COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  because I have a pace maker and def easy bruises F 80 2 months
0.5 1X day
11/6/2010
 3  PE fatigue, chills, insomnia, general feeling of being unwell. Menstruation is extremely heavy and clotty, leaving me light-headed and dizzy. How do you rate something you don't know is actually working without further CT scans or X-rays? I gave it a 3 just to be in the middle. Was prescribed the med for 6 months for PE's related to an bowel resection. Got 4 months to go. In addition to the fatigue caused by the Coumadin, I also have to deal with fatigue caused by radiation treatment for cancer. The double whammy is about wiping me out. I'm also having problems with short term memory however given my level of fatigue, that may be the cause rather than the Coumadin. There's a daily feeling of light nausea which is really not good since I'm supposed to report anything like that to my GI doctor. As it usually occurs about 2 hours after taking my dose, I'm hoping that it what causes it rather than more problems in my intestines. My cycle has gotten extraordinarily regular, something new since being on the drug. The level of cramping is pretty severe however, but I try to remind myself that it's nowhere near the level of pain I had before or after my surgery. However, if I had to be on this through menopause I might kill someone. On the plus side, I have not had a migraine in 2 months. I don't get it, but at least it's something positive. Since my favorite migraine drug involved aspirin, I'm glad that I haven't had to deal with that or try yet another drug. I'm so over doctors right now. F 46 2 months
2mg 1X day
10/25/2010
 3  aortic valve replacement short term memory loss, inability to focus at times, weight gain, bloody stool, dry skin, brief periods of being cross-eyed. I had my aortic valve replaced 3.5 years ago and began taking warfarin. My father had talked about warfarin making him feel like he was "in a fog"sometimes and I can really relate. I often get words crossed up mid sentence, or forget a point I'm trying to make, while someone else is speaking. I've been overweight most of my adult life, but after 2 full months of excercising 45-60 minutes a day, 3-6 days a week, I managed to lose only 3-5 lbs, which at my weight can be just fluid. I have had bloody stool off and on for the years since taking warfarin and as my blood gets thinner, it is a constant presence. Twice during a workout and once in a store, I suddenly found that my eyes crossed and looking around made me nauseous. Once it lasted an hour and a half, one only 5-10 minutes, and just today less than 2 minutes. M 38 3 years
10mg/day 1X day
10/16/2010
 5  3 DVTs Lots of clotting with periods, that are heavy and painful I took it for 6 months when I was 20 for my 1st DVT and now have been on it for almost 4 years for a 2nd and 3rd. I will be on it for the rest of my life. The only real complaint it that it makes my period painful! I have really bad clots with it and they are now lasting almost 2 weeks. (And for a big bummer, just found out that OB stopped making their Ultra tampon. I want to cry!!) Other than that I wouldn't know I was on it...I'm lucky I don't bruise at all (and I did the first time I was on it)! YAY F 27 3.7 years
7.5 1X day
10/15/2010
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 3  pre op anti coagulant Night sweats Lethargy. They're still increasing my dose. This is a nasty drug but I should only need it for a few months... F 56 20 days
7.5mg 1X day
10/13/2010
 4  DVT/PEs-Factor V Leiden No major side effects-vivid dreams, painful periods (since I'm now off birth control). Nothing else noted as of yet. I was having severe all-over pain since August, but no one could tell me why. One day my whole left leg swelled up (from my hip down to me ankle) and turned blue. I went to ER where they discovered I had a extensive clot in my leg, and part of it looks like it broke off and I had PE in both lungs. I had 3 stents put in my leg (in each illiac vein) and was on heparin while in hospital. i developed a clot in my arm where the PICC line was place. genetic testing found Factor V Leiden, which predisposes me to clots. started on coumadin for atleast a year, but possibly for life. Not sure how I feel about that yet, being so young. F 23 16 days
5 1X day
10/3/2010
 4  Massive Bi-lat PE/DVT caused by Yaz Taking Warfarin. Vivid, off-the-charts dreams every morning. A little gassy. Heavier and more painful periods. Brain is a bit scrambled. No hair loss, no weight gain, no tingling sensations, no depression (other than the occassional "woe is me" attitude from having had the PE/DVT at all). I'm on warfarin until 2/11 due to a massive bi-lat PE & DVT caused by the Yaz BCP. So far, my side-effects on Warfarin have been minimal. More than anything I'm adjusting to no longer being on BCPs, which I've been on for 15 years. After reading this message board I was seriously concerned about weight gain, but I've actually lost a few pounds by really watching my food intake and getting back into the gym as soon as my doctors gave me the go ahead. Hair loss is my other big worry, but so far I haven't noticed more loss than usual. I've always been an active dreamer, but this med has punched my dreams into overdrive. They've actually become a topic of cubicle conversation for me at work. We all get tea and I tell them about the latest wacky dream. It's only been two months since I started Warfarin and I'm hoping I don't develop any additional side-effects, but I'll submit an update if I do. F 32 2 months
7-8 mg 1X day
10/1/2010
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 4  Massive DVT in right calf Experiencing hair loss, heat intolerance, fatigue, annoying "blah" feeling, scattered brain, feeling of not being motivated for anything, knee pain, heart palpitations, dizziness, light headed / almost passing out. I was diagnosed with a massive DVT completely blocking blood flow from my calf to above my hip 2 weeks after giving birth to a healthy baby boy. I had a IVC filter put in, and surgery to remove the clot between my hip and my knee. I was given coumadin, heparin and lovenox while I was in the hospital. Since my discharge the pain caused by the clot has gone, but being immobile for 2 weeks prior my surgery has left me with chronic knee and hip pain. Coumadin therapy is going successful and only have a few months of mandatory therapy left. I just found out I have Factor 5 leiben and have a possibility of being on coumadin for life. The side effects from the coumadin are hard, but manageable. The only down side is I cannot nurse my 3 month old baby anymore. The cause for the big dvt is still unknown, I had horrible leg swelling during my pregnancy, was given a clotting factor after birth cause I couldn't stop bleeding, and was put on bed rest a month before delivery. I hope my clotting problem can be controlled with out the use of coumadin, but won't be able to tell for another few months if it is necessary. F 24 3 months
5 1/2-6 mg 1X day
9/30/2010
 3  bilateral pulmonary embolism, dvt, Acne, dizziness, fainting while sitting, blood in urine, heavy period, fatigue by about 2 pm I need to lay down, restlessness when trying to sleep, forgetfulness, knee pain, and lack of appetite I'm glad its keeping me alive but the side effects have been debilitating F 23 30 days
10 mg 1X day
9/21/2010
 3  Mechanical Mitral Valve I've experienced fatigue, forgetfulness(short term), depression, loss of motivation to do "anything"; I just don't feel and act like I used to. After my first mitral valve repair, I felt good and had energy. Then after the second surgery and the valve being replaced with a mechanical valve (and the coumadin) I feel like I've been sliding away as each year passes. The first two years post surgery, my INR was across the board 1.2-9.2 and we couldn't get on top of it. I experienced several TIAs which led to neurological tests, a home INR monitor and several years of coumadin futzing. Now that I am not in a stressful(management)at work and I have a regulated schedule (sleep/food) my INR stays within range (3-3.5), the side effects seem to have increased in intensity. It is helpful to read that others have similar experiences with Coumadin. And I agree with those here who've been looked at in disbelief by doctors when they describe side effects not listed on the Rx, I just know that I have to take this for the rest of my life and that is disconcerning for my quality of life. M 40 7.5 years
12.5/15 1X day
9/9/2010
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 4  atrial fib Tired, sinus problems but don't know if this is caused by coumadin. I have not had any trouble keeping my my inr level F 69 340 days
4/5 mg 1X day
9/6/2010
Email
 3  PE Hard to say exactly, but I haven't felt "good" since going on it. Tired, back aches, muscle aches...but don't know that that is directly related to the warfarin. Was only suppose to be on it for a year, had the blood test and the gene for increased likely hood of blood clots. Now my doctor wants me on it for life and that is a scary thought. I don't like all I've read about side effects, but not thrilled about the thought of another blood clot or PE either. Wish there was a place to go to get factual basic information about effects of long term use and about alternatives. Hard to find that info F 51 1 years
10 1X day
8/27/2010
 4  Aortic valve replacement-mechanical fatigue, coldness, joint pain, weight gain, dizziness, severe reflux, blurred vision, memory loss Aortic valve replacement now have mechanical heart valve, & also aortic root repair. The doctor that caught the heart valve leakage saved my life. I do have some problems regulating the INR levels but I can usually tell from the way I'm feeling if my blood is too thin. I had suffered for about 15 years with severe migrain headaches & I have not had a single migraine since my heart surgery. I AM LUCKY AND GRATEFUL TO BE ALIVE!!! F 53 14 months
2mg 1X day
8/26/2010
 5  23 inch DVT and multiple PE's Unsure of side effects, as I was very healthy before DVT and PE. I know that the coumandin has caused GI Issues. I take Nexium for the stomach pain. I was hospitalized for five days. Discharged on my 40th bday. I was diagnosised with a 23 inch DVT and multiple PE's. The hemologist believes that it was due to the birth control pill. Realized after blood work that I had a gene mutation of which I should have never been on. But, I was on it for over 15 years no problems. Just had ultrasound today, 5 months later. Clot free but value vein damaged in upper thigh. I have been wearing compression stockings throughout treatment. I will be off of Coumandin in Sept. Hooray!! I hope to never get a DVT again. I have to admit I am nervous to get off of drug. But, happy to be done. I want to be able to eat whatever and have some cocktails. Good luck everyone. Lastly, mental issues are mainly due to the severe diagnosis. Therapy was helpful. I recommend it. F 40 5 months
5 mg 1x 1X day
8/23/2010
 1  PE Light headedness. Tingling nose. Pins and needles feeling in my head, left arm and leg. Left leg is always hurting. GERD's disease. The doctors have done blood work, MRI and cat scans of the brain. Can't find anything wrong. I feel like I am going to pass out. Hate the light headedness and pins and needles feeling all over. F 39 3 months
2.5 MG 1X day
8/17/2010
Email
 4  pigs valve F 63 8 years
5 mg 1X day
8/15/2010
 5  Multiple bilaterial PE's Mostly weight gain since last Sept. when I collapsed from the PE's. Glad to see I'm not alone and hopeful that when I stop in a few weeks I can start losing weight. F 49 1 years
7.5mg 1X day
8/13/2010
 5  DVT in upper right arm significant hair loss, blurry vision at times, bruising, scattered brained at times. Hi! I am so glad that i found this website and that i am not the only one having the side effects i am having. I was thankfully in the hospital when the DVT was found in my upper right arm, which was caused by me lying on that arm when unconscious (due to having pnemonia and a bad mix of medications) a few days prior to that day that the clot was found. I was then hooked up to a heparin drip for 7 days and then started taking Warfarin while in the hospital and had my INR taken every morning for over the week i was in the hospital and my dose of warfarin was changed according it the INR reading. When i was discharged from the hospital i had to go back to the hospital every 3 days for the first 3 weeks for my INR levels and am now going every 7 days to 10 days for my INR levels. I hope that i am not going to be on this much longer but that all depends on what my doctor tells me at my next appointment. I look forward to reading other peoples experience on Coumadin/warfarin. Best of luck to everyone here! F 36 4 months
11mg 1X day
8/12/2010
 4  Multiple DVT's Based upon what I am reading, one of the major side effects is weight gain. Since I've been on Coumadin this time is weight gain. I've gained approximately 50 lbs. over the last 9 years. I've had DVT's 3 times and a PE once since the age of 22. My last DVT's was 9 years ago. It was possibly caused by excessive air travel. Since that time I have been on Coumadin and will be on it for the rest of my life. F 50 9 years
17.5 1X day
8/11/2010
 4  Factor 5 - two dvts different times WEIGHT GAIN, water retention, fatigue, joint/muscle aches, hair loss, dizziness I am told by multiple doctors I need to be on coumadin for life. I am tired of the side effects, and the doctors not listing when we, the patients, tell them of the side effects. The weight gain started when I went on coumadin, before that no issues. I walk four miles a day plus do additional exercises, watch my diet, it does not matter. The only time I have felt cleared headed, no joint pain, and lost weight since being on coumdain was when I had major surgery and used heparin instead of coumdain. I am going to investigate natural options such as foods that thin the blood and see if other things can be done instead of taking drugs. F 51 10 years
10 mg 1X day
8/11/2010
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