REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
More on REMICADE: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Ulcerative Colitis | Night sweats but already had been experiencing due to flare-up of UC; very sleepy/tired after treatment due to Benadryl and lack of sleep for past 3 weeks due to running to the bathroom at nigth due to bloody diarrhea. During Remicade treatment appetite came back with a venegance after weeks of liquid foods, hardly eating and drinking Ensure. | Diagnosed with UC in 1983 (age 17). Did not have another flare-up of UC for 12 years. Now falre-ups occur about every 18-24 months. Started Remicade initially in May 2008 when in hospital with flare-up of UC. Stayed with Remicade until December 2008 then had no health insurance so had to stop treatments. UC free until September 2009. Dr. put me back on Remicade treatemtn yesterday. Still diarrhea but not 12 bathroom trips in a 24 hour period. Thank God! After Remicade treatment have only beent o bathroom 2 times in 18 hour period. Miracle! Now can't sleep (probably because slept through treatment and most of afternoon afterward). | F | 43 | 1 days | 10/24/2009 | 5 | PEDIATRIC CROHN'S DISEASE | (MOM) SON HOSPITALIZED FOR A MONTH BEFORE REMICADE. IT HAS BEEN AN ABSOLUTE MIRACLE NO SYMPTOMS UNTIL A COUPLE DAYS BEFORE NEXT TREATMENT MILD RECTUM PAIN . WOULD LIKE TO KNOW IF THERE ARE OTHER YOUNG CHILDREN THAT HAVE BEEN ON REMICADE LONGTERM .VERY SCARED BY FDA STRONGER WARNINGS OF INCREASED CANCER RISKS AFTER 30 MOHTHS .MY SON IS ALSO VERY SCARED AFTER HEARING THE DOCTORS TALK ABOUT CANCER.HE GETS VERY SAD AND DEPRESSED IF ANY TOPIC OF HIS DISEASE IS DISCUSSED. | M | 9 | 4 months | 10/23/2009 | 5 | Crohns Disease | 3 Infusions so far - a scrathcy throat in the past two weeks that is slower to go away than usual. | I have had Crohns for 32 years. I'm 48 now. I've had a resection 8 yrs. ago, and surgery for anal fistuals every year for the past five. My surgeon indicated that I could withstand no more fistula surgery - the next step was a bag. Since my first infusion with Remicade (8 weeks ago), my fistulas have stopped draining - my energy abounds. I only can hope and pray that the energy and non drainage persists - I will keep you update. So far - I like Remicade for what it has done. Yes - long term scares me - but so does a bag. | F | 48 | 2 months | 10/18/2009 | 4 | Crohn's Disease | In the last year I have developed water on the knee (both) when I am due or over due for my treatment - once I have the treatment the swelling goes down and I'm fine. My concern is that, my being on Remicade for such a long time has cause my system to depend on the Remicade to take care of my joints. I question if it is possible that my system is no longer doing a much needed function because it assumes the Remicade will do it. I do not have arthritis and I have no history of it. | Remicade, has in many ways,enabled me to live a fuller life. I go longer between surgery's, eat more, go out more often and go the the bathroom less often. My two greatest concerns are 1.The cost -is horrendous $12,000.00 a treatment and at 4 to 5 treatments a year,(not counting Dr's visits, test, surgery's and meds) how long will I be able to live within my insurance cap. 2. What will the long term effects be?? | F | 50 | 12 years | 10/15/2009 | 4 | Crohn's Disease | Intermittent rashes for the first 3 months or so on the Remicade, frequent colds starting at about 5 months, and intermittent mild nausea which may or may not be related. | I have been on Remicade for about 9 or 10 months now for Crohn's Disease (which was originally Ulcerative Colitis when diagnosed 11 years ago, and has slowly converted since then after 8 IBD-related surgeries). I became hot and nauseous during the first infusion and am now premedicated with tylenol and IV Benadryl before each infusion and I no longer experience infusion-related side effects. I had my Remicade level checked through a blood test a couple months ago and it was found that at 6 weeks since the last infusion, my level was undetectable and therefore not therapeutic. I am now being infused every 6 weeks instead of 8, and am to have the level re-checked prior to my next infusion. We may increase it to 5 weeks or increase the dose (currently getting 300mg - 5mg/kg). It took about 6 months to start working, but I am now beginning to notice some changes in my symptoms, and endoscopically my inflammation appears to be improving. | F | 23 | 10 months | 10/8/2009 | 5 | UC | I have had a sinus infection and a urinary track infection- which is the first time I have had one. I am sleepy during infusion b'cause of benadryl but totally energized for weeks after (it feels great) then by the six week it start to feel like I need it again. I am having it now every 8 weeks which probably will change due to bleeding and abdominal pain. | It has been a life saver! I was diagnosed with UC at 16. I was not having any major problems for about 20 years. Then one day I got so sick I almost died and I have been sick ever since. I was in and out of hospitals until a new Dr offered Remicade. I have had 5 infusions and it has given me my life back. The Lord has been gracious to me! | F | 40 | 3 months | 10/1/2009 | 4 | Ulcerative Colities | I have dealt with most muscle pain and itchiness and hives. I have gotten the hives mostly when I am hot or on hot days. The itchiness is the same as the hives. I get muscle pain almost everyday. I used to be active(as active as you could be with UC) and now I get tired and sore so fast. | I have had UC for 17 years. I will gladly take these side effects for giving me an overall better quality of life. I have many problems from being on steroids so many times. I am glad to not be taking 25 pills a day anymore. I do have Osteoperosis and take Boniva due to use of so much prednisone over the years. Remicade has been a great alternative. | M | 28 | 10 months | 9/22/2009 | 5 | Crohns | Itching, usually just in the evenings. Have changed from 8/7 week schedule to a consistent 6 week schedule. No itching issues prior to this summer. Also dealing with protein deficiency and swollen ankles by end of day. | Very pleased; bowel-resection 5+ years ago and no major flare ups since. Drowsiness from Benadryl; although I welcome the additional rest. Usually take rest of day off and take it easy the next day. | M | 34 | 5 years | 9/20/2009 | 1 | I have Crohn's disease | I just had my third treatment about 3 weeks ago and during the treatment i started feeling really hot,swollen, and i couldnt breathe. The doctors finally came to check me and gave me oxygen and benadryl then i felt fine. They gave me the rest of the treatment slowly and sent me home. I woke up that night in tears i couldnt move. My boyfriend had to take me to the hospital all side affects from remicade. My docotor told me i got short term lopus from this medication and arthritus. At first the treatment was working the best then any of the others ive been given and now they took me off cause they reactions. Not something you want to go through all the time. | I wish everyone the best of luck when taking this treatment. Make sure to consult your doctors if you start getting any new problems! | F | 22 | 4 months | 9/9/2009 | 4 | UC | Definite thinning of the hair. Fortunately I had a lot of hair but now it is thinner and finer. No bald spots mind you. | Posting for my daughter so we can give everyone information to add to their knowledge of this drug. It worked GREAT for 2 1/2 years until her body started building antibodies and she stopped feeling so good for about six months. No flares until the end-then the colonoscopy showed the disease had travel from just the rectum/left side to the entire colon. DRAT! But Remicade doesn't stop the disease just minimizes the reaction of the body to it. So, we had to go off Remicade and are now using Lialda tablets, which are holding her. We went from infusions every 8 weeks to 4 pills every morning and nightly Canasa suppositories when she'll use them. Remicade worked-it was scarey to think of the potential long term-but if it works for you and you have quality of life instead of being chained to the toilet, unable to function. Four years ago we hadn't heard of this disease-now we are learning to live with it. Good luck to all! From Ash's mom. | F | 20 | 3 years | 8/27/2009 | 3 | UC & Crohns | severe rash on hands...Skin is cracking. Very itchy. Not able to concentrate very well the first week after treatment. The week before infusion, I feel like my body is having withdraws. | F | 47 | 5 months | 8/23/2009 | 4 | rhumatiod arthritus/anklosing spond | tiredness occasional dizzyness. | this treatment has taken away a lot of discomfort with my conditions. | M | 39 | 2 years | 8/21/2009 | 2 | psorisis | headaches, constipation, bloating, gas in stomach, upper and lower abdominal pain. | M | 60 | 12 months | 8/18/2009 | 5 | Crohn's Disease | None that I'm aware of, other than sleepiness the day of the infusion from the Benadryl. | This drug has given me my life back! I take it every 6 weeks and feel like I don't even have Crohn's. I may be developing a resistance to the drug though, as I used to only need infusions every 8 weeks but now have symptoms at 6 weeks. Hopefully the drug will continue to work for me until other options are available. | F | 33 | 5 years | 8/13/2009 | 2 | rheumatoid arthritis | I am extremely tired, have low grade nausea, slight fever, night sweats, bleeding under skin, hives, itching | I have called my doctor. He is going to arrange blood work. I am sure he is going to stop this treatment. | F | 60 | 4 months | 8/7/2009 | 1 | Crohn's | Stopped breathing | Horrible, almost died. All other crohn's meds had terrible side effects too. Tried Maker's Diet (get in any book store). Symptom-free for 2 years now. On no meds at all. Please try. | F | 26 | 2 months | 8/4/2009 | 4 | Psoriatic Arthritis | No major side effects. Have found that for a few days up to a week after an infusion I have VERY vivid dreams that tend to wake me up. Not nightmares, just LOTS and LOTS of dreams, so not really a restful sleep on those nights. Seems odd, and no one else has ever mentioned it, but I can't pinpoint anything else that's different during those periods following the infusion that would cause this. | So far the drug is working well for me - though I still have a few spots of the psoriasis that stay inflamed. However, they're small and hidden from view, so I can deal with that. The arthritis discomfort only bothers me as I get within a week or two of my next infusion. I often wonder if I'm at the top of a weight range for my dosage and if I were to lose a few extra pounds would the treatment last beyond the 8 week cycle I'm on. | M | 45 | 18 months | 7/31/2009 | 5 | Ulcerative Colitis | Was on Remicade between 2003-2006 for UC with instant remission and no side effects. No flareups after quitting in 2006 until April, 2009. Started Remicade again in June, 2009. Remission didn't come until a couple of weeks after 2nd infusion and beginning about June, 2009, I've noticed some hair thinning and itchy scalp. This didn't happen during my 2003-2006 Remicade treatment. Does anyone else have experience with thinning hair? Is it permanent? Is it continuous? (Will I eventually go bald?) | No other side effects and/or problems. It stopped the UC when prednisone wouldn't, even high doses (40-60 mg/day). | M | 50 | 2 months | 7/30/2009 | 3 | Crohn's | It is really the only thing that has meant my son is back at school most of the time and does seem to make a difference to his fistula. However, he has recently had a lot of problems with swollen lymph nodes, sore cracked mouth, dry itchy skin, ear infections and fevers which were put down to a virus. I am concerned they may be side effects of being on the drug for 2 years. Has anyone else had these symptoms? | M | 13 | 2 years | 7/30/2009 | 5 | RA | I experience fatigue for about a day and a half after the infusion and my joints are a bit sore for a few days. | Remicade is a godsend for me. I was in extreme pain before the infusions, to the point that I could hardly move and I slept all the time. Within a few days of my first infusion I was my old self again. I still have lower level pain daily and stiffness in my joints so I take pain killers too, but my quality of life is so much better now. I've had to increase my dose once since I started, but it's still working. I love it. | F | 38 | 10 months | 7/21/2009 |