REMICADE Reviews (INFLIXIMAB)

Average Rating: 3.6 (501 Ratings)

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 TUMOR NECROSIS FACTOR-ALPHA INHIBITORS

 Type: Rx Drug

  

REMICADE  (INFLIXIMAB):  This medication is used to treat certain types of arthritis (rheumatoid arthritis, arthritis of the spine, psoriatic arthritis), certain bowel diseases (Crohn's disease, ulcerative colitis), and a certain severe skin disease (chronic plaque psoriasis). In these conditions, the body's defense system (immune system) attacks healthy tissues. Infliximab works by blocking the actions of a certain natural substance (tumor necrosis factor alpha) in the body. This helps to decrease swelling (inflammation) and weaken your immune system, which slows or stops the damage from the disease.    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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More on REMICADE: Reviews Summary  |  Drug Safety Information

RATING  REASONSIDE EFFECTS FOR REMICADECOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 5  Crohens Hot flashes, thinning hair, very dry skin F 18 9 months
1X O
7/10/2010
 5  arthritis none that I know of it helps alot. it would be better if I could administer myself M 59 4 years
1X AN
6/19/2010
 5  UC I have had 3 infusions and will be going for the forth next week. After the second infusion I got Shingles. I am sure that was due to the compromised immune system because of Remicade. Not sure that shingles are a typical side effect. I did not realize it was shingles until the rash appeared. I didn't know that shingles causes internal pain- severe pain - I thought I had a kidney stone. I have had some joint pain, but I am not sure if that is from the Prednisone, Remicade, or age. I was also pretty fatigued for a week or so after the infusions. Again, not sure if it was the Remicade or just the healing process. I have had UC for almost 20 years. Flare ups are usually far between, but when I have one it usually starts out mild and gradually escalates. Asacol and Prednisone are typically prescribed. Prednisone usually does the trick. After several months of mild to moderate UC flare up (latest one), the flare up got worse. Was on Asacol for several months when symptoms got worse added Predisone. After adding Prednisone the flare up turned severe - not typical reation for me. I thought I had e coli. Severe diarrhea, 10-20 times a day and through the night which was very unusual for my UC. Dr. discussed Remicade. I was so dehidrated my legs were cramped to the point I could barely walk. Was hospitalized for 6 days. IV and clear liquids only for 5 days. Constant diarrhea day and night. Remicade infusion on day 4 (had to wait for salmonella test results). Day 4 and night 4 dramatic reduction in bathroom trips. Day 5 I was like a new person. It has been 7 weeks since my last infusion and I feel good, but seem to be having very mild symptoms again. Overall I am thrilled with my results from the Remicade, however I still have concerns about continued treatments. I will discuss options with my doctor next week. F 53 3 times
1X O
6/15/2010
 3  neurosarcoidosis F 45
500 1X day
5/27/2010
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Patient History
 4  psoriatic arthritis REMICAIDE HAS WORK ON MY ARTHRITIS, BUT HAS DONE NOTHING TO MY PSORIASIS, I HAVE 60 % OF MY BODY WITH IT M 48 8 years
6 mg 1X O
5/24/2010
 4  psoriatic arthritis and Iritis I had my first infusion treatment yesterday. I was really tired most of the day and slept on and off. By the evening I started to have sharp pains in my hips and joints (mainly hands and feet). Continuing to have the sharp pains, its getting worse. However I woke up and noticed a big difference in my eye. I really hope this works with little or livable side effects. I've had PA for two years and was on a Embrel and Leflunomide (Arava)conbo that was working really well until this year when I started having iritis. Is anyone else taking Remicade for iritis? I like to hear how the treatments are working for you. F 27 1 days
50 8X W
5/20/2010
Email
 3  RA Had first infusion yesterday. Blood pressure still very low 97/62 this morning . Very tired, swollen feet, legs & hands. Not sure I have felt this lousy in a long time. I also take .9 ml of Methotrexate subcutaneously each week. Enbrel did not give me much relief so Dr tried Remicade. Trying to be positive but I have a full time job and 2 kids can't be this tired all the time. M 43 1 days
1X M
5/20/2010
 1  Psoriasis severe Stopped breathing completely, almost died, they had to put all kinds of drugs in the iv to revive me Be careful if you start coughing at the beginning of an infusion this may be the start of anaphylaxis F 40 3 months
? 1X M
5/12/2010
 5  Crohn's I had my first infusion last week after nearly 2 months of a sever flare up. Lost 30 pounds in 4 weeks and could not eat any solid food. Lots of blood in my stool, nausea, fatique, etc. When I ended up in a wheel chair because I had such severe joint pain,all hell broke loose and I had every test imaginable - ultrasounds, catscan, colonscopy...I had ulcers throughout my body from the tip of my tongue to my intestines. Went on Asacol and Entocort for about a month which did absolutely nothing. Added Prednisone which helped quite a bit but I could only sleep about 3 hours a night because the steroid makes me feel like I an wired 24/7. Added Ambien into the mix to sleep. Want to get off the steroid, but can't until we are sure about the Remicade effect. Took Benadryl before the Remicade treatment began which made me sleepy. After the treatment, I was tired but the next day I felt really good. Its only been a week and 1/2 but I have not had any negative side effects at all. After 2 months of constant bloody bowel movements and feeling horrible all of the time, I am hopeful that Remicade is the answer I have been looking for. The side effects described on this site are very scary not as scary as living with serious Crohn's flare ups. F 45 10 days
1X day
4/29/2010
 5  Rectal Abcess related to Crohns I was first introduced to Remicade in 2003 after surgery for a Rectal Abcess. (would not wish on my own worst enemy)The Abcess was Crohns related. I was diagnosed with Crohns when I was 8 years old. I am 32 now. The Remicade pretty much kept the Abcess under control. In 2006 and 2007 I was no longer taking the Remicade and once again developed the Abcess. I needed surgery once again to correct the situations. Since the last Abcess surgery in 2007 I have consitantly taken an infusion of Remicade every 6-8 weeks. The results have been great! Additionally since 2007 I have been taking 6mp and prilosec every day. But than again this is nothing in comparison to what I have gone thru from Chrohns. Like I said I was diagnosed at 8. Been on every drug in the book during the time of 8 to 19. Always led a normal life untill 19. That is when Chrohns nearly killed me. Was in and out of the hospital thru out the year of 1997. Had every side effect and syptom in the book, hair loss, body odor, back When I first started the Remicade I was given Benadryl which is used to counter any side effects you may develope during infusion. I have to admit the Benadryl really kicked my a**. It makes you very sleepy and gives off a horrible burning and stinging sensation in the arm. After time I asked to not have the Benadryl. No problems without it thankfully. The only side effects I feel after infusion is a headache and that I am very tired. This occurs hours and the next day. These effects usually clear up in a few days. M 32 3 years
1X O
4/28/2010
Email
 1  Ulcerative Colitis Extreme, horrible back and chest pain. I have also had joint pain in my knees and fingers. It has been about a month since my third treatment, and the pain is getting worse. Cannot take deep breaths, sneeze or cough without horrible pain in my back, and it feels like someone is standing on my chest. My doctor took me off the drug immediately, and told me the side effects will eventually go away. We will see. The medicine has not even made any improvement in my UC whatsoever. The risks are not worth the possible benefits, of which there were none for me, anyway. F 28 3 months
1X O
4/25/2010
 4  Crohns disease No major side effects. Just sleepy on the day of infusion. Feel great on remicade. Crohn's symptoms pretty minimal. Very physically active and lead a fast paced life with family. Started taking remicade to treat fistula 16 months ago. I've had crohns for 25 years. Had 2 bowel resections, and the last one was 8 years ago. Just had my 9th remicade infusion. I get them every 8 weeks. Started with 500mg then moved up to 900mg. I'm also on flagyl, iron, folic acid and still taking pentasa 500mg per day. My GI doc said to not bother with the pentasa but I do find it makes a difference after week 6. However, fistula is still there and my GI doc now wants me to go on Imuran and continue with the remicade. I've read lots of really negative reviews of Imuran. Crohn's has never freaked me out - but the Imuran stuff looks scary...ie. hair loss, warts, skin tags, yellow skin, and on and on. Anyone taking both remicade and imuran? What has your experience been? Thanks M 40 16 months
900mg 8X W
3/30/2010
Email
 4  UC Had some joint pain, but it's gone. Itching isn't too bad and there's no rash - thankfully! Some back pain, not too bad. The worse is the sinuses - I'm dry, I'm runny, I'm stuffy. It's more aggravating than anything. I've had UC since 1986 and once I went into remission (which was fairly quickly, I've only had about 5 flares. Each lasted a month or so. I was on Asacol for years and that worked great until March of 2009. I had a major flare that has lasted till now. I was on steroids until last month and I started Remicade last October. The Remicade worked ok, but not completely. I was having infusions every 8 weeks. As soon as the steroids got out of my system, the side effects of Remicade started. After my last infusion - last week, the difference has been amazing. Yes, I'm feeling some side effects, but I haven't had any bleeding since that infusion and I've never felt better. I'm really hoping that the steroids were not only masking the side effects, but were also hindering the healing. Time will tell, I guess. F 49 5 months
1X O
3/20/2010
 3  RA I am writing this for my husband. We are not sure if he is having any side effects or not. We are looking for some answers. He has taken 2 dosages so far. He has seemed to have flair up since starting, but also now has leg fatigue with weakness and pain. He has been exhausted to the point of being able to sleep all day or falling asleep unexpectedly while up. He has also been having headaches. He has started jerking and twitching in his sleep. He has also been on Methotrexate 2.5 mg for 2 months. He had no side effects except mouth sores before the Remicade, but we also know that they both can take some time to show results or issues. M 33 1 months
1X O
3/17/2010
Email
 2  U C / Ankylosing Spondylitis Had UC for 4yrs tried Remicade for it but it didn't work. Recently my Dr started giving it to me for Ankylosing Spondylitis and my throat closed during my infusion! I was really glad I was at my Dr's office. I broke out into hives and started choking. My Dr took me off of it now I am going to try Humaira. My Dr said I built up antibodies to Remicade over the years and now I can never take it again. F 25 2 months
2X M
3/7/2010
Email
 1  crohns It was a God send at first. But I was so sick I was at the point of kill me or cure me. I should of been stronger and really researched what a Black Box Labeled Drug means. Because it did almost kill me. Because of me the warning label has been changed yet again. This is a very scary drug. I contracted MUCORMYCOSIS a rare and 96% fatal infection. My face is disfigured now and I can take nothing for my crohns. I am furious with centacor the manufacture of remicade. And our goverment. It is made from mouse and humane protein. If you ask where they get the humane protein you will not get and answere and if you do some home work you will find out that the lab mice and least some of them have been proven to be sick due to lab mutations to make them "better" and that little bag of poison cost around $6000.00 Since when did mice and dead babys cost so much? Biomed is the same as Biowarfar. Be afraid. the 6mp was giving you cancer the steroids made you crazy and the other stuff did F 40 0 days
0 1X M
3/2/2010
Patient History
 2  rheumatoid arthritis have had 2 iv infusions so far..my 1st infusion was 2 weeks ago. almost instantly i felt back pain as i sat in that chair..felt very sleepy, nurse said it was due to the benadryl. after a few minutes i could feel the pain spreading through out my whole body.. my back pain never went away and i actually felt worse than before my infusion. i called my doctor a few days before my 2nd infusion and told her about the side effects and back pain and she said i had to keep going. so thursday i had my second infusion and the same thing happened, as she injected the remicade into the line i felt the sharp pain in my back..it is now sunday and i have had a severe headache since thursday, back pain worse and every joint in my body aches bad...had to go to the store and had to get in one of those electric carts cause i cant walk without pain..maybe its just a flair up but, i was feeling MUCH better before the infusion of remicade..doctor said it was 1then another one after 2 weeks F 34 1 months
1X O
2/21/2010
Email
 4  Crohns Lots, I suppose the worst was the ulcers, lots of extreme pain, a good bit beyond the regular extreme pain of an extremely raw and inflamed stomach. Arthritis, keeps getting worse, tylenol arthritis barely helps. Constant sore throat, congestion, headache, really weird sleep (insomnia, wake up going crazy (never happened in my life before),night sweats), constant backache, increased frequency for urination. I guess there are a bunch of internal things too, gastritis, esophagitis, ulcers, i forgot the other stuff but it wasn't pretty. The arthritis and body problems only started up maybe in my last couple treatmments but even since it stopped taking it over 2 months ago, its worsening. Can hardly type now, can barely open bottles of juice, when I wake up I literally cannot bend my fingers for 5 minutes. The ulcers healed and I am still drugged up good, on a pretty good crohns definition of quality of life (you know only 6 trips to the bathroom a day, eating nice rich foods like rice After the first two infusions I started to know big differences, i was able to eat a lot more, put on muscle from lifting. I could excercise a lot more, better sleep, less bathroom scares. Could finally sit in a car for more than 15 minutes without having an emergency. I actually didn't feel that much pain if any for about a year on the infusions, never had any reaction with the IV or anything. So for me, if I quit it maybe 4 months early I might have not suffered for 2 months in severe pain because of side effects. M 21 1.5 years
1X M
2/18/2010
 4  Psoriatic Arthritis Occasionally I break out in a rash and have some injection site pain while receiving the infusion. I take Tylenol and IV benedryl prior to starting the infusion and this lessens the side effects considerably. I've only had one severe reaction shortly after starting the infusions. I'm usually completely worn out and feel "hung over" the next day or so but other than that and an occasional headache, it's been the best thing I've tried. I am receiving Remicade infusions every 6 weeks along with weekly injections of Methotrexate. I've tried other medications but so far this has worked the best to give me back the quality of life I desire. I can't imagine what life would be like right now had I not discovered Remicade. I start to feel increased joint pain, fatigue and psoriasis outbreaks at about 4 wks after my infusions but it's tolerable. Started out with infusions every 8 weeks but had to increase to every 6 to see improvement. Just hope it continues to work!! F 46 2 years
6X O
2/18/2010
 4  ulcerative colitis I am experincing every side effect known to man. Also taking medications to counter the side effects for sleep, anxiety, muscle and joint pain, sever deppression, high blood pressure and colertosrol. Also taking meds for facial skin rash. I have sever memory problems that is interfering with any easy common task and my job on the line. I have the following side effects•Infections•Headaches•Abdominal pain•Coughing•Heartburn or indigestion•Acid Relux•Blood in the stool•Facial rash and flushing•Dry flaky face and scalp•Back pain•Broken bones•Fever and chill and night sweats•High blood pressure◦Weakness◦Dark urine◦Right side abdominal pain•Difficulty breathing, especially accompanied by water retention or swelling◦Dizziness◦Lightheadedness◦Fainting◦Wheezing or difficulty breathing•Dehydration•Urinary tract infections and kidney However it does make my UC manable. Still have regular loose bowel movements and have to watch what I eat. Every now and then I flare, now taking Lialda over asacol. So what do I do, stay and maybe die from remicade or go back to the unbearable of lack of control and cramps. Either way, I would'nt be able to work M 49
1X day
2/17/2010
Email

Patient History

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