REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | psoriasis and psoriatic arthritis | no real noticeable side effects for one or two years except extreme sleepiness and confusion after the infusion, but the last time slept for a day off and on, had a horrible headache, dizziness, and nausea (but since benadryl is given with remicade, don't know which drug caused it) Also, have noticed more acne and skin tags than before and seem to go through periods of hair loss, but i have thick hair, so it's not noticeable at all. | I guess it is a "miracle drug". Most of my psoriasis is gone. It definitely improved my life - for the first time in years, men noticed me and I could date without fear or embarrassment. My boyfriend loves my skin, and loves to touch me. But psoriasis will return if I stop to take it, and that's the ultimate problem. | F | 26 | 2 years | 12/18/2007 | 5 | crohns decease | very tired and very weak for 3-4 days after, sore muscles also for about 3-4 days after | I am very happy with remicade! A year ago I was hospitlized from severe bleeding with almost needing a tranfusion and in severe pain from crohns. They started remicade that night in the hospital and It worked very quickly! I felt a LOT better the next day! I have to have an infusion every 8 weeks but it has been the only thing that has so far worked for me! | F | 19 | 1 years | 12/9/2007 | 4 | Chron's Disease | Some minor muscle pain, for the 1st week I have flu symptoms,no dry skin or infections and oddly enough my Cholesteral went through the roof (no other reason, no red meat, run daily, no family history) after about a year of being on the drug but its under control with Zocor | I was initally diagnosed at 12yrs old (my Dad has Chron's too). I have been sent the emergency room 4 times for dehydration but no resections. I have been on prednisone but it makes me crazy-nuts, so I purposely try not to be on it. I was on 6MP for a yr which helped but not that much. I have been on Remecade for almost 5 years now along with Azathoprine and 4gm (16 pills) of Pentasa. And except for the last week, week and half it works fine. I have noticed that sometimes it doesn't take. I remember one time for the whole 8 weeks I was sick. My biggest concern is basically I am going to have to be on this drug for the rest of my life because I'm too scared to get off it and long term no one knows what its doing to my liver. | M | 41 | 5 years | 12/4/2007 | 4 | Rheumatoid Arthritis | None until the fourth infusion when the dosage was increased. That was two weeks ago and my joints are still extremely sore. I thought the drug wasn't working any more until I took some benadryl. It helped considerably. I assume I was having some sort of reaction to the remicade that the benadryl helped. Anyone else have this experience? | F | 55 | 5 days | 12/2/2007 | 2 | Ankylosing Spondylitis | abdominal pain, diarrhea, itching, headache and fatigue | Not a miracle drug by any means. I have to take 100mg more than recommended dose and only lasts for 3 out of 6 weeks. Dr. will not increase dose or reduce the wait time between infusions because I am very small 5'3 and 109lbs. | F | 38 | 7 months | 11/30/2007 | 4 | Crohns, fistula, and RA. | bad headaches, tiredness, aches. | I see a definite improvement in my fistula, and I can finally walk without a cane or a walker! The other day I was jumping on my trampoline! I feel great. I will have my third infusion soon. | F | 19 | | 11/26/2007 | 4 | Crohn's Disease | No side effects whatsoever! It always makes me feel better during the infusion! Unfortunately, the benefits do not last as long as the period of time between infusions ... | My very first infusion resulted in a tremendous increase in stamina. Second, which was two weeks after the first, did not hold out the full six weeks until my third. Although all six infusions have resulted in very positive outcomes initially, none have lasted a full six weeks. I'm now scheduled for every five weeks. Hopefully my last will last until then. | F | 55 | 6 months | 11/25/2007 | 5 | Ulcerative Colitis | No side effects with actual infusion. Have developed general itching in the past few weeks, but wonder if its the Prilosec I take for acid reflux. Am discontinuing the Prilosec today to test it. It may be the Remicade, but should itching start 6 weeks AFTER an infusion? Seems it would start sooner not later. Other symptoms I have since starting Remicade AND Prilosec (both started at nearly the same time) is insomnia, depression and constipation (all symptoms that MAY be related to Prilosec). I may have to get onto a 6 or 7 week infusion schedule as my UC symptoms have returned (with a vengence!) just a week before my next infusion. This will be my first 8 week interim since starting the drug. | Its been a god-send to me. Was hospitalized for over a week with severe blood loss and dehydration. Colon surgeons visited every day. My last hope was Remicade before undergoing the knife. After my 1st infusion in the hospital my symptoms disappeared. I mean, IMMEDIATELY. I had visited the bathroom 5x earlier that day, and after the infusion not at all and not for another 2 days (except to pass urine). I felt renewed. I was on the Specific Carbohydrate Diet after starting Remicade, and developed severe acid reflux just a couple short weeks later. Was perscribed 40mg. Prilosec for the acid reflux. Many of my symtpoms may be due to the Prilosec. I will report back in a week to post results of my test with discontinuing Prilosec and possible eleviation of symptoms. | F | 51 | 3 months | 11/23/2007 | 5 | Ulcerative Colitis | During my first infusion I mostly slept through it because of the Benadryl. My hand got a little itchy when they increased the rate of flow, no other side effects noted but I am also on Prednisone so that gets blamed for all my side effects right now. | I started to feel better within hours of my first infusion. The next day there was a significant improvement in my condition, and I was released from the hospital 3 days later. The only thing that sucks is how expensive it is. It was a fight to get funding for it. =( | F | 25 | 24 days | 11/21/2007 | 4 | Crohns | None | I have been taking Remicade for over 1 year. It seems to really help. Especially the first 4 weeks after treatment. I take it every 8 weeks.I put on weight feel much stronger and more energetic. Wierd thing is weeks 5 to 8(next treatment) I seem to lose all the benefits and go back to square 1. | M | 35 | 14 months | 11/20/2007 | 5 | Chron's | Migraines which I have had to get a prescription for that I take every night and it helps tremendously but I still get at least one migraine a month usually a couple days after the infusion but is better than 4 a month, dry patchy spots on my face especially eye lids and of course very sleepy day of infusion. | The difference is unbelievable, I Love It!! I had a very hard time agreeing to take the Remicade but it was well worth it because I now have my life back!! I was severly sick, 92 lbs., could eat very litte, used the restroom no joke about 20 times a day and had to go on medical leave for 11 months this past flare up....that's when my Doc. put me on Remicade and I am normal again. I usually feel icky a week to a couple days before my infusion which used to take 4 hours but there is a new nurse and she only takes 2 hours which I feel a difference in the effects, unless I'm just thinking that's why this last time I feel terrible 2 weeks before my infusion? Any how it's wonderful and I'd much rather deal with a few icky days than every day. | F | 25 | 10 months | 11/19/2007 | 4 | UC | My blood pressure drops during the infusion, but bounces right back up when it is over. I have developed mild rashes on my face and stomach during the treatment, but they too disappear as soon as the treatment is over. Two weeks after infusion, I often develop a UTI, which my GI says is due to a weakened immune system, but I can deal with it. Overall achiness sometimes hits about the same time, with or without fever. | Though the side effects are sometimes unpleasant, I will take them over the pain of dealing with a UC flare. About a week before I am scheduled for a dose, I start to feel a flare coming on, so I am always grateful when infusion day rolls around. I have heard that allergic reactions can increase/become more severe with several doses, so that does worry me as I have had mild reactions in the past and I am always worried that it will be worse the next time around. I do take Benadryl and Tylenol before the infusion starts in order to minimize the risk. | F | 33 | 6 months | 11/1/2007 | 5 | crohns | I had shingles briefly once | F | 33 | | 10/18/2007 | 5 | crohns/ankylosing spondylitis | No side affects from infusion. I have had a couple of outbreaks of hives in between infusions... they've occured about 5 weeks out from an infusion. There is no pattern of food or other unusual exposure to pin them on. They subside, (some not completely) and appear a couple months later in the same spots. Can't say they're related to the remicade, but other than one time 6 or more years ago, the hives are a new thing for me. Also I think it takes longer to recover from little bouts with whatever bug is going around. | I love REMICADE. After the second 2-week treatment I was vitually pain free. So amazing. Unfortunately the level of relief has not been regained even with the 6-week infusion schedule I have currently. Even so, there is improvement, which I measure by the fact I need to change position only three or four times (instead of a dozen or more) while sitting through an hour lecture/movie/etc. My last treatment provided no pain relief whatsoever, so I don't know what's next. | F | 54 | 10 months | 10/8/2007 | 4 | Crohns | Really tired 2-3 days after infusion. Aching joints and muscles for about the same length of time. | Gave me my health and my life back. Mostly back to normal after being told I would lose my entire colon if Remicade didn't work. I now have an infusion every three months and hoping to extend that even longer. | F | 34 | 1 years | 9/30/2007 | 3 | Crohn's Disease | I have no immediate side effects. A few days later I get sores in my nostrils that will not heal and crust over for about two weeks. I also have a hard time knocking out the Strep...it never really goes away. I have had several UTI's and I get dry skin, especially on my cheeks and eye lids/brows. My neck is itchy all the time. | I have had a bunch of infusions now and two weeks before the last one, my pre-Remicade symptoms returned. Even with the new infusion, I'm having trouble bouncing back. My doctor might move me to a 7 week regimin. My only problem during the infusion is that the Benedryl makes me anxious which can last for several days. I'll get really jittery and need to walk around. I don't take the Benedryl prior anymore and do fine. | F | 20 | 6 months | 9/30/2007 | 5 | Rheumatoid arthritis | usually just tired after an infusion. Worked great for me for about 2 years. Over the last four months haven't been responding to the methotrexate/remicade combination and am taking the highest dosage for each drug. Suddenly started having flare-ups and didn't go away. Just had an infusion last week and can barely walk and have had swelling, starting from my right foot, all the way up my body to the left side of my body. I am very frustrated and am currently researching other alternatives. If someone knows of any, please post them here. | F | 42 | 2 years | 9/2/2007 | 5 | UC | My biggest issue has been with chronic infections. Late June, I had an unidentified infection that led to a 5 day hospital stay. They suspected meningitis (SP) but nothing was conclusive. Since then, I have had two bouts of strep throat requiring antibiotics. In less than 2 months I have had a total of 3 courses of antibiotics and am beginning to be concerned about resistance. This morning, I am on my way back to the doctor, as it appears that I have strep once again. | Initially, my response was slow. But at this point, I can SURELY see the impact. For the first 3-4 weeks following an infusion, I am like a normal person again. I can so identify with those of you who have shared the same sentiment. I am currently on a 6-7 week cycle, which may not be the best thing, but at week 5 I am breaking though terribly and can't seem to stretch it out. My doctor is lovely and indulges me, I just hope it is not to my detriment. All in all, I have loved this medication. Even though it weakens my immune system, I feel good about the change it has brought in my life. I am also grateful to have health insurance because at 4-6K a pop, that could be painful too. (smile) Good luck! | F | 33 | 10 months | 8/25/2007 | 5 | Crohns | Yes - I itch from the drug. Not always though. Sometimes after an infusion I will itch especially after taking a shower, or after a workout. Only itching. My hair is getting thinner - I am not sure if it is the drug - this pattern is in the family males. The itching is accompanied with red splotches. | I am 44 - I was diagnosed with crohns on my 13th birthday. I have had two bowel resects, and other surgeries. I have had good life spans and years that I thought life would not turn out too long. Plenty of pain, and complications. After starting Remicade I have had few if any symptoms. Itching is not a bother. I got an OTC drug to counter act itching and that will take care of that. Some may require a prescription for itching and the side effects. Like others have mentioned I am unsure about the LT effects. I am doing very well now - very well. | M | 44 | 2 years | 8/17/2007 | 4 | Crohn's Disease | Low Blood Pressure & flushing/temperature about 15 minutes into infusion. Headache and tired two days after - still some nausea and little appetite five days after | First infusion took 9 hours due to BP - next on 8/28 - in the office instead of hospital, we'll see how things go! | F | 44 | 5 days | 8/15/2007 |