COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  Factor V Leiden not sure if the side affects are related to coumadin...but definite weight gain :-( and occasional headaches since taking this drug I had a blood clot travel to my colon 4 years ago, and through testing, discovered it was FVL. Initial diagnosis was crohn's disease but a great gastroenterologist was suspicious of that and ordered the blood testing. My doctor told me that this is now happening due to age - our veins become less flexible as we become older and most likely any clots in earlier years were passed easily. I never had any problems until this happened and was surprised at the diagnosis. I have not had any clots since taking coumadin and so will continue. I'm not perfect with it, but having a home testing kit is wonderful - no more hospital visits for testing; I just call in the results. I've been working out and watching my diet for 4 weeks with NO weight loss - so frustrating! Probably due more to age than the coumadin? F 53 4 years
2/2/2008
 5  Multiple large PE's I can't say that I have noticed any specific side effects. My problem with it is the testing required. We travel a lot and I am having trouble finding clinics that will do the INR for me Does anyone know of any anti-coagulant clinics in San Diego? F 62 4 years
2/1/2008
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 5  stroke/ t.i.a.'s some hair loss,extensive bruising;especially when doing yard work.queasyness,strange metallic taste to lips and skin,bruising to feet and knees;I walk 3-4 miles per day and my feet and toes swell and turn dark colored. This drug has been a blessing to me because I was unable to take Plavix(strange mood swings)and injecting Heparin caused worse bruises/pain than the coumadin.The worse part of taking this medication is the embarisment of constantly being covered with bruises;people wonder if my husband is a wife beater.Wearing shorts and a t-shirt,or a bathingsuit is upsetting because everyone stares at my bruises. I tell many people I have a blood clotting disorder,and take medications to treat it; everyone seems o.k. with the reason.The bruises ache and hurt constantly. I will have to take this medication for life(oh joy!!!!) F 46 4 years
2/1/2008
 4  DVT/Homozygous Factor V Leiden General feeling of depression is a constant battle for me on coumadin. I've decided to find alternative ways to keep my blood thin because of the depression, weight gain, and headaches brought on by the drug. M 20 6 years
1/31/2008
 4  PE left lung They say I got the PE from taking Birth control pills. The only thing that came back from blood tests as far as anything wrong with me is both genes from MTHFR. However, my homyocystine level is normal. Really, it only took about a month and a half to get my INR steady between 2.5 and 3.0. I don't eat a lot of salads or greens, which I don't like, so I'm not thrilled about that, but I'm alive so that's what really matters. This drug really is a life saver. For about 2 or 3 months, I was very tired and didn't feel quite like myself, however I really don't know that this was all due to the Coumadin. A clot is a serious issue and your body adjusting to things like this take a toll on you. I have been on the drug, since Feb 07. I shed a lot of hair, it wasn't coming out in clumps, but it was shedding in the shower and all over the house, and really wasn't growing much either. My hair was noticably thinner. It was until about Nov or Dec that the shedding really stopped and now a F 28 11 months
1/31/2008
 3  Left leg/PE Skin rash, nose bleed one time, anxiety, severe heartburn and gas, weight gain, difficulty waking in the am I was training for a marathon when this occured. I was on birth control pills and a smoker for 5 years. Family history of blood clots. Found out I have protein C deficiency whatever that is and still waiting on more tests. Getting my blood tested every 2 weeks now. I constantly feel bloated and my things are growing by the minute, even though I am exercising again. Does anyone else have proein C deficiency? How are you losing the weight you've gained? F 26 2 months
1/30/2008
 3  3 DVT in right upper thigh Headaches, heavy periods, irritable, itchy skin, hair loss, hot and cold all the time. I have been taking coumadin since 2000, 2 months after the birth of my daughter. I was on coumadin for a year and a half. Doc said it was ok to get pregnant again. 6 weeks into that pregnancy, I got another clot in the same area. Then a 3rd clot in 2005. I am now on coumadin for the rest of my life. I have constant pain and swelling in my leg. I have to wear the anti-embolism stocking. I have had all the genetic testing done and everything comes back negative. However blood clots have been on both sides of my family. No one can give me an answer as to why I get blood clots, so therefore I can't go off the medication. I take Zoloft for stress, and was taking Topamax for my headaches (which made me feel like I was in another world). I took myself off of the Topamax, and now the headaches have returned. I hate having to deal with this everyday, especially for the rest of my life. I have also taken Lovenox and Heparin injections, which make me more sick. I cannot get my INR at a F 29 7 years
1/28/2008
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 2  atrial fib tired, cold hands, not sleeping, sinus/eyes feel full, mind in a fog --seems to effect thinking analyzing I take 7.5MG for 5 days and 5MG for two days--they keep changing as blood count never gets above 2.2 sometimes 1.8 --also take 50mg of toprol-metroprolol. I exercise daily & play 4 wall handball weekly but lately have been running on empty tank. Fear I may black out driving or baby sitting grandkids. Still work FULL TIME. blood pressure/pulse okay even when tired--for first time in my life relatives &-- people at work even say i look tired--totally confused & worried--meeting with doc 1/30--want to try going off meds for month & see how my body feels--MANY PEOPLE ARE WORSE OFF THAN ME BUT WHEN IT IS YOU NOTHING ELSE MATTERS--BE WELL--THANKS FOR THIS SITE M 66 4 months
1/26/2008
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 3  Aortic valve replacement NO hair loss, at least none that I've noticed. Migraine headaches, mostly white spots that impede my vision, usually lasting 5-10 minutes. I get cold a lot faster now than I did. My heart races at night also. Glad to hear others are feeling that too...I thought I was having panic attacks. Haven't noticed more brusing or heavier periods.....I'm on 6mgs daily and have been pretty stable. I hate having to take it though. Pain in the butt! I wish they'd come up with something that didn't interact with aspirin. I have mild arthritis from playing sports and Alieve was the only drug that relieved my pain, now I can't take it, although I do sometimes when the pain gets really bad. I'll take my chances. F 39 6 months
1/24/2008
 3  DVT - upper right arm Fatigue, depression, irritability, weight gain, water retention, zero libido, mild flatulence! I was diagnosed at the end of 07. The specialist said it was “idiopathic.” I think it’s probably because I used to smoke (not any more!) plus I was on zoladex (gosrelin) March-Sept 2006 to combat endometriosis: zoladex basically puts you in a state of artificial menopause so that you stop menstruating. When you come off it you start producing oestrogen etc again – I can’t help thinking the rising oestrogen levels kick-started something? I’m extremely resistant to the blood thinning properties of Coumadin! I started on 5mg daily plus had to self-inject Clexane twice a day. My INR was 1.1, then 1.2 then it stuck at 1.3 for over two weeks whilst they played around with my dosage. At 10mg it inched up to 1.5, so my GP put me on 14mg daily and I finally made it over 2. At which point I stopped the Clexane. Today I scored a 3 so I’m down to 12mg. I’m so glad I found this website as it would appear lots of you have been experiencing side effec F 46 4 weeks
1/18/2008
 1  Lone Atrial Fibrillation Fatigue, Swelling, Nosebleeds, Rapid Heart Rate, Higher Blood Pressure, Feeling of falling, light-headiness, nausea my husband was on this medication for about 3 months, when the Dr. said there was nothing else he could take, he decided to stop taking the medication as he felt the loss of quality of life was not worth the benefit of this medication. We eventually saw a doctor who suggested an alternative Called Sintrom, which has all the benefits of Warfarin but is better tolerated by people who just can't take Warfarin. He has only been taking it for a short time, but so far it seems to be doing the job without the side effects. I pray that it continues to work. The doctor who told us about this drug said a lot of doctors don't know about it, but it has been around for a while. I would suggest you talk to your doctor and see if this is available in your area. We live in Canada, so don't know if it is available in the US or not. Good Luck. M 65 3 months
1/17/2008
 4  DVT Dizziness Hospitalized 4 days taking Lovinox shots, then 4mg of Coumadin. Went home, GP checked blood and increased dosage to 5mg with no monitoring scheduled until 2 wks later. On day 12 experienced severe dizziness, nausea, diarrhea, went to ER. Test showed level off the charts. Got IV of Vitamin K, more shots, level back to normal after 4 days, back home taking 4 mg again. So far so good. F 65 3 weeks
1/16/2008
 2  DVT & PE in both lungs Cold most of the time and when I'm not cold, I'm sweating and flushed feeling. I've had episodes of feeling faint and weak. My eyes are blood shot as soon as my INR reaches 2.9 or above. My hair is falling out and I'm developing a bald patch. My weight fluctuates, but I'm not sure if that's due to the inablility to exercise. My skin bruises and heaven forbid I knick myself while shaving. I am constantly tired and I can't get to sleep at night. While I'm grateful that there is a drug out there to help us, I feel the same way as everyone else...Why isn't there something better? I may have to be on this the rest of my life due to the damage my leg endured and the recently diagnosed clotting disorders, and that scares the hell out of me. F 24 5 months
1/16/2008
 1  DVT/Lungs filled with clots Massive hair loss. Depression. Mental fatigue. I also have fibro myalgia. I have taken coumadin for forty years! I have had many surgeries and I think the coumadin is responsible. Last month I had to be off the 10mg. that I take every day for yet another procedure. I felt better after two days. I haven't felt that good in 15 years. I could go and play with my grandson. It was wondrful! I told my doctor who said coumadin had no side effects. I felt better every day for those five days you can't make me believe it was a five day miracle! I am going to try again tomorrow to talk with my doctor and hope that he can change my meds. F 59 40 years
1/16/2008
 2  venous sinus Thrombosis All ways tired, Unable to keep my body temperature stable either I am freezing or having night sweats. Constant bruising even on my toes top of my feet fingers and hands. Bleeding for no apparent reasons from small cuts. Some times I don't even know I am bleeding until I find dried up blood some where. Mood swings weight gain, looking puffy. Heavy periods with large clotting. Joint pain as if I have the flu. GI problems. Tingles in my hands and feet. One week the blood test is at the right lvl next time it will come up as I am not even on it. It has not broken down the blood clot in the vein in my brain. I have been on it for 5 months now F 37 5 months
1/15/2008
 1  mechanical aorta valve replacement dizzeness, hairloss, legs feel so heavy they burn, scalp itches, memory loss, pain in shoulders, easy brusing, no sleep, numbness in fingertips, tired, i opted for a mechanical valve on advice of my doctor----had i researched this drug i would have went for a pig valve or even a cadavere one--------wish i could get off this pill-i also have to take a high blood pressure pill, which also have bad side effects-have to take for the rest of my life-----hopefully one day they will find a better drug- F 63 11 years
1/14/2008
 3  Bi Lateral PE Tiredness, lethargy, loss of appetite in AM, loss of interest in intimacy i.e. sex drive, mood swings, irritable, can become exhausted with out warning in the middle of the day, depression. Will probably be on it for at least a year. M 43 4.5 months
1/12/2008
 2  A fib Cold all the time, reflux, bloating, gassy, and definite weight gain. Hopefully after my heart cath I will be able to come off this crazy medicine. I do not like how I feel taking it. M 52 3 months
1/10/2008
 4  Mechanical Mitral valve I have noticed a substantial thinning of my hair. It was thick and wavy/curly now it is getting thin and the curl is gone. My skin is dry most of the time. I sometimes get very tired and then at other times feel good. I don't sleep as well as I used to and the dreams are sometimes disconsorting. I bruise easily and if I pick at a dry spot on my skin the bleeding takes hours to stop even though my INR is in the theraputic range of 2.5 - 3.5. I have been on coumadin for 5 and one-half years. I noticed many comments about mood etc. I know that since the introduction of coumadin to my life(although no other alternative is offered if I want to live) I get more easily down in the dumps. It also has created some erectile dysfunction issues. I would love an alternative so that I can get off the "rat poison" and on to something with fewer side effects. M 56 5 years
1/9/2008
 3  dvt in leg depression and anxiety, exhaustion, lethary and increased menstral flow. I was perimenapausal having a period only every three months or so, and since taking Coumadin my periods have come every month. I have had dry skin, but seem to have that every winter anyway, so I'm not convinced it's drug related. I also told my doctor about my symptoms and was told they were not side effects of this drug. Luckily she is great about listening to me and put me on antidepressants right away. I will send her to this site to see that others have experienced the same symptoms. F 47 4 days
1/9/2008

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