REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | crohns | minor skin peeling on hands and feet just before treatment is due,fatigue | Gave me my life back,worried about long term but no substantial problems yet.90% controlled | M | 55 | 11 years 10mg/kg 6X O | 11/25/2011 | 2 | Crohn's Disease | Had my first infusion on a Friday, the next Wed, I developed swollen lymph nodes in my head and neck, pain in my neck and head, I could not open my mouth or move my jaw without horrible pain, I have joint pain and I also have a weird, tight, slight tingling in my arms (like I continute to have my blood pressure taken) and was kept in the hospital all day today for all this and Tachycardia. They belive it is due to the remicade. I also now have sinusitis. | F | 35 | 7 days IDK 1X O | 11/25/2011 | 4 | Crohn's disease | Really, none. Although, on the day of infusión I am tired and try to make it a down day. | Although I have no side effects, I really try and take care of my body. I take B12 Drops, Turmeric drops for inflamation. After I had my resection last year, my surgeon said "Now you can eat anything you want!" I don't think this is true. Western doctors cure by drug. I am uncomfortable taking Remicade, but know that my quality of life is fantastic, now. But I eat my veggies and try and eat organic and gluten free. It helps. My problem is not the pain, but the narrowing and obstructions in the bowel. If anyone knows why this occurs, I'd love to know! | F | 47 | 1 years 1X O | 11/17/2011 | 3 | uc | I have had uc for 3 years now and I have been on remicade for a year. My last scope was clear but I have no energy at all, I can sleep all day and not get up. I also have aches and pains all through my body with migraines and severe stomach cramps. I've gained 45 pounds since I started my treatments I still work full time but I feel like a zombie almost everyday. I'm also depressed. I function the best in the middle of my treatments which I get every 8 weeks but the first few and last few are the worst. I also developed restless leg syndrome which makes it very hard to sleep even though I'm extremely tired I still take sleep meds at night , and I have no appetite and find myself barely eating. | If anyone has any suggestions please help I feel lost and since my scope was clear it's like no one believes me when I tell them that I feel so sick and run down all the time. | M | 30 | 1 years 10 mg 1X O | 10/26/2011 | 3 | currently have a fungus infection that has been off and on for a year. dry skin, sinusitus,allergies, hair loss,cellulitus, moody, rash and itchy skin. | first of all remicade is amazing. it helps prevent pain, fistulas, diareaha and colon problems. but i do have new symptoms that i never had before. i see a ear nose throat dr continously since starting this drug. he is a God send. he keeps me on track. i have sinus and allergy problems. first symptoms were itchy chest and throat, congestion in head. i have allergies that i get shots for now. i have had shingles but years before remi once. i had cellulitis on arms and legs and vessels broke on my ankle and foot swelled for 4 months..no dr could get rid of it. a iv steroid infusion finally made it go away. now the current thing is a deep tissue fungal infection with rash and terrible itching. several dr appts and medicines later...still battling it. i am afraid of getting pneumonia and some of the other symptoms described since my immune system is compromised on this drug...some are angiodemas, leukoctoclastic, mucormycosis, histoplasmosis and lung infections. yes remicade has allowed me to have control over my colon problems but it has also made me suseptible to some pretty nasty illness. My early years on it I had few side effects but the vulnerability has grown. I will always be under constant care of doctors. | F | 40 | 4 years every 8 wk 1X O | 10/25/2011 | 3 | RA | Following my infusion I get extremely tired and nausated and extreme headaches Followed with tenderness throughout my body only lasts for three days I get infused every eight weeks remicade doesn't last in me I start to feel pain within a weeks but not a severe for the most part it has made a big difference | F | 27 | 300mg 1X day | 10/8/2011 | 1 | Crohn's | I was getting an infusion once every 8 weeks | One word: Histoplasmosis. I haven't seen it here. I didn't know what it was until it almost killed me. It was caused because my immune system was so compromised that when I went to the Southern region of the US I got a fungal infection called Histoplasmosis. I was in the hospital for 28 days. The docs couldn't figure out what was wrong. My kidneys and heart were starting to fail. Had to go through a lung and liver biopsy. They thought it was a lung infection. Once they finally figured it out and treated me I get better. But people don't know this can happen. I had a high fever and generally felt bad for about a week before I was admitted to the hospital. Saw my regular doc and he gave me anit-biotics for bronchitis, but I kept getting worse. I didn't realise how sick I was until my daughter made me go and took me to the ER. Tell your doctor you are on Remicade and to check for fungal infections if you get sick and think it's a flu or virus. | F | 56 | 6 years Don't know 1X O | 10/5/2011 | 4 | uc-pancolitis-since 2006 | at first joint pain in knees and hips and it did not help my uc with the 5mg. I even visited a surgeon thinking colon was going to need to be removed. GI upped dose to the 10mg and had me go in at 4 weeks for the infusion instead of 8. I am starting to feel more normal and the colonoscopy is looking better | not a fan of major drugs, but glad it has started to work. Worried that I am at the the highest dose suggested and what might happen if it stops working. On continual birth control with nuva ring so that no additional blood loss to aggravate anemia I already have with uc | F | 42 | 4 months 10mg/kg 1X O | 10/1/2011 | 1 | CD | Was referred as an reaction which caused swelling of both hands and forearms, witch resulted after several months, with several specialist's an outcome including surgery and elevated levels of things that I do not understand including lupus. After 2 years later the drug has left my body and all blood levels have returned to normal, feeling has resumed but have been left with ongoing problems for life | Does not work for everyone, there is a risk involved, not every, but not any health professional will willfully agree | F | 47 | 4 months ? 1X O | 9/23/2011 | 3 | SARCOIDOSIS | I've not had any side effects so far. I've only taken one infusion | I will check back periodically to indicate how my treatment is going but so far so good. I have been on Methotrexate for 6 mos with only mild improvement but am still heavily dependent on the prednisone. Hopefully the Remicade will allow me to get off the prednisone and decrease my MtX and plaquenil dosages. | F | 39 | 1 days 500 MG 1X O | 9/21/2011 | 5 | Ulcerative Colitis | I am always fatigued for the rest of the day and the next after an infusion. | I have an infusion every 8 weeks. I love how it has stopped the flare ups I have had for 30 years. I have been on every drug mentioned on this site and healtly suppliments, but NOTHING worked until Remicade. I take no other medications at all!! I hope it works forever because now I have my life back as so many others have mentioned. | M | 42 | 3 years 30 1X M | 9/20/2011 | 5 | Chron's Disease | No side effects so far, just minor itching | This medicine has helped me a great deal, I was in the bathroom about 20X a day severe cramping and no social life..went to work and came home stayed tired and grumpy.. I thank god for this breakthrough now I can go and not worry about embarrassing moments!!! | F | 39 | 2 months 1X M | 9/7/2011 | 2 | PSORIATIC ARTHRITIS | While getting first infusion, my blood pressure went up. Also, I had trouble breathing. Infusion was continued.A day later, had migraines start Never had migraines before. A week later, I got a rash all over my body. Stabbing pains in my body, fatigued and increased sleeping. 2 weeks after infusion, started throwing up, migraines continue and nothing works, dizziness,chills,night sweats,could not eat anything without vomiting. Feel much worst than where I was before the infusion... | works for some people, but be careful. This drug can stop your breathing. Heed the warning signs. I regret trying this drug as it made me worst. I am going to seek other natural remedies as the price to pay for side effects is too much for me. Good luck to everyone. | F | 45 | 1 times 30 MG 1X O | 9/7/2011 | 5 | Behcet's Disease | For a few days after the infusion, I get mild flu-like symptoms. | This medication decreases my flare-ups and gives me my energy back! | F | 63 | 4 months 1X O | 8/26/2011 | 4 | Crohn's disease | I didn't consider that my ills could be Remicade side effects until I read the comments here. I get frequent headaches, blurred vision, fatigue, and came down with a terrible rash this week. | Before Remicade, I was hospitalized over 20 times for my Crohn's, including for my two small-bowel resections. This has been a miracle drug for me, but the rash I just developed has got me thinking that I may not take Remicade forever. | F | 47 | 8 years 1X O | 8/19/2011 | 3 | crohns | high blood pressure pneumonia, | remicade worked great at first but getting lung infection is scary because remicade lowers your immunity serious thinking of stopping side effects out weight the crohns symptoms | M | 19 | 8 months 1X O | 8/14/2011 | 4 | Crohn's disease | Memory loss, pain at injection site, fatigue, much more prone to sickness and infection. | Remicade is pretty much the only reason my life is being sustained with Crohn's disease. Even though I am weary of the long-term effects of being on such a strong dose of a such a strong drug, I still completely think the benefits and quality of life it has given me are totally worth it. | F | 22 | 2 years 10 mg/kg 1X M | 8/12/2011 | 5 | Crohn's Ileitis | No negative side effects what-so-ever | I began taking Remicade for a fistula that developed in my small bowel and because no other meds had ever worked. I obtained remission with the first three infusions. I was in remission for 15 months leading into my second pregnancy. I was on Remicade throughout the pregnancy with no adverse effects. Baby 2 is very healthy! About 4 months post pregnancy I flared and have been having problems adjusting the timing and dosage to obtain remission. After each infusion I feel instant relief of all my Crohn's symptoms and I can eat again!!! | F | 33 | 3 years 5mg per kg 1X O | 8/9/2011 | 5 | Ulcerative Colitis | Fatigue, especially day of and day after. I get sick more frequently with colds and seasonal stuff. | I had very bad pan-colitis, or ulcerative colitis of my entire colon. I had tried asacol, apriso, and a few others in that category with no success. I was frequently on prednisone. After that didn't work, my doc tried putting me on 6mp, similar to azathioprine. Even though I did all the necessary blood tests, this drug actually made things worse. I was going to the bathroom 20X or more every day the week before I got my first dose, and I was still on prednisone. One doc, wanted me to have surgery, buy my GI said try Remicade. I am one of those instant successes. I received the drug at 5pm in the hospital, (after being admitted from the ER for severe colitis problems), went home, went to sleep, and woke up the next morning. I have not gone to the bathroom more than 4 times since and have had no blood. I recently finished my taper of prednisone and there have been no changes. I am still taking asacol, probiotics, calcium/vitamin D, and a multivitamin. | M | 19 | 2 months 1X O | 8/8/2011 | 3 | Rheumatoid Arthritis | Hair loss, rash on face and forehead, dry skin | At the end of 2010 and beginning of 2011 I had 4 infusions of Remicade all together. My Rheumy gave me benadryl and steroid in the infusion first to prevent side effects. I would take a nap during the infusions and it was very comfortable and relaxing. First infusion, then 1 week later, - 2nd infusion, then 8 weeks the following. It totally helped the RA pain and I felt pretty good except for my hair falling out and the "lupus-like" rashes on my face and body. This medicine is made from mice cells in case you don't know. My favorite biological drug was Humira self injections - made from human cells. Very little side effects. It was my miracle drug. Because of the copays on Medicare (over $600 a month), I cannot afford Humira. My copays for Remicade went from zero in 2010 to $569 in 2011 per infusion. But it is not every month like Humira. I have been approved for a grant to help pay the copays but not sure if I will go back on Remicade because of the side effects. My doc may put me on a study biological since he is a research doctor. | F | 64 | 1X day | 8/2/2011 |