REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Pediatric Crohns Disease | Remicade at first seemed like a wonder drug. After the first three doses my son was running outside playing,something he never did before.Before the Remicade he had a poor quality of life, with bouts of depression and anxiety.All the medications had failed ;6mp,pentasa,steroid,flagyl. So his Ped.GI recomended Remicade.He was improving but around month 8 he started having signs of a flare, his Dr. had the dose raised to a higher theraputic level.A week after the infusion my son was covers from head to toe,even his hair with a strange bright red rash.I brought him to the Dr. They said they have never seen a rash like that ever.No one knows for sure what it is even top knotch universities and teams of Dr.s have no idea really.The most they do know is they believe it's a mutated form of Remicade induced psoriasis.Remicade can trigger psoriasis in people. Now my son has not only Crohns but a strange mutated form of psoriasis.There is no cure for psoriasis.His is so severe the only treatments are methotrexate or light therapy.And if you know you can't mix delivered with chemo drugs because you can get an incurable fatal form of cancer.So we said no thank you.My advice to parents of kids with Crohns,don't listen to these Drs. They're drug company puppets if your child dies they're just a statistic.If your state allows medical marijuana try it for your child.It does wonders for Crohns It puts ppl in remission and no weird side effects.Don't make the same mistake I did,save your selve | Dont use it for your kids Crohns stay far away!!!!!!!!!!! | M | 9 | 1 years | 2/26/2016 | 2 | Psoriatic arthritis | Symptoms of TB disgnosed now. | M | 41 | 1 years 400 mg | 2/24/2016 | 1 | Chrons disease | I've had 3 infusions of Remicade and it has ruined my winter. I used to be very active, skiing, enjoying stays at the remote cabin but now I do not want to leave the house. My GI recommended Remicade to heal up my rectal fistulas, and control my symptoms. Upon the first loading dose I got severe headaches, felt cold, nauseous, tired and weak. Within a week I had less bleeding and it appeared to be working. But after the second infusion I started to bleed more again. I developed abdominal pain, and joint pains as well. A few weeks after the 3 rd infusion I developed a rash on my face as the skin is dry, itchy and flaky. My hair is falling out, I already noticed much more hair on my hair brush after the second infusion. From the start I found myself urinating more, and the constant urge to go, along with swelling on my ankles signaling fluid build up. Cutting back on salt has helped, but there are times that I spend the whole night having to get up to urinate every 45 minutes. | This is a serious drug, and I would recommend to carefully think about it before taking it. I have decide to go off of Remicade and go the all natural route. I went successfully without treatment for close to ten years and I regret having taken Remicade. I can only hope that I can get my body back on balance. Tinkering with the immune system is a very dangerous approach. | M | 56 | 3 months 3X AN | 2/24/2016 | 4 | Ulcerative Colitis | Fatigue, tired muscles, weak, bloating. Numb face. | Over the course remicade has become easier for me to tolerate. I recover more quickly now. I've been on it three years. I drink plenty of fluid during the infusion which seems to help so much. Before I was told to do that I was exceptionally fatigued for 4-5 days. Now I just factor in one bad day after. Numbness in my face (left side) is unexplained. Started with my first infusion but has never got worse. Seems to be more noticeable when I'm tired. I've had one bad chest infection while on remicade which developed into pleurisy. I had to delay my infusion to make sure I had completely recovered. | F | 3 years unsure 8X W | 2/23/2016 | 1 | Crohn's Disease | Terrible joint and leg muscle pain. Hair loss, tooth loss, skin rashes, debilitating fatigue, zero quality of life. I would not recommend taking this drug. It is a silent killer and doctors act like it's some sort of miracle drug. I was not warned about any of the side effects (joined the dots from my own research). Every time I would mention the side effects to doctors they would dismiss it and refuse to even consider it could be the Remicade. Please, please do not let anyone you love or care about take this medication. | Should be banned. Ruined my life and my children's lives. | F | 36 | 4 years | 2/14/2016 | 1 | RA | My husband took remicade in the beginning it worked. The past two years has Been a nightmare. He got a bacterial infection in the joints that he had RA in. This spread into all his bones. He never should have been put on this because of all his years on prednisone. I do not think the doctors are connecting illnesses to the fact a patient is on remicade he spent a week in the hospital with all the symtoms of this bacterial infection that is a cousin to TB. Not one Dr said oh you're on remicade. He also had to have his foot amputated last year because of the damage. He has had over 20 surgeries. Make sure if you're sick with a high temperature and chills you tell your dr or hospital you're on this drug. I think this Bacteria was I his body a long time. My advice DO NOT GO ON THIS HORRIBLE DRUG!!!! | M | 68 | 7 years | 2/5/2016 | 2 | Crohns/UC | Severe debilitating joint pain. Sudden pain, travels, difficult to get rid of. Abaits after treatment but returns 3 weeks later. | This drug is ruining my husband's life. Life is full of worry and on-going concern. Crohns/UC symptoms abated. Difficult to live like this. | M | 55 | 7 months 1X O | 2/3/2016 | 5 | IBD | When I was moved from 300mg to 1200mg, three days after the infusion I lost my temper. I didn't have a temper until the Remicade, so it was quite a surprise. I am very careful now about situations that I get myself into. I find I get angry easier and faster. | Works great for my Ulcerative Colitis when nothing else did. | F | 44 | 1 years 1200 | 1/18/2016 | 4 | CD | Takes 48 hours to recover for me, during the infusion extreme brain fog, feel like I'm in a semi-dream state, heightened severe Anxiety . No Energy and bloated for at least 48 hrs, totally wiped out. Skin and hair are dry and porous. | Getting Pre-Meds first Solu-Medrol (40mg), Benadryl(50), Tylenol (500mg), without these meds I'm sure the side effects could be a lot worst. I think watching cartoons (fantasia) helps my anxiety during the infusion its a psychological distraction with something that is comforting to me. I have unfortunatly built up antibodies to remicade but my levels of the drug are good, continuing with combination theropy (azithorine 100mg) to see if this brings my antibodies down sure hope so since this has been the only drug to work (so far) for my Crohns Disease which Ive had for 8 yrs. Tried Pentasa (a joke), then prednesone (good for females who want to start looking like a man), then Azithoprine (great but stopped working alone). | F | 35 | 7 months 300 1X O | 1/16/2016 | 4 | Rheumatoid Arthritis | Fatigue, joint pain first two days, then feel much better | F | 60 | 1 years 300 mg | 12/11/2015 | 5 | RA | None. | On it for 8 yrs. Symptom-free. Dose raised 3 times. Sorry to have to switch to another drug. But It no longer works. | F | 74 | 1 days 7.5 | 12/10/2015 | 3 | Crohnd | As I continued to take the infusions, I would be very weak and fatigue. I have never had high blood pressure, but each time I would go for my infusions my blood pressure would be very high. I would still have intermittent bowel issues and pain. | I'm nor sure if it is as effective as my doctors think | F | 44 | 5 years | 12/9/2015 | 3 | Crohns Disease | After the first 6 week round I felt great. Now that I'm on my 3rd round and on 8 weekly infusions,I have really bad joint pain,skin rash under my eye,weight loss,and bruising. Skin,splits easily | I will keep battling,have already had a resect,removal of gall bladder and ruled out for a colostomy bag due to horrific scaring after operation | F | 54 | 4 months | 12/2/2015 | 2 | u/c | Itchy scalp, shortness of breath & stomach ache | Had 2 infusions 4 u/c and I still feel the same if not worse, seems every1 gets good results from this med just not me gonna ring ibd nurse 2moro | F | 28 | 2 months | 11/30/2015 | 4 | Crohns disease | My symptoms clear up almost immediatley but I have fatigue, clearly lowered immune system (you sneeze near me and my glands swell), and within the first six months of being on the drug I gained 80lbs easily (not a good thing as I was a little pudgy already), but currently I have had severe depression due to a genetic predisposition and according to a doctor the remicade triggered it :| | It gets rid of inflammatory symptoms but messes you up mentally | F | 5 years | 11/8/2015 | 5 | UC | Itchy back and skin all over. Dry skin. Tiredness. Odd chest pains | My doctor gave me remicade as a last resort while in the hospital for 2 weeks. Lost 50 pounds and was basically dieing. Remicade was instant success. Doctor canceled surgery to Remove Collin and everything else and get bag. My UC came on in a 6 month period. No prior illness. I'm very thankful. Get infusions every 2 months. I take testerone shots once a week and it pulls me out of depression and gives me back my libido and skip in my step. Google remicade and low testerone affects. I believe every male above 35 should have testosterone shots while on medication such as remicade. Have done extensive research on this matter and feel free to email me with questions... | M | 40 | 2 years Not sure | 11/4/2015 | 4 | chrohns | The first infusion had few side effects. Within 3 days I felt great except for sinusitis, sore throat and tooth sensitivity. 2nd infusion two weeks later I had severe fatigue and muscle pain for 4 days and felt good again. 3rd infusion I am still experiencing severe chronic fatigue 10 days later. I could sleep 14 hours and still be tired. | Even though I am experiencing several side effects, my diahrreah and severe abdominal pain has subsided. I really hope the chronic fatigue subsides as otherwise this drug is helping. I was completely out of options and had lost 25 pounds. After 2 months I have put 18lbs on. Nice to eat again, and no more urgency. | F | 44 | 2 months | 10/22/2015 | 5 | Crohn's | Headaches, dry peeling skin at the corners of my eyes, umpteen UTIs, had a ureteral reimplantation last February, crabby,muscle pain. The list goes on. | I've been on Remicade for 10 years. Why can't I stop it if I'm in remission? Cancer patients don't keep taking Chemo, do they? | F | 53 | 10 years 10mg ? | 10/8/2015 | 3 | Chrons | After about 3 years I got blister with yellow secret every where; hair skin feet. Before that I had minor problems after treatment. I slept for 2-3 days, had chest pains, and night sweats | The feet are getting worse. I stopped remicade 5 month ago. It start with swelling of the feet the get red whereafter I get lots of blisters, my skin dry out and the skin breaks leaving me with big open wounds it sucks and I can't walk. | F | 54 | 3 years | 9/23/2015 | 5 | UC | None | It's worked for me 100% remission Would like to increase the length of time I go in between if possible | F | 52 | 2 years | 8/24/2015 |