REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  Ankylosing spondylitis Extreme fatigue about 5 hours after till next morning. 3 days later extreme stiffness and soreness for 2 days. Then I'm fine till the next treatment. Good drug. Unfortunately could have very deadly side effects. I guess live life the best you can until your number has been called. M 40 4 years
Max
8/17/2015
 4  Crohns I have been taking remicade for 4 years at the same dosage and it has worked great. I just now switched to double the dose bc my dosage just stopped working for me. I'm experiencing a small amount of nausea for 2 days now. F 26 4 years
8/12/2015
 3  Crohns over the last 16 weeks I have developed severe muscle and joint pain. To the point where I could not walk or raise my arms. After my infusion it got better but it is now coming back after 5 weeks M 44 1 years
7/8/2015
Email
 5  Rheumatoid arthritis I had been on Remicade for a couple years after taking MTX and Humira and not liking the side effects. Remicade worked immediately. My dosage was increased over time, but during the last 1 1/2 years, I was able to lengthen the time between infusions. It is June as I write this and I haven't had an infusion since December. Any aches and pains I have now (compared to having terrible pain before) can be addressed with ibuprofen or Aleve. F 50
1X AN
6/26/2015
 5  Crohns Normal,stomach nausea, chest pain, headache, Any affects on teeth F 43 6 weeks
7.5
6/5/2015
 3  UC joint pains now developing in knees, hips, shoulders, ankles helped me back into remission but worried about this joint pain thing right now, Dr seemed to pooh-pooh it and wants me to give it time but i feel it will only get worse if i stay on remicade M 60 2 months
5mg/kg 1X O
5/30/2015
 2  ulcerative colitis First 2 loading doses were ok. I was on 40mg of prednisone and premedicated with steroids, benadryl, and tylenol. After 3 dose, developed extreme joint pain, knee pain, muscle pain, swollen left ankle, rash on eyes. Last treatment was over 8 weeks ago and still in a lot of pain. Trouble walking, limping around like a 95 year old. Not sure if it worked or if it was the prednisone. Now taking VSL3 and bone broth diet. That really helps. Plan to go off the Remicaid and stick to gluten free diet, vsl3, and SCD diet. Went to the rheumy and everything came back normal. On Norco for the pain but it doesn't help. F 50 1 days
500mg
5/11/2015
 1  remicade will hair grow back? After 2nd infusion my body broke out so servely my feet doubled in size hands the same whole body covered with large plaque my nails on feet and hands gone will my hair grow back my Dr says it's the reaction my body went threw with the remicade can anyone lete know if this is forever I'm so depressed thank everyone I was desperate I thought remicade would just help or not I would tell anyone considering remicade really investigate F 60 1 days
4/29/2015
Email
 5  ulcerative colitis No side effects I'm aware of Remicade saved my life over 12 years ago, when nothing else could stem the monster flare that had me hospitalized for two weeks, critically anemic, needing daily transfusions, IV nutrients, IV steroids, etc. I started Remicade as the last non-surgical resort, and it was like flipping a switch to "Life On." I've never had an adverse reaction after all these years of getting infused every eight weeks. I've never had a real flare on Remicade. It's like I don't have U.C. I'm a bit sleepy afterwards, but I think that's partly the antihistamine I take beforehand. The price is gross profiteering, but if you make it to Medicare, the coverage should be Part B, not D. M 72 12 years
1X O
4/20/2015
Email
 4  Chron's Disease I've been taking Remicade for almost two years now and I've noticed that it has helped me a lot. I get remicade every six weeks and I don't have any symptoms related to chron's until about a week before I'm supposed to get remicade again but even then, my symptoms aren't bad at all. My best friend once told me that I'm more energetic and happy after I get remicade. I think the only thing that sucks about remicade is 1. Getting it (I hate needles) and 2. Joint pain. My joint pain is usually in my knees and my hips and it gets really bad sometimes and when thay happens, I take xtra strength Tylenol/ ibuprophen to help with the pain. My GI doctor referred me to a rheumatologist but they never sent all my info so I couldn't even make an appointment with rheumatology to see what is going on. F 17 2 years
4/1/2015
Email
 5  Ankilosying Spondylytis By grace of Almighty Allah, the most merciful to all. All well and no side effect. [email protected] M 40 8 years
400mg
3/23/2015
Email
 1  rheumatoid arthritis Remicade killed my mother. The drug helped with pain at first, then she experienced extreme fatigue, loss of appetite, unexplained body rashes and confusion. She was admitted to the hospital after she had gotten down to 87lbs and could not eat at all. Various tests were done for cancer or other diseases and all were negative. She developed idiopathic pulmonary edema and died of heart failure within one month of being admitted to the hospital. Prior to taking Remicade, she was spunky, vivacious 81 yr old. THIS MEDICATION SLOWLY KILLED HER!! F 81 1 days
1X M
3/19/2015
Email
 1  Crohn's During my 4th and last infusion I started having the first side effects, suddenly swelling throat, itching,sweating, panicing, etc... the Dr. was curt, rude and heartless and I left and never whent back! 5 Days later I had The MOST SEVERE Hip Pain Ever, that progressed from a dull ache to an unbearable state of being within about 5-8 hours & it sent me to the ER at 12am! Almost lost my leg because the Dr. Thought it was a bacterial infection and wanted to do explorative surgery asap! Scarry shite! While being preped for surgery, tests came back revealing it was EXTREME Bursitis AND Survitis in my Right hip socket! My hip has been weak and easily agrivated since. When I wake up in the mornings I have a heavy limp for the first hour or two, and I've never walked quite the same since! (I've even been told I walk "like a man"! LOL) I'm glad for those of you whom have benifited but I myself would NEVER accept Remicade treatments again! F 34 4 months
? Infusion
3/15/2015
 4  Psoriatic arthritis and psoriasis Occasional nausea a few times per week. Facial/chest flushing a few times just after infusion. General fatigue and malaise for a few days after. No tolerance to alcohol. This medecine has helped me alot, it's not a cure, but I'm mobile and in much less pain than before. It has 99% helped the psoriasis patches on my skin. F 34 8 months
3/1/2015
 4  RA Don't know F 71 1 days
200
2/11/2015
 2  Psoriatic arthritis None from Remicade itself. Enbrel was more effective then Remicade. M 59 3 months
1X O
1/20/2015
 5  Ulcerative colitis None that we have noticed except fatigue the at after Has worked beautifully for my son except that he has to be on a 5-6 week regimine due to irritability and emotional meltdowns at about 5 weeks post infusion... On a 5 week cycle he does great! M 7 3 years
270mg
1/14/2015
 3  Crohns Doing good until 5th maintenance round. Red dry itchy scalp, torso, arms and feet really bad. Bad allergy reaction. Hair loss about 1/2 gone. Worse feeling ever. Will adjust diet and treat myself. Never never again. Doctors only give you possible feedback, not all the negatives. F 52 1 days
16
1/8/2015
Email
 2  Crohns Disease Brittle loss of hair, skin rash on left eye socket, vision impairment in the same left eye, groin, right arm and shin, Continued Crohn’s flares occurring 1-2 times/2 months. Continuous diarrhea, seemingly lack of absorption. Believe it is also is the cause of acid reflux, indigestion, loss of appetite, tiredness, loss of weight. Any of these symptoms occur at any time no matter the infusion introduction. At first, Remicade really worked-your body is smarter than the drug remember that, it will adjust. Be prepared to adjust/adapt. Every Crohn's patient knows how to adapt given our disposition. I tended to ignore the side effect symptoms given the trade off I thought I was benefiting. Diagnosed at 12 years old-48 now. Resection surgery 1983 & 1984. Gallbladder removed 2010. M 48 12 years
1X O
12/23/2014
Email
 4  Ulcerative Colitis Fever, nausea, no appetite, headaches, fever, joint pain (body aches) Had my second infusion yesterday. Experienced no symptoms with first loading dose but the second dose has me out of commission completely(no work, sick all day). Medicine has helped immensely with colitis symptoms. F 35 4 months
750 1X O
12/9/2014

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