REMICADE Reviews (INFLIXIMAB)Average Rating: 3.6 (501 Ratings)Filter ResultsCompare REMICADE with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 |
RATING | REASON | SIDE EFFECTS FOR REMICADE | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
5 | psoriatic arthritis | numbness and tingling, shortness of breath, dizzy - about 1-2 weeks after treatment. | This drug completely cured my psoriasis and arthritic symptoms. | M | 54 | 5 months | 12/27/2008 | 2 | Ulcerative Colitis | I would recommend to NEVER take this medicine as a home infusion. After taking this medicine for 6 months with no negative reactions my son had an infusion Dec/08 and had a immediate severe reaction. Thankfully we were at a clinic located on hospital grounds with his doctor available. His reactions were lost vision, blood pressure drop to 50/30 and loss of bowel function and ready to pass out. It was incredibly scary. They immediately stopped the medicine and pumped saline into him. He started to come out of it as fast as it happened. We will NEVER use remicade again. | It did seem to help somewhat for a short time but he was not able to make it to the eight weeks on this last infusion (only make it to 7). Everyone's body reacts differently to different drugs. I know remicade works for some, but not my son, due to the severe reaction at infusion. Just be aware of the possibilities that could happen during infusion. | M | 16 | 6 months | 12/27/2008 | 5 | chron's | Just financial. Ouch!!! :) None really. After initial infusion, spots on throat and tongue and (briefly - maybe an hour) spotty blurry vision. Also, right after infusions for remainder of day, really tired, kind of out of it. I take Claritin and Tylenol before infusions. | I find it is really difficult getting information about Chron's and Remicade. Have asked doctors questions, but they don't seem to know! ? Anyone know where to go for accurate information? I was just diagnosed three months ago. Have had five infusions. Feel much better. But, I have completely changed my diet too. Worried about whether it's effectiveness will decrease over time. No other medications at this time. Was taking Asacol, but after about two months noticed I was loosing a lot of hair. | F | 30 | 3 months | 12/23/2008 | 3 | crohn's | ok been on a very high dose for a few years. i seemed to have developed drug iduced lupus from the remicade. it started as a small rash and spread over my hands and face. i never had joint pain with my crohns until i started remicade now my joints and tendons hurt or are swollen all the time | it worked great for a while and i didnt have any major side effects for years. then its all went bad now i have this lupus that the doctor said "might or might not go away" and my body aches constantly | M | 36 | 3.5 days | 12/23/2008 | 3 | Rheumatoid arthritis, spondylitis | Fatigue,headaches,nausea,weakness,swelling,hives,body aches | It helped a little but my CRP was still 50,so it did not help enough to stay on it. (I was on 600mg every 5-6 weeks) | F | 36 | 1 years | 12/20/2008 | 5 | crohn's disease | none really...maybe just a tad sleepy during the infusion | Remicade is nothing short of a maricle. I am a 19 yr old premed college junior. I was diagnosed with Crohn's in 2007 after suffering from constant pain for 3 years in high school. I was 5'5 and weighed 90 lbs at the time. As I continued to drop, my hs sweetheart split, and the kids began to refer to me as "ana" short for anorexic. Although it was difficult, I found ways to cope and improve myself; however I came to realize that I was depressed and was bringing down those around me. When it came time for freshman year of college, I was accepted into my dream university, but as my health exacerbated, I was forced to turn down my admission and continue at a local comm. college. It was there that I got into an accident, had an MRI done, and finally was diagnosed with crohn's. I was later prescribed Remicade for treatment. For once, I felt as if I could live normal again and if you could imagine, I went through the final stages of puberty at the age of 18. I received a scholarship | F | 19 | 1 days | 12/11/2008 | 4 | Infused in hosp. I was weak and experienced tightness in the chest the next morning. I also continue to look pale. | Seems to be working after 1st infusion. Entered hospital passing all blood. Left constipated. But when returned home and finally went...stool was formed and normal. Still on steroids and 6mp so it is hard to judge what is truly helping. | F | 39 | 9 days | 12/7/2008 | 3 | UC | Having severe pain in the knee's, ankles and wrists. Dry scratchy throat with metallic taste as well. Only having taken Remicade once I am going to give it a chance but if this pain persists it would just be to much. | Dr. has put me on 60 mg. Prednisone a day to combat the pain but it does little to subdue the pain. on a possitive note only after one treatment of Remicade my UC has turned around. | M | 32 | 1 weeks | 12/7/2008 | 2 | Crohn's Disease | Red man syndrome during the infusion. I was pretty tired the day of but that could have been the Benadryl as well. I also got an ache in my collarbone fairly soon afterwards. | The build-up was great by the end of my 3rd infusion in eight weeks I felt great, after that, nothing. The maintenance infusions did nothing for me and now I'm on to Cimzia. I'll let you know how that goes. | M | 27 | 6 months | 12/2/2008 | 3 | Crohn's | Fatigue during and after the infusion, get hungry during infusion, did bad stuff to my veins, eventually developed allergic reaction after 13 months | I was on Remicade for 13 months. It worked good for me. As long as I had my Remicade every 6 weeks, I could control my flare ups to a certain degree. However, I always had more symptoms at week 5 and 6. I eventually developed antibodies and an allergic reaction to the Rem after my last infusion and my GI is taking me off of it. I start humira this week. | F | 28 | 13 months | 11/25/2008 | 4 | Crohn's Disease | A little fatigue, feels like achy flu like sympotms for a couple of days. Warming or hot sensations in my sides, stomach and legs that come and go. I have only had one infusion so far. | At times I think the first infusion has helped, but depends on my diet. Still having a bad flare up. Helped but not completely. | F | 39 | 12 days | 11/19/2008 | 5 | Chrons | I was always exhausted after the infusion until I stopped recieving the Benadryl before. Other than that I have had itching during one of my infusions. I get it every 8 weeks and experience no side effect after. It really helps me. | F | 22 | 5 years | 11/18/2008 | 4 | UC | Headaches following the infusion for about a week, and fatigue for a few days following. About 2 weeks after the 2nd infusion I developed itchy skin, no rash though. | Had 2 infusions so far the 2nd 2 weeks following the 1st. Had no immediate side effects, fatigue and headaches for a few days. Was still on steroids till 2 weeks after 2nd dose. So far so good. Skin started itching 2 weeks after 2nd dose, but no rash. Could just bee the dry weather. It's been great to get some control back in my life. | F | 48 | 7 weeks | 11/18/2008 | 3 | UC | Initially I was exhausted after infusions, but when I switched from Benadryl to Claritin before the treatment, this problem went away. I also had some joint pain after the first couple of treatments. Currently, I am struggling with pretty severe constipation, but that may have more to do with my diet during my UC flare-up than the medication. | Remicade worked great for me at first. During my induction phase, I was healthier than I have been in 8 years. However, when I got to my first 8-week interval between doses, I had breakthrough symptoms around 5 1/2 weeks. The next treatment didn't help much, so we had to schedule an additional one, which only gave me relief for about 2 1/2 weeks. I just had a double dose this week and still do not feel well. I hope to see some improvement in the next few days. Has anyone heard of the body building up a resistance to this drug? | F | 38 | 5.5 months | 11/15/2008 | 3 | Crohns | I have previously had Infliximab for 12months till I got slight nuero tingling and the money ran out so we stopped the treatment. well for 18 months miracle drug... But now I have more funding and have had one treatment and had, double vision, weakness, tingling/numbness in arms and legs, metalic taste in mouth and swelling of tongue...... | This is the miracle drug I was hoping for UNTIL now! The drug company have never heard of the tongue thing but it started 4 days after infusion and we cant see what elsecould have caused it... I am thinking of trying humira now... bit scared | F | 34 | 1 days | 11/13/2008 | 4 | Crohn's | My son has had 3 infusions so far. The only side effects were sleepiness during the infusions and soreness for 1 day at the site of the infusion. However, in the last week he is complaining of a burning sensation on his right thigh. Like a sunburn, but there is no redness or rash. It subsides, then comes back. Now the burning is also on his stomach. I can't find anybody else that has had this symptom. | Remicade has almost completely eliminated my son's bleeding. He was diagnosed 2 years ago and this drug is much more effective than any of the others previously tried. I'm worried though because he's so young and there is very little research about the long-term effects on pediatric patients. | M | 13 | 3 months | 11/6/2008 | 5 | Ulcerative Colitis | My doctor never told me what to expect, but I have some numbness around my knees and have been having night sweats. But those are the only side effects I can list right now. | I started out having monthly treatments for the first 6 months, now I go every 2 months and that works. The dose had to be increased twice during the 15 months. Remicade truly has been the wonder drug for me and although I don't know how long I have to be on it, it's worth it just to have a normal life again. | F | 44 | 15 months | 10/22/2008 | 5 | Ankylosing Spondylitis | Sleepy for 12 hrs following an infusion and, ironically, persistent insomnia. | Wow I love this medication! It's taken away most of my pain and significantly increased my quality of life. | F | 46 | 4 years | 9/16/2008 | 5 | Behcet's Disease | Fatigue for a week after infusion, low blood pressure during infusion, slight itching of my arm | Remicade has been my miracle drug. I lost vision in my left eye and was legally blind in my right eye. I have now recovered most of the vision in my right eye (20/30). Most other symptoms of the disease have been quiet as well. The doctor is going to try and stop all meds so I can get pregnant though! Apart from the fear of side effects, this medcine has given me my life back. | F | 24 | 1 years | 9/4/2008 | 1 | crohns disease | Rash on side of lips, extreme muscle pain,headachs, Many kidney stones est in the hundreds. kidney stone surgery at least half the time I get one. | (LONG TERM USERS BE AWARE OF REMECADE, THIS IS MISERABLE) I was diagnosed with crohns disease in 1988, during the next 5 years I was in and out of the hospital. In april 1993 I had an emergency bowel recection. The pain went away, but I had frequent trips to the bathroom. I have taken every medicine on the market (at times I felt like a test animal). I was On prednisone for 10 years. I started remecade in 2000. It was great until now. I have extreme muscle pain to the extent I have not worked since march 2008. The muscle pain is worse than the crohs disease. I have not taken the last treatment and have felt some better. I have been to Duke University and am going back Sept. 08, 2008 for my second visit , also been to University of Georgia medical college where I was treated like I was trying to get disability but I could have gotten it 10 years earlier but I didn't want it. I never missed more than 4 weeks of work at any given time until now. | M | 38 | 8 years | 9/2/2008 |