COUMADIN Reviews (WARFARIN SODIUM)

Average Rating: 3.1 (876 Ratings)

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 ANTICOAGULANTS THROMBOLYTICS

 Type: Rx Drug

  

COUMADIN  (WARFARIN SODIUM):  This medication is used to treat blood clots (such as in deep vein thrombosis-DVT or pulmonary embolus-PE) and/or to prevent new clots from forming in your body. Preventing harmful blood clots helps to reduce the risk of a stroke or heart attack. Conditions that increase your risk of developing blood clots include a certain type of irregular heart rhythm (atrial fibrillation), heart valve replacement, recent heart attack, and certain surgeries (such as hip/knee replacement). Warfarin is commonly called a "blood thinner," but the more correct term is "anticoagulant." It helps to keep blood flowing smoothly in your body by decreasing the amount of certain substances (clotting proteins) in your blood.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on COUMADIN: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR COUMADINCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  DVT Left Leg Dry skin, lightheaded when standing up fast. Dieting because I have also been diagnosed with diabetes - have lost six pounds. Use al lot of baby oil on legs and arms which are the parts with the dry sking. M 62 30 days
4/8/2007
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 4  PE A week after having a heart procedure I had a PE. Now a month later I feel better but will take coumadin for 5 more months. I broke out in a rash which the docs attribute to the taking of heparin,lovenox and coumadin all at once. Thankfully that went away. I am grateful to all the posters who commented about anxiety and wondered if it was the meds or a reaction to the stress of having the condition.That made me feel a bit more normal.Thanks:) Most of my side effects are limited to nose bleeds, gum bleeding and easy bruising. Also I am occasionally overwhelmed with sudden fatigue. So far my levels have stayed between 2 and 3 without adjusting a thing. After reading this board I see how fortuante I am and hope it continues. I never knew until this experience that coumadin does nothing for the clots you already have, it just prevents more from forming. F 44 1 months
4/8/2007
 4  DVT - Factor V Leiden Weight gain. Increased Bruising. Hair Loss. This time. The first time I took Warfarin (1998-2003) there were no issues as side from some minor hair loss. After being on Fragmin injections for the past 3.5 years I thought this would be a welcome change. I've been sorely mistaken. I am a competitve althete and I can't afford the weight gain. Nor do I care to change my approach to reduce my options for bruising. Frankly it ticks me off. In addition, I don't understand how some sites claim there's no association of weight gain and coumadin, when clearly there's got to be some kind of relationship with the number of people here who claim it. F 29 3 weeks
3/29/2007
 1  Atrial Fib & blocked heart arteries Head rushes when getting up from sitting position or driving, mild headaches, back pain from below the left kidney area radiating up to the shoulder blades and down left leg, unable to sleep, wake up repeatedly when sleep finally comes, anxious and angry all the time. Again the doctor(s) all say that Coumadin (Warfarin) is not to blame. Just like Lipitor doesn't cause memory loss or leg pain. But, since I have been off Lipitor those symptoms have gone away. I hope that I will not have to be on this "Rat Poison" much longer. M 66 2 years
3/23/2007
 3  Pulmonary Embolism/ left lung hair thinning, fatigue, easily bruised, teeth yellowing, weight gain between 10 to 15lbs, dizziness, uninterested (unable to focus), itchiness. I started taking it July of 2006 due to a miscarriage/ pulmonary embolism and subsequent diagnosis of Lupus Anticoagulant. I do believe this medicine along with prayers saved my life, however, I also believe that if some of the doctors that were perscribing this medicine had to actually take it, they would find a BETTER medicine to give. F 29 8 months
3/22/2007
 5  blood clot/lung very heavy periods and hair thining out.dizziness in morning.had to get off birth control after 20 years,cannot take any hormones until finished with coumadin. glad to be on has helped keep my blood clot ok F 38 3 weeks
3/15/2007
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 4  2-DVT's I experienced thrombo phlybitis. Hand swelling due to water retention. High blood pressure. Hair loss. Weight gain. Anxiety. Joint aches. Exhaustion. I have been on warfarin sodium for 4 years now and am always looking for an alternative medicine to be approved. I read about all the herbal medicines you should avoid while on coumadin. Why can't they be used instead of "rat poison"? I have no pre existing incidents to explain why I have gotten 2 DVT's. Since my first one in 1998, my sister has also had 2 of them. Her and I have been through every test imaginable(went to the same Dr.)and no answers were found. Both of our daughters were also tested and no indicators were found. I hate not being able to go white water rafting any longer and the worry everyday....what if I'm in a car accident is overwhelming. For the exhaustion I take 3 mgs of Melatonin each night to help get a more restful sleep. This has somewhat helped with the exhaustion. F 51 4 years
3/13/2007
 4  Multiple P.E's left lung Weight gain, very tired, depression, anxiety My body doesn't seem to react well to the coumadin. I am currently taking 17.5 mg each day and my INR levels continue to decline. I'm not sure if the side effects are from the medicine or the lack of green vegetables and vitamin supplements. I got my P.E. from birth control pills and nobody can tell me where the clots came from. It didn't start from a dvt in my leg or anywhere. I didn't recently have surgery, an injury, or travel for a long period of time. So strange! F 25 11 weeks
3/12/2007
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 3  Anti-Thrombin III deficiency, I have been taking Coumadin now for 6 months and unfortunately have to take it for the rest of my life. When I first started this med, I had leg swelling in one leg, terrible itching, very low energy, weight gain,dizziness,hair loss, bruise easily. Each time they change the dosage the above symptoms seem to appear again and then go away. When I told my physician about it, he did not seem interested and fluffed it off. Currently I am on 7.5mg alternating with 10mg. My INR keeps going up and down. When it goes to high, I can feel the difference in my body, I feel strange. And the lower the dose I feel more like myself. Wish they would have another drug available with less side effects. F 47 6 months
3/12/2007
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 3  atrial fib weight loss, and (possibly related) osteoporosis M 3 years
3/11/2007
 4  DVT right leg/ 5 P.E's in lungs female 40 yrs of age/diagnosed end of Jan.2007 5 days in hospital, 5 daily shots in stomach and with coumadin tablets orally. Extremely thankful for coumadin although I am currently at the lab once a week and have not been able to establish a stable INR just yet. Currently taking 4 mg's 5 days a week switching to 5 mg's the other 2. Have had to stop taking my precious herbal and vitamin supplements as well as all soy products and green tea but I am alive and I count taking coumadin a small price to pay during this phase and adjustment. I cannot say I have experienced any side effects thus far although I do notice a constant underlying coldness or chilliness, very pale skin, and on certain days, intense fatigue and lack of energy. I attribute this to the lack of decent herbal and vitamin supplementation my body and system were used to. I try to work around the lack of supplementation with using fruits and vegetables that are allowed on coumadin as well as vitamin C in low d I would HIGHLY recommend getting this very patient friendly and informative book called: THROMBOSIS by Dr. Jack Hirsh. Its full of positive, solid information for the patient on coumadin who has experienced any form of thrombosis. F 40 45 days
3/8/2007
 3  Small P.E right lung Major hair loss, backache(sometimes severe), tired, dry skin, leg/ hand tingling numbness & cramps, heavy periods, eye strain, chest pain, breathing problems. You would think that in this century they would have a better drug since it appears so many people die of clots each year. I am fed with my doctor trying to tell this is not the Coumadin. I didn't have any symptoms before(except for chest pain) and now I do? This is very frustrating and I have 3-more months to go. Also there is no guarrante that it won't come back. If anyone has any experience with alternative therapies let me know. F 45 3 months
3/6/2007
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 3  Pulmonary Embolism/ history of DVTs I have been nauseous since leaving the hospital. I was on coumadin in the past and never experienced such side effects.Im not sure if it's the coumadin or a very resistant virus I'm dealing with. Am still unclear about the long term effects of coumadin. it seems your Im at risk whether I take it or not. F 28 2 weeks
3/5/2007
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 4  DVT- Right leg I feel itchings all over the body and I have sore spots on my body from the scratch. When I scratch my body then blood comes out and this is not good. I feel headaches most afternoons which I attribute this to the drug. My worry is that being young, will I be taking this drug for life or what? I take 7.5mg one day and 10mg the next day. My INR is supposed to be 2-3, but still fluctuates below 1 and somedays above 3. Someone tell me on what to expect from this drug. I feel its the right drug for the moment, any other solutions for DVT? M 36 7 months
2/26/2007
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 5  Aortic valve replacement I never attributed my fatigue to the coumadin. Also easily bruise. I thought my breathlessness was due to being out of shape. But my once thick head of hair has been falling out in clumps for months. I found this site and believe its due to the coumadin. I've changed so much already -- no high impact anything with the (4 and 7 y.o. kids), I really would like to keep some hair on my head (I'm the mom, not the dad!) Also had extremely heavy periods resulting in my needing an iron transfusion. A uterine ablation solved it at least temporarily. I'll begin with a home, self-testing INR kit this week, which should help me stabilize. I learned alot from reading this site. Thank you. If I'd known all the rigamarole attached to it, I probably would not have elected to have my valve replaced right away. I would likely have waited another 3 to 5 years, since it wasn't an emergency. However, now it keeps me alive, so its a non-issue. F 46 15 months
2/13/2007
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 4  DVT - Right Leg (2nd DVT) After almost 4 months the main side effects are that I'm always cold, and I've gained weight (8-10 lbs)! I have started running again, 4 times/wk for the past month and cut my calories way back and I can't lose any weight. I'm also tired a lot more, but I'm sleeping good. Some of the other earlier effects (headaches, constant exhaustion, etc.) seem to have subsided. Weight gain is the most bothersome, and is not listed in the literature as a side effect. I'm hoping to be able to stop taking this after 6 months, but will have to wait and see. I am very into sports like snowboarding, surfing, and mountain biking, and have abstained for now, but in the event I have to be on this long-term I'm wondering what actual risks are with INR 2-3. I don't want to stop doing things I love! I'd be interested in hearing from anyone with experience in this area. F 41 4 months
2/12/2007
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 5  Bypass in leg due to thrombosis I am taking 7.5 mg once daily. I did get very, very itchy -- first, the leg that was operated on, then lower extremities generally and occasionally almost my whole body. It about drove me crazy, because I would scratch and then erupt the skin with bruising and bleeding. This has calmed down but it took probably a good 4-5 weeks. I also found myself bruising very easily -- for example, I brushed up against the edges of some cardboard sheets and my whole arm just erupted in bruises. They did heal substantially within a week or 10 days, though. I am also taking 75 mg of Plaxil and a cholesterol drug, Niaspan, as well as the occasional Vicodin still. I don't know if it's helping, but I am assuming it is -- I'm just trusting my docs. M 55 45 days
1/29/2007
 4  DVT throughout left leg/pelvic area Feeling cold, itchy skin, easily bruised, fatigued (taking repliva for low ferritons and saturation), somewhat heavier periods, rollar coaster ride of physical, emotional, and financial issues related to this life changing thing, loss of appetite whenever dose is increased. 'Taking coumadin for almost a year, since 1/31/07. At present Taking 12 1/2 mg of coumadin; INR levels go up and down regularly. Have to wear compression stockings and now support wear for protruding veins in pelvic area. I hate taking medicines and having to be tested regularly. I do what I have to in order to try to live. Ultrasounds show DVT still there. F 51 11 months
1/20/2007
 5  Massive PE with extensive thrombus breathless, chest and uper back pain, swelling left leg, pain inner thighs,palpitations, dizziness,cold hands and feet, hair loss, extreme fear of it happening again but not surviving the next time! Anxiety is awful, concentration diminished, totally exhausted and fed up. Can't sleep, I am on this drug for life and would still experience most of the initial side effects. I get daily headaches now which is a thing I never suffered from. The anxiety of it happening again is the worst thing for me now. I purchased a self testing machine which has somewhat alleviated the anxiety as I can test as and when I choose, particularly if I want to have an alcoholic drink or have taken too many 'greens'. I will be on the drug for life as there were no factors why I should have had such a massive PE. I never took the 'pill', I didn't smoke, I was extremely healthy and mildly exercised. I am slowly regaining my pre morbid state but I will never be the same person again. However if this drug keeps me alive I will continue to take it.....obviously! F 43 3 years
1/8/2007
 2  Arterial Fib I have had a 20 lb weight gain within 2 months, edema, swollen ankles, legs, thighs, body, hair loss, back and joint pain, cold intolerance. Sometimes hard to focus, loss of stamina, sex drive, itch all over, and dry skin, especially legs and arms. Hate taking it, but dont want blood clot. M 48 3 months
1/7/2007
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