COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  2X DVT in a year and a half dizziness; numbness in my feet; feet, hands and ankles swell; often feel cold; fatigue/passing out as soon as I close my eyes; increased anxiety/stress about taking this medication for the rest of my life; frustration at inability to continue to play hockey Everything I have read says that while taking this medication, there should be few to no side effects. After reading this page, I really want to get off this drug now. If anyone knows about alternative therapy or treatment to prevent DVT, please let me know. M 28 6 months
1/4/2007
Email
 5  DVT & PE See immediately below. No more blood clots as of December of last year, 2006, per ultrasound on my legs. F 41 7 months
1/3/2007
Email
 5  DVT & Minor blood clot in each lung Heavy periods (like the 2nd or 3rd day--hate it :p). I just discovered I can't take my night walks anymore when it's in the 30's because my legs get really cold so I go on my walks during the day instead, lol. I have to go for additional blood work sometime this year to see if my blood is "hyperactive" in the clotting mode (hospital goofed and didn't do this testing on me first apparently because they wanted to get me on the heparin right away) without coumadin. If it clots too much, I'll have to be on Coumadin for the rest of my life; but if the blood tests results are fine where my blood does normal clotting, then I'll be able to go off of it which would be nice. The only thing I'd be worried about is in case it ever comes back. :( It has literally saved my life. Unbeknownst to me, I had it. At first, I was having trouble breathing--couldn't even walk a few steps without gasping for breath (and I don't even smoke and am not on birth control pills), it was that bad. Thought I had either pleurisy or pneumonia. I couldn't understand what the heck was wrong with me. I checked myself in the hospital the day before Mother's Day in 2006 and found this out through the dye injection and it showed two dime-sized/shaped clots (one on each lung. Had to be bedridden for 3 days and stay an extra 2 days because I was also supposed to be intraveniously fed with heparin for 5 days in addition to getting the correct dosage of coumadin. Also had an ultrasound on my legs and I had DVT from the top of my left leg to below my knee which was how the blood clots came to be in my lungs. I am sooooo fortunate Someone was watching out for me that day. The happy news is I had an ultrasound on my legs the other week (in December) and F 41 7 months
1/3/2007
Email
 4  DVT Left Leg Headache, chest pain (could be anxiety, worrying about whether the clot was going to go to my lungs), cold hands. No weight gain or hair loss yet. Was taking Lovenox injections for 5 days; the chest pain has subsided since the Lovenox injections have stopped. F 39 6 days
12/19/2006
Email
 3  DVT Both Legs (2 years Apart) Hair loss, Teeth chip easy, some yellowing, always cold, Sweat profusionly, constipation, very fatigue, very hard to get along with. Loss of sleep. Severe weight gain even with a regular rountine of walking (4) miles a day, plus extensive muscle stretches. Blood vessels seem to ache at times, joints aches common at night mostly. My mind seems to wonder, lots of confusion at times. Some dilirium at times. Very combatted with family at times. Have been taken off for the last (2) weeks due to stomach ulcer had to have (5) pints of blood do to serve bleeding. Last dose of coumadin was set at (11.2) per day. I'm very anxious because I can see another blood clot forming in the future. I'm in constant contact with Doctors. They want to test for blood disorder since (11.2) could not get my numbers steady, they were up one week and down the next even with a good controlled diet.Have been on for (5) years and will have to have some kind of blood thinner for the rest of my life. M 62 5 days
12/13/2006
Email
 3  DVT Both Legs (2 years Apart) Hair loss, Teeth chip easy, some yellowing, always cold, Sweat profusionly, constipation, very fatigue, very hard to get along with. Loss of sleep. Severe weight gain even with a regular rountine of walking (4) miles a day, plus extensive muscle stretches. Blood vessels seem to ache at times, joints aches common at night mostly. My mind seems to wonder, lots of confusion at times. Some dilirium at times. Very combatted with family at times. Have been taken off for the last (2) weeks due to stomach ulcer had to have (5) pints of blood do to serve bleeding. Last dose of coumadin was set at (11.2) per day. I'm very anxious because I can see another blood clot forming in the future. I'm in constant contact with Doctors. They want to test for blood disorder since (11.2) could not get my numbers steady, they were up one week and down the next even with a good controlled diet.Have been on for (5) years and will have to have some kind of blood thinner for the rest of my life. M 62 5 days
12/13/2006
Email
 4  DVT right leg and PE in both lungs I have experienced weight gain even though I have decreased my calorie consumption and resumed exercising. Since I've been on coumadin I've gained 10 pounds in two months. I have stomach pains and feel constantly bloated. I've also noticed that I have been experiencing thinning hair loss. I take 5 mg every day and my INR has been steady. I am currently being tested every 3 weeks and am expecting to be on the drug for 6 months. M 47 2 months
12/10/2006
 1  stroke After taking warfarin about 3 months, we went on a trip to see our son and family in colorado. We got permission from my doctor, he had me on a 9mg tablet. I became ill and thought we best come home..unknown to me I was bleeding internally. We went straigt to emergency room, was in ICU 7 days with blood and plasma transfusions. the trunk of my body was totally black and blue. I had a large hematoma in my abdomen and they never could tell where I was bleeding from. One clot went to a kidney and killed half of it. All of that was 4 1/2 yrs ago. I feel the warfarin is taking its toll...weight gain..tiredness, Itchy scalp with sores, tingling feet and hands. I feel that I haven't much of a life left because of it. I have a hard time breathing at times..bloated & stomach upset constantly. I have always been a small person...around 115 lbs but have shot up to 160..is horrible. I try to walk and exercise and keep very busy but is very difficult. I am on 5 mgs a day...INR is a F 70 4 years
12/10/2006
 5  mitral valve replacement bruising, cold all the time trouble keeping INR theraputic, diet restrictions are the pits. I love my spinach,asparagus and broccoliand a quarter cup is just a tease. My sister died while on plavix I'm not saying it killed her but her quality of life was not as good while she was on it as mine has been on coumadin. I understand the young womans concerns about pregnancy and coumadin I was on it during the first 4and 1/2 months of my first pregnancy and was fortunate enough to have a healthy son. The reason I stopped taking it for the second half of the pregnancy was that they found out it wasn't needed with porcine xenografts. I worried thru the whole pregnancy then had another child, another pig valve, another child, then an artificial valve was installed necessitating coumadin again. the birth defects that can happen from Coumadin are horrific and pregnancy should be avoided at all costs. We were lucky not everyone is, but all in all I give Coumadin a big thumbs up. F 54 30 years
12/6/2006
 5  mechanicalheart valve Bruising, but overal I feel 30 years younger and happier with the new valve and take coumadin in stride. F 73 6 months
12/5/2006
 5  DVT (Rt. Calf), PE's (Rt. Lung) Fatigue, Night sweats & sensitivity to cold. Got me out of hospital, I'm hoping that I'll just have to take it for 6 months. It's a pitty that there is no alternative to taking this "rat poison". You'd think that in the 21st. century, we'd be able to come up with an alternative. I guess PE's & DVT's are not as "sexy" as Cancer, AIDS etc. M 39 3 weeks
12/4/2006
 4  PE in Lung Itchy skin that resembles chicken-pox after a while, fatigue, dull pain in chest, shortness of breath,nausea, and headaches. I don't know whether to attribute the side effects to the medication or the condition or having underlying asthma. VERY ITCHY SKIN!!! MY ARMS LOOK LIKE IM SUFFERING FROM ANOTHER BOUT OF CHICKEN POX. I SHOWED MY DOCTOR BUT HE SAID IT WAS NOT RELATED TO THE MEDICINCE. I THINK HE WAS ONLY ASSESSING FOR THE EXTREME SKIN REACTION CALLED NECROSIS. BUT I FOUND INFORMATION THAT COUMADIN/WARFARIN COULD CAUSE HIVES THAT RESEMBLE CHICKEN POX. I'M STARTING TO HATE THE LOOK OF MY ARMS BECAUSE OF THIS. I ALSO FEEL LIKE THE PILLSBURY DOUGH GIRL. MY THIGHS ARE BECOMING INCREASINGLY BIG IN A MATTER OF TWO WEEKS! SO THERE IS DEFINITE WEIGHT GAIN. ITS STILL PRETTY EARLY BUT I HOPE AND PRAY THAT I DONT EXPERINCE ANY ADDITIONAL SIDE EFFECTS. MY INR LEVELS HAVE BEEN BUT QUITE RECENTLY THEY DROPPED, SO WE WILL SEE WHAT THE FUTURE HOLDS. I AM BEYOND SCARED ABOUT BEING OFF THE MEDICATION BECAUSE OF THE EXTREME CONSEQUENCE AND THE FACT THAT ITS UNKNOWN WHY THERE WAS A BLOOD CLOT IN MY LUNG IN THE FIRST PLACE. I DID NOT MEET ANY OF THE RISK FACTORS WHICH WOULD CONTRIBUTE TO A PE AS WELL ALL ADDITIONAL TESTS THAT WAS TAKEN WH F 29 3 weeks
12/4/2006
Email
 4  DVT and PE No real side effects from coumadin. I am a medical doctor and was just dianosed with DVT and PE. So I have some interesting insight on this issue. Maybe I can help give others some assurance. I think a lot of the symptoms other persons here are reporting are indirectly related to the coumadin. Weight gain is likely due to a reduction in physical activity due to the problem for which the coumadin is being taken. Dvt and pe do cause limits in activities. It is likely your doctor has kept you out of work and advised rest. This reduction in activities without a subsequent reduction in food intake probably led to increased weight. The fatigue and lack of energy could likely be caused by the anxiety and stress and depression we all felt when given our diagnosis. One minute most of us were healthy the next we are being told we have this new condition which no doubt will change our lives either short term or forever. Headache, body aches and a host of other symptoms can result from somatiza I have been getting headaches and my temper is shorter than usual. I tend to think its indirectly related to the DVT and PE and more likely due to all the chemicals that are floating around in my body and not from the coumadin. Chemicals with long names. Leukotrienes, histamines prostaglandins, reactive substances which are helping my body heal from the PE and DVT. Just like when you have a cold. All those substances which fight the cold virus also make you feel miserable. They make your head, your whole body hurt. Even your hairs sometimes hurt. The same thing happens with blood clots and all the substances your body makes. If you've had surgery for valves or bypass that also causes pain. Inmobility causes pain. Not being able to do the things you enjoyed causes pain. The depression of being ill causes pain. Maybe its not the coumadin. Talk to you doctor. Ask. Hope this information is of use. God bless you all and may God ease your pains. M 52 7 days
12/3/2006
 3  DVT left leg (2 in 10 yrs) Heavier periods, unexplained blisters from mild activity, not preceded by the discomfort that usually warns you you're going to get a blister. (e.g. using a screwdriver, stirring cake batter). I'm glad I don't have hair loss or weight gain. I am concerned about the link between warfain and osteoporosis. The associated restrictions limit my ability to follow the normal dietary recommendations for maintaining bone density. I probably have to take warfarin for life now because of having two clots. I'd be interested in exchanging e-mail with others. F 39 3 months
12/3/2006
Email
 4  TIAs Bothered by very bad taste in mouth most of the time and nausea sometimes, especially after eating a lot of dairy foods. Would like to hear from anyone experiencing these side effects. M 66 1 months
12/1/2006
Email
 4  TIAs Bothered by very bad taste in mouth most of the time and nausea sometimes, especially after eating a lot of dairy foods. Would like to hear from anyone experiencing these side effects. M 66 1 months
12/1/2006
Email
 3  PE I have had tingly hands and feet. Around 15 lb weight gain. Always feel swollen. I am very tired all the time...not like me at all. I decided a week ago to stop taking coumadin and try natural blood thinners such as fish oil, vit E, asprin and garlic. The swelling and weight gain was a constant battle and I work out and eat healthy. I went through many panic attacks and anxiety about having another PE. I am frustrated at hearing doctors tell me the weight gain is from PTSD. F 36 9 months
11/30/2006
 3  uedvt/ijvdvt awful hairloss, increased dry eye, spotting, cold feet and hands, headaches, blurry vision, lack of concentration, sleeplessness, loss of appetite, stomach burning this drug may stop blood clots but it is ruining my general health. why can't the drug company come up with something better for anticoagulation. if they read these messages surely the money they could make on us should be enough incentive to do something about this archaic drug and it's cruel torture. geez i never knew how sorry i could feel for a rat! F 50 3 months
11/24/2006
 3  Pulmonary Embolism Dizzy, light-headed, weak, tingly, chest and leg pain. Tired, sleepy, major headaches. Nausea in the morning - feel like puking, stomach ache, heavier periods, and legs feel thick. I was put on Coumadin for blood clots in my lungs - I got them from the birth control pill I was put on. I was hospitalized for a week in September 2006 and haven't had a day where I can actually say "hey, today I feel better." It's constant discomfort. I have been getting huge headaches, I was given a Vicodin once for the headache and I felt no relief at all. The next time I had a headache, I was given 2 Percasets and felt somewhat better. I was getting my blood drawn every 4-6 hours the week I was at the hospital and now I'm getting my INR checked every Monday. It's been 2 months and I have had my dose switched many times because the anti-coagulation service can't seem to find the right dose for me. It has been low and it has been high. It's been 2 months already and out of those 8 weeks I think it's only been fine maybe a week. I guess things can always be worse but Coumadin is for sure not the best medication out there. F 23 2 months
11/23/2006
Email
 5  Multiple PE's in both lungs & DVTs Heavy periods, mild depression & anxiety possibly due to health concerns vs. medication I have to take a 14 mg one day and 13 mg the next to maintain my INR. I am uncomfortable taking that large of a dose but luckily I haven't experience many adverse effects. I was told I have a lupus anticoagulant and therefore will be on coumidin for life. I am not too happy about this and am concerned about having children...but I am extremely lucky to be alive and the medication helps keep me safe. F 29 4 months
11/21/2006

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