COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | PE Right Upper Lobe & DVT Rt Calf | Fatigue/low energy, Sensitivity to heat, increased joint pain, do not feel like normal self | Many doctors have told me that comundin does not have side effects other than issues related to bleeding. I was placed on coumadin 2x and when I came off the coumadin the first time my energy levels turned to normal, my joint pain decreased, and I felt like my normal self. Unfortunately, I am coumdin again and I am due to come off the coumadin in September. | M | 47 | 20-22 mg 1X day | 8/10/2010 | 4 | Multiple Clots in leg(s), PE | Pervasive mild nausea, lingering headaches, dizziness, [very] loose stools, trouble sleeping, odd feeling I might be getting a flu... | Had a checkup with Dr yesterday, described side effects. He said some people have this group of symptoms while on generic coumadin- he recommended I switch to true coumadin after my vacation (as the dosage will probably be different). | M | 27 | 4 weeks 2.5-10 mg 1X day | 8/5/2010 | 4 | PE, Ascending Aortic Anuerysm | WEIGHT GAIN, scatterbrained, sometimes vertigo, palpitations, severe acne on face and chest, fatigue. Very blah feeling most of the time. | I was in the hospital for 8 days after discovering clots in my lower right lobe and upper left lobe. They say probably caused by birth control, was put back on the mth before to regulate my cycle. They found the anuerysm at the same time as the clots. I was so happy to find this site, cause I thought I was going crazy. I changed my diet(my dr said he would work with me and the coumidin so i could eat healthier), cut down on salt intake, portion sizes, ect. And I am gaining weight steadily. Almost 20lbs so far. I have mentioned to my husband many times that I feel like I lost brain cells in the hospital. I went from having a fantastic memory to having to write things down so I do not forget them. I am utterly grateful to be alive, but I hope in 2 mths I will be able to stop taking it safely and see if it makes a difference with how I feel with the fatigue and general malaise. I really hope I drop the weight too. Its depressing to weigh more now than I did when I was 9 mths pregnant with any of my 4 children! | F | 32 | 4 months 7-8mg 1X day | 7/29/2010 | 3 | dvt in leg & pe | Fatigue, hair loss, memory problems, speech issues | Supposedly there are no side effects from coumadin so when I was having extreme fatigue, hair loss, memory issues, and tripping over my words like I had a few too many, I decided to Google the drug. I'm so glad I found this sight! In March I was hospitalized with a dvt in my left calf and a pe in my right lung. I've been on warfarin 4 months and just had my leg checked. My clot is gone which is great but I have to continue the drug until September and then the Dr is going to do extensive blood work to make sure there's no issue with my blood. He's assuming birth control is the cause. Biggest frustration is medical field says there are no side effects. I know it's the drug since everytime they increase the dosage my symptoms increase! It obviously treats clots and is necessary but it'd be nice if doctors would recognize what we all are experiencing. | F | 40 | 4 months 7.5+ 1X day | 7/25/2010 | 4 | Factor V lidden | The blood bank bruises my arms they go in then they half to wiggle and twist the neddel to finely get blood flowing I look like I have been in A dog fight. | M | 70 | 30 years 7.5 MG 1X day | 7/23/2010 | 3 | DVT in calf/Factor V | FATIGUE, some hair loss (not extreme...no bald spots or anything, just more coming out in the shower), mild memory issues (I agree with the, "Did I take my medicine?" comment below!), weight gain, dizziness, some episodes of heart pounding hard when lying down. | While I am thankful for this medicine for getting rid of my clot (from Factor V + Nuvaring + long road trip), the side effects are bad, and yes, my doc (who I like and respect) won't admit that they are from the coumadin. Fatigue is the main problem. I have found that the following help (which is why I'm posting, to help others on this stuff): 1. Consistently get 8 hours of sleep a night. You can't cheat yourself on sleep at all on this stuff. 2. Moderate exercise. Yes, you're tired, and the last thing you want to do is work out. But do something....bike, walk, lift weights. It helps some with energy and water retention. 3. Drink more water than usual. I found that I was not as thirsty as I usually am on this med. However, drinking more water seemed to help with the water retention (I would lose weight literally within a half hour of drinking a bunch of water!), dizziness, a bit with energy, and also with the heart pounding issue. This med seems to mess with the water balance in your body. 4. Do what they say and go easy on the alcohol, which increased the side effects for me. No more than two drinks in one sitting, and drinking a couple times a week tops. You can drink, but you have to be careful. Good luck everyone! My heart goes out to folks who are on this long-term. | F | 36 | 3 months 8 1X day | 7/21/2010 | 1 | DVT (left leg) & PE | Increased hair loss, severe severe fatigue and weakness, terrible muscle aches, feel like I have the flu. | The Mayo Clinic and NIH web sites describe some of the less and more severe side-effects of Coumadin. Print these pages and show them to your doctor(s). These organizations recognize what Coumadin can do to people. I want to scream when a doctor tells me my symptoms are not from Coumadin but because I am depressed. This is NOT depression! | F | 41 | 30 days 4 MG 1X day | 7/21/2010 | 4 | DVT- left leg | EXTREME fatigue - around 1-2 pm every day I could collapse...that's how tired I am. Joint and muscle pain is pretty severe most of the time. Mild headaches occasionally. Never had any of these symptoms before taking warfarin. | I am so glad to have found this site. I was starting to think all of this was just about getting old, but now I'm more positive it's the drug and will feel better once I'm off it - which should be in another 30 days...hopefully. The medical profession refuses to admit that this makes you sick. More than one doctor has told me there's no side effects! I wish they could all read what all these people are saying. I feel so bad for anyone that's a lifer on this poison. | F | 51 | 60 days 10 1X day | 7/18/2010 | 1 | Bedridden during hospitalization | Up though 3 weeks post 14 days usage: Swollen backside of tongue (affecting ability to talk), cold sensitive, severe itching, agonizing joint/muscle pain, finger joints had razor blade/glass chard sensations, tremendous fatigue, no grip strength, total body weakness. Taking Coumadin proved to be a gruesome experience. Untill I read this website, I had no clue as to the cause of my suffering and fear. Now, I worry as to how long before these remaining side effects are gone ... | F | 54 | 14 days ? 1X day | 7/11/2010 | 3 | Blood clots throughout right arm | Depression, forgetfulness (especially very short term memory; like did I take my medicine or not?), lack of concentration, constantly misplacing things, mind is in a fog a lot, lower back pain. I'm sure there's more but, like I said, I forget a lot of things! | I had LEFT shoulder surgery on 01/25/10 and wound up with extensive blood clotting throughout my RIGHT arm after surgery. All signs point to poor positioning of my body during surgery. I was put on Warfarin a few days later after being hospitilaized and treated with Heprin. I'm not sure how much the Warfarin has helped the clots. My arm still "pumps up" with light exercise, is shaky and I have a real hard time with my hand writing. After a few lines it's like I lose control of my fingers. Overall, my experience with this drug is the worst 6 months of my life although the depression symptoms have tapered off (thank God). I went to my doctor after a couple of months on this drug to talk about my symptoms. He said that depression was common in patients with blood clots but that it could not be from the Warfarin. He pulled out his handy pocket PC and looked at the listed side effects so he knew he was correct. To that I said BS! He prescribed me a anti-depressant that I took for about 3 days. It made me so feel so bad that I could hardly get out of bed. I'm just waiting for the end of this month to get off of this stuff. | M | 43 | 6 months 5mg 1X day | 7/10/2010 | 4 | Foot to hip DVT twice and FVL | Very disabling joint pain in my knees, ankles, and hips. Also, joint pain in my shoulders, wrists, and fingers, but the most disabling side effect is the joint pain in my knees, hips, and ankles. I also experienced hair loss the first year in 2007. I'd be washing my hair and it would come out in bunches in the shower. One good thing is I've noticed this summer 2010, my hair has begun to fill in a little bit thicker. The bad thing is my joint pain has just gotten worse. After 3 years on Coumdain, I still feel as tired as I began to feel after starting the drug in 2007, and I still feel cold when other people aren't. But none of the side effects are as bad as the joint pain. | I'm on Coumadin for life until another drug is created. If a new drug is created, I hope it doesn't cause joint pain because I cannot walk unless I take hydrocodone for the joint pain caused by Coumadin. I can deal with the hair thinning, the cold, and the tiredness, but the joint pain is the most disabling side effect I have taking Coumadin. | F | 55 | 3 years 7.5 mg 1X day | 7/6/2010 | 4 | DVT left leg | Very tired; mind very foggy; forgetful!; weight gain; aching knees; muscle stiffness; extremely, extremely heavy periods. | Dr. recommends to be on coumadin for 1 year for best chances of 'dissolving' DVT. It's been 9 months. Going to make appt. to get off soon. Interested to see if there is a difference - or if it's just age! | F | 44 | 9 months 10 mg 1X day | 6/29/2010 | 4 | Factor 2 Mutation/arterial clot | Exhaustion, horrible periods, wake up feeling awful- every day. Too tired to do much which has caused me considerable weight gain. | I have Factor 2 gene mutation and have had one clot in the artery in my upper left arm, my brother has the same gene mutation and has had 2 PEs. I definitely don't want another clot, I almost lost my arm in the last one, but there has got to be something better than this!!! I went to the dr.today to get the results back from last week's INR and it was 3.2 which is slightly high, but last time it was only 1.8 both times I was on 10mg. - it is so hard to stay within range even when you are on the same dose. | F | 40 | 2 years 10 mg. 1X day | 6/24/2010 | 4 | Metal heart valve | some bleeding but not alot. fluctuating INR | can't wait till they develop a blood thinner that is easier to control | M | 59 | 2.5 years 12.5 1X day | 6/19/2010 | 4 | Left hip replacement. | Lack of consentration, heart beats stay high which make it hard to get a good night sleep, sensitive teeth and gums, headach for hours especially after taking it, cold all over and it shiftys. I only realized this when I found other coments. | I have an aditional 40 pills left. After reviewing this site I will see if my doctor switches it. | M | 46 | 6 days 5 1X day | 6/17/2010 | 5 | none | INR varies upon with diet. Healthy equals thicker, less fruits/vegs equals thinner. I eat healthy and let the dosage increase, as necessary. Absolutely no bleeding issues. Do everything I did previously, including hiking, weight lifting, running. | M | 56 | 480 days 10 1X day | 6/15/2010 | 3 | DVT Left leg | Light headed, can't find the right words, sound stupid in business meetings, am stupid, in a constant fog, irritable and intolerant, tired all the time. I feel like I wake up every moring with a hangover - headached, feeling horrible. | It's a life saving drug. It's a good drug because it can quickly be reversed. But, I'm so sick of feeling horrible, and my work performance is suffering, and I'm miserable. I can't stand this another day! | 46 | 160 days 7.5 mg 1X day | 6/15/2010 | 4 | Bi-lateral PE's- blood clot in leg | My main concern is the fatigue. I can't tell if it is related to the medicine or the change I am experiencing in my life since the PE's were discovered. I'm glad to hear others are also feeling fatigued. | F | 48 | 39 days 7mg 1X day | 6/11/2010 | 1 | massive pulmonary embolism | can't sleep on my side, shoulder joints hurt, diarreah, memory loss. | So now I live in a recliner because I cannot sleep on my side more than a few minutes, not much sex in my recliner either! My knees, shoulders and hips hurt so bad I cannot walk around the block to help get healthy again. So cranky the dog avoids me. I could shoot crap thru a screen door. Started eating pain pills like a fiend, that has to be good for me. One more month, then I throw these things away. I will try nattokinase, but I can't handle coumadin. Let the Lord take me home if that is the only cure for my clots. I can't do my yardwork, so she does, that just aint right. Doctor insists these aren't side effects, but I never had a dang thing wrong until this. | M | 54 | 5 months 2.5 1X day | 6/11/2010 | 5 | coronary aneurysms | My son is ALWAYS cold, I have to constantly have a jacket with us. He of course bruises very, very easily especially if his levels are high (which they have only been a few times). He also of course bleeds easily (childhood cuts and bruises are FUN!) Being a child his diet is unlimited, we just have to adjust his medication as needed. He tends to level out, spike, then bottom out and it's time to increase the dosage. | M | 7 | 5 years 5 MG 1X day | 6/10/2010 |