REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | Psoriatic arthritis | Very swollen feet and ankles and severe muscle pain | I was given Remicade thru IV and than 2 weeks later, than 4 weeks later and from there it would be every 6 weeks. After going thru the initial introduction of Remicade, I do not like how I feel and the swelling keeps getting worse after each treatment along with continuos muscle pain! | F | 53 | 3 times 400 mg 1X O | 8/25/2013 | 4 | Ulcerative Colitis | I am experiencing horrible insomnia and weight gain. I occasionally itch but this isn't as bad as the insomnia or weight gain. | I have even had the gastric sleeve so I know it is not an issue of overeating, it is the remicade. Although it has helped me tremendously I am seriously considering alternate medications becasue of the weight gain. | F | 35 | 2 years 1X O | 8/22/2013 | 5 | Crohn's and UC | Confusion right after infusion, lasting about six hours. Then I sleep about 12 hours straight, followed by eight to ten days of profound fatigue/lethargy. | Diagnosed when I was 60, unlike most people, with severe symptoms. Tried conservative treatment with 6-mp, Canasa, Rowasa, and 40 mg prednisone daily for eight months. None worked, and I'll never take prednisone again. Terrible side effects. Within seven to ten days after first Remicade infusion, toilet trips went from 40 a day to six or so a day. Wow! However, I remain at that frequency most days. | F | 62 | 9 months 420 mg. 1X O | 8/13/2013 | 5 | uc | basically, none. joint pain I had before treatment and diagnosed as OArthritis. | been taking infusions every 8 weeks for 2 years. instant positive reaction and recently exam showed complete remission including biopsy of parts of colon. | M | 65 | 2 years 500mg 1X O | 7/28/2013 | 5 | Crohn's Disease, Ankylosing Spondal | I have had a couple of itchy periods after infusions. I took Benadryl for a while pre-infusion. | I was a test subject for this medication and I'm sure I would have been dead if I had not received this drug. | F | 47 | 15 years 500 mg 1X O | 7/11/2013 | 2 | Crohns disease | Felt high after infusions. Experienced mysterious night itching with no rash although this may've been from Azathioprine (doctors do not know). Seemed to trigger symptoms of Crohns disease or simply was ineffective. | M | 38 | 6 months | 7/6/2013 | 5 | Crohn's and Arthritis | Exhaustion for 2 days after infusion. | This med has changed my life. Both diseases had been active for over 3 years, no oral medications were working. Felt better within the first day of the first infusion. I couldn't even walk for 10 minutes without hurting before I tried this. Now I can physically do things I could not for a long time and I don't worry about the location of the nearest bathroom anymore. | F | 36 | 4 weeks 5 ml/kg 1X O | 6/13/2013 | 1 | Psoriatic Arthritis | The day of infusion I'm wired. That is followed by severe mood swings ranging from anger to depression, my head feels like its going to explode, my eyes hurt, and I've lost all my energy in the days following the infusion. I'd rather live with pain than live like this. It makes me so miserable that it is affecting my family life. I just spoke with my doctor and I'm officially off this junk. If you read the various forums on side effects and what patients are reporting you can see there are issues but the medical professionals make you feel like you're a psycho because they do not have documented scientific evidence that these side effects exist. | M | 64 | 400 MG 1X O | 5/6/2013 | 1 | RA | Hives at first, possibly taste and hair loss | I had been taking Enbrel 4 years and it stopped working. Remicade just had little effect, and that didn't last but four weeks. - I was on 6 week infusion intervals. INCREDIBLY EXPENSIVE. I was fortunate to have medicare. | M | 82 | 4 months infusion 1X O | 5/6/2013 | 5 | UC | Insomnia, restless legs(initially after infusion), joint pain(after only second infusion) | M | 22 | 6 months | 4/26/2013 | 4 | Crohn's | Nothing during the infusion. I get joint pain, headaches, swelling of my ankles the day of and a few days after my infusion. Very tired day of and for about a week after my infusion. I can't tell if I'm seeing major results yet or not. | F | 39 | 2 weeks 500mg | 4/19/2013 | 1 | Arthritis | My mum died 6days after having this horrible drug!!! she was too unwell to have it in the beginning! So if u suffer from regular infection or a low immune system do not go ahead with remicade! | F | 52 | 1 days | 4/9/2013 | 1 | Hidradenitis Suppurativa | During 2nd infusion: short of breath, pulse was 145, my blood pressure was 192/110, legs tingly and numb, eyes burning, neck and jaw were tight, my jaw was chattering, feeling of nonstop adrenaline rush in chest, felt very faint/dizzy/heavy, whites of my eyes turned bright red, received benadryl and cortizone in IV, moved to ER from infusion center | not sure if the benefits are worth the risks | F | 35 | 1X day | 3/14/2013 | 5 | Ulcerative colitis | I was diagnosed in 2001 with u.c. and was managed with asacol and rowasa at times. I eventually started flaring more often requiring prednisone. Each flare it took longer for the prednisone to work and my doctor highly recommended I start remicade. I was hesitant and waited a few months until I had 2 flares close together. I started remicade in November 2009 and had immediate results. The first thing I noticed was that my very painful and frequent abdominal cramps disappeared. My first treatment gave me a significant headache but beyond that, I don't have any side effects. I do have achy joints but I know that goes along with u.c. I've also gained about 15 pounds since starting my treatment. Remicade changed my life for the better and I wouldn't give it up. I don't have to know where all of the public restrooms are or worry about multiple bathroom breaks at work or wonder if my latest meal with punish me. | F | 40 | 4 years 5mg/kg | 3/11/2013 | 1 | Ulcerative colitis | Extremely dry skin, lost sense of smell for abt 2 months, every single hair follicle on my head burned and hurt and then I started balding. Arthritis in my hands and knees, tendonitis in my achilles tendons, dry inflamed eyes. | Remicade did nothing for my UC, but it ruined the rest of my body. I haven't taken it in 3 months and never will again, but the side effects still remain. I hope to God they will go away. I had only 3 loading doses, and on the 3rd one I had a horrible reaction where I couldn't breath and started sweating profusely-- instead of stopping the infusion, they just shot me up with a bunch of stuff to stop my reaction and continued till the bag was empty. I used to have oily hair and skin, now I'm dry and brittle... I could go a year without washing my hair that's how dry it is. I have so much pain from the arthritis it gave me, and I can barely open my eyes at night because they are glued to my eyeballs from being so dry at night. It hurts to walk because of the pain in my achilles tendons. All of my hair is falling out. I used to have thick thick long hair, now I only have 1/3 of it left and it's still falling out I won't be surprised if I go bald. So much has fallen out that I have a strange receding hairline. This is the worst drug you could ever take for UC. I never knew that there were mice antibodies or proteins in there, which is what causes these horrible reactions. If you are desperate, try Humira instead as it is made with HUMAN antibodies, not mice, and the bad reactions are much less in comparison. | F | 31 | 5 months 1X O | 2/22/2013 | 1 | pars planitis ETC.... | Numbness tingling in arms, legs,hands,feet slurred speech, disorrented, joint pain, headaches, neck pain, worse eye pain, dry mouth, anxiety. I've lost my job, sanity and all of my doctors are jackasses so I have decided to go all natural and if it means I go blind, so be it! Maybe that's the way God intent ex me to be but I'd rather be blind and healthy then sick and miserable!! I hope Thu helps someone out here!!!! Don't take this drug!!!! Its nasty!!!!! | F | 29 | 10 months not sure | 2/21/2013 | 4 | Ankylosing Spondylitis | Headaches, weakness, shaky Pale complexion immediately following IV | M | 45 | 2 years 5 vials | 2/11/2013 | 4 | Crohn's Disease | headache, nausea, insomnia, confused and muddled brain, muscle and joint aches and pains, sore throat, loss of appetite, tearful, chills, extreem tiredness / fatigued, no energy, increased sweating, weight loss. | I noticed an improvement in my symptoms withing 24 hours of the 1st dose. the side effects lasted about 4 months but now i am only suffering with small amount of nausea, tireness and still find i sweat easily. i lost just under a stone in the first 5 months which i beleive is unusual but then again i also lost weight on steroids so go figure. Although this drug anitially worked really well I have found recently it is loosing it's effectivness so from my next treatment in four weeks time i will be on the higher 10mg dose as symptoms are not getting properly under control. doctors are going to run tests to see if i am builing up antibiodies to the drug or metabolising it too quickly. The first four months with all the awful side effects was hell but the medication was working so well for my Crohn's that i decided to persever with it. I will have to wait and see if higher dose works now and hope it doesnt bring back all the nasty side effects. | F | 39 | 6 months 1X O | 2/7/2013 | 4 | Ulcerative Colitis | For a couple days after the infusion, I am very tired. I schedule it for Fridays, though, so I have the weekend to rest. | I go in every 8 weeks. It can't cure me, but I actually feel like a normal person again. It has really helped. I know there are risks, but to me they are worth it. | F | 47 | 2.5 years 400MG 1X O | 2/7/2013 | 3 | Ulcerative colitis | Severe headache /dizziness muscles aching | I get my treatment every 6 weeks and it used to help until I got pregnant the whole time I was pregnant I was on it and it didn't do a thing and now that I've had my baby I've had to treatments and it still isn't doing a thing | F | 19 | 9 years 400 mg 1X M | 1/7/2013 |