COUMADIN Reviews (WARFARIN SODIUM)Average Rating: 3.1 (876 Ratings)Filter ResultsCompare COUMADIN with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 |
More on COUMADIN: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR COUMADIN | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Aortic Valve Replacement | Anxiety, depression, dizziness, stomach problems the last 2 years. The dizziness is the worst thing. Can't drive over high bridges, can't look at high bridges. Feels like I'm leaning sideways. | I take 8-9 mg per night, depending upon INR results | M | 52 | 11 years | 7/27/2006 | 1 | mitral and aortic valve replacement | MAJOR HAIR LOSS! Very dry, extremely itchy sensitive skin! Thinning of skin and nails! I bruise easily and bleed a lot. | The worst is the major hair loss and very itchy skin, which started several months after starting coumadin! I am currently up to 7.5 mg a day and I HATE it! This is not a stable drug at all. Last time I missed a dose and my reading was HIGH rather than low. A couple of times I ate less greens and the reading also was HIGH rather than low. Then for no reason it drops too low. Go figure. I keep my diet the same as much as possible but the readings fluctuate and I think a lot of things affect it -- when I'm in hot weather and the sun is shining, I need less coumadin so even the sunshine affects it. The major hair loss and the extremely itchy skin (I have to put on anti-itch lotions several times a day and wear baggy clothes. I've had to throw out my wardrobe and wear only silk and pima cotton or natural fiber but everything has to be seamless and baggy. My skin is so dry and thin that I can't have seams touch it. So, I'm always wearing silk shirts and pants underneath with the | F | 52 | 6 years | 7/24/2006 | 1 | mitral and aortic valve replacement | MAJOR HAIR LOSS! Very dry, extremely itchy sensitive skin! Thinning of skin and nails! I bruise easily and bleed a lot. | The worst is the major hair loss and very itchy skin, which started several months after starting coumadin! I am currently up to 7.5 mg a day and I HATE it! This is not a stable drug at all. The readings fluctuate even tho my diet doesn't change. I think a lot of things affect it -- when I'm in hot weather and the sun is shining, I need less coumadin so even the sunshine affects it. Also, I have to put on anti-itch lotions several times a day and wear baggy clothes with something underneath so that seams don't touch my skin. I was told (after a scalp biopsy) that the hair loss was undoubtedly a drug reaction. Before coumadin I had waist-length thick hair. Now it's thin, short and curly. Nothing helps my skin either. Lately I have begun to think about just not taking it. How I wish I had been told about these side effects when I was 46. | F | 52 | 6 years | 7/24/2006 | 4 | DVT from ankle fracture | fatigue, some weight gain, some hair loss, mild mood swings, sweating, temperature sensitivity | Currently on 5mg everyday. Possibly off after 6 mos, but probably 1 year. After I'm off I will need additional tests to determine if there is any underlying cause. Additional research on side effects is SERIOUSLY needed as the drs don't seem to believe that the drug is to blame. Biggest complaint is the fatigue. | M | 25 | 5 months | 7/14/2006 | 4 | DVT right shoulder | Weight gain (10+ lbs), feeling cold more often than before, hair thinning, heavy periods/miserable cramps, mild to severe chest pains, more sensitive/tender to touch, frustrated more easily, light-headed, heart fluttering, and the most common side effect-bruising more easily | The doctors' best guess at what caused my DVT was having been on the birth control patch (Ortho Evra). I went on birth control for regulation and cramps; starting out on the pill, then switching to the patch, and right before the DVT, had switched to the Nuva Ring (which I highly suggest as an alternative to the pill). I do not like having the cramps back and I most certaintly do not appreciate the weight gain and hair loss. Hopefully I'll only be on the coumadin for 3 months and the clot will be dissolved. If not in 3 months, then 6 months. I won't have to be on it for life, thank God. Thank you to those that left comments, at least I know I'm not crazy since others have had the same side effects. | F | 24 | 6 weeks | 7/13/2006 | 4 | DVT in right arm | First couple of weeks experienced headaches which have since subsided. Weight gain of 6 pounds. Feel bloated. | When diagnosed with DVT, doctors agreed the clot was a result of my taking birth control pills (Ortho-Tricyclen). So I stopped taking the pill the same day I was diagnosed. My target PT/INR is between 2.0 and 3.0; however, I have only managed to be within the range twice. Since I began taking the med, I have had to get my PT/INR every week until recently when I now have gone every 2 weeks for the last two tests. Today was 3.8; tomorrow I actually have vascular studies scheduled to determine if the clot has dissolved. I'm crossing my fingers that the doctor decides to take me off the medicine if all is good with the vascular study as my doctor did mention at the start of the therapy that he felt I would not be a life-long coumadin patient. Although the medicine seems to have done well with ridding me of the clot in my opinion (I no longer can see nor feel the clot in my arm), I must admit that the weight gain has become bothersome to me. | F | 31 | 3 months | 7/10/2006 | 3 | 4 pulmonary emboli | Tightness in sides of head and in neck. Worsens as day progresses. Now taking 7 1/2 mg., various dosages over past 2 months. Hate not feeling like myself, but guess drug necessary. Curious if others experience this neck tightness. | F | 64 | 2 days | 7/7/2006 | 5 | PE in both lungs | I am only satisfied with this medicine because im alive because of it. i get AWFUL ANXIETY in my chest now my head. headaches. cold all the time. depressed. shaking. weak some days. tired or cant sleep at all. | they said i got the PEs from my delivery but not exactly sure. can anyone give me some imformation about this???? i would like to know more information on how you get them and what are the chances they could come back. im only on coumadin for 6 months. i need to know how to get rid of this anxiety its taking over my life:( | F | 20 | 3 months | 7/3/2006 | 5 | Have 2 artificial heart valves | Bruise very easily and bruises take longer to heal. Any cuts I get seem to take longer to heal (and also bleed lots more than before.) I notice my heart beats faster at night, sometimes keeping me awake. Don't know if it's related to Coumadin or something else. It (heart pounding) has happened since my valve replacement surgery. Haven't noticed hair loss or weight gain. But, I'm much more sensitive to extremes of heat and cold now. I'm taking Warfarin. 5MG 3x's/week. 3MG the rest. | I'd rather not be on this drug, but I have no choice. I'm thankful to God I was able to get new valves to keep me alive. Taking the medicine is necessary for my artificial heart valves. It was overwhelming, at first, learning how certain foods could impact my blood thinning. I'm used to it now. What I really hate is having to get my blood tested every 2 weeks... and realize I'll do this until I die. | F | 52 | 2 years | 7/2/2006 | 4 | DVT in left calf | I've been on Coumadin since 1/2006. I had terrible side effects at first, dibilitating migraines, dizziness, increased blood pressure (normally my blood pressure is low because I'm a runner) and weight gain of 15 lbs in 4 months. The dizziness subsided after a couple months and blood pressure went back to normal. Still experiencing the weight gain and daily dull headaches with an increased frequency (3+ times a week)with the migraines. I'm also cold all the time, but was before the Coumadin. | I originally attributed the weight gain to not being able to run for a month and then being forced to start back slowly. But after dieting and getting back to my normal running routine (4-5 days a week - 45-60 minutes of running at 6.5 mph or faster) I still haven't been able to lose the weight like I normally could before being on the Coumadin and still seem to be gaining. I will be getting off the Coumadin the end of July and couldn't be happier. | F | 33 | 6 months | 6/29/2006 | 1 | afib | joint aches, cold, weight gain, tired. I know it is the rat poison because I reduce the amount I take and all the symptoms disappear. Worst drug ever. | M | 59 | 2 years | 6/29/2006 | 3 | DVT - arm | I was initially diagnosed with a DVT in my arm, admitted on Heparin, then Lovonox injections ( which made me feel 'loopy' - dizzy and confused). No side effects from Coumadin initially, 2 months into started getting dizziness and foggyness. | Some days I'm dizzy, some days I'm not. The Lovonox REALLY made me dizzy. Seems that fatigue and hydration may play a role as to when I feel dizzy. Also live at high altitude. I will only be on the Coumadin another couple of weeks - as they have no explanation for why I had a clot - lots of tests, all within normal limits. | F | 45 | 3 months | 6/27/2006 | 3 | Minor PE Right Lung | Fatigue, Lightheaded, headaches, darker skin, joint pain ( elbows and knees) rash, watery eyes. | My doctors in Boston are considering taking me off since my V Leiden looks OK. Anti-Cardio Lipin is elevated...I am told this may be from the medication itself. I know there are obvious benefits, but the side effects seem to be taking a toll on me. I used to run 2 miles a day, never smoked or drank. I am always tired. Chad | M | 47 | 3 months | 6/23/2006 | 1 | suspected pe/clot aft hysterectomy | At first a dull headache, joint pain and stiffness then swelling of the legs and inner thighs and heaviness in arms. Now no headache but other symptoms remain though come and go. I've had hot feet at night now for three days. Every day it's what's it going to be today? I am also at least 15 pounds heavier than when i went into hospital (for hysterectomy) late April and I had even lost weight after surgery before being put on the Warfarin. today i bumped myself and have a painful swollen bruise. I am only going to be on this for six months. | I see from all the posts here that there are many side effects which are not listed on that rundown you get with your pills. I called BristolMyersSquibb 800-332 2056, and spoke to the pharmacist. He admitted that bilateral swelling (slow)in the legs is a side effect of the drug. This is not something any of my doctors have ever thought was a side effect. The Bristol Myer pharmacist seemed very interested in hearing what other side effects I had. This is all done anonymously. Everyone should call and let them know what the real deal is. Obviously there are things occurring that should get documented. It's hard enough to be on this drug to also feel like a hypochondriac with your doctors. I recently went to a number of specialists (vascular, blood) to rule out possible problems. Some doctors may not understand that we once felt pretty good and now we're legitimately concerned that we've got a whole slew of things to deal with since being on the drug. Please feel free to email me with | F | 45 | 2 months | 6/23/2006 | 5 | Following By Pass Surgery | Weight gain up to 5Kgs Hair thinning Lethhargy Dizziness and loss of balance Blood in urine | Am taking 3mg one night 4mg the next maintaining INR 2.4 to 2.6 hate having to take it but at my age what the heck enjoy glass of good red most nights My best bit of advice to others is a positive attitude it definately helps. | M | 76 | 4 years | 6/20/2006 | 3 | blood clot in lung and neck | Tired, tenderness of skin, brusing, foggy, body is very ache | F | 26 | 3 weeks | 6/19/2006 | 4 | artificial heart valve | Since taking Coumadin I have experienced severe headaches, body aches and hair loss. I have gained 7kg since my operation, but not too sure if I can attribute weight gain to Coumadin. The reality is that this drug is keeping me alive, and even though I hate the side effects, I have to take it until a more suitable alternative is available. | I feel that the side effects of coumadin add to the frustration felt by patients after heart surgery. Rapid weight gain, headaches and hair loss in a short period of time does alter our perceptions of self. The new self that stares back at me in the mirror is like a stranger, but I think I can get familiar with him over time. | M | 42 | 8 months | 6/15/2006 | 2 | Atrial Fib | I feel tired, irritable and cold. I have a dull headache. | Intellectually I am glad such medication exists to improve my health, yet emotionally I am having trouble accepting the fact that I have to take anything. Gratiful one moment, angry the next. And this is day two...I need time to find some acceptance in this matter. | F | 43 | 2 days | 6/11/2006 | 3 | blood clot | Losing hair in big clumps, always cold, tingling and achy muscles, extreme bruising, nosebleeds, earbleeds, lightheaded, fainting, weight gain of 15 lbs, pain in the lungs | After the birth of my second child I had a rare complication of a blood clot near my ovary. Started taking coumadin and lovinox shots every day for three weeks. Then I got to stop the shots. The side effects of this drug are now almost worse then the blood clot. With a two year old and a 4 month old child it's hard not to be tired without the added fatigue of this medication. Also, every time I play with my two year old and I get bumped or banged with a toy I get bruises that look like I was in a car wreck. Doctors told me that losing hair wasn't a symptom or weight gain, but judging from the reading of other entries I now think differently. I don't know how long I'll have to be on this, but hopfully not much longer. Three months I'll get a catscan and find out how the clot is doing. Maybe then I can stop taking this drug and start to feel like a person again. | F | 25 | 5 months | 6/6/2006 | 4 | Mitral stenosis | I'm only on 5mg. So far there's been no change since on coumadin. I see my Cardio MD every 6 months. | I must be really blessed because my INRs are always great. I just try to be careful because of the bruising. I'm a clutz, so believe me when I say I now hold on to the rails of stair cases. Had both my feet operated on in January, so had to go off coumadin for a week. I pretty much eat what I want. It's just that if I eating something I know has Vit K, I only eat it once a week. Mitral stenosis is caused from undiagnosed rheumatic fever/strep throat. As a child, I had tonsilitis all the time, so the MDs think that's when it might have occurred. My cardio MD is a great guy and just gave me the go-ahead for my trip to Scotland next year. Maybe I'm wrong, but I think a positive attitude is helpful and have taught myself (w/some success) to not stress about things over which I have absolutely no control. I've already had 15 extra years from a near-death brain tumor removal, so why NOT be positive! | F | 58 | 1 years | 6/5/2006 |