REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  UC dry, flaking skin around eyes (esp. eyelids), and on scalp. Some "honeycrusting" in nostrils. taking remicade and 6-mp, I was able to stay in remission for a year. When the flare-up came back, it seemed more manageable--less urgency, less blood--although I still needed prednisone to get it under control. M 42 12 months
3/4/2007
 5  ulcerative colitis Headaches after 1st use, nothing else really. It works for me! I was on and off prednisone for the past three years, I could not stay in remission. Doctor was recommending surgery but decided to give this a try first. Two days after 1st treatment I stopped bleeding and was actually constipated for a day or so, then went back to normal. This week I ate a handful of popcorn, nuts on a carrot cake, and had 1/2 cup of milk I was okay. F 43 3 months
2/27/2007
 3  Rheumatoid Arthritis My first infusion the only side effect was some mild post nasal drip. My second infusion I had a severe allergic reaction. Nausea, dizziness, blood pressure went thru the roof, I got the shakes bad - my Doc called them "rigors" - and almost passed out a couple of times. Making it worse, I can't take steroids so all they had to calm my symptoms was IV Benedryl and that stuff knocked me out cold! I do think Remicade might have worked for me if I were able to take a loading dose of steroids before each infusion. F 38 2 times
2/23/2007
 5  Ulcerative Colitis No side effects I wrote here last in November, I've been on the drug for 7 months. I feel normal again w/infusions every 8 weeks. I wonder if I'll have to do this forever-I hope they come up with something less expensive! I thank the scientists that came up with this drug for giving me my life back. I hope it lasts. F 18 7 months
2/22/2007
 5  Psoriatic Arthritis Maybe a little tiredness. Sometimes headaches during infusion. This rhuematologist always has the patients take Zyrtec + I take Tylenol before infusion. I had to go up on my medication late last year when the effects came back in 6 weeks. I take the drug about every 8 weeks - 5 vials right now. I weigh about 200 pounds. This really cleared up my swollen fingers and feet with the first and second treatment. The small areas of psoriasis that I had cleared up. Recently my the psoriasis came back stronger in my scalp but the arthritis doesn't seem to have returned. I don't really seem to catch many more colds or flu than before. I had trouble with my sinuses before so it's tough to tell if that has changed. M 48 14 months
2/19/2007
 5  Crohn's None other than the norm except I've been taking Remicade for four (4) years but for this past year I've had twitching in my fingers and other parts of my body. My cousin also has been taking Remicade for Crohn's for a few years and has also experiencing twiching in her fingers. We both thought we were getting Parkinson's disease. We're sure seeing that we both take Remicade the twitching has something to do with that. F 45 4 years
2/11/2007
 3  ankylosing spondylitus just got my first dose on friday thats 3 days ago i feel very uptight fidgity and agitated thats the only side effect it had suffering for 12 years with my condition been on the other anti tnf treatments remicade was the only one to give a good relief of pain M 40 3 days
1/8/2007
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 5  UC After the first infusion, I had the night sweats and felt very tired the following day. After the second infusion, this did not occur. I will be getting my third infusion in a few weeks. I am 34 yrs old and was diagnosed at age 13. I have pancolitis that is difficult to treat. When I flare, I only respond to prednisone but have difficulty tapering. Was on imuran for 2.5 yrs but it unfortunately stopped working and I went on Remicade. So far, it has given me my life back after battling a flare for 9 months. I am extremely happy so far. I hope I continue to respond for many many years ahead. F 34 1 months
12/12/2006
 3  Crohns No side effects during first year, but now I take every 8 weeks and I have horrible pain in my shoulder and hip. Same spots each time. M 29 2 years
11/30/2006
 5  Ulcerative colitis none that i know of I wrote in Oct-it turned out when they did my colonoscopy that my UC was in total remission-no inflammation or bleeding. I need to be more careful on my diet to add more fiber so I don't get D from fruits and veggies. But it was difficult in the 7th week to make it to 8 weeks between treatments. My Doc tells me that 8 weeks is best and that I can't stop treatment or my body will develop antibodies to the Remicade and I won't be able to use it again. I wonder if I'll have to take it forever. But its only been since August and I can function and go to school without having D accidents. If anyone here has developed antibodies against remicade, please email me. Without this drug I was homebound, afraid to leave the house because I needed to be near a bathroom, just in case. If you know of chat rooms or support for this disease, please email me. I live in California. Thank you. F 17 4 months
11/23/2006
 3  crohn's constant cold/sinus infection, hair loss?, can't get enough sleep, headache two days after my first infusion I was completely in remission, night after my first three infusions i was very ill feeling with flu like symptoms, by the fourth time around didn't happen since. without a daily drug be warey of antibiotics, advil, and alieve... brings symptoms back for awhile. after a few months side effects started, not sure if side effects are worth it M 22 7 months
11/16/2006
 5  ulcerative colitis none intermittent recurrent episodes of uc every 5-8 years since 15 years of age and now unresponsive to steroids; hospitalized for colonectomy but convinced doctor to try remicade after I researched the treatment myself(I am a veterinarian); doctor hesitant because drug not approved for uc at that time; full recovery within 2 weeks (I attribute rapid response and healing to prayer); in total remission with low dose azathiopuirine daily and remicade every 60 days; doctor plans to stop remicade after 2 years if uc remains in remission; I also drastically changed diet with aid of "The Maker's Diet"-eat organic unprocessed foods and no refined sugars or flour; I hope to maintain remission with diet--I cannot begin to tell you how much better I feel on this diet and how easy it is to maintain my weight M 44 16 months
11/15/2006
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 4  Crohn's disease About 8 days after my first infusion, I awoke with mild arthritis type pain in my left ankle and hip. The arthritis symptoms moved up my left leg, fully engulging my left him, my left shoulder, and left part of my neck. The joint pain then migrated to and included my right side joints. By noon that day, I was on the couch taking hydrocodone for relief. Due to the joint pain, I could barely get off the couch and put a shirt over my head. I called my doctor, he called in a prescription for Prednisone and Tramadol. That worked like a charm. The arthritis began to disappear after the first two pills; then almost totally gone 20 hours later. Hopefully, the arthritis won't return. I took it three times in 2000 to try and close a rectal fistula. It worked like a charm. Six years out, the fistula is still closed, though I've developed colon and rectal inflammation. That's why I'm taking Remicade again. M 43 2 weeks
11/11/2006
 5  Ulcerative Colitis Had a headache for a couple of days with the first infusion but no problems after the 2nd and 3rd. After 1 year on prednisone and anti-inflammatory suppositories, I could never get off the prenisone w/o a flare up. I lost control of my bowels, incredible pain/pressure and bloody D. I felt much better within two days of the first infusion. But now two weeks after the 3rd infusion I am having symptoms again. I have a colonoscopy tomorrow-(3rd in a year and 2 sigmos) I hope we can get it back under control. Has anyone else had this reoccurrence during treatment? F 17 2 months
10/11/2006
 5  Crohn's Only once during my second treatment, but I heard that it was a normal thing. I love this drug. It’s like a miracle. I am no longer taking other meds (this of course is against my doctors orders). My GI wants me to continue on Immuran, but the Remicade helps me just fine. Though I think I need to ask him to give it to me more often. I go into the hospital every 8 weeks but I notice I start experiencing the pain and frequent bathroom visits at about the 6 or 7 week mark. I've been on it for about 3 or 4 years and I swear by it. Though the drug is expensive, I will continue to use it. Since getting my infusions I've been hospitalized only once. Before Remicade, I was in there 2 times per year. Its a blessing. :-) F 32 3 years
9/21/2006
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 5  Chron's None but the benadryl and infusion made me drowsy. Was a holy grail, until my doctor (the head of my hospitals G.I. dept) pulled me off it. Said he doesn't want me to build a tolerance and not have it available for a flare up later. I'd rather live my life now. It was like I didn't have the disease anymore. :( Also to the link to the "syndrome" listed below, the list of possible linked drugs is GIGANTIC. Lawsuits like that don't help people that need this medicine. I'll take the chance of a rash, thanks. M 30 2 years
9/20/2006
 5  Crohns None! Remicade gave me my life back. It's easy and no side effects. Nothing else helped me. F 44 5 years
9/14/2006
 3  Ankylosing Spondylitis The downside to Remicade for me is chronic sinusitus and constant infections. I am only able to tolerate 1 vile and must be infused slowly or I get severe migraine headaches. For days after the infusion I am very tired and ache in my joints. It also wears off before the next infusion.I wish I could tolerate a larger dose for additional pain relief. Remicade is the only drug that has eased the intense muscle, ligament and tendon pain I have but I will switch drugs when another drug that does not surpress TNF gets approved for my disease. F 59 3 years
9/9/2006
 4  Crohn's Other than some minor leg discomfort, my only other complaint is fatigue - seems to get worse with each treatment, I can expect to be down for at least a day after an infusion. Still beats chronic pain and constant diarrhea. Remicade truly changed my life. Two years with excruciating abdominal pain before finally getting a crohns diagnosis. Pentasa worked for a year or so then symptoms returned. Bad reaction to prednisone - makes me way crazy :P. Was taking fairly high doses of methadone to deal with the pain when started first infusion; by the third infusion I was nearly pain free for the first time in over four years (methadone withdrawls were a bummer..) On 6 week infusion schedule, had only one flare up since starting. M 37 6 months
8/30/2006
Email
 5  Crohn's Disease a slight headache and joint aches 1-3 days after a treatment. Then it goes away. I love Remicade! I has changed my life. Last year I had lost 80 lbs and ended up in the hospital with a ruptured colon because my other drugs weren't working well enough. They started me on Remicade and now that is the only drug I am on. I works wonders. F 35 1 years
8/29/2006

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