an excessive amont of fluid build up in my lower legs. I also get moderate pain / burning in my knees that can be overwhelming to the point where I have problems with climbing stairs and other daily activities that require "bending the knees" Has anyone experienced these side affects since taking coumadin? My email address is [email protected] F 49 3 years
11/20/2006
 5  Blood disorder I have been on Coumadin for 2 years now. I use to go get my blood drawn every 2 days. Now I am at every two weeks my INR is always changing. I am on 5 and 6 mg a day. I had a P.E after they found clots in my left leg. Side effects cold and bruising, nose bleeds, and heavy periods. Nothing that I can't handle. I have a rare blood disorder Proththian Gene Mute (I think it is like the V-factor) where my system does not break up clots. They just found this out 2 years ago. I was born with it. And it did get passed on to my son even though they said it is rare to pass it on to him. They said I didn't need to get him tested but I did thank god because he has it as well. But he is healthy and just has to be aware of it he does not have to take anything. But needs to notify doctors before surgery or if he gets in an accident. Clots are scary I had one in my lung they didn't even know about until after the fact. So thank god for Coumadin I will be on it the rest of my life. Yes it is a pain getting tested all the time but better then a clot:) F 44 2 years
11/14/2006
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 3  DVT - right calf Taking 2.5 - 5 mg/day Warfarin. General lethargy/listlessness, more tired than usual, some shortness of breath, a few aches and pains, strange vivid dreams. Got headaches in the AM for the first week or so, these seem to be better now. Easily bruised. Possible weight gain, but I haven't been able to run yet since the recent DVT so not sure if this is a side effect or just from not exercising. I got my DVT from Nuva Ring birth control. No other risk factors. Need to be on warfarin for 3-6 mos. (hopefully only 3). Overall my side effects haven't been horrible yet, but I can't do some of my favorite things like surfing or snowboarding while on this drug so I want to get off it ASAP. F 41 2.5 weeks
11/13/2006
 2  antithrombin III deficiency hairloss patches, energy level has dropped severely, tired all the time and have to take naps which I never had to do before, joints ache,swelling of legs on and off, weight gain. Wish I just could feel like myself again. Full of energy and rarely got tired after any activities, etc Trying to go with the flow but it really really stinks. Have to take it for life unfortunately wish they would find another drug with less side effects. I am worried about the long term use and effects on your body. But there is no other choices or options at this time. F 46 2 days
11/7/2006
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 4  clots after chemo for bowel cancer hairloss, numbness and tingling in feet and hands. Finger tips extremely sensitive to heat. This drug is exacerbatiung the peripheral neuropathy brought on by oxaliplatin (chemo). I'm glad I'm only on this drug for 6 months F 59 1 months
11/6/2006
 4  DVT Migraines,hot flashes even though my legs,arms,feet & hands are cold, anxiety & depression, aching joints,weight gain of 5 pounds,blurred vision once in a while,difficulty in obtaining the correct INR, thinning of hair on the top of my head, constantly tired, I had an extensive DVT from the groin to mid calf, the drug has saved my life, I've been on it for 4 months & it's a very slow process for the clot to decrease. My leg is still swollen & I still have a throbbing pain. It seems like it is very difficult to regulate. My INR has only been at 2.50 one time in four months, it varries from 1.30 to 4.64. Very frustrating. F 54 4 months
10/27/2006
 4  Multiple PE's & DVT in left thigh Hair loss, anxiety (due to PE I'm thinking), heavy heart beats/rapid heart beats in the evening, tired and weak sometimes dizzy I think it's starting to work b/c I can stand on my leg a bit longer and I don't have as much chest pain... but I wish you could know "for sure" that it's working! F 25 3 months
10/26/2006
 4  mechanical mitral valve I get very dizzy and headachy when my INR is high. I also get visual disturbances, clear-like spots that impede my vision when my INR is high. It is very hard to regulate even though I stick to the schedule prescribed. I would rather die that have a stroke, so I am very good about taking it exactly as prescribed, but, it is not as easy as talked about before my surgery. I resent the fact I need to do this after being such a health-nut and eating and exercising the way I should my whole life. It is though the price I pay for being alive! F 54 2 years
10/24/2006
 4  aeortic valve replacement minimum sweating, 95% loss sense of smell, lack of concentration, cold feet while in bed at night Lost a Brother in Feb. from too high a dosage to regulate blood thickness pre surgery to regulate heartbeat.Massive bleeding in the brain. My loss of smell happened about 6 months after starting drug. I can not say it was the coumadin for sure, but my Dr. hinted that it might be. Still have fluctuating readings on blood thickness. I would like to be able to test myself. Any suggestions? M 70 5 days
10/17/2006
 3  possible clot in liver/Jaundice depression, aches in both legs and all over body, tiredness,irratable, anxiety, difficulty concentrating,dry flakey skin, needle pain in feet, feeling cold,being told that my symtoms were not from drug. Was told I would have to take for 3 Mo. Quit taking drug after 3 months --was on 5mg 3 times a week and 2.5mg 4 times a week. My count was 1.4 after stabilized. I believed that I needed this drug to prevent a possible blood clot or stroke but do not believe in the continuous poisoning of my body. M 64 100 days
10/9/2006
 4  artery dissections weight gain, headache, hypersensitivity and itching in scalp, fatigue, mild mental fog, bruising F 39 6 months
10/5/2006
 5  Pulmonary embolism Tingling in hands and feet. Odd foods have thrown off my level...I have to stay away from mayonnaise completely. It's a life saver. I'd rather have tingly hands and feet than the alternative...7 blood clots in my lungs. F 39 2 months
10/1/2006
 4  DVT, PE, anticardiolipin, AFib I seem to be very cold, no weight gain or hair loss, but my periods are very long, and I sort of feel depressed/anxiety all the time, sort of like impending doom. I know that sounds dramatic, but I guess I am just depressed and worried from everything that's happened. I am just lucky to be alive! I am very tired all the time, and it seems my skin is very dry, itchy and pale. I don't know if this has anything to do with the Coumadin, but I seem to be developing a lot of bad acne. I am also very worried about having children since being diagnosed with having anticardiolipin and atrial fibrillation. I am worried that I may have a heart attack or something!! Does anyone else experience these things? Or the skin changes on this drug? I don't mean to sound vain, but the acne really upsets me b/c my skin has alwys been clear. F 30 7 months
9/27/2006
 5  Stroke I am really not experiencing any side effects. I notice that I am a little more "cold natured", but nothing really bothersome or even hardly worth mentioning. I take 5 mg, except 3 days a week Monday, Wed, and Thursday, I take 7.5 mg. Level was stabilized within 4-5 weeks. I don't take any meds that would interact with the Coumadin/Warfarin, so maybe that helps a lot. I was also in great health before my stroke...was not considered an "at risk" person for stroke. I was taking birth control pills and have PFO (discovered after stroke) so maybe one or the other played a role???????????? F 38 7 weeks
9/22/2006
 5  P.E. weight gain,trouble sleeping,bruising,swollen lymph nodes,nausea and im losing all of my hair. it is very stressful taking this medication,but when i am off of it i think i will be very paranoid about any little ache or pain.it did however save my life but everything interacts with it and everything makes the levels change.im frustrated. F 29 5 months
9/20/2006
 3  DVT L LEG Headaches.. Dr. said not related, but I've never had headaches untill I started taking Coumadin. Also, it seems as if I dont crave alchol as much as I use to. VERY STRANGE.. M 41 1 months
9/20/2006
 5  Mechanical Aortic Valve The medication is literally a life saver. You have to watch your blood levels very closely so your blood does not get to thick or thin. I bruise easily. It is very important to educate yourself on any drug you are taking as much as possible. I am also a big believer in the self testing machines offered. I manage my own I&R and it works well with my busy life style. My surgeon highly recommended it. M 46 15 years
9/19/2006
 4  PEs itching, loss of sex drive, tongue tingle, lips slightly swollen sometimes. I believe I had a severe allergic reaction from it once. It does seem to help. I tried to quit it, but after 4 days had chest pains for two days. Decided to go back on it. M 4 months
9/17/2006
 3  Atrial Fib Hair loss, itchy sensitive scalp, decreased sex drive, bit of weight gain Dr. doesn't think scalp itch is from drug and I don't see many people with this side effect on board but I know it started right after he put me on it. I've switched shampoos to see if any difference and am using something from dermatolgist but it still persists and I swear it has to be from this drug. M 45 9 months
9/16/2006

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