REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Pediatric Crohns Disease | Has worked great for 6 months but recently had joint pain, pleural efusions and vision issues. | This drug has worked great for my son's Crohns. He was diagnosed 3.5 years ago and has never had very severe symptons but the 6 Mp didn't keep him in full remission or give him an appetite. The Remicade put him in remission, he gained 20 pounds and grew 2.5 inches in 6 months. However lately he has started complaining of joint pain but I thought (hoped) it was growing pains. He now has chest pain, fluid in his lungs and some vision changes. We will find out this week, hopefully, if it is Remicade related. Then what? | M | 15 | 7 months 1X O | 12/13/2010 | 5 | Crohn's | None | My 4 year old son has his 3rd dose of Remicade tomorrow. Almost all symptoms disappeared after 1st dose. This was the first and only medication he has been on for Crohn's Disease. I am worried about the long term effects of this medication since he is so young and so little research has been done for his age group. | M | 4 | 6 weeks 1X M | 11/23/2010 | 5 | Crohn's Disease | Onset of severe hives about 7 - 10 days after each dose. Anaphylaxis. | Remicade did work for me, but due to the anaphylaxis I am not able to take this anymore. | M | 39 | 3 years 1X AN | 11/9/2010 | 5 | Crohns Disease | In the past 10 weeks, I have lost almost all of my hair. I don't know if Remicade is the reason or something else, honestly. I've been on it for at least 8 years so I'm at a loss if all of a sudden that has happened | This has been a great drug for me. I had surgery for Crohns and a year later it came back in the same spot. Not wanting to undergo surgery again so soon, I told my doctor that I would try anything to avoid that and put me on Remicade. It has pretty much put my Crohns into remission. Wonderful, but very expensive drug. | M | 45 | 8 years 265 mg 1X O | 11/2/2010 | 3 | Rheumatoid Arthritis | I am usually tired for a couple days afterwards. Each time I have a different afterwards symptom. This one, which was 10/29 I have achiness and a headache and am very tired. Every eight weeks was not helping, so my doctor moved me to every six weeks. | It seems to help a little, but not consistent; I haven't been on it too long, so will give a little more time to see if it is worth it. I am concerned about the long term effects. | F | 67 | 6 months 300 1X O | 10/30/2010 | 4 | JRA | After five iv's, I'm still glad I tried Remicade. But I'm a little concerned about some side-effects. During the infusion, I experienced some discomfort. Like someone was sitting on my chest, a feeling of pressure. I already recieved Tavegil, but I still had that same reaction. Next week I'm having another iv, including some more medication. Something like hydrocortisone or Prednison. I'm not sure what, but if it works? Why not??? I must say, I'm realy happy with the results. My joints are alot less inflammed and, finally, I'm enjoying life. | A few years ago, no doctor knew what to do with my inflammed joints. There weren't any drugs I didn't try of have tried. My artrithis was so bad, all I could do was wait for a new drug. Because of my situation (two types of artrithis, 25 years of dissease and so much more...) it's hard to find medication that suits. With Remicade, I got my life back, after 8 years of total destruction. All I want to say is, that there's for everyone something good and a drug that helps. Just don't give up! BTW, I'm from Holland, so my english needs some work... ;-) | F | 25 | 5 months 240 MG 1X AN | 10/28/2010 | 1 | Ulcerative Colitis | About 5 days after my first infusion, I developed severe, excruciating lower back and hip pain that was a 10+ on my pain scale. Pain medications would not relieve this and I could not walk. As the days progressed, it go worse and would show up in a different joint every night. My only relief was that it would go away by morning. However, then I was tired all day from lost sleep. I had never had joint pain in my life before. I told my doctors no more Remicade and cancelled my second infusion. The pain let up after 12 days only to start up again last night. I am worried it may never go away. | Not worth the joint pain! I can't believe this started after one infusion. I didn't even want to take this medication and already decided I would rather have surgery than deal with what I felt was a dangerous drug. However, I was in the hospital for two weeks with a flare that wouldn't respond to steroids and was rapidly losing weight and getting sicker. My doctor wanted to end my flare and get me strong again for surgery using 3 infusions of Remicade as an intermediate step. Thinking that only 3 infusions couldn't possibly cause permanent problems, I agreed. The 1st infusion did end the flare but then the intense joint pain started. I have heard that the pain is usually temporary so I am crossing my fingers. I would hate to cure my UC with surgery only to be left with the debilitating joint pain from the one infusion of Remicade. | F | 38 | 17 days ? 1X day | 10/18/2010 | 2 | crohn's | Writing for my daughter, started Remicade shortly before bowel resection. Seemed to work for about 4 years with mild side effects. Recently developed horrible psoriasis-like rash (now well documented in the literature)- over about 75% body much worse than the Crohn's. No drugs working, need to go off Remicade. | F | 30 | 4 years 1X M | 10/10/2010 | 4 | crohn's disease | been taking remicade for 14 years; every 6-8 weeks. Only side effect i have ever had is itching, but not every time. | I've had fistulizing crohn's disease for 40 years | F | 57 | 14 years 400 1X O | 10/7/2010 | 3 | Chrons/UC | I felt like someone was standing on my chest. My throat has been irritated and hurting since may and it is now september. I had some serious joint pain, head aches and dealthy low blood pressure. I also felt like I stopped breathing when I would relax, and it had been really hard to breath for about two weeks after my second infusion. I also experienced numbness and tingling in my hands and feet and I was extremely nervous and anxious feeling PLUS my hair was falling out in chunks in the shower. This all lasted for about two weeks after my second infusion. | I am really nervous to get my third infusion, all of those side effects freaked me out but they only lasted two weeks and I haven't seen blood in any of my stools since and I can leave my house now and not worry about having an accident. It has really improved my stomach and bowel movement problems and relieved me of bleeding to death. But I'm still not sure if it is worth taking again due to all of the other crazy side effects. The goodness kind of out weighs the bad, I mean I felt shitty for a couple of weeks but felt fucking fantastic for two months other than an irritated throat. This drug scares the piss out of me, but it seems to be the only thing working for my tummy. =/ | F | 18 | 1X O | 9/20/2010 | 1 | Crohns | None at first. Then, severe neuropathies in toes and fingers. Blisters on toes. At five weeks, started vomiting and retching uncontrollably. Dystonias after the vomiting. | M | 12 | 7 months 1X O | 9/15/2010 | 5 | Reiters Syndrome (form or RA) | Mild tiredness the day of infusion. No significant side affects. | The first day I had an infusion 9 years ago, I felt immediate pain relief that day. Remicade has allowed me to live a normal lifestyle ever since. No joint pain or swelling, amazing really. No significant side affects that I am aware of, I wonder about the long-term side affects though. | M | 42 | 9 years 600 1X M | 9/8/2010 | 5 | spa | tres gros benefices pour spond.arthr. ankyl.Par contre beaucoup de fatigue et de bouffees de chaleur. | Avant debut de remicade en 2006, je prenais 1 celebrex chaque soir au coucher depuis 3 ou 4 ans.depuis trait. par remicade,a raison d'une perf. toutes les 12 semaines,j'eprouve beaucoup de fatigue,par contre "mecaniquement" la vie est presque normale(je n'ai pas pris un seul anti-inflammatoire depuis octobre 2009 et tout au plus une dizaine de daffalgan depuis octobre 2009. Par contre depuis ma premiere perf.en 2006,je suis allergique a la penniciline et a la codeine. | M | 44 | 12 weeks 1X W | 8/29/2010 | 2 | JRA | No side effects during the infusion itself - so far it has been an enjoyable experience due to the IV benadryl. Afterwards, I feel itchy, puffy, and extremely tired sometimes for days. With this last infusion (my 6th), my joints felt noticeably worse for 2-3 days, in an unusual way - sharp pain, not the usual arthritis ache. Non day 4 after last infusion I am still extremely tired but at least my joints are getting back to where they were before the infusion. | I am underwhelmed by this medication's effectiveness. It has been nothing like the first time I took Enbrel, which gave me the sensation for the first time in my life what it would be like to live without JRA. Unfortunately, Enbrel stopped working for me. My doctor has increased the dosage of Remicade several times to see if it's a dosage issue. With this last cycle, I feel like it gave out about a week short of my infusion date. I learned from the nurses that sometimes the doctor will shorten the period between infusions. I take this in addition to prednisone and methotrexate injections (and a few other medications). Have to admit I am not always timely with the methotrexate injections so I can't say if this regime is effective due to user error. :-) I am thankful that this medication allowed me to stop doing 2 of 3 self-administered injections per week. Just before Remicade I tried Humira which was not effective and stung intensely during injection. | F | 45 | 1 years 1X O | 8/22/2010 | 5 | crohn's | headache sometimes the day of the infusion | It has changed my life, I hardly ever have pain anymore. When I do have pain, it is a fraction of what I used to have. I will continue taking it for the rest of my life. | F | 37 | 3 years 1X O | 8/20/2010 | 3 | UC | at first nothing but the last year head aches,joint pain and muscle pain. I don't want to scare anyone away from Remicade but This is a very strong med and and the side affects for "Me" are almost as bad as the UC. | It's always a quality of life question isn't it? I think my body is now making Remicade antibodies and I'll have to change meeds, but to what? it seems the alternatives are far worse. | M | 49 | 4 years 1X O | 8/2/2010 | 4 | UC-RA | For several days after treatment I experience swollen feet and low blood pressure (85/50 last treatment) but both normalize within 2 to 3 days. No other side effects noted to date. | The effects of my UC and RA were initially pretty severe. I was hospitalized for 6 weeks and had recieved many blood infusions. My left knee was operated upon. I initially was treated with Prednisone 50mg daily (which was horrible). Currently I recieve Remicade each 8 weeks and daily take Asacol 800 (X3)and Imuran 100 (X2). Prior to this regimen I had used crutches to walk (when I walked at all) and had my weight go from 65 kg to 90 kg. Now I walk without crutches and have lost 20 kg of the weight. Additionally I am returning to work after 5 years of being homebound and though I still have days where my joints feel as if they solidify, overall I feel 10 years younger and move like it. I just hope I do not develop an immunity as I fear going back to the way I was. | F | 46 | 3 years 1X O | 7/29/2010 | 5 | psoriasis/psoriatic arthrits | I was 100% covered with psoriasis. My arthritis was acting up. I could not move with out cracking and bleeding. UCLA had never seen a case as bad as mine. The light treatments did not work. | I look forward to my infussions. I do get sleepy during my treatments. I feel really good within 2/3 days. My psoriasis has cleared up totally.I am on methotrexate 4 tablets 2.5 mg. a week. Iam also on prednisone 10 mg every other day. | F | 61 | 8 days 800 1X M | 7/26/2010 | 3 | Psoriasis and Psoriatic Arthritis | I started taking Remicade about 18 months ago. After the first four treatments my Psoriasis started clearing up as well as the Psoriatic Arthritis. I was about 95% clear throughout the summer of 2009 until November, and then my Psoriasis and Psoriatic Arthritis began to slowly return. Now my Psoriasis and Psoriatic Arthritis are worse now then before the started taking the infusion. My joints now hurt more then ever before and I feel tired a lot more now. I guess my body has slowly built up immunity to the drug. My doctor was having me take the infusion once every 8 weeks, but now has switched it to once every 7 weeks. I am very pessimistic that this will make any difference. | I have been suffering with Psoriasis and Psoriatic Arthritis for nearly 13 years. It started when I was 42 years old. Prior to that, I never had Psoriasis and Psoriatic Arthritis. Two of my brothers have suffered with it for almost their entire lives. The Psoriasis covers about 70% of my body mostly on the legs, arms, scalp, and front torso. However, my back is relatively clear. Since the Remicade stopped working my Psoriasis and Psoriatic Arthritis is now spreading like wild fire. If the once every 7-week treatment does not work, my doctor will try increasing the dosage to see if that helps. I just hope it does! I'm so sick of this disease! | M | 55 | 18 months 700 MG 1X O | 7/23/2010 | 3 | Crohn's Disease | Initially had no side effects but it took 5 treatments to feel like it was making a diference. Not sure if what I am experiencing now is a progression of the disease or side effects of the drug. I have had some hair loss as well. | I have had Crohn's for 30 years and lived with it with minor inconveniences until 10 years ago when I had to have a bowel resection and things went downhill. I tried many other drugs (Immuran was horrible!) so decided to give this a try. I have had a few serious infections (Cellulitis, Pneumonia) and many minor ones. Seems to come with the territory. I also have terrible joint and muscle pain which I am now being told is fibromyalgia and or arthritis. I have developed psoriasis on one finger and the bottom of 1 foot after having infections in both places. Was feeling exhausted all the time but have been off work for 2 weeks and am beginning to feel a bit better. In spite of all of this, I believe the drug is worth taking, when I have had to wait to take it due to infections I am much worse; way more pain, number of times I have diarrhea and the urgency. | F | 50 | 2.5 years 1X O | 7/22/2010 |