COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | atrial fib., stroke | Frequent bruising, often spontaneous. Nose bleeds. | I started Coounadin in 1992. At that time I was monitored at a finger-stick INR clinic. When the clinic closed in 2003 because it was losing money under the federally regulated system of reimbursement, I went off Coumadin, stayed on baby aspirin one a day. My INRs fluctuated too much. Then I had a stroke in 2005. I decided to go back on Coumadin, found the one and only Coumadin Clinic in a doctor's office in town. Then I had some coronary drug-eluting stents put in. That cardiologist put me on Plavix in addition to Coumadin and aspirin. He instructed me to keep the INR between 1.8 and 2.5. I weigh and measure vitamin K foods, and take 2.5mg. Coumadin daily. Well, the stents are still patent after almost 3 years. And no new stroke, yet. Ginger potentiates warfarin unpredictably. Amiodarone raises INR off the scale. Once a month INR monitoring is usually not often enough, for me, at least, in spite of measuring my food. Too many other oncontrolled variables. Patients who can | M | 79 | 18 years | 1/5/2008 | 5 | Antiphospholipid Antibody Syndrome | no side effects as yet | I have ischaemic chnages in the small blood vessels of my brain due to many TIA's because of this I have seizures, memory loss, language dysfunction(at times), cognitive dysfunction. Since starting warfarin I have had 75% reduction in seizures, no language dysfunction, my memory is slowly recovering and no TIA's. Warfarin has made a dramatic differance to the quality of my life so far. | F | 40 | 3 months | 1/5/2008 | 1 | DVT; heterozygous Factor V Leiden | Fatigue, headaches, lethargy, depression, irritability. | I seem to have headaches constantly. This is frustrating, because any medication you take (NSAID's or Tylenol) impact the PT and INR, and can skew your level. I love to eat salads and vegetables, and now these are taboo. My hematologist states that I have to take this medicine for life. I am giving it 12 months. By then the clot will be gone, and I will go back to being myself. I truly dislike the person that I have become with this blood clot and coumadin therapy. For 53 years I never had any problems, although I am heterozygous for Factor V Leiden. Now, taking HRT post-menopausally, I developed this clot in less than 8 months. What I plan to do is never do HRT again, get off of the coumadin, be myself again, and wish for another 53 years of clot-free life. Being heterozygous caused me to have my daughter testesd. She also is heterozygous. This is good information for her. She never should take an estrogen-based birth control pill. If you have Factor V Leiden, heterozygo | F | 53 | 4.5 months | 1/4/2008 | 3 | PE Right Lung | Excessive shedding of hair, chills, night sweats, dry skin, fatigue, heavy menstrual cycles | Starting taking after the birth of my son. Physician wasn't very informative and automatically told me I would need to take it for 6 months or more. I only had one blood test and he didn't advise me of any side effects or does or don'ts such as limit greens and no cranberry products. Thank God for prescription inserts that give some drug interaction information. I stopped taking warfarin approximately 1 1/2 weeks ago. I am currently looking for a new phsyician but in the meantime, praying over myself. I don't know if the medication was helping or not but I do know that it was causing some ill effects and it seems like I am not the only one. Keep the comments coming. | F | 34 | 2.5 months | 1/3/2008 | 5 | PE during pregnancy | MAJOR hair loss, weight gain | My confidence/self image took a major hit from the loss of my hair and the weight gain (after already gaining 25 lbs during pregnancy) but I've learned to live with it. I throw on a wig, get a weave, whatever...at least I'm alive. I know so many people who have been killed by clots - I'm not about to complain about the medication that is keeping me healthy. I'm open to emails from ppl with similar experiences... | F | 26 | 8 months | 1/2/2008 | 3 | dvt/pe/factor v leiden | HAIRLOSS, weight gain, flatulence, dry skin...numerous issues, not sure if they're related. | F | 52 | 6 years | 1/2/2008 | 3 | DVT FEMORAL ARTERY | I HAD SECOND TIME KEYHOLE SURGERY ON MY RT. KNEE DEVELOPED CELLULITIS SIX DAYS POST SURGERY STAYED IN HOSPITAL FOR THREE DAYS PUT ON ANTIBIOTICS LEG CONTINUED TO SWELL WAS TOLD BY DOCTOR SUSPECTED BONE INFECTION ADMITED BACK INTO HOSPITAL CLOT STARTED IN THE CALF OF MY RT.LEG AND MOVED UP TO FEMORAL ARTERY WAS PUT ON HEPARIN INJECTIONS FIRST THEN PUT ON WARFARIN FOR SIX MONTHS HAVE BEEN TAKING FOR FOUR MONTHS DUE TO FINISH IN FEB.2008 HAVE HAD DULL HEADACHES,WEIGHT GAIN,SEVERE MOOD SWINGS NO ENERGY AND LACK OF SEX DRIVE SINCE I HAVE BEEN ON THE MEDICINE REALLY FELL HOPELESS MOST OF THE TIME NO DESIRE TO SOCIALIZE WHICH I HAVE ALWAYS BEEN A VERY OUTGOING PERSON AND VERY BUBBLY I AM GRATEFUL TO STILL BE ALIVE BUT, FEAR THE AFTER EFFECTS OF THIS MEDICINE. | F | 48 | 6 months | 12/30/2007 | 2 | fvl and 2 provoked DVT's | Sleep much longer than before and just cannot wake up at usual time. Feel very foggy. Water retention, less urine output than before. Very bad joint, back, hip pains. When INR is too high I have heart palpitations. Most notable is hair loss. I have always had long, thick hair, but now it falls out from the roots just washing it in the shower and gently brushing it fills my hairbrush. The only good thing is my leg with the DVT has improved, with reduced swelling and less pain. But I absolutely hate the coumadin side effects. I took Lovenox shots for 17 days and would far prefer giving myself those shots again instead of taking this poison. | Some scientists somewhere should invent something better than a drug that is also used to poison rats for us to cope with factor V Leiden and other clotting disorders. Just because coumadin/warfarin is cheap is no reason to stop pharmaceutical research aimed at a better drug for clot control. I HATE THIS DRUG!! | F | 45 | 4.5 days | 12/29/2007 | 3 | DVT | Thirsty, irritable, headaches, easily bruised, always cold | I have found that drinking lots more water helped my headaches. Also my mood swings were out of control. My doctor recommended taking St. John's Wort (available at grocery stores in the vitamin section). It has helped my mood tremendously, however, I have had to slightly increase my dose of Coumadin - presumably as a result, but I think it has been worth it! | F | 37 | 8 months | 12/28/2007 | 2 | Sinus Venus Thrombosis | It started with extreme weakness, irritability, lack of appetite which came back an then some. Very confused, dizzyness, short memory loss, problems with language and vocabulary, lalck of concentration. Very tired all the time, and depressed. Numbness in the am of hands, very distracted at times, and vision sometimes blurry. | I was diagnosed with SVT in June 07 from a sever headache I thought. Started heparin and coumadin in the hospital, released in July, and my racking horse fell with me in Sept. 07 which cased a terrible head and face injury. My brain bled (subarachnoid hemorrage), the docs stopped coumadin, now that the brain has stopped bleeding and I am out of the hospital, they have me back on 7.5 mg a day and want to increase it. I plan to talk to doc and come off the med and go on aspirin or plavix or some other anticoagulant.Sorry, I do not recommend this med for a long period of time. I would also like to hear from others with same or like experience. | F | 41 | 6 months | 12/25/2007 | 3 | Pulmonary Embolism | Weight Gain- 17 lbs in < 2 mo, cold all the time but sweating. horrible armpit BO with deoderant, tired all day, depressed, forgetful, foggy mind, heart palpitations, anxiety, shortness of breath, hair is constantly falling out. | Dr.s not sure why I had the PE. 7 weeks before it happen I have abdominoplasty or perhaps from dose of the plan B pill, which is high dose of BC pills 5 weeks before it happen. Dr. wants me to take coumadin for 9 months to be sure. | F | 32 | 2 months | 12/17/2007 | 1 | Atrial Fibrilation | My 84 year old husband was taking Coumadin for three years. He expeienced a very minor fall in our driveway which resulted in a hematoma on his spinal cord. We were told by his doctors that this is being seen more and more and only in Coumadin users. He experienced severe pain, paralysis, incontenance and anxiety for six weeks before his death from "spinal cord hemorrhage". It was worse than the stroke he had hoped to avoid. We were never advised about this risk! | This "worst-case" scenario regarding the use of Coumadin should be made better known by the pharmaceutical industry. Think twice before taking it. | M | 84 | 3 years | 12/17/2007 | 2 | DVT - right calf, bilateral PEs | dizziness, loss of appetite, confusion, memory problems, very intense weird dreams, loss of energy, feeling foggy, get freezing cold very easily, sadness for no apparent reason, skin getting kind of papery and pale | They believe it was oral contraceptives that gave me the DVT. I am used to being pretty athletic and sharp/clear. Typically, I enjoy rigorous exercise and train daily at the gym 5-6 days a week (cardio & weight lifting). I'm usually in great shape and am an upbeat overall happy person. But this medicine is making it all very hard. Some days are worse then others and the bad days are extremely frustrating. To make it worse, the clinicians I see at the coumadin clinic all say these are not side effects of the medicine. And they sent me to the ER - where I sat for 6 hours freezing half to death - to get a CT scan of my head. It came back negative (big surprise) and the doctors looked at me like I was being hypochondriacal or something. (However, these are the same ER docs that sent me home - twice - with severe PEs - untreated and undiagnosed). Thankfully my primary care did her homework on the medicine and does see these as side effects and she's been very supportive. She t | F | 37 | 2 months | 12/7/2007 | 2 | DVT, 2 genes that cause bloodclots | It makes me so tired and puny. I constantly fall asleep, even in public. My hair falls out in clumps. I'm always cold. If I have one drink I feel like throwing up. I get nauseous very easily. | I'm stunned that this many people have the same side effects, but none of them are listed. Warfarin sodium is the same thing in rat poison. I feel like I'm poisoning myself with this stuff. I'm only 25 and they want me to take this for the rest of my life? No thank you! | F | 25 | 2 years | 12/5/2007 | 4 | Factor V Leiden / DVT | 7/8mg daily. Minimal hair loss, mood changes (slightly apathetic at times), acne (likely from stopping birth control), bruising, excess bleeding (gums and menstrual). | The first few months on Coumadin are the worst in terms of side effects. Eventually your INR will stabilize and the side effects will become less and less. I still have some very minor hair loss, but the bruising and bleeding has subsided. It may seem frustrating at first, but try and stick with it. I know it's not ideal, but for those of us with Factor V it seems to be the dominant option so try to make the best of it. | F | 26 | 7 months | 12/4/2007 | 4 | TIA's | Thirsty more often, periods not longer or heavier than usual but heavy clotting (not every day). Already had thin hair but it seems to be getting thinner. Restless legs have come back since Coumadin but taking Iron 2x a week aleviates that problem. I can't really associate restless legs w/ Coumadin since I had it a few years before from lack of Iron. | I will be on it for life. I had a stroke in June 2007 and TIA's, no permanent damage. My coratid artery in my head (Left side)collapsed in on itself (including all of the little viens that branch off of it) either due to a disscetion or I was born that way. Doc can't determine which. (no pre-stroke scans to compare). I have no clots but he wants my blood thin enough to get thru the coratid. I only got my INR up to 2.1 once in the 3 months on meds. This week they put me on 10mg 4X week with 3X at 12.5mg. I'm still trying to get more consistant with my diet to get my INR up to 2-3 and stay stabalized. E-mail me with questions or discussions. Another coumadin patient sent me this link to Vitamin K foods (it includes other vitamins/minerals etc.)its a very extensive list and has detailed info on Fast Food places, canned goods and more. http://www.nutritiondata.com/foods-000104000000000000000-1.html Taking rat poisen and blood tests are now part of my life routine. Without it I WILL have | F | 45 | 3 months | 12/1/2007 | 2 | aortic valve replacement | I have had migrains for over 25 years, now the headaches are worse, with new dx of occipacal neralgia (nerve HA). Mood swings very irritable and snappy. Gastro upset (bloating, gas, pain in right side) ct, xrays and US all negative. Pretty much feel crappy all the time with no energy. Just thought it was me until I read this sight. I am a CMA and work at a clinic. Thought I was going crazey until I see many people feel the same. | There is hope, Im in the medical field and the drug companys have been working on an alternative drug which wouldnt interfere with food and vitamins. This is the most frustating thing with this med. I like my greens, sneeky trick one large salad/broccili one drink, keeps your INR in range. For people that complain about chest pain check your magnezium level, mine was low due to decreased vit k intake. Low mag. causes muscle spasms, which your heart is one big muscle. Im sensitive to any adjustment done on my med., for people that dont stay in range, the generic has a tendency to flucuate your INR. I pay a higher copay for coumadin and my ranges are now stable. Plus the generic gave me the worst acid reflux I had ever had. Hope some of this helps others. Wish the ins. company's would read this sight so I wouldn't have to pay 40 instead of 10. | F | 43 | 7 years | 12/1/2007 | 1 | Supposed DVT | On Coumadin x 6 mos,felt bad entire time. Cannot get PT/INR at appropriate level no matter what dose. Tired, feeling out of sorts, can't sleep, you name it. | Since being on Coumadin, never got PT/INR right, going to office once a week, finally had enough now go only every 3 weeks. Have been as high as 7-9 mg day to as low as 2.5 mg day depending on what nurse I see. Never have salads/greens any more. Not too much bleeding unless on high dosage. Feel worn out on high dose. I am definitely feeling like stopping real soon. | M | 65 | 6 months | 11/25/2007 | 3 | DVT..Factor V Leiden. | Hairloss....Dizziness..Sleepiness...Loss of energy..Burning in my legs and arms..Stomach pains..Depression.. | I am giving my rating a 3 because it is stopping the blood clots..but causing other problems...Is it worth it? I Started taking Coumadin for a DVT I got in 2001...I received the filter...I was to take coumadin only for 6 months..Then they ran the genetic tests for FVL and I have it so I have to take it for life. I have been told that there are no side effects of this drug..but I did not feel this way before...I now am told that I have tumors in my spleen and paraaortic lymph nodes...Possiable Lymphoma. I feel it is from this drug...I want to know I am not losing my mind. I used to be so out going and intersted in life. Now it is all I can do but to get out of bed. The pain in my right leg, spleen, and right ovary area, is more than I can take. If anyone out there is having a simular problem please email me. | F | 30 | 6 years | 11/20/2007 | 4 | dvt developed after hormone course | I developed dvt following a course of hormone treatment prescribed to help with severe menoragghia. The warfarin obviously has an effect on the heavy bleeding I experience due to the existing condition. Side effects include, nausea, vomiting, dizziness, severely itchy scalp, and ears. Hair coming out. Dry patches of skin on areas of body. Bruising very easily. Fatigue and deppression. | No point moaning about it. The effects of taking it can't be any worse than risking not taking and allowing a potentially life-threatening clot to do it's nasty business. | F | 43 | 8 weeks | 11/16/2007 |