REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Crohn's | Mild tiredness, weaknes. | M | 24 | 1 days | 5/22/2012 | 5 | Crohn's | Tired, confusion, forgetful | saved my life & let me have a healthy baby | F | 32 | 6 years 1X O | 5/18/2012 | 1 | Crohns disease | Was diagnosed with sarcoidosis (enlarged lymph nodes in my chest 6 months after stopping Remicade - I did not have this when I started Remicade | This drug caused me to be hospitalized on several occasions - the final straw was I ended up in the hospital 3 days with a very severe rash all over my body that started within a few hours after my infusion - I would NOT recommend this drug to anyone as my blood work went off the charts I ended up with pneumonia and now I have sarcoid (and had to have a medialstenoscpy to get bioposis in my chest) I have a hard time breathing, am so tired no energy now from Sarcoid - both specialists blame the Remicade for what has happened to me but no one will put it in writing. I would like to see how many other people have had this problem - I was only on it 2 years - my GI wanted me to start Humira - NO WAY - my crohns disease is now controlled by a NO FIBER diet and have had no GI problems since I got off Remicade but now have worse problems from it | F | 63 | 2 years 8 weeks 1X day | 5/10/2012 | 1 | Yes | Was on Remicade Infusion took first 3 infusions. After 3rd infusion have burning feeling all over body. When I swallow it hurts. Have done test everything seems normal. Only thing is the Remicade. | No problem with first infusions but felt no difference just a slight change in pain. Overall no difference. Now I have fatigue night sweat and overall joint pain. | F | 53 | 3X AN | 5/9/2012 | 3 | Crohns disease | I have been taking remicade since my freshman year of high school and I cant even tell it works anymore | F | 18 | 4 years | 3/21/2012 | 2 | Ulcerative Colitis | Fever, chills, night sweat, fatigue, vision changes, trouble sleeping | Two days after my first infusion I had high fever for two days, and I've had intermittent low-grade fever, night sweats, and chills for the last several weeks. I have never been someone who gets random fevers until now. I was hospitalized for my fevers and dehydration one week after my first infusion, was given antibiotics, but no infection was found. The hospital also put me on 40mg of prednisone a day, which is the only thing that has positively helped my UC. My doc told me to start slowly tapering the prednisone, but as soon as I did that my UC came back immediately. Not sure the Remicade is doing anything, and given how it's kind of messed up my life I think I'm about done with it. The side effects have been worse than my original UC problems. | M | 26 | 4 weeks 1X O | 3/12/2012 | 5 | RA | I had my first infusion on 2/29/12. I did not notice any side effects. My appointment time was 8am, I was went to work right after and worked until about 9pm. | I have my life back! If this is any indication of what I should expect I would recommend it to anyone with RA. I have been in pain since June 2011, I just found out that my RA is real bad and nothing was holding me more then a couple of days. AS of today Sunday following 2/29 I have had no pain! I know it is a process, but I am just happy that I have had three pain free days. | F | 45 | 3 days 30 mg 1X day | 3/4/2012 | 1 | Psoriasis | During treatment: Nausea, severe chest pain, hives, & itching and burning all over. | F | 56 | 6 months | 2/28/2012 | 5 | crohns | Remicade helped when no other drug would! I am thankful to be on it. Only downfall is 6 weeks into the infusion I get terrible joint pain ALL over my body. Ankles wrists feet hip knees shoulders! But once I receive the infusion I am back to myself. | F | 26 | 1 years | 2/24/2012 | 2 | Crohn's Disease | I have only taken two doses but I did not see any relief and the doctor said it wasn't working. I did feel very tired for the first two weeks after taken medication. I am scheduled to have adhesions removed and a resection done on Tuesday. He said it is very unlikely that I will need a colonstomy bag. The doctor said I will be like a new person after four weeks. Can anyone give me advise or what to expect following surgery. I am only 42 years old and am very scared. I am a new grandmother and do not get to spend much time with her due to constant pain. Can the Crohn's return again? | F | 42 | 30 days 300 2X M | 2/9/2012 | 4 | UC | General itching all over body... no rash. Extreme heartburn. Eventually, (after nearly a year) I developed severe joint pain. That's when I decided to stop the Remicade. | I posted my experience with Remicade on this site some 4-5 yrs ago. Getting an email from someone asking me about it prompted me to give an update. Remicade was like a miracle drug to me. I was out of options, short of surgery, and was in the hospital with severe blood and fluid loss. I saw results with Remicade immediately after the 1st infusion. After a year of Remicade I developed severe joint pain and discussed the risks and benefits with my GI. He told me I could go back on Remicade if severe UC symptoms returned. It might not work as well, or as fast, but it was an option. That's all I needed to hear to stop it. My symptoms have been under control for 3-4 yrs now using Lialda, Canasa and Rowasa, as well as Low Dose Naltrexone (google it). The joint pain and heartburn quickly resolved after stopping Remicade. However, I STILL take antihistimines daily for itching. Its lessed ever so slightly over the years, but is still bothersome. | F | 55 | 1 years 1X O | 2/7/2012 | 5 | Crohn's Disease | Tiredness, neuropathy in both feet, headaches, dry skin, joint pain during & several days after infusion, more prone to getting sick with common cold, skin rashes, low grade fevers, osteopenia | F | 30 | 1 years | 2/4/2012 | 5 | Crohn's & Ankylosing Spondylitis | Tired, neuropathy in both feet, headaches, very dry skin, eczema, joint pain during & several days after infusion, more prone to getting sick with common cold, bronchitis, skin rashes, low grade fevers, osteopenia due to the solumedrol b4 infusion & yrs of intermittent use of prednisone. Swollen lymph nodes in neck. | F | 38 | 10 years 10 | 1/23/2012 | 4 | ulcerative colitis | No side effects from the Remicade infusion itself. But, I feel that the Remicade has caused a joint problem. | I was prescribed Remicade after trying oral medications (Asacol, Colozal, Prednisone, Imuran, Sulfasalazine), and it worked practically immediately. I am supposed to get my infusions every 8 weeks, however, sometimes I wait 10-12 weeks. After 8 weeks, I start to get random joint pains in the evening which worsen as the night progresses. It is typically a different joint each night, and the pain is very focal within a tendon or ligament. The pain gets so bad that I often have to take medication just to sleep. By the morning, the pain is mostly resolved. When I get my Remicade infusion, the joint pains stop. I haven't had intestinal symptoms since starting the Remicade, but these joint pains are awful. I have considered trying to go off Remicade, but now I fear these joint pains will plague me forever. If you have the same experience, it would be great to hear from you. Thanks! | F | 45 | 6 years 1X O | 1/23/2012 | 1 | Crohn's | Severe joint pain. Diagnosed with Drug Induced Lupus. | Drs. did not want to acknowledge that remicade could cause this and continued the infusions until I did my homework and stopped it. Found a new GI and a rheumatologist. | F | 52 | 1X O | 1/23/2012 | 1 | Ulcerative Colitis | Joint pain in every joint in my body, which got worse with each infusion. Stiffness. Excessive sweating at night, chills, yeast infections, weight gain. | I wish I would have listened to all the actual people on here who said this medication causes joint pain instead of my Dr! | F | 42 | 2 months 1X day | 1/22/2012 | 1 | Crohns Disease | Severe Joint pain- headaches-swelling of feet and hands-rashes. Serum Sickness- Lupus, and Steven Johnson Syndrom. Numbness and tingling in arms, hands, and legs. Couldn't move head, arms, legs, and hips. Exray taken- they said it looked like I was in a car accident- dislocated jaw, 4 protruding disc in neck. Tumor on left shoulder, I stuttered for 2 months. I still have protruding disc, lupus, numbness and tingling- it's been 4 years since I took remicade. | If you feel pain- stop the medication.. Doctors will tell you it's normal or that it will go away with predisone- it won't. It gets worse you won't be able to walk or sit up. Knees will feel like your getting hit with a baseball bat everytime you go to sit or stand. HORRIBLE!! I went 9 months not being able to move without help or pain. They don't know anything about this med.. My blood test were off the charts.. And they hide it- my medical records through doctors office were wiped clean of my complaints.. But luckly I had gone to the ER on several occasion and it was documented through them.. It took me 4 months to get medical records from my Rheumy, and a threatening phone call from another Rheumy. Be Careful, and keep records. | F | 31 | 2 months 1X M | 1/12/2012 | 1 | Colitis | Severe reaction, still nausea 8 wks on, still no appetite. Heart palpitations, low BP, low blood sugar. Ached from head to toe for 4 days unable to get out of bed due to this. Spent 8 days in hospital was admitted after having reaction during infusion, was almost out of it & did nothing but sleep felt so drugged up. Scary experience I'm now 8 wks since last infusion things are better but I still don't feel right still NO appetite & lost a total of 2 stone 10lbs in 8 weeks. Look very pale & drawn. Constant nausea still . Was doing so well on it. Consultant confirmed it's a severe reaction, a frightening one for me as I felt I wasn't in control of my body & scary for my parents to now see me a shadow of my former self. *not everyone gets a reaction | F | 31 | 1 years | 12/30/2011 | 1 | Ulcerative colitis | I have had infusions for UC for 1 1/2 yrs every 8 wks. No improvement. Had my first 6 wk infusion this week. Guess we will see. | F | 60 | 1 years | 12/18/2011 | 5 | Ulcerative colitis | No side effects so far, except of course drowsy day of infusion. The drowsiness is mostly from Benadryl before infusion. | F | 25 | 6 months | 12/6/2011 |