BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 2  osteopenia - start of osteoporosis Diarrhea, major aches in bones (legs, hips, back) and major joint pain, major flu like symptoms and ached all over for several days, felt horrible. I am a vitamin person but decided to listen to the doctor about this medication. I took it following directions very closely (no sitting 1 hour after, drinking plenty of water, etc.). I felt horrible. My bones and joints ached so bad, it was hard to move around and I even cried at times because it was so debilitating. I am not the type of person to buckle with pain so this is tremendous that a medication can do this to me. After the first month, I tried again and the same thing happened. I am not on Boniva any longer. I am taking calcium vitamins 3x a day and counting on that and excercise as the right remedy which is proven to work and be safe. Our bodies don't absorb calcium correctly and that is why we have this problem to start. Correcting the problem with proper nutrition does not hurt your other organs or cause the tremendous side effects associated with this drug and so many others. Once again vitamins and nutrition win; may not be the easy way out but it works. Many p F 42 60 days
11/20/2006
 1  prevention of osteoporosis Left shoulder pain. Neck pain. Pain in right hip and thigh. Lower back pain. Sluggish feeling. Stiffness in fingers, lower back. Knee pain. Definitely bloated through the mid-section. At first I did not associate all of these aches and pains with Boniva. I have been having some sciatica problems and just thought that the hip and leg aches were associated with tight muscles, however no amount of stretching is helping, pt didn't help and the chiropractor has been only midly helpful. I didn't understand the neck, hand and arm pains, but after going to this site, I'm finished with this drug. I did call my doctor about the shoulder and neck pain and told her I didn't want to take Boniva any longer. This was three months ago. She is insistent, but I've never even had a bone density scan. I walk, swim and do free weights. Those things along with extra calcium with D will be my regimen. I just hope all of these other symptoms go away after I discontinue use of Boniva. I didn't know that any of these other symptoms were associated with this drug. I'm very grateful to have happened upon this website. F 57 7 months
11/20/2006
 1  osteopenia Several days after taking my first dose of Boniva I had flu like symtoms (sluggish & skin sensitive to the touch) and started getting severe pain in many joints and muscles. The pain moved throughout the body, but especially in the neck, knees, hands and hips. It would hurt in different areas at different times. My finger joints and right knee were so swollen I could not close my hand or bend my knee. The base of my neck hurt so badly I could hardly turn it. Depression and Fatigue were incapacitating. 30 days after taking my first dose of Boniva I had a spinal cord "event". I got up one morning and could barely walk. I entered the hospital thru the Emergency Room with tingly and numb legs (felt like they were asleep). They were very painful. After five days of tests (MRI's, CAT Scans, Spinal Tap, Heart Ultrasound, EMT's), they finally found a swelling and "hot spot" where the blood flow had been stopped in the Conus Medullaris section (lowest tip) of my spinal cord. I spent 15 more days in the hospital and rehab. I am still taking Physical Therapy and the tingling and numbness in my legs and groin area are still very serious and uncomfortable. Prognosis is near complete recovery in 6-12 months! 6 doctors do not know what caused this (I do not have high blood pressure, my cholesterol is near perfect, and my platletts are not sticky. My Neurologist is still looking for a cause. Before Boniva and the spinal cord event I was cheerful, had unending energy, wa F 71 1 times
11/18/2006
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 1  juvenile osteopenia My daughter has been extremely sick from this drug. I would NOT advise another parent to consent to treatment for their children with this very scary drug!!!!! F 18 1 days
11/16/2006
 1  My osteoporosis was very bad The first twelve hrs. I felt a little nauseous. Next day had chills and sweats with flu like symtoms. Next day pains in the muscles in my back, neck and shoulders. Pain in feet and was bloated and had swealing in fingers. Was very fatigued with head ache. Feel like I am 100 and can't get up and down as well. My doctoe talked me into taking this pill saying that my t-score was -4.5 and likely to break a bone. and I was reluctant to take it. I will not take another one but will continue the calcium with vit. D. I can see that others on this site did not get better after taking the 2nd pill only worse. I will take my chance of not breaking a bone . I do exercise and dance a lot and will keep active. It is not a pill I would recomend to any one ! I have taken only one........That was enough! F 64 5 days
11/15/2006
 2  Osteopenia Stomach bloating and cramps, insomnia, sharp pains in joints, fatigue, chills with flu like symptoms I took my first Boniva 11-6-06, started experiencing cramps and flu like sysmptoms tuesday night the 7th. I felt horrible and could not sleep. Today is Friday the 10th and I am still experiencing the stomach problems. I WILL NOT take another Boniva.... F 51 1 times
11/10/2006
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 1  osteopenia First month I had some nausea which was bearable,also felt very fatiqued at times and experienced heavy sweats. Toward the end of the first month I started having severe pains in my left ribs front and back which cut my breath off. Right after taking the second dose I awoke one morning with such severe pain in my left arm and shoulder I could not use it. Still having the pain in my ribs, I was pretty useless. After a day or so this felt better but I started itching on the same arm an shoulder. Found a large red area on my left arm and shoulder with rash that was very uncomfortable. This lasted a week or more. I did not take the third dose and am improving though I still have pain in my ribs when I cough. Noticed bloating and tightness in my clothing. I am trying to decide whether to try it again. Since I had breast cancer in my left breast and radiation in 2005 I wonder if that had anything to do with most all of my pain and reaction being in my left arm and shoulder. F 76 2 months
11/7/2006
 1  osteoporosis i woke up the morning after taking boniva with severe chills, fever, horrible pains in my bones that i could barely get out of bed! i was so nauseous and the spasms in my stomach were something i have never experienced. i thought it was a bug and missed work (very rare for me!) as the day progressed I felt worse, i had to stay in bed the whole weekend! my husband then found this page and then figured it has to be the boniva. it was my first dosage and my last! If it means feeling sick all the time and missing out on life, then i would rather risk my osteo, treat it with exericse and calcium and never take this drug again. I just keep asking myself why the doctor never mentioned how severe these side effects were. Today, again I am home from work and seeing my internist to make sure this is what is causing my sick feeling. Now i worry did i do some permanent damage to myself? It is kind of scary to think that doctors don't even know what the hell they are prescribing to us, the innocents........... i hope all on this board feel better, stay well everyone, and good luck! F 53 7 days
11/6/2006
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 2  borderline osteoporosis This was the second dose, and symptoms were worse than the first dose. Noticed symptoms 24 hours after taking. Diarhea the next morning. Followed later in morning by severe hip pain and then flu-like symptoms with aching chest and shoulders. I never have hip pain so it must be related to the dosage. I seldom take medication, so maybe I have a low tolerance. Definitely won't take it again. I feel horrible. F 57 2 months
11/2/2006
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 1  severe osteoporosis severe stomach cramps uncontrollable chills and shaking nausea headache diahrea feeling sluggish I will never take another dose of this medicine again boniva is not for me . I also took fosamax and it made me faint within 5 minutes after taking it , I was on forteo for 2 years and I hope to go back on it again F 48 3 days
11/2/2006
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 1  osteopenia After the third monthly pill my jaw hurt. It feels like it did when I got my wisdom teeth removed- really painful. Also my fibromyalgia seems worse and thus I am writing because someone else noted this also. I'm not taking any more and will consult my doctor. F 57 3 months
10/28/2006
 1  osteoporosis Day 30, the day BEFORE I was to take my 2nd dose, I broke out all over with a rash on my entire back, stomach, thighs, neck, and arms. It is so severe, that I had to see my doctor who told me to stop taking it, and put me on Prednisone and Benadyrl. I dont know when the rash is going to subside, but its still going strong. DONT USE THIS DRUG. IT IS ANOTHER DRUG THAT I SEE GOING TO COURTS EVERYWHERE! DO NOT USE IT, PLEASE! 1 times
10/27/2006
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 1  Osteopenia Within 24 hours of taking my first dose of Boniva, I experienced severe back pain and a runny nose (flu like symptoms) and a generalized feeling of "blah". It's been 5 days since I took the medicine and I still feel awful. I feel overwhelmingly sad and cry easily this week (not at all normal for me !) I WILL NOT TAKE THIS MEDICINE AGAIN F 51 1 months
10/27/2006
 1  osteopenia I felt pretty good the first 12hrs after taking my first monthly dose. I had a little stomach cramping, but nothing too terrible. BUT, after about 12 hours, I had severe bone pain and my stomach cramping increased. I felt as if I had been beaten with a baseball bat!! Most of the pain is in my legs, hips and shoulder and even my clavicles. I had to take a tylenol pm to get to sleep last night. I hurt so badly that I even cried. I was unable to get up and make my weekly tennis match this morning and I had to call in and take the day off from work. I have called my doctor and said I am not taking this drug again. I have the option of trying the once a week pill, Actonel, but I am not sure I will even try that. I just might increase my calcium and vitamin D. My T-score was not that awful. F 54 1 days
10/23/2006
 2   My Mother felt TERRIBLE while taking this Rx. My Mother passed away on 10-12-06. Now I don't know if it was this Rx that caused her massive M.I. but I can tell you that she passed all of a sudden at about 3:30P.M. on that night marish day. She had went to Walgreens to pick up her monthly dosage to takeit the next day and felt fine. She got home and ate some soup and laid down. My brother checked on her and she was talking to him. He went to the living area, came back 30 minutes later and she had passed away. What a nightmare it has been, needless to say. We are in shock.Like I said I don't know if it was this drug that caused her to die, thta is the reason I'm on the computer now, is to find side effects to this drug. I am glad I found this site, so maybe this can help someone make a decision to get off of this drug. Be leary of this or any Rx. F 79 6 months
10/22/2006
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 1  osteoporosis Approximately 1-2 weeks after taking Boniva, I started with severe dyspesia, nausea, fatigue, etc., waking me up from a deep sleep. Symptoms have continued into the 2nd month following 1 pill. I have celiac disease and the symptoms are as severe as they were before going on a gluten free diet. Doctor said it would take 1 month plus 6 weeks to get out of my system....but at the rate I'm going, it will take longer than that. Unless I eat very simple, bland foods, I have severe GI symptoms. I will never take this kind of meds again and wish I had never let my doctor talk me into it! F 65 1 months
10/21/2006
 1  osteo arthritis horrible horrible back pain,and my feet hurt so bad I can barely walk. I only took one monthly pill and these symptoms set in within 24 hours. My doctor said the ONLY side effect I might have would be acid reflux or influx. She said nothing about any of these other side effects. I could have written half of these posts about problems that others have had. Will NEVER take it again F 45 1 times
10/18/2006
 1  Osterporosis Severe pain in joints and muscles. Sore and stiffness in legs, arms, shoulders. I was to the point of using a walker to get through the house and sometimes unable to get out of bed after taking this medication. F 72 4 days
10/16/2006
 1  osteopenia severe diarrhea, extreme pain in all joints Exactly 12 hrs. after taking 1 monthly dose, I experienced severe diarrhea. Over the next hour, my joints started to hurt and I became very stiff. By bedtime, 2 hrs. later, the pain was a 20 on a scale of 1-10. I have never had such intense pain. I had to shuffle when I tried to walk. Finally, after 3 days, the pain subsided. My Dr. tells me I had an unusual reaction. After reading these postings, I think not! F 63 1 times
10/10/2006
 4  Doctor No side effects F 81 3 months
10/9/2006
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