REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Crohn's | No bad side effects. Twice I've had the dose up to 900 mg for a flare and Remicade works. Still using Lialda daily and enucort on occasion. | F | 38 | 3 years 400 mg 1X M | 3/16/2011 | 5 | Rheumatoid Arthritis | There have been literally no side effects. Possible occasional fatigue right after the infusion. Otherwise, there have been no issues yet. | Over the course of the 10 years of treatment, my disease has spread to other parts of my body, now including spine, hips, jaw, and most all internal joints. My peripheral joints are still minimally affected by the disease. Remicade keeps the pain and debilitation to ~2 compared to ~8 without Remicade on a 1-10 scale (10 being the worst). | M | 27 | 10 years 600 1X O | 3/12/2011 | 4 | Crohn's colitis | minor skin infections,headache, dermatitis (doctors not sure which), fatigue, severe scalp psoriasis (went away on its own after a year), full body itching, starting to have joint pain (ankles/knees), hospitalized for shingles after being prescribed pred for minor flare-up | 4oo mg every eight weeks - I've been diagnosed with moderate-severe IBD since 2005 and have had many hospital stays due to bleeding or never ending flares. I quickly went through asacol and 6mp, then they started me on Remicade. It worked really fast and well with no side effects except fatigue at first. I have had two flares on Remicade which resulted in a higher dosage. Over time I started to develope skin issues and am just now starting to feel some joint pain. I believe Remicade can work really well for some people and not at all for others and that our opinions are based on our experiances, which have a wide range of results. I hope everyone finds what works for them and maybe we might see a cure in our lifetime. | F | 18 | 3 years 400 mg 1X O | 3/10/2011 | 3 | ulcerative colitis | no side effects at time of infusion. but weeks after the infusion, my body is racked with joints/muscles/tendon pain. I have no tolorence for physical labor without consequences. Recently, my hip joints have added themselves to the list. I feel 20 years older in the two that I have been on the drug | I am taking 6 vials every 8 weeks. lost 70 lbs and had a 5 day hospital stay prior to starting remicade. was down to jello and soup. Now i eat what i want. Remicade is keeping my gut in remission, but carries a heavy burden in side effect baggage. My doctor seems to discount my complaints because my SED rate and other blood work does not support then pain I am feeling. I feel trapped taking a medicine that is slowly eroding my quality of life. Two years ago i was doing a large pavestone project and now I pay for it if I do even a little physical work. Anyone who has found the "out" to this trap please let me know. | M | 42 | 2 years 6 vials 1X O | 3/9/2011 | 5 | Crohns | none. maybe a headache but cant limited evidence to link it to remicade | This has been a wonder drug for me. I was days away from an operation to disable my bowel and given Remicade on the off-chance (the UK has funny rules as to the administration of this expensive drug). After 6 hours the pain had completely subsided. I have now had three infusions and cannot believe the difference it has made to my life. A truly amazing drug. | M | 30 | 3 months 1X O | 3/7/2011 | 5 | Behcet's Disease | I haven't hard any major side effects with the Remicade. I am tried the day off and several days after my infusion. I have also found that I get a heavy chest and develop a cold afterwards. This tends to happen more often in the winter months than summer months, but it can happen at anytime. | I have had very good success with Remicade. I have been getting infusions since June of 2008. When I initially started I had GI problems and my GI tract was 60% ulcerated from my mouth to my anus and I had lost 30 lbs in a few weeks. Right now I am getting 800mg every six weeks, but about two weeks prior to the infusion I start to feel my symptoms coming back and am extremely fatigued. I am actually going in to talk to the doctor this week about possibly adjusting the length of time between infusions or the dosage or maybe both. I guess we will have to see. | F | 32 | 2.5 years 800 mg 1X M | 3/7/2011 | 4 | Sapho Osteomyelitis and JRA | I tend to sleep alot more then i used to about 12-14 hours a day. I also had some mood changes. | I have been taking remicade for 8 months and so far its working. I tryed enbrel before and got optic neuritis, witch in some cases you could go temp. blind. My doctor is not 100% sure if it was from remicade or enbrel. If you going to take remicade i would look at the side effect before you take it, some of the side effect are fatle. How I look at it is if you already got a rare condition you could get another one. | F | 15 | 8 months 1X M | 3/7/2011 | 5 | Rheumatoid Arthritis | Fatique and some sleepiness for a couple days after infusion some shortness of breath off and on; no reactions during infusion | Remicade has definatley given me much of my life back. I have less pain and fatique and feel almost 100%. I have pain in a few joints after infusion but, when I am due for my next one all my joints are painful and swollen. It took some time to get the dose right but, I feel like I am on track now. | F | 38 | 10 months 800mg 1X M | 3/2/2011 | 4 | Crohn's | Tired after infusion. Shortness of breath at the end of treatment. Sore throat, runny nose, headache 1 week after first infusion. | I was and am still very worried about remicade. I have been on steroids for over a year now and they have stopped working for me so this is my last resort. I felt tired for a few days after the infusion, but then I really started to feel great for several days. I now have a very sore throat and runny nose. I also have a headache? I get me second infusion on friday...3 more days? I am hoping that maybe these symptoms will go away after another infusion? | F | 27 | 1 times 1X O | 3/1/2011 | 4 | Crohns and RA | I get a horrible headache, followed by a sinus infection after every treatment. Nothing makes the headache go away. After three days turns into infection and I am forced to go on high dose of steroids and anitbiodics. | has worked to keep my crohns in check but my RA problems sneak out about two weeks before I am due for another infusion. Am also on metotrexate injections and steroids. 33 years old. Noticed lately my hair is starting to fall out. | F | 33 | 800 days 900MG 1X O | 2/25/2011 | 5 | Crohns | Occasionally, I will experience headaches and fatigue after infusions as well as hot flashes. I did develop a rash in the past that I believe was a direct result of the Remicade. | Remicade worked for me when no other drug did. I will stay on remicade for the time being however I am concerned with possible side effects and I do fear future complications being that this is such a new drug. I will definatly stop taking the drug when I decide to get pregnant. | F | 26 | 2 years 1X day | 2/23/2011 | 5 | UC & Pyoderma Gangrenosum | First tx I got flushed and experienced difficulty breathing which subsided, later I had an episode of hives and one of a rash. Sometimes I was very tired for a day or so. At this point I do not take any other medications other than remecade (no solumedrol - nothing!)and I do not have any symptoms during or after treatments. This drug has been a miracle for me as I have not had ANY recurrence of symptoms of UC or PG for four years now! | F | 45 | 4 years 1X O | 2/19/2011 | 1 | Crohn's Disease | Severe hives after a week. She was tired all the time. My mother was rushed to the ER was told it wasnt a reaction. Yesterday while she was having remicade treatment she threw up, passed out and stopped breathing. | I am writting this for my mother who is currently in the hospital because of the reaction it had on her. | F | 65 | 1 months 1X O | 2/11/2011 | 5 | crohn's disease | Very few side effects, sometimes a slight rash. | I have used remicade for the past eight years until i lost my insurance and could not get it anymore. During those eight years my crohn's symptoms were almost non existant. the drug was really a miracle for me giving me the oppurtunity to live a normal life. now that i am off the remicade my sypmtoms are out of control and nothing will work prednisone and 6mp have yet to been able to control my syptoms. i am getting remicade donated through johnson n johnson and hopefully i will have my life back again soon | M | 24 | 8 years 1X day | 2/8/2011 | 5 | ulcerative colitis | So far so good ... I take a day or two to regroup b\efore working again. | F | 33 | 2 years 200mg 1X O | 1/24/2011 | 5 | Crohns | My memory is bad. I am often foggy/dizzy. I feel tired all the time. I have joint pain | I was PREGNANT while on Remicade & my baby is fine. No problems during pregnancy other than my poor health. I had a c-section & had no problems healing. I don’t feel that I get sick more often than any other person. I was near death when Remicade was started as a last resort to save my life. 2 weeks in the hospital Remicade & prednisone saved my life. I did not read the BLACK BOX warning before trying the drug but that is because I did not have anything to loose at that point. I will keep using Remicade as long as it works despite its horror label/warning. | F | 31 | 6 years 1X O | 1/21/2011 | 1 | fistulas | Joint pain that moves all over my body. Knees, to hands, wrists, elbows, jaw, fingers, neck. I am 46 yrs old and very active (had colon cancer 12 yrs ago) and been doing great (minus fistulas). Took drug to help. Remedy way worse than original issues. Stopped plan for next infusion this week. Been 2 months since last infusion. Pain meds do not help. High doses of prendisone help. At night gets worse. Any one know how long these side effects will last? Very scary sife effects and no one has answers. | At first, all went well first 2 treatments. (About 9 weeks apart) Then notice right hand and fingers tight or locked up. Assume too much racquetball or mouse on computer. Then next treatment...both hands, followed by elbow. Each dose created more issues after about 3 weeks. Early Dec 2010, resort to medro dose pack...helps for a short term. Currently the past week, pain had made life upside down. Feel 85 yrs old. Went from biking, golf sports etc to difficulty getting up from chair or walking! What a sick disturbing position. Pray this wears off soon. | M | 46 | 8 months 1X O | 1/19/2011 | 3 | Rheumatoid Arthritis | I have extreme fatigue for two or three days after receiving my infusion. We're still searching for the right dosage though. I have some dizziness about once or twice a day after treatment for a week or so. | However, I can at least use my fingers now. Prior to Remicade I could hardly bend my fingers. I have been through Humira which worked great for about 2 years then became ineffective. Then tried Cimzia which lasted about 2 months. Then tried Enbrel which had no effect. During the Cimzia and Enbrel I was also on Methotrexate which exacerbated my asthma and caused my hair to start falling out. Stopped that myself and then my rheumatologist started me on remicade. I am much better than I was before the drug but I'm told I'm on a low dose and there's a lot of room for movement. | F | 66 | 3 months 1X M | 1/15/2011 | 4 | Crohn's | Hair loss and very dry skin. The day of my infusion, I don't feel good. It take me at least 24-48 hours to feel normal again. | I have tried all meds from A-Z and Remicade seems like the only drug that works for me so far. I still have the issues of when I eat something, running to the restroom, but I dont have the pain like I did before. I had a bowel resection in July of 2010 and was on Remicade before that, but since the surgery and on this meds, I can live somewhat a normal life (not completely), but better than before. I guess you take the good with the bad! My motto... STRONG MIND... STRONG BODY!!!!! | F | 45 | 11 months 1X M | 1/3/2011 | 4 | Rheumatoid Arthritis | So far the worst I am experiencing is losing a great deal of my hair. Other than that am not tired or nauseous after an infusion. | Took 3 infusions before it started to help. I am very pleased with the effect. Had been on 30 mg of prednisone before--which was limited in its effect. Kept waking up in the middle of the night in terrible pain. Remicade so far has given me back my life. | F | 72 | 7 months ? 1X O | 12/21/2010 |