REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Chrons Very tired same day due to the Benedryl, Dr. cut the Benedryl dose in half and now I just feel a bit tired. Skin was dry but I take a good olive oil or Omega 3 supplement & lots of water and it seems fine now. I have had no noticable side effects from it. But I exercise, eat healthy, and also see a homeopathic doctor to help me with good quality supplements & food choices. I still have foods that disagree with me, but that is just my system, not everyone can eat everything. Eat Right for your Blood type is an interesting concept that I have looked into and implemented a lot of its concept to my every day eating habits. My only concern is still having children being on this medication, but Mayo clinic said I would be fine? Anyone have kids on this? F 40 2.5 years
7/21/2009
 5  psoriasis I cannot sleep the night following treatment and I am exhausted for 3-4 days following treatment. I receive treatment with Remicade every 8 weeks. I also get weekly Methotrexate injections. I've had 7 Remicade treatments so far. I've previously tried numerous treatments including Enbrel and Humira - all with limited success. I had extensive psoriasis prior to treatment with Remicade. I have no signs of psoriasis at the moment. F 53 7 months
7/20/2009
 5  Behcet's Not really sure if I have any but it perhaps is the cause of sharp pains that I get in my hip (especially apparent at the end of each 8 week Remicade cycle). Also I have recently developed an annoying persistent itch at the bottom of my thumb.... I have been taking Remicade for a year and a half and it has, without doubt, kept my Behcet's symptoms from flaring up - my eyes have been completely inflamation free and mouth has had no ulcers. In short, Remicade has been a Godsend for me. M 34 18 months
7/13/2009
 4  Psoriasis I've been on Remicade for about 18mo. I had a reaction to the last two infusions given 4wks apart. A nurse comes to my home to administer the infusion so I'm not at any kind of hospital where a doctor is present so these episodes were very scary. In both cases, approximately 2-3min after starting the infusion I had a tightening in my chest and throat. A tickling sensation in my throat caused me to caugh but I couldn't catch my breath. The nurse said my face became extremely red, I felt very hot from the chest up and sort of lathargic. I take two Tylenols and a Zyrtec a half hour before the infusion begins. Even with this the nurse had to stop the infusion and pump me full of benedryl. After the benedryl was administered we continued with the infusion with no further incidents. Just extreme fatigue when finished. The whole situation seems strange to me because I've been taking this medicine for over a year and am just now starting to have a bad reaction - allergic reaction I'm pretty s I've been on Remicade for about 18mo. 85% of my body is covered in psoriasis. I've used Embrel, Humira, and now Remicade. With each medication I would clear up within a day or two of the treatment but after a while the drug stops working, like my body is building up an immunity to the drug. I started out getting infused with Remicade every 8wks with 400mg. Now I get infused every 4wks with 700mg, with no noticable change in psoriasis. Since I started on Remicade I now have extremely painful arthritis, recently diagnosed as psoriatic arthritis. My doctor is now having me take 10mg of methatrexate to keep my body from building up immunity to the treatment. Hopefully, I will see results this time. My last infusion was this morning and I begin taking the methatrexate tomorrow, 10mg once per week. I really hope this works, we'll see. I will report back. M 35 18 months
7/11/2009
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 4  Crohns and rhumetoid arthritis fatigue, less pain, hasnt stopped it but definently slowed it down I know when i get close to next treatment I definetly know when its close to my nest session, when i dealt with my cancer i was not allowed to have it and i definently missed it. it has some side affects but so far it helps more than hurts i hate the steroids F 48 3 years
7/10/2009
 5  Crohn's One episode of shingles. Sleepy after infusions. My son has had 7 Remicade infusions. He gets one every 8 weeks. His Crohn's symptoms have completely disappeared. He can even eat corn again. This is the only medication that has worked for him. Before starting Remicade, we tried Pentasa, Prednisone, Flagyl, and Imuran. None of them worked consistently. He's been symptom free for almost 6 months now. The only drawback is the cost. It's about $2,000 per infusion - thank God for insurance! M 14 8 months
7/1/2009
 4  Ulcerative Colitis No side effects-although, I can't tell if the hair thinning was only from the initial prednisone or the Remicade also. I have just developed antibodies to the mouse protein in Remicade, so I have to go off, darn it! And it is very expensive-thank goodness for good insurance. Remicade was a life-saver for almost three years. It kept my symptoms under control. I had infusions every eight weeks. Now I have developed antibodies to the mouse protein in Remicade, so I will need to try something else-hopefully Humira, will work for me. It was great while it lasted. F 20 3 years
6/17/2009
 5  crohn's and AS arthritis In the beginning I didn't have much of any side effects besides the cramping and tired feeling but as I have continued taking Remicade treatments I have extreme dry skin, rash on my neck and face which comes and goes, very tired and extreme cramping with bleeding and diarrhea. I agree this drug has been a life saver for me. I was so sick before Remicade I was in pain 24/7....going to the bathroom 15 to 20x a day, bleeding and couldn't eat anything without it going right through me. It increased my appetite a lot. This has not only helped my Crohn's but it has also helped my arthritis. After years of being on this drug I believe it is causing the reactions I am now facing....high blood pressure. I have PVC's which have increased with the blood pressure. I have very dry skin, extremely tired all the time. I no longer have the great energy this drug gave in the beginning. I have been on all sorts of drugs over the 19 years after being diagnosed. I even took the 6mp along with the treatments. I stopped taking the 6mp about a year ago. I am taking Asocol now with the Remicade. I worry about the long term effects of all this poison that has entered my body to fight to have a some what normal life. This is very serious and scary but if I stop Remicade....that scares me even more....I guess I have to weigh the lesser of evils and pray I make the right decision. I have my treatments every 4 weeks with the dose being in the middle to high level. The doc had to increase it due to the terrible pain and problems from Chron's disease. F 48 5 years
5/29/2009
 4  Psoriatic Arthritis / AS A couple of side effect while having the meds. This medication has changed my life. I went from bed ridden with psorisis all over me and couldn't move to even go to the toilet. To walking 5kms a day. Skin perfect. It comes back sometimes on my back. Everyone knows that life can change you. F 34 5 years
5/29/2009
 5  psoriatic arthritis and psoraisis i have curly shoulder length hair and it now has lost alot of its curl since remicade. I LOVE this drug. I had 60% of my body covered in psoraisis and that is 95% gone now. My arthritis is virtually gone now too. I do still have the enlarged joints on the toe and finger that had dactylitis. But no more pain... until it's time for another infusion. And even then its very minimal. F 46 6 months
5/27/2009
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 5   None that I am aware of.....possibly increased sinus infections F 46 4 years
5/24/2009
 4  Crohns shortness of breath with first few treatments; went a period of about 2 years of extreme itching; dry thinning hair; chronic sinus infections. Had partial colectomy in 1991. Crohns returned in 1999. Remicade has kept me from undergoing additional surgeries and keeps the obstructions and other symptoms under control and manageable. My body is becoming immune to Remicade and other treatments may have to be sought. F 49 9 years
5/21/2009
 3  crohns/colitis thinning hair, extreme rash on face, dry skin, flu like symptons, tired, loss of appetite, irritability Side effects became severe after my 18th treatment and I don't understand why it took so long. My face is constantly dry, flaky & tight (can't take benadryl). Going to try taking claritan before next infusion and a few days after but still have 2 weeks to wait -receive infusions every 5 weeks. Remicade helps my symptons but the side effects are terrible. Looking for help to deal with side effects, any suggestions? F 54 2 years
5/18/2009
 4  Ulcerative colitus Aching muscles in my legs and arms, only started after 8 months of treatment. Normally lasts a few days. During one infusion I became very hot and nearly passed out, nurses said it was because od dehydration, so I had a saline drip, and then carried on as normal. It really helps the symptons of my colitus. It has virtually stopped the bleeding. Steriods had little effect on the symptons F 31 9 times
5/15/2009
 5  Rheumatoid Arthritis Somewhat tired for about a day after infusion. Not a big deal. Although I was initially quite hesitent about being on a biologic my moderate\severe RA symptoms were better within a week of my first infusion. Nodules dissapeared, my energy increased, and the pain was significantly lessened. It has maintained it's efficacy over the three or so years I've been on it. I am very positive about this drug as I feel it's enabling me to live a normal life. F 35 3 years
5/13/2009
 3  UC first few days after 1st infusion, had severe intermittant abdominal pains. Once relieved after 2-3 days, was feeling remarkedbly better with UC sx(less bloody stools/ mucus and frequency). Now 2 weeks after first infusion started to have vague muscle aches /pains,pitting edema in legs (shins to snkles), fatigue and stiff hands /fingers. Geting winded & easily fatigued when out for routine runs. Was very optimistic that this willput my UC symptoms into remission. Nothing else has worked. Am wondering if i will be so eager for infusion #2 next week - if symptoms do not resolve!! F 47 14 days
5/11/2009
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 3  Crohns Tickly itch all over. Hives after first dose. Thinning/dry hair. Flu like bone aches for 3 days after. Transient burning joint pains. Irritability. Insomnia. Weight gain. Sinusitis. Cold sores. Despite all the side effects it has helped my Crohns a lot. I am, however very concerned about the potential side effects- cancer, infection, Lupus etc. So concerned that I may cease this treatment. I just don't think there is enough known and have seen drugs recalled due to deaths and severe side effects before. Might try again in a few years when there is more data regarding safety. F 38 9 months
5/8/2009
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 4  crohns Itchy scalp,hair thinning had 2 infusions due for another in a month.Wonder if hair thinning will continue. Have a fistula in groin ,seems to have closed.Took flagyl for a while worked,but had to stop tingling side effects wouldnt go away. M 55 5 weeks
5/7/2009
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 3  Crohn's DX'd with Crohn's 7 years ago. I was in and out of the hospital with severe flares and weight loss, meds were not helping. Then my GI suggested Remicade. After my first infusion I could actually eat, first time in 3 weeks without any problems. I was thrilled and thought I had my life back. Went two years without a flare, until May 2007. Had Remicade in May 2007 and have had every 12 weeks since. I have again been flare free since May 2007, however, during the past year I have severe muscle/joint pain, this pain roams from one body part to another every 24 hours. The pains start about 8 weeks after the infusion. As soon as i get the next Remicade infusion they go away again, each time they come back they are more servere. Really starting to doubt the benefits of Remicade, the pain is very intense and sometimes i cannot even walk or lift anything with my arms. My hair seems to be changing too, very dry and falling out and a higher than normal rate. Just had Remicade 3 weeks ago, and Remicade gave me my life back from Crohn's, but now seriously worried about the side effects I am experiencing. It seems the more i get infusions, the shorter it lasts and the worse the pain gets. i am wondering how i get off Remicade and will the pain go away? Would rate Remicade a 5 for Crohn's symtoms, but a 1 for the side effects i am currently experienceing. F 48 5 years
4/26/2009
 2  Crohn's Disease Shallow breathing, large drop in blood pressure, feeling terrible. Likely due to the adverse reaction of the mouse antibodies in Remicade. First time I used it, it did nothing. I had a second infusion two weeks later and had an adverse reaction, they tried again two weeks after that and had the same adverse reaction. M 52 1 months
4/25/2009

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