BONIVA Reviews (IBANDRONATE SODIUM)Average Rating: 1.3 (1605 Ratings)Filter ResultsCompare BONIVA with similar:
Type: Discontinued Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 44 45 46 47 48 49 50 51 52 53 54 55 56 57 58 59 60 61 62 63 64 65 66 67 68 69 70 71 72 73 74 75 76 77 78 79 80 81 |
| RATING | REASON | SIDE EFFECTS FOR BONIVA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Osteopenia | First few months, diarrhea was common, especially the first week after once a month dose. After about 6 months, diarrhea subsided and joint/bone pain started in both hips, knees, calves. Pain changes from one site to another on a nightly basis. One night it will be in my knee, the next night in the hip, and changes from one side to the other side for about two weeks of every month. It wakes me up, and it is very hard to turn over, as it feels like pressure pain. I am sensitive to pain medication, so rely solely on Tylenol, but three Tylenol don't even phase the intense pain. I have taken Boniva for almost two years, and each time I take it, I feel like I am swallowing poison. | I have been very active, first running for about 10 years, and now walking 2-4 miles daily for the last 20 years. I had never had any pain in my legs or hips until I started Boniva. About 6 months into the medication, I consulted my GP about hip pain, which resulted in an x-ray revealing bursitis. The doctor offered me a Cortisone shot, which I refused. My symptoms don't seem as severe the first week after I take the once monthly pill, with the pains increasing for the next two weeks, and then slightly decreasing the last week, and then I start over with another dose. I asked my doctor about these symptoms about 6 months ago, and he talked me into continuing on the Boniva therapy, and wants me to stick with it for three years. After reading your website, I'm not sure I'm going to continue. My pain tolerance is extremely high, but I'm starting to get scared of permanent side effects. I take no other medications except an eye drop for Glaucoma, and have always had excellent health, otherwise. | F | 67 | 22 months | 1/20/2010 | 1 | osteopenia | I posted all the side effects I had in Nov.(SEVERE bone pain in back,hips,heels,pelvic area-sensitivity in teeth and jaw-lowered platelet count and hemoglobin) After 8 weeks of no medicine pain has somewhat gone away. My platelet count and hemoglobin count are back to normal. | I was wondering if anyone else had tested their platelet count and hemoglobin regularly as I do being a platelet donor for 5 years. This was the first time I could not donate due to lowered counts and it stayed this way the entire 7 months I was on the horrible Boniva. I will not take anymore of these drugs and now I must tell my doctor. | F | 55 | 7 months | 1/14/2010 | 1 | osteoporosis | Horrible!!!! Within 8 hours started feeling weak, nauseated and had a headache. My temperature went to 102.6!! I literally thought I would die from the intense bone pain, headache, severe nausea and teeth-chattering fever. My doctor said that he had never heard of such a reaction. Obviously, my doctor was not very well-read on the subject---he is no longer my doctor. It has been 3 years and I have not taken another medication for osteoporosis, other than Vitamin d-3 and calcium. | I think this medication should be taken off the market. Everytime I see Sally Field on tv, I wonder if she really takes it!!! | F | 54 | 1 days | 1/10/2010 | 1 | Endocrinologist: Osteoporosis | First month: Didn't notice any symptoms. Second month: Some stomach upset--especially diarrhea. Third month: First day, diarrhea. Second day, felt like a cold was coming on, diarrhea continued. Third day, increasing fatigue, diarrhea, stomach pains. Fourth day, experienced sharp pains in right armpit, fatigue. Felt "sick" all over. Fifth day, sharp pains in right forearm and wrist. Skull bone on right side felt tender. Stomach and intestinal pains, burning sensations. Sixth day, completely felt like the flu--but no sore throat, cough or congestion. Intestinal distress continued. Seventh day, began to feel better, but slight nausea and general aches. Today, day eight, feel better than yesterday, but still slight nausea and fatigue. I look anemic, feel weak. | I will not continue with Boniva. I feel like a fool for not first researching this drug. To all women who have shared their stories: Thank you. When diagnosed with osteoporosis, I was so frightened that I followed my doctor's advice and began taking this pill. Now, I, too, will begin searching for alternatives to this drug. | F | 62 | 3 months | 1/9/2010 | 1 | Boniva and Fosamax | Severe Blepharospasms or tight contractures and closure of eyelids without control of opening the eyes. Disappeared only after years of costly Botox injections and finally running out of my perscription for Boniva did it finally disappear. Also, I lost muscle control of turning my head and neck. I had severe pain in my shoulder and neck muscles.I am an RN at an intensive care hospital and could not even work. This is a very bad medication. I have taken myself off of it. Prior to that I was on Fosamax and had severe jaw and tooth pain. | We do need a class action law suit if these drug companies are not going to be proactive on their own and prevent a class action law suit. I will go to my lawyer soon because all the terms of malpractice qualify. The monetary sum could be tremendous and if they would just compensate us for our actual lost all would be well with my soul but right now I am angry, very angry. | F | 61 | 5 years | 1/7/2010 | 1 | osteopenia | Horrible hip, leg and lower back pain for months. Finally put it together when I experienced jaw pain and remembered reading that as a drug side effect. | Stopped taking it 2 months ago and started therapeutic exercises. Currently, can walk briskly again and have minimal pain when ascending stairs, getting out of the car, etc. Had trouble with Fosamax, too, which prompted the change to Boniva. When is the FDA going to wake up? | F | 60 | 8 months | 1/5/2010 | 1 | ostopenia | blowout diarrhea, all joints ached, stomach bloated, hands tingly and swollen. AThis went on for the last 7 months when I took myself off it. Especially after reading what other women had to say. | F | 62 | 7 months | 1/4/2010 | 1 | Have osteopenia , 4 broken bones | I have taken Boniva since June and side effects include pain in feet, swelling and tingling in hands and back hurts. Seems there is a weight gain which nobody has mentioned. | F | 62 | 6 months | 1/3/2010 | 1 | osteopenia | severe bone pain in my back and hips | could not lie down, sit very long or move about in my usual way -Boniva takes away your life as you know it. It has been 7 weeks since I took any Boniva and the pain is still there. Will it ever stop????? I'll never take another drug of this sort. | F | 58 | 7 months | 1/3/2010 | 1 | osteopenia | Horrible debilitating musculoskeletal pain, the worst pain I have ever experienced. Could not do anything, including getting up from the toilet. My body hurt just to touch it. I felt like I had fractures in my bones. I wanted to die. I cried from the pain. The doctor prescribed Vicoden. Didn't help much. | My doctor finally put me on 20mg of Prednisone. It did take the pain away. It took three months and I am now pain free. It was the only thing that worked. I will NEVER take Boniva again. I reported these side effects to the FDA. | F | 52 | 5 months | 12/29/2009 | 1 | The company that makes this drug should be ashamed of themselves. They don't care, they are just out to make their buck, like everyone else. | F | 55 | 0 times | 12/29/2009 | 1 | Bone loss | excrutiating pain in lower back that traveled to middle and upper back. Then traveled to neck, arms, and then chest. I could not breathe. Hospital admitted me and gave me Morphine and Adavan and even that did not take away the pain. It is 7 days today and I am still in pain. | It is poison!!! It should bet taken off the market. This was supposed to be a once a month pill. Took first pill and reacted within 12 hours. | F | 65 | | 12/27/2009 | 1 | bone loss | worst pain i have ever felt in my life within 16 hours of taking first time. 4 days later and still cant walk and the pain is so bad i cry. this is the worst pain i have ever felt and i have had two childern. dont take. | ruined my life and lost time at work. and money from losing time at work. | F | 53 | 1 days | 12/27/2009 | 1 | osteopenia | ...my platelet count has dropped from 225,000 down to 150,000 due to Boniva. | F | 55 | 7 months | 12/26/2009 | 1 | Osteopenia | I have abdominal pain on my right and sometimes lower back pain on same side of body. These are the same symptoms I had while taking Fosamax. I stopped taking Fosamax on my doctor's recommendation after a battery of tests. | I had to stop taking Fosamax because after MRI's, cat scans, bone marrow tests, and xrays, nothing was found except benign bone marrow conversion in lower spine. Eventually the pain went away on its own. I started taking monthly Boniva in March 2009 and I am having the same sympthoms as with Fosamax. I can only attribute it to Boniva. I am not doing any more cat scans, etc. I am just going to stop taking Boniva. I wish they would have found out if the Fosamax was causing the bone marrow conversion. Scarey! | F | 66 | 10 months | 12/26/2009 | 1 | osteopenia | After taking 150 mg. Boniva monthly for 7 months I developed excrutiating, incapacitating ,severe bone pain in my hip joints,lower back, and pelvic bones the day after my 7th dose. It was agony, as if my bones were on fire and someone was sticking knives in them. The pain was so intense that I could not sleep as I could not stand any pressure on my bones from the bed. Therefore, for 3 weeks I have had to doze all night in a chair with a heating pad on the painful areas. Pain pills do not help. I have to take very long hot showers in the morning to even move around. It hurts to stand, sit, or lie down in any one position for more than a few minutes at a time. It is impossible to turn over in the bed without feeling as if someone is breaking my bones apart. The skin over the painful areas also feels as if the nerve endings are raw and I cannot stand to touch the area.The pain is so severe that I have felt very nauseated and faint.Also during the 7 months of taking Boniva my platelet coun | I have always had a high tolerence to pain but this is absolutely the worst pain I have ever felt in my life!This has definitely ruined my life. This has to be a danger to the body and I will not be taking anymore of this nor any other bisphosphonate drug. I will increase my daily dose of calcium and vitamin D and hope that this will help me in my bone loss. This medicine should be taken off the market. | F | 55 | 7 months | 12/15/2009 | 4 | Osteoporosis, at doctor's direction | None. I followed direction to remain upright for at least 1 hor and drank a minimum of 8 ounces of water afterwards. Actually I consumed 16 oz. for greater dissolution to weaken the concentration in my stomach (and where ever else the stuff goes). | I've not experienced the pains or discomforts others have described. I was amazed to read so much negativity. I thought I was in the "other" medication's site declaiming Boniva! I rated it a 4 - satisfied. As for helping - healing/repairing bone? I haven't had a bone scan since, so I'm unable to report on that. Did I expect Boniva to stop pain? The answer is no, nor did I expect it to. Whenever I experience osteoarthritis pain along with joint inflammation, I take Ibuprofen. However, I haven't had an attack since taking Boniva. I can't state with any degree of authority whether this is attributable to Boniva or not. It is what it is and I accept it - part of getting old. Beats the alternative. | M | 82 | 9 months | 12/12/2009 | 1 | osteopenia | 48 years old -in menopause for 2 years now- mother has osteoporosis really bad- took first monthly boniva on nov 1st had mild stomach discomfort- figured i would take off work for a day when i take it next time.- took the Dec. 1st pilland oh my god- within a day i was in such pain went to a clinic -dr office closed- said i had a uti- no signs or symptoms of that but got the prescription filled anyway- by that evening i was doubled over in pain- thnking gall bladder- went to the hospital. after being given morphine for pain went thru blood tests- urine tests- ekg- xray of my stomach and then a cat scan of my stomach - to find out i had gastritis- er physician said not to take the boniva anymore because it can cause alot of gastrointestinal problems- i guess i am stuck with that bill now too on top of the expensive boniva pills.- took the pill exactly as directed- 1 pill full glass of water no food before it and no food or drinks after it- went to work- so i didn't lie down. this pi | F | 48 | 2 months | 12/12/2009 | 3 | osteoporosis | My first experience with taking Boniva was excruiating back and neck pain, to the point that I couldn't hardly get out of bed. This lasted for almost 2 days. When I took my Boniva for the first time, I went out and rode my horses so I decided this probably caused the reaction. I have since taken it 3 more months, doing exactly like the instructions stated. I have had a reaction every time but one. I have kept doing these treatments because after the 2 days of severe pain, I would get 28 days of feeling better than I have in years. I suffer from Autoimmune disease, such as Ra among other arthritic conditions. But this last treatment of the Boniva, the pain lasted for almost 2 weeks. Now I am not so sure it is worth it! | Has anyone else experienced the feeling of good days of little joint pain through the rest of the month following the bad joint pain at the first of taking the Boniva? | F | 58 | 4 months | 12/8/2009 | 1 | Stage II Breast Cancer | The first day I took it, I followed the directions exactly. But within three hours, I became really nauseous and thought that I would throw up all day. When I went to bed that night, I felt like I had the flu - chills and body aches. The next morning the nausea subsided, but it was replaced by stomach cramps and diarrea for the next 3 days. I'm ready to take my second monthly dose but I'm scared. My doctor thinks it could be a coincidence with the flu and said I should try it again. But I really believe it was related to Boniva. | F | 45 | 1 months | 12/8/2009 |