REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Bechcet's I've had 3 infusions. The day after I feel so good but thenthe next day i get achy, tired, weak for 4-6 days. My family has expressed that I am very irritable for about 2 weeks after each infusion. I'm not experiencing extreme improvements but there have been some. For me the jury is still out if I will continue the Remicade. F 42 0 days
400 mg
5/14/2019
 1  My Dr recommended it to treat Sarco Bad rash all over my body,Peeling skin on hands and feet,swollen feet and ankles,pain in calves Horrible experience. After 3 months of treatment i developed a severe rash all over my body. I annot stop the itching. My hands and feet are dry,peeling and shedding and i have developed blisters.I can barely stand let alone walk. I was against using this drug.My doctor was trying to convince me for over a year. I finally agreed and now wish I never did. F 55 3 months
3/8/2019
Email
 5  Crohn's Disease Mild exhaustion Remicade saved my life. Without it, I don't know where I would be right now. It has eliminated many of my Crohn's related symptoms and brought me to remission. I've been in remission for almost two years because of it and I couldn't be more grateful to be where I am. I would highly recommend it to anyone with severe Crohn's Disease. F 17 3 years
unknown 1X O
4/22/2018
 4  RA None I didn’t realize how much this drug was helping me until I was forced to discontinue because my new insurance would not pay for it. F 63 6 years
1X M
1/21/2018
 5  crohns Disease Totally wiped out for a few days after treatment. This is the only side effect I have experienced. Thankfully! I have had Crohns Disease for about 24 years. I was not responding to any other drugs and My doctor recommended a new experimental drug. I have been taking Remicade for Crohn's disease for around 20 or more years back when it was experimental. I've take it every 8 weeks for the last 20 years and I have never to this date had any Crohn's symptoms. It is truly a miracle drug! M 48 20 years
110 mg 1X O
10/26/2017
Email
 5  Rheumatoid arthritis Nausea and feeling worn down and icky the day of and next day after infusion. Only twice did I have trouble breathing during infusion, but that was due to not being able to be on remicade for 6 months due to insurance change. Even though I've had two scary moment where I could not breathe, my nurses took wonderful care of that and I've had no issues since. I absolutely love this drug! I was bedridden for 2 years!!! At 28 years old!!! Now I have my life back!! I am willing to deal with occasional nausea and fatigue just to be able to walk! I take the double dose every six weeks as the normal dose and 8 weeks didn't help much. I have very severe RA. Humira and enbrel did nothing for me. I am on 1cc methotrexate weekly as well. I personally recommend this drug for RA. It has saved my life! F 31 2 years
10mg/kg
9/8/2017
Email
 2  Adult Stills disease I am in the hospital as I write this. They took me off Humira and started me on Remicade and it has gone downhill since then. I came down with sudden pneumonia in both of my lungs and sepsis. I am lying here with massive doses of antibiotics going into my veins and they are trying to save me. I regret are going on this drug F 57 3 months
Top dose
7/15/2017
Email
 1  rheumatoid arthritis Achilles tendon rupture can't stand to walk Quit giving people poison and making them think they can feel better but more problems come F 2 days
30mgachill
6/17/2017
 3  Crohn's disease Massive Fatigue, stomach pain, high fevers, all over body aches and nausea sometimes with vomiting sometimes without. Migraines daily, weakness for a few days after infusion. Bad rash on my foot, lips crack. Hair loss I keep asking my GI to switch me and she will not because she says I am in remission, I think we have two different opinions on what remission is... F 44 4 years
400
5/27/2017
Email
 5  Crohn's disease I feel like my sinuses are always a little stuffy. I take it every 6 weeks because it starts wearing off then - I never made it 8 weeks without being miserable at least 2 of them. I exhausted all other medications before trying Remicade. It started helping 3 days after first dose. I have my life back, I'm healthier, I can eat most foods except dairy. I hope it works for a long, long time. M 20 2 years
5mg/kg 1X O
4/14/2017
 2  Ulcerative colitis rectal bleeding Had infusion once so far and going to doctor tomorrow to see what I can do to help tolerate the side effects before I would have my second infusion. Severe body aches, headache, tired, nausea, stomach pain, weakness. Every day seems to be getting better but still feeling sick. F 24 4 days
5 mg
3/9/2017
 4  Twenty years crohns Working great after three years in out hospital after six months remicade feel like got my life back F 46 6 months
30
1/24/2017
Email
 5  severe, fistulizing Crohn's disease Loss of efficacy when hospital infusion room gave me the wrong (lower) dose. After an additional 600 mg, I got the Remicade working well again. I am 76-years-old. I was one of the first 100 patients placed on Remicade. I take it as a monotherapy. I've never had any surgeries. The doctor who gives me my infusions, wants to take me off the drug. I won't let him do it. I'll find someone else if I have to. Remicade is a miracle drug that gave me my life back. F 76 18 years
600 mg 1X M
1/14/2017
Email
 5  Crohn's Disease None. Maybe a headache here and there? I am 100% in remission and feeling fantastic! My colonoscopy three weeks ago showed complete healing after 20 painful and difficult years. Remicade has been a lifesaver for me! Have had recent skin checks, blood work, bone density scans, all checks out great. F 33 3 years
1/11/2017
 5  Chrons Brain fog nausea I was recently diagnosed with chrons after 9 years of fistulas. Remicade is the only medicine that has cured them. after having a dozen surgeries or more. I also have less fatigue now I almost feel normal. F 47 8 months
6 weeks
1/11/2017
Email
 1  Ra After third infusion he got fungal meningitis and fungal pneumonia was in and out of hospitals for two years he also had colitis on his legs and eventually went Septic and died. Never ever ever did admit any wrong doing now I am alone with MS and can't fight them their attorneys have no heart Please contact me my address is 9400 Fairway View Pl., Apt. 2120, Rancho Cucamonga, CA 91730 I phone number my phone number is 909-660-1714 I have all his records F 70 3 days
1X day
11/26/2016
 2  My husband was taking Within 2 weeks if husbands infusion, I had cascade of symptoms starting with itchy, runny nose, stomachache, , mouth sores, achy tendor lymph nodes, achy joints, head and eye aches, flu-like feeling, malaise. Went to many doctors, specialists, for 3 years with no answers. Husband and I linked it to his Remicade infusion as possibility. We decided to have no body fluid exhange including kissing a year ago and I have been symptom free since then! Most doctors I went to said "not possible" when we asked if I could b e hypersensitive to it when excreted or during clearance from his body. By the way, he did have skin cancer issues after being on it for couple years so it obviously affected skin cells. It was a few years of hell especially having physicians doubting the reality of symptoms I described to them. Except for husbands skin caner issues, it did help his rheumatoid arthritis symptoms immensely for first 2 1/2 years. F 55 3 years
10/22/2016
Email
 1  R ,A. Sarcoidosis mid to upper stomach pain, body aches, muscle weakness, high blood pressure, blurry vision,mom breast and gastric cancer My mother died from this drug. For awhile it gave her relief from her R.A. Then she was having upper stomach pain. She was on the drug 10 years, and then developed a rare bone cancer, lightning speed growth in her breast. The Dr, wanted more testing to see if she had it anywhere else and low and behold the other side affect is gastric cancer. She had that too. They said she had maybe 6 months to a couple years. she made it 1 year.Bless her sweet loving soul, these are sad days for our family. My father is dying of a broken heart. I was on Remicade for 4-5 infusions but quit when I immediately found out she dx with cancer. I was put on it for sarcoidosis pain. My mom had been on it 10 years so I thought I should be OK. I was given a black box warning drug of side effects. I read rare fast growing cancers both breast and gastric. I was shocked that this was happening to my mom. I discontinued. I now have upper stomach pain and am scheduled to go in for upper endoscopy as I now also have trouble swallowing. They said I have achalashia motility.But want to due a biopsy and botox as My esophagus isn't working correctly.I never got relief from remicade, my eyes are blurry and my joint and muscle pain is horrific. I can't blame it all on remicade because I had these symptoms prior to my infusions, but I can't say I got any better and now my symptoms are worse or exasperated from the drug. M 76 10 years
9/24/2016
Email
 1  Ulcerative colitis Throat closed. Heart rate was below 50 for a week. Fever and my heart rhythm changed. I took my second dose of remicade and ended up having what I considered a severe reaction tot he medication. While at my infusion clinic 30 minutes in my throat felt like it was clising, head started getting red hot and going to explode. I was able to tell my nurse she did nothing! I had to tell her while I could barely talk to turn off the medication. She gave me no help she asked me to take my own Benadryl. Luckily I was able to swollen my OWN pill. Later that day I woke with a fever of 102. Went to the hospital and had a high heart rate. Ended up being admitted to the hospital. Later the next day my heart dropped to 45 then down to the 30's. I was told it was normal but then my QT intervals started to separate which was a bit concerning. Stayed in the hospital for 6 days! I usually have a higher heart rate so this was not normal for me. For another week my heart rate went up and down and thankfully back to normal. Was a horror sotory for me. F 28 2 weeks
300mg
9/21/2016
Email
 1  Crohns disease Head felt like it was going to burst. Unable to breathe, turned purple. Now have severe osteoporosis. Have been off it for 15 months. Am following Professor John Hunter's diet plan plus culture my own yoghurt without the bacteria bifidus. It's cultured for 24 hours and I feel amazing. I was told by specialist that if I did not improve I would have to have a "bag". No more drugs for me after having Crohns for 12 years. F 67 2 years
Not sure
9/14/2016
Email

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