ENBREL Reviews (ETANERCEPT)Average Rating: 3.7 (533 Ratings)Filter ResultsCompare ENBREL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 |
More on ENBREL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR ENBREL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | ankylosing spondilitis | It gave me 9 wonderful years of almost complete relief. I was able to return to an active lifestyle, even engaging in high-endurance sports. But a few months ago I started having episodes of dypsnea, or difficulty breathing, a bit like asthma attacks. It appears they're caused by Enbrel, and since I stopped the injections my breathing has returned to normal. However, the AS episodes I am now experiencing are very severe, in what appears to be a form of withdrawal. I have to take prednisone to get relief, and am starting arava to see if that will work. | Had I known 9 years ago that Enbrel would have this bad side effect in the end, I'm not sure I wouldn't have taken it anyway. Those years were great. But the party's over. | M | 52 | 9 years | 4/18/2008 | 5 | Rheumatoid Arthritis | Repeated sinus infections which led to surgery, mild flu-like symptoms (tiredness mostly) a day or so after giving myself the shot. I'm also suffering from migraines quite frequently now. Before Enbrel, I had maybe 2 migraines in my entire life. Now they're common. I take Imitrex and Naproxen to offset the repeated migraines & other headaches. Muscle twitches and facial tingling. | It's marvelous in handling my severe arthritis. Without it, I'd either still be on methotrexate and steroids or in a wheelchair. I can definitely tell when I've missed a shot as the joint pain returns. Most of the time, I go around joint-pain free. Despite the side-effects I'm experiencing, I'd recommend it to people with moderate to severe arthritis. | F | 42 | 5 years | 4/17/2008 | 3 | ankylosing spondilitis | Hi all~ N.B.: I have always taken this drug with a Cox 2 inhibitor or anti-inflammatory daily. Burning at site of injection, even with sureclick autoinjector, but tolerable. Tired after injection but felt much better the next day. Dry mouth after abt. one year of use at 50 mg/weekly. Lately, I have experienced nausea and sweats, mostly during the night. Discontinued the COX-2 inhibitor, thinking this was the cause of the nausea. Two weeks later, taking double dose of Nexium and a liquid antacid. Took my weekly shot last night and whoa, was extremely nauseous the whole night, despite all the Nexium and antacids. Either the problem is the Enrel itself or something else is going on. | I found Enbrel to be quite effective but only when combined with a Cox 2 inhibitor or an anti-inflammatory (naprolen). When taking the two together, my spine was much more flexible and my joints generally felt much better. My neck, shoulder and TMJ jointa are very painful now that I'm off the other meds. Depressing, this stuff, isn't it? | F | 55 | 1.5 years | 4/10/2008 | 5 | Juvenile Chronic Arthritis | ithiness, rash and swollen at injection site occasionally. Tightness in chest. | After very first injection i seen vast improvements, this medication is changing my life! | F | 18 | 2 months | 4/9/2008 | 3 | Psoriasis | STROKE | This drug was a wonder drug. My psoriasis was 95% gone and my arthritis was feeling great. Eight weeks to the day of my first dose I experienced a mild stroke. My Neurologist claimed it wasn't Enbrel until I showed him the paragraph that listed stroke as a side effect for the dosage I was taking. It pays to read the two foot by three foot insert. Lasting side effects of the stroke include short term memory loss and transposing of letters/numbers when typing. The manufacturer didn't respond to my dermatologist's inquiries and didn't seem to care that the stroke could have been related to the drug use. All other factors; BP, Cholesterol, heart, blood work, were normal. My MD recommended stopping Enbrel and go back to topicals/phototherapy. | M | 47 | 60 days | 4/8/2008 | 4 | Psoriatic Arthritis and Psoriasis | The local site reactions went away after a month of treatment. What has plagued me and I was not sure until after I discontinued use about a month ago was premature ejaculation. Two physicians have denied this was a side effect but its onset coincided with Enbrel therapy and the resolution with discontinuing Enbrel. The Enbrel did not work for my psoriasis and therefore my derm recommended Humira. My rhum prescribed Humira upon my request and my problem went away. | With regard to treating the symptoms of arthritis the Enbrel was awesome. I had not felt so good in 15 years. I had been treated with Ansaids and methotrexate for years without such good results. Enbrel was liberating, absolutely no more pain and a positive side effect for a while was euphoria which was reported by my physician. I know people for whom it works very well in treating psoriasis unfortunately I was not one of them. The other side effects of these biological drugs do bother me however but obviously not badly enough that I would discontinue taking them at this point. Hope this helps folks. If any of you experience a similar side effect please post. Cheers! | M | 43 | 5 years | 4/2/2008 | 4 | Psoriasis and Psoriatic Arthritis | Injection Site Reaction - Think Bad Mesquito Bite | After 3 Months... Psoriatic Arthritis 95% improvement Psoriasis 25% improvement Alopecia Totalis (Third Autoimmune Disease) - Hair Growth 20% Of course Enbrel is NOT for Alopecia but it is growing some hair on my head, nothing else I tried did. Connection? Also, White Blood cell count good as well as liver and kidneys. Hope this helps anyone out there! | M | 37 | 3 months | 3/20/2008 | 1 | Ankylosing Spondylitis | Injection Site irritation including burning and swelling. Easily got any and all colds/flu from my family. Fatigue if missed a dose due to sickness. Potential serious long term side effects from using it. Mylan sheath breakdown in wrist and forearms. | After one year of Enbrel therapy I had a stroke at the age of 31 potentially from Sepsis (clotting of blood) due to Protein C and S abnormality linked to Enbrel use. Benefits which were excellent did not outweight long term potential hazard. | M | 31 | 14 months | 3/18/2008 | 2 | Ankylosing spondilitis | Very Tired | Day 4 and the back pain is worse than before taking this drug. Has anyone else exprinced this I hope it kicks in soon or I won't be able to work again. I have strong sharp pain in my upper back | M | 40 | 4 days | 3/15/2008 | 2 | RA | Low white count. Rash on my lower back, tops of legs and some on belly. | Anyone know how long this stays in your body? I am extremely concerned about my immune system and how this brings white blood count dangerously low. Normal is 5-10 and mine has been 2-3. My doctor says it is not a problem but he's not the one walking around susceptible. Have been hospitlized twice becuase of it. Has helped pain but I'm not sure it makes sense to continue. Think it is a very dangerous drug. Anyone experienced heart issues like Atrial Fibrillation? Anyone familiar with Felty's Syndrome? TIA for any feedback. | F | 57 | 5 months | 3/12/2008 | 4 | Ankylosing Spondylitis | Felt faint after the first shot, this was most likely due to the sensations and taste in mouth as Enbrel diffused in my body. Second shot knew what to expect no problems. Have a low level sinus drip, and dry mouth after 1.5 weeks on this drug. | After suffering in horrible pain for 20 years I am experiencing a feeling of well being as the pain and stiffness subsides in my spine. 4 years putting this medicine off because I was concerned about the published side effects---dumb. Years of codine use to control pain has most likely harmed me more than Enbrel ever will. | M | 50 | 12 days | 3/11/2008 | 5 | RA | no side effects | It stings for the first few seconds but i just go with it. No injection site reactions, just a small bruise that went away after about the 5th day. Ive noticed a huge difference just in the short time ive been using Enbrel. I can move my fingers without them "locking up" on me. I can even get through an 8 hour shift with alot less pain. Its made a big difference for me, I hope it helps others. | F | 35 | 3 weeks | 3/9/2008 | 4 | Ankylosing Spondylitis | Tired and flu-like symptoms often | Worked great for my back pain, but the longer I take it, the more side effects I seem to be experiencing. Has this happened to anyone else? | F | 22 | 3 years | 2/29/2008 | 4 | inflamatory spondylitis | rectal itching-and skin eruptions(unknown if related?)sinus infections. feel better joint wise and spine doesnt ache. Sometimes I take every 10 days instead of weekly but can feel the pain increasing in spine if I miss due to sinus infections. | F | 45 | 1 days | 2/28/2008 | 4 | Ankylosing Spondylitis | Severe swelling and soreness at injection site. This hurt so bad , that i am now switching to Remicade. Sometimes the Auto-injector would stick and the needle would not go in , or sometimes, would not pop out. | provided good releif of my pain. Gave me my life back | F | 37 | 1 years | 2/18/2008 | 4 | RA and PA | Alot of pain when injecting. If you know how to make them hurt less, besides letting them warm up to room temp...please let me know. | Enbrel helped after the first shot overnight. It truely was a miracle. But I hate needles, and I dread taking them because of the pain. It is very hard to deal with at such a young age, but I try not to be too sad, because its the hard things that make you that much stronger. | F | 15 | 5 weeks | 2/13/2008 | 4 | Psoriasis and Arthritis | First Week, Tiredness. After that, A miracle. No more pain and stiffness in Knees, Back, and Feet. Works Great. The psoriasis however has showed only small improvement. Just took 6th shot, Arthritis is 95% improved. Psoriasis 20% improved. My Rhemu told me that it takes longer for the Enbrel to work on psoriasis based on his patients. I would give this drug five stars but there is a report out there linking it to increase incidences in lymphoma in patients taking it. My doctor says all autoimmune type patients have agreater likelyhood anyway. IMHO - Works fantastic on arthritis. To be decided - On psoriasis. | I would try other known remedies first, and if all else fails go with Enbrel. I just can't give it a wholehearted endorsement for the unknown effects it might have over years of use. | M | 35 | 6 weeks | 2/13/2008 | 4 | RA | I get injection site reactions - a 2-3" inflamed and itchy rash starting about 24 hours after the injection. It lasts about 4-5 days and is extremely itchy; benedryl doesn't seem to make a difference. My previous 3-4 sites also flare up with each injection. The injections really burn on my thighs but are fine in my abdomen. | I've only been taking it for 1.5 months and typically have flare-ups every 3 months so am still waiting to see if I don't have a flare-up. I'm hoping the injection site reactions will go away with time because they are very irritating and my RA is not that severe on a day-to-day basis. | F | 29 | 6 weeks | 2/12/2008 | 5 | spondyloarthropathy | Tired - just a bit | Awesome drug. I'm young, healthy, athletic, and increasingly depressed by the joint pain and swelling I've now had for ten years. I only wish I had tried this drug ten years ago! | M | 37 | 20 days | 2/9/2008 | 5 | Psoriatic Athritis, Psoriasis | Some tiredness at times. | Just completed my second shot and must say I can walk without pain and stiffness. It really works. Expensive - yes. Long term side effects: only been out 8 years. That is the scary unknown part of this "miracle" shot. Ask me after 10 years on it... | M | 35 | 14 days | 1/16/2008 |