REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Psoriatic Arthritis | Tired after infusion . I have infusions every four weeks.Need to take injectable steroids and benedryl at time of infusion due to reaction and take Prednisone and Zyrtec three days prior to infusion. Currently take 25 mg of methotrexate weekly as well. Right now Remicade is working but I still have swelling and joint pain. My dr will increase as needed. | F | 48 | 10 months 700mg | 1/6/2013 | 5 | Behcet's Disease | The day after an infusion, I usually begin having mild flu-like symptoms that last for about two days. | My flare-ups have virtually disappeared, except for the last 5 or 6 days prior to the next infusion. Since those are eight weeks apart, it seems tolerable to me. | F | 64 | 16 months 1X O | 11/24/2012 | 5 | Ulcerative Colitis | Only side effects I get are headache and fatigue / weakness after infusion for about 24 hours. It's worth it considering the pain in intestine goes away and I go bathroom 1-2 times a day compared to 6-8 before treatments. | M | 32 | 4 years 115mg | 11/9/2012 | 4 | PSORIATIC ARTHRITIS | NAUSEA,VERY TIRED ..LATELY THO FROM LAST INFUSION I HAVE HAD DIARRHEA DAY AFTER WITH FLUSHING OF FACE AND HEADACHE. | F | 42 | 1 years 400 1X M | 11/9/2012 | 4 | RA | No side effects | I believe it's working since ra has not been found in any new joints in the 5 years I've been taking it. | F | 57 | 5 days 500 1X M | 11/6/2012 | 1 | Crohn's | The 3rd infusion I broke out in hives, throat closed, etc. I was prescribed benadryl b4 infusion & had infusion rate decreased. I had similiar reactions probably 3-4 x's at least thru out yrs. I was nvr very consistent w/ infusion & had them every 10-12 wks instead of every 8. I quit taking Remi when I got pregnant & breast fed for almost 1.5 yrs. Remi didnt work as well when I resumed so my dose was doubled. That was 2 yrs ago. 4 wks after last infusion I noticed the following: hard, swollen lymph nodes all over body (neck the size of golf balls); dry scaly skin including soars in scalp; rash on face, neck, back, arms, & legs; itchy skin; night sweats; chest & back pain; joint & muscle pain; sinus soars; dry cough; neuropathy all over body; headaches; chills w/out fever; hair loss; pee all the time; extreme tiredness; the list goes on. I had these symptoms b4 but not at same time & minor versions so nvr put 2 & 2 together. My GI told me that I prob. h | Not sure how I feel about Remicade? I guess it will depend on whether I have something life threatening from it after further testing. I was always afraid of Remicade given its strength and the side effects that are possible hence me getting it every 10-12 wks instead of every 8. Given the extent of my disease, my GI really encouraged me to use it. I do think it played a role in me being in remission (or close to it anyway) for a decade or longer. CAUTION: Listen to your body...closely. YOU know it better than your doctor. If you think something is "off", communicate it immediately. If you don't think you should take it any longer, than don't, and come up with a better game plan. Immunologically, this medication is pretty scary stuff... I can personally attest to that. | F | 36 | 12 years 1X O | 11/2/2012 | 5 | Psoriasis and Psoriatic Arthritis | 500mg in 250ml saline every 8 weeks. Side effects for 24 hours after infusion - Hot Flush, Exhaustion, Headache, General Malaise, Tachycardia. | Has virtually cleared my Psoriasis, was 90% covered before Greatly Improves my Psoriatic Arthritis. Now walk with stick instead of Wheelchair bound. After 17 years of hell this was my miracle drug. I take it alongside 15mg of Methotrexate every week to prevent development od antibodies to the Infliximab. | M | 42 | 2 years 550mg 1X O | 10/20/2012 | 5 | UC | F | 46 | 5 months 1X O | 10/14/2012 | 3 | Lupus/Vasculitis (ANCA negative) | n/a | Symptoms beginning to flare before infusions; increasing frequency and symptoms continue to show through. I suspect I'm developing an immunity to the drug. Been on Remicade for about 18mos. This is a shame because it has allowed me to cut back on extreme doses of and swings of Prednisone. I am ANCA negative and do not have a specific diagnosis though my systemic inflammation is quite serious, landing me back in the hospital in a rapid downward spiral within days; eventual organ failure unless I take Prednisone. The onset of my illness came suddenly 7 years ago, and severely; I was on full life support in the ICU for 3 weeks. | F | 43 | 18 months 1X O | 10/10/2012 | 4 | Ulcerative Colitis | Remicade worked miracles as far as healing my ulcers. I am in "remission". First three infusions I had no side effect. This fourth one, I am dying!!! I ache all over. My lymph nodes are swollen and hurt. My neck feels like I slept wrong. I am tired all the time even after getting 8 hours or more sleep. I think I now have restless leg syndrome because I can't seem to keep my legs still when trying to go to sleep. I am retaining water so my feet and ankles are swollen. My joints hurt and that really sucks because I have arthritis in both knees and already need knee replacements. I sure don't need this added pain! And, I get congested in the middle of the night which wakes me up. I don't know which is worse, the disease or the cure! | F | 56 | 3 months 1X O | 9/5/2012 | 4 | Psoriatic Disease, skin-eyes-joints | tiredness day of and day after infusion. possible stomach pain but that could be from other things. | As some who suffers from severe psoriatic disease in most of its various forms, remicade has been my miracle drug. I am not sure about a lot of negative comments so if someone would care to enlighten me? Pain at injection site? What kind of pain? I mean what do you want? I think this is crazy talk. Also- people that come on this site to spout their 'cure' and tell everyone that apple cider will fix them; hello? Are you daft?! I have suffered from this disease for most of my life. No remicade is not perfect. My dosages and intervals have increased over the years and eventually it will not be an option for me. That will be a very, very sad day. I will try the fringe biologics then, as biologics have been the only thing to give me relief beyond my wildest dreams. I am disabled from Psoriatic Disease. If it didn't work for you or you had horrible side effects, I am truly sorry. But for me, while not perfect, it raised my QOL beyond what I ever thought was possible. Is it perfect science? NO! Is it a step in the right direction- absolutely. I believe that even better treatment will come out of this. MTX was like throwing a dart and yet I never knocked it because with all its faults it made an improvement. Now we have a more targeted instrument. YAY! Again, my condolences for those that did not find this to be so, as a survivor of prednisone induced cushing's syndrome I know how difficult that is, but I would not deny anyone the relief that steriods provide. Also I woul | F | 52 | 8 years 40 mg 4X W | 8/27/2012 | 5 | Crohns | None | Highly recommended. Went from being terribly sick for 3 months to feeling great within a few weeks. Have stayed healthy since I've been on it. No side effects. Only bad thing is that it is delivered by IV and you have to go back to doc often for the dosage, and its very expensive if you don't have insurance. | F | 25 | 4 years 1X O | 8/13/2012 | 4 | rheumatoid arthritis | None | F | 69 | 9 years unknown | 8/10/2012 | 1 | Psoriasis | SEVERE JOINT PAIN, CHEST PAIN, FATIGUE | After the first infusion my psoriasis went away.....NOT WORTH IT! I was getting infusions every 8 weeks and about the time my 6th infusion was due...EXCRUTIATING JOINT PAIN EVERYWHERE. It felt like I had been in a severe car accident and every bone, muscle, and joint hurt tremendously. I have a 9 month old baby who I can't even pick up in the morning because my joints in my hands hurt so bad. I wish I had never taken this horrible drug! I was diagnosed with drug induced lupus from the Remicade. NIghtmare. I have no idea how long this is going to go on for and the prednisone and pain medicine only gives me little relief. The rheumatologist wants me to start plaquenil but after having such horrible side effects from Remicade I'm scared to start a new medication. I was so much better off before starting Remicade. My advice to anyone out there thinking about taking a biologic....DON'T DO IT!!!! | F | 38 | 6 days 8X O | 7/14/2012 | 5 | Crohn's | Nothing really. | Has given me my life back, I feel great most days, sometimes a bit less than perfect but not too bad at all, I work out four days a week, am 210lbs, very healthy, and very strong. Do not take the negativity on the Internet to heart too much, this stuff could help you, and I know it helps ALOT of people. I can only hope it continues to work as well as it has been. | M | 23 | 5 months 5 viles 1X O | 6/21/2012 | 1 | RA; I don't take drugs now | I took Arava and it gave me periodic psoriasis like rashes; I am warning people not to take drugs, I am effectively cured naturally. | I have cured myself with apple cidar vinegar. To the lady posting on 5/31 who got cancer from remicade your e-mail does not work for me. You can potentially cure your breast cancer with vitamin C crystals or injections and manage your psoriasis with apple cidar vinegar externally and internally. It can also effectively cure Crohn's/Colitis but you may also need vegetable juice fasting. Much of this is at doctoryourself.com and earthclinic.com, or you can e-mail me. 'Just say no to drugs' (Nancy Reagan). | M | 57 | 0 days 0 1X day | 6/21/2012 | 1 | Crohn's Disease | None | Did not work. Even doubled the doses the last two times and no results | M | 39 | 1.5 years 1X AN | 6/19/2012 | 5 | Psorisis | Got rid of all psorisis Then I got breast cancer dr says remicade was probably not to blame. now psorisis is back big time and drs won't put me on it cuz could cause cancer So do what?? Quality of life is terrible now. Pls advise | F | 63 | 3 years | 5/31/2012 | 4 | Crohn's | Can't really notice any major negative side effects other than my body is more sensitive to what I do for 3-5 days after an infusion. So I have to be more aware of what I eat. I cannot rule out that this is a psychological effect though. | I went from having 9/10 bad days to 9/10 good days. Infusion every 8 weeks + 1mg of Imuran per lb of body weight taken daily. Clearly the drug reduced inflammatory response in my case. My advice: become an expert on your disease and keep up with the latest treatments. Many Dr's have good intentions to help you but frankly play a guessing game with medications. The only one who really can put the right amount of care into your condition is you. Remicade + Imuran is the currently the most effective method to combat Crohn's. Taking one or the other is clinically proven to not be as effective as the combination. Supplement your immune system with 40,000 IU of Vit D / week to help fight off being sick. It makes a big difference for me. Watch your diet, stay off prednisone. | M | 32 | 2 years 5mg 7X O | 5/29/2012 | 5 | UC | No side effects so far. Keeps me in remission. My last colonoscopy, my Dr said my colon is healing. Even if this stuff causes cancer 20 years from now, it was worth it to have my life back! | M | 32 | 2 years 600mg | 5/25/2012 |