COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | intracranial dissected artery | Dizziness and vertigo, fatigue, weight gain | Someone below asked about weight gain. I gained weight (about 10 lbs) without changing any behavior when I went on Coumadin, and it stayed on for the 7-8 months I took the drug. Within a month and a half of stopping the drug, I lost the weight -- without making any changes in my food intake or exercise. | F | 39 | 8 months | 9/3/2008 | 5 | Aortic valve replacement | No side effects that I am aware of.It is just a bit of a pain for any invasive tests or surgeries. | I have been on Coumadin for over twelve years due to aortic valve replacement with a St. Jude mechanical valve. For patients like me there is no alternative and I wouldn't be here without it. For those having trouble staying in range, consistency is the key. This includes diet and activity level. The really bad thing about this drug is the total lack of understanding by so many medical and dental professionals. It DOES NOT thin your blood, that is an old wives tale. Coumadin(warfarin) prevents the absorbtion of vitamin K in your liver(vitamin K is the blood clotter in your system. It also does not make you cold because your blood is too thin, that is pure baloney. | M | 70 | 12 years | 9/2/2008 | 3 | blood clot discovered near kidney | itching in lower legs that drives me crazy, inability to sleep, deep, depression, anxiety, sensitivity to cold, weight loss, appetite depression, crying over everything, bruising. Sleep is brief and not deep. | Heparin shots for 5 days 2x a day, and then coumadin since. The blood clot was discovered in Feb, and now it's Aug. There is no retesting to see if the blood clot is gone (there weren't any others). Initially they said a few months-but it's been 7 and there's no discussion about getting off it. I don't usually take any medications so I'm frustrated that there seems to be no end. | M | 59 | 7 months | 8/30/2008 | 3 | DVT into PE | nervousness, fatigue...possible depression, possible facial twitches...possible dizziness. NO extreme bleeding, have cut myself in shower, but healed rather quickly. Got a very minor contusion from riding off-road motorcycle...turned into a huge green bruise...seems to be subsiding. | It's been VERY hard to stay in the 2.5 range...right now I'm 4.6...doc had me skip a dose and reduce to 13mg...blood tests every week. Seems to fluctuate with my diet, especially when eating salads. I'm relatively active...I lift heavy weights in the weight room. Can't do much cardio as the torn meniscus (which probably caused the DVT) is still there an bothering me... The reality of death from the PE has me extremely worried about dying and/or having some kind of cancer. I am a father of 3 young kids...8,5,3. | M | 41 | 2 months | 8/23/2008 | 4 | Clots, both legs & both lungs | Easily bused, very temperature sensitive (especially to the cold), had blood in my urine for the first couple of months, occasional discomfort in my chest, mood swings and depression for the last year with thoughts of suicide. The mood swings and depression may be related to having twins this year and not getting very much sleep. | I have Antiphospholipid (aPL) antibodies but they are not connected with Lupis or Cancer. I average 7mg of Warfarin everyday and normally test my INR weekly. The swelling in my left leg has gone down with the use of Warfarin and a compression stocking on my left leg. | M | 40 | 2 years | 8/16/2008 | 4 | PE RIGHT LUNG AFTER SURGERY | EXTREME FATIGUE, DON'T SWEAT ANYMORE, DIZZINESS, DISORIENTATION, DRY SKIN AND HAIR, ALWAYS THIRSTY, WEIGHT LOSS, LOSS OF APPETITE, RAPID HEART RATE, LOW BLOOD PRESSURE, SHORTNESS OF BREATH | I know I have to take this so that I can get better, but the fatigue it causes is becoming almost unbearable. I would be anorexic if it wasn't for my boyfriend waking me up and putting food under my nose and even then it’s tough trying to stay awake long enough to eat. I have had problems with falling asleep at the wheel even though I am sleeping 12+ hrs a day. I just wish there was a knowledgeable doctor that could tell me if this is normal. I'm not complaining this stuff saved my life and I have about 6 months to go on taking it. They are planning on running a bunch of blood work to see if this is genetic since it is so rare for someone my age to develop a DVT and then a P.E. | F | 35 | 2 months | 8/13/2008 | 5 | Pulmonary Embolism | None. | At first I thought it was going to effect my diet (eliminate leafy green vegetables, etc.) but by loading up on the leafy greens one month and limiting them to almost none in another month, the doctor was able to adjust my coumadin to a level where diet is not a factor. My INR is always in range no matter what I eat. So far I haven't had any bleeding problems. | F | 58 | 6 years | 8/11/2008 | 3 | massive PE both lungs | no hair loss (knock on wood). dry skin. WEIGHT GAIN (15 lbs in about a month and a half). NO sex drive. seroius WATER RETENTION. bloated almost half the time. bruising. sensitivity to hot and cold. | So far I'm not to happy. My clots were blamed on birth control. I am a newly-wed with no sex drive, I am having a terrible time loosing the extra weight, and I am constantly arguing with my doctors about my diet (I love veggies and am lowering my calorie intake to combat the weight gain). If the real cause of my clots was in fact birth control (which I am obviously no longer on), I am taking this drug for no reason. I am definately not happy with the effects I have experienced, and am worried that as this progresses I will experience more of the side effects listed on this site. | F | 24 | 3 months | 8/10/2008 | 4 | Venuous Thrombosis in shoulder | Headaches, fatigue, weight gain, anxiety (possibly not caused by the meds) | After having a contraindication to the birth control pill, I developed a blood clot in my shoulder. Coumadin has helped and I am grateful. I wonder if others have experienced the same malaise that I feel however - perhaps it's partially due to the fact that I am an active person and I can no longer do some of the activities I love, but I am uncharacteristically fatigued and depressed since I began taking the medication. | F | 29 | 33 days | 8/9/2008 | 5 | I'm a clotter it runs in my family | your either to thin or not thin enough , weight gain | If it hadn't been for Coumadin : I wouldn't be alive today , I've had clots in heart my lungs and my legs and my brian as well, I even had 1 blow up in my lower part of my head I'm very very lucky to be living and alive the clot had caused a stroke and ever since then I have major migraine headaches daily and taking meds for them and will be to no end , Tho taking this med changes your life is because you have to be very careful, I have been on it for many years and will be for the rest of my life , I did gain weight while taking this med and yes it hard to lose it but it takes will power to lose it , eat a normal diet and you'll do fine | F | 47 | 10 years | 8/5/2008 | 4 | DVT - left calf | A strange light headed feeling, like I'm about 1/4 of the way to blacking out. Skin is sort of itchy and I get minor rashes when getting out of the shower. Tight feeling where neck meets head and back muscles wear out easily. | I'm glad to have it, but I wish they would be more clear as to what is a serious side effect and what isn't. It says seek emergency medical help for nearly everything, but I'd feel like an idiot going to the ER with the symptoms I've mentioned; it also freaks me out not to. | M | 29 | 30 days | 8/1/2008 | 3 | Multiple DVTs Right Arm | Extreme weight gain, nausea, exhaustion, and the list goes on. | My comment and question is for anyone that if OFF coumadin for about 2 months and have done a workout bootcamp, not drinking, watching what I eat etc and CANNOT get the weight off. Its like the coumadin is still in my system or something. Is anyone else having issues still after getting off coumadin? How long does this crap take to get completely out of your system???? | F | 22 | 6 months | 8/1/2008 | 4 | clot behind knee after knee surgery | Tired all the time especially if my INR goes over 3.0. Hair loss the first 8 months not alot but in the past 2 months its been falling out rapidly. Just in general I don't feel up to speed. | I'm 28/f went on coumadin after a routine arthroscopic surgery and developed a clot they found 2 months later. I've had 3 scans over the year and every time the clot has been breaking down more and more. It has been a year since on the coumadin and i am coming off due to the rapid hair loss. I am an active, in shape person...time to face the fear and start living again. | M | 28 | 1 years | 7/29/2008 | 1 | Atrial Fibrillation | Wake up in the night, impossible to get back to sleep. Cold hands. Concentration difficult. Drier skin. Feel flat. Seem to want to eat all the time. | Intially I was put on Warfarin because of atrial fibrillation. That episode has now vanished, but an echocardiogram suggested a tiny section of the heart was not working 100%. Rest is perfect for my age. Doctor said I would have to stay on Warfarin for life, or chance a stroke or heart attack. Hate the stuff. Probably will never feel right again. The cynic in me suggests that every person prescribed Warfarin is up for a minimum of 12 INRs a year. Very easy money for the doctors' surgery. But there is no real option but to go with the recommendation. Suggested aspirin, but no. | M | 64 | 4 weeks | 7/28/2008 | 1 | atrial fibrillation | tiredness, depression, anxiety, weakness, malaise, lackluster, easy bruising, bleeding, some hair thinning | This drug seems counter-intuitive to me... giving a person rat poison to try to help them? (You did know coumadin was originally designed as a poison to kill rats, didn't you?) In my case (permanent atrial fibrillation) I've been advised by my doctors to take this most of my adult life. Following my heart attack when I was 28, doctors put me on coumadin for the first time. I had a severe reaction and began bleeding through my kidneys within days. I stopped the drug immediately, and have refused it until three months ago, with the stipulation that the doses be kept minimal. I'm now at 10mg four days a week and 12.5mg three days a week. I hate this drug! I do so much to keep myself healthy (diet, exercise, etc.) and here I am taking rat poison! It just doesn't feel right to me, and I want to stop taking it but I'm freaked out by the possibility of a stroke, heart attack or worse... I would like to see clinical data on the actual effectiveness of this drug on a-fib patients... out of 100 | M | 53 | 3 months | 7/27/2008 | 4 | PE blood clots both lungs, abdomen | I'm satisfied that the medicine helped - obviously I'm not stupid enough not to appreciate that the blood clots are gone! But, now am not sure whether the severe anxiety I've been having is from the medical crisis and other stress at that time, or whether to think the coumadin contributes to or causes it?(I actually take Jantoven, due to possibility a severe reaction I had was to warfarin - could have been from any of several Rx's I was given early on but doc changed me to Jantoven anyway.)It's been 3 months since the PE and anxiety has increased, plus now I've had episodes of feeling very detached or like I can't control or rein in my thoughts. So frightening to me that I've an appointment to see a psychiatrist in a couple of weeks. | F | 53 | 3 months | 7/23/2008 | 1 | dvt during pregnancy | Weight gain, lethargy, memory loss | Stopped injecting heparin 6months post partum then went on Coumadin. Had to stop breast feeding due to coumadin which I hated. When I told the doctors in the US about my side effects they laughed and said it was because I had a new baby. This may be true..but the side effects stopped as soon as I took myself off the Coumadin (6 months post partum) and now am taking aspirin. This was OK with my doctors on Europe. This drug is a lifesaver, not doubt about that, but doctors in the US are afraid to let you stop taking it. | F | 37 | 6 months | 7/15/2008 | 3 | pace maker implant | Tiredness/fatigue, bruising and bleeding easily, weight gain and vivid dreams | Reviewing some of the comments here I feel like I am reading about myself. I had a pace maker implanted in me about four years ago. Though I have had no blood clots the recommendation from my doctor was to stay on Coumindin. I do have fatigue the vivid dreams that I did not have before sure do wake me up at times. Other times I just sleep the whole night without waking but feel like I have not had enough sleep. Hated the weight gain of 40 plus pounds. Did go on a diet last year and am down to my goal weight of 195 which is where I feel good at. I am 6'1". I have not lost any of the other effects of this medicine but I have an appointment with my doctor to get off this dangerous drug. | M | 58 | 4 years | 7/14/2008 | 3 | COMPLICATIONS FROM SURGERY | TIRED,VITAMIN K PROBLEM | MY DAUGHTER IS 31 WITH NEW BABY AND DUE TO REMOVAL OF FEMORAL IN THIGH TO CORRECT BLOCKAGE PROBLEM IN SHOULDER AREA SHE WAS EVIDENTLY BORN WITH, NOW HAS BLOOD CLOTS IN THIGH. HER SHOULDER IS OK BUT NOW THEY SAY SHE WILL HAVE TO BE ON COUMADIN FOR THE REST OF HER LIFE. SHE DOES NOT HAVE ANY BLOOD DISORDERS.I AM CONCERNED WITH LONG TERM SIDE EFFECTS ON LIVER IF ANY. SHOULD SHE STAY AWAY FROM ANY ALCOHOL? HER NEW VASCULAR DOCTOR SAYS SURGERY OR STITS ARE NOT AN OPTION,BUT I WONDER IF IT'S BECAUSE THEY DON'T WANT TO TRY TO CORRECT A PROBLEM THAT WAS CAUSED BY ANOTHER SURGEON.HAS ANYONE HEARD OF ANY OTHER PROCEDURES THAT SHE SHOULD ASK ABOUT THAT MAY HELP HER GET OFF THIS DRUG COMPLETELY? | F | 31 | 1 years | 7/13/2008 | 3 | 9cm iliac DVT & multiple, bi-lat PE | Nausea, headaches, itchy scalp, gum bleeding, thirsty and poor sleeping. However, I had to go off the OC pill and was put on implanon, which has its own treasure of hideous side effects - so not sure what's causing what [insert frustration!]. The headaches are my biggest concern. | I just feel terrible. I look well on the outside, but my sides are not happy. Hopefully the haematologist takes me off the warfarin in December 2008. I have just started walking for exercise as I have been going nutty with my inability to run/swim (previously young, fit and healthy!). Does anyone know if you can still get clots while on coumadin (assuming stable INR?)? Has anyone experienced the headaches lessening? Ps: being a vegetarian on warfarin is a nightmare - green veggies!! | F | 27 | 7 weeks | 7/13/2008 |