REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 4  crohn's disease I have gotten cellulitises from the stuff, make sure you use triple antibiotic ointment on cuts and scrapes for 3 or so weeks after an infusion. I used to get joint pain shortly before the next infusion, haven't experienced it in the last couple years. sometimes i notice a boost of energy after an infusion. I am developing antibodies to the medication and now test positive for RA, even though the rhumatologist says I do not have RA. i now watch for those symptoms as well Well it makes me feel much better and gives me a quality of life that was missing without it. I started at 700 mg every 8 weeks, and my doctor and me are debating going to every 5 weeks now. I have had my first flare while on the medication and am looking forward to getting it today. Dangerous drug but I know how miserable I was without it. If it continues to loose effectiveness My doctor will most likely switch me to Humira. The infusion beats the 75+ pills i had been taking before I started the remicade M 46 6 years
800 mg 1X O
7/26/2011
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 5  Crohns Usually only Dry Mouth and fatigue, only in my legs Before Remicade, I couldn't move. Just about bed ridden. Muscles and joints would cease up. I would eat a grain of rice and be in the bathroom for hours on end. After my first loading dose, EVERY ache, pain and bowel movement subsided immediately. It has 100% improved my quality of life. Side effects or not, it's worth it just so I can get on the floor and play with my kids. M 35 6 years
600MG 1X M
7/20/2011
 4  Crohns disease absolutely no side effects that i'm aware of. this has been great. i've had relapses of the crohn's symptoms every once in a while, but that's when my dose was too low or when i was getting close to needing a top up... otherwise, this treatment has been so helpful, definitely has improved my quality of life and i am only taking remicade. i have pretty severe stricturing crohn's but this has been managing the symptoms quite well. i'm very pleased. F 31 20 months
1X O
7/16/2011
 5  Ulcerative Colitis VERY dry skin, minor joint pain I am in love with Remicade. I was taking prednisone for 6 years off and on mixed with imuran. I did not have a good reaction to azacol and colozal. Remicade has allowed me to finally begin getting rid of the swelling that prednisone has done and there for boosted my confidence and made feel better emotionally as well as physically. F 29 5 months
5 MG 1X AN
5/20/2011
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 4  ulcerative colitis I have not had any side effects during the infusions. I have been depressed for almost 2 years and lack the energy I used to have, although I am not sure if this is due to the Remicade. I will stay in bed all weekend sometimes, although I am still able to work fulltime. Occassionally I have some blurred vision. I was diagnosed with UC in 2002. At first it was mild, but I had progressive, worsening and more frequent flares as time went on. I had been on Asacol, Colazol, Imuran and prednisone prior to starting Remicade.Was also supposed to used Rowasa enemas, but I found it difficult to be compliant. I was still on Imuran (azathioprine) when I first started Remicade, but my new doc took me off to see if my fatigue would get better. My abdominal pain improved within a few months after starting Remicade but the bloody, frequent stools continued for about a year. I did not have a miraculous cure in the first week or even the first 6 months. I was also taking Apriso 4 capsules in the morning. I tried increasing the dose of the Apriso to 8 a day for about 8 weeks but that didn't help. Then I tried taking 4 Colazol at night with the 4 Apriso in the morning, and within a couple of weeks things got better. I think I also have irritable bowel syndrome, as well as the UC. I take probiotics and fiber. I would really like to have my doc cut the dose or frequency of the Remicade and see if my mood and energy improve. I actually would love to go off of it all together, but I am terrified of having having a flare. I was on antidepressants for awhile but they did not seems to do much good. I went through menopause during my struggles with UC and have had pretty bad insomnia since. F 55 2 years
10mg 1X day
5/15/2011
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 4  ankylosing spondylitis Fatigue during and after infusion for 2-6 days. Increased muscle and joint pain which goes away after a week or so. Drug caused migraine headaches for several years until infusion was slowed down and given over a 3 hr period. Now they are just occassional. Does cause some mood changes also. After 40 years of pain, disability, hip replacements, spinal fusion from inflamation and trying every drug on the market, Remicade worked by the next morning after my first infusion. It's the only drug that eases the muscle, ligament, tendon and joint pain. I do worry about long term side effects but I want the best quality of life for as long as possible. Any side effects are worth the risk. F 64 7 years
100MG 1X M
5/9/2011
 5  Ulcerative Colitis I have a skin lesion on my knee that won't go away with OTC ointments. Also, numbness in left arm when elbow is bent. Seems to have completely stopped my UC flares in the last year since my dose was increased to 10mg/kg every 8 weeks. M 69 3 years
10mg/kg 1X O
5/5/2011
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 5  ulcerative colitis Tiredness but may be the benadryl; lately dry icthy skin and joint and muscle pain on hips have been going to the doctor about it but until reading comments today never made a connection to the remicade. Now I'm wondering. I love this medication; for me it worked within 48 hours of the first dose. Occasionally before my period I bleed a bit, but it's rare. Overall, I'm satisfied but like others worried about the longterm effects F 49 3.5 years
10 1X O
5/3/2011
 4  ulcerative colitis At first I did not notice a big change, it was about the 3rd dose that I started to feel better. I feel that immediately after the infusion I get very lethargic and joint pain is immense for the first 2-3 weeks. Then I am great for 2-3 weeks only to have the last 2 weeks of my cycle start my colitis symptoms again. Cramping, gas and blood. The joint pain was near unbearable and my doctor gave me sulphasalazine for the pain and it has helped greatly. I'm not sure where to go from here as I feel the drugs are tending to make me feel like I'm being poisoned and the colitis is not in remission. I feel trapped, I keep telling myself that my doctor will figure it out but then I feel I should try some other kind of regime? F 45 7 months
0 1X day
4/25/2011
 4  ankylosing spondylitis no side effects relative to the drug, the drug worked like a miracle,as they say,but after about six months it would wear off a week or so before next infusion, then it would wear off with increased pain. i would barely be able to walk into the clinic but, would walk easily out. as it got less effective and the pain got much worse and occurred in places where i have never had pain in the 40 yrs with as, the dose went from 500 to 750mg. some relief but it is not going to work. it seems my body is creating antibodies that render the drug ineffective. now am about to have another tnf to see if it has long term results. once you get a taste of a pain free life it's hard to go back. M 60 1 years
750mg 1X M
4/24/2011
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 4  Crohn's The only thing i have noticed that could be a side effect is sometimes having a little blurred vision. So far i feel Remicade had definantly worked!! I have had 3 injections and now i go every 8 weeks. before this i had a terrible flare i was looking like death and lost about 40lbs i was very ill and people knew it. But after the first 2 months of remicade ive gain about 20lbs back and really dont have any pain throughout the day anymore. i definantly have more energy and feel more like a normal college student. --ONE MORE THING FOR PEOPLE IN PAIN-- Being completely seriouse marijuana, for me at least, has been a life saver. At times of sever abdominal pain i would take a hit and instant pain relief. It truely does work and it really should be legalized for Medicinal purposes. I urge whoever suffers from this or any other chronic illness like crohns, give cannabis a try becasue it truely does help with pain. God Bless M 20
1X O
4/23/2011
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 4  Ulcerative Colitis/Crohns Major/lotsof acne type rash all over entire body but majority on arms and thighs. I have been taking Remicade since December and am currently slated to get an infusion every 8 weeks; I finally noticed improvement after my 3rd infusion and it has put me in what I'd call remission. M 30 5 months
1X O
4/21/2011
 5  UC I haven't experienced any side effects from taking Remicade. Remicade gave me life back. I get four vials every 8 weeks (not sure of the dosage). I am now able to eat and drink anything I want without worrying where a bathroom is! I feel like a normal human now! No more pain or embarrassing moments:) F 26 6 years
1X O
4/13/2011
 5  Ankylosing Spondylitis itchy, psoriasis patches on body and in mouth, relieved with cortisone cream This was a miracle drug for me initially. It doesn't last as long between infusions now. My rheumatologist has me on 4 vials every 6 weeks, which is a pretty high dose for a small person like me. Even so, it just seems to quit working at the 4 week point. Not sure where I am going to go from here as I don't really want to up the dosage. F 54 14 months
40 mg 1X M
4/10/2011
 3  UC My hair is falling out in the shower, in a brush or in my hand. I have delveloped allergies I never had before and it has made my body more reactive to allergies I know of. I had severe hives after using an organic fragrance free sublock I've used for a long time with no reaction. I've also developed anemia since my 3rd treatment, low adrenals ,low cortisol, scalp and face breakouts. It has done nothing to ease constipation. I was hospitalized in December of 2010 for the 1st time in 15yrs after I could not control a flare up, I was dehydrated and lost 10 lbs. I had been in remission for 2 yrs before this happened so I was very surprised to hear my UC had grown up the colon and they wanted to start Remicade treatments. I admit I felt immediately better with the 1st treatment in the hospital. I didn't feel I had much of a choice at the time, but now I'm re-thinking continuing! The doctor wants to keep me on a every other month protocol indefinitely. I have worked so hard to build my immune system ( I have thyroid disease and fibromyalgia too) working with Holitic MD's and Enviromental Allergist. Remicade is now destroying my immune system and it goes against everything I believe in. I eat healthy and organically, avoid gluten, sugar and dairy, exersice daily including yoga to reduce stress. I'm starting to feel that the side effects are not worth it. I feel lousy despite all I do! How do you try to build your immuninty while Remicade is destroying it?????? F 45 3 times
1X O
4/5/2011
 2  psoriatic arthritis Frequent infections in the fingers (nail beds) and urinary tract infections. Headaches and dizziness too. pain at injection site for weeks. Also taking methotrexate. Not sure if this is for me, very worried about the side effects of this medicine. They recently increased my dose and side effects are worse. F 46 1 years
60mg 1X M
3/30/2011
 5  Crohns Disease I feel great as soon as the infusion begins my aches and pains begin to diminish. I take remicade infusions 5mg/kg every eight weeks for crohns disease diagnosed in 1999. The effects of the remicade last me for six weeks. The last two weeks I start to feel horrific joint, muscle and connective tissue stiffness and pain. This pain goes away at the infusion and my relief from pain lasts six weeks. I love remicade. F 56 2 years
330 MG 1X O
3/27/2011
 5  UC In the beginning I had some fatigue but now I look forward to my treatments and feel great immediately after. I get a treatment about every 6-8 weeks. When the treatment is wearing off I have severe joint pain but not common in everyone, but this pain is gone immediately after the next treatment . Remicade gave me back my life and I don't know what I would do without it. Anyone should seriously try it before considering surgery it has changed my life. Unlike other reviews I read it did not change my symptoms over night, I needed a couple of treatments before I saw a great change, but now I notice a change immediately after each treatment. If you have any other questions please ask I am a great supporter of the treatment it gave me my life back. F 51 2 years
8X W
3/26/2011
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 5  psoriatic arthritis sore throat the day after, fatigue-tend to sleep for a day or two, no energy Dr increased dose this past week and my chest feels heavy with a little discomfort. Not sure yet if related. This really works. Inflammation of the joints continues to decrease. Pain is inevitable right before next treatment. Dr. is changing dosage and going from 6 weeks to 5 weeks. Compared to not being able to walk and living on steroids, this is a miracle drug. I also was on enbrel for over a year prior to remicade. It was even better, but my insurance decided not to continue to cover it due to future problems it could cause. F 42 1 years
1X M
3/25/2011
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 5  psoriatic arthritis F 51 11 years
1X O
3/22/2011

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