BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  osteopenia Severe diarrhea, extreme pain in lower back, sternum and ribs, numbness and weakness in legs. Headache, cannot eat. Feel like I have been beaten. Took my first and only dose yesterday, am home today due to pain and wondering just how long these effects are going to last. Wish I had found this website before taking. F 51 2 days
1/29/2007
 1  osteopenia Within a few hours the ball of my left foot was so sore I could not walk on it and my stomach felt distended, in the middle of the night-extreme nausea. Next day-shoulders, arms and back extremely achy. Later that day-headache and fever. The back pain continued, then right shoulder pain intensified. Also extreme fatigue. But the biggest issue now, 3 months since my ONLY dose, I have had a continuing problem with guttate psoriasis (acute incidence of tiny "spots" of psoriasis) over my entire body. I am now undergoing UVB therapy to try to clear it up. If anyone knows the half-life of this drug, please post the info. Also, if anyone else has had the reddish scaly rash as a result of Boniva, please post. Thanks. btw, I am very healthy, active, teach yoga 4 days a week, a pesca-vegetarian, eat organic, monthly acupuncture, etc. I resisted taking any of the bone density meds since I have GERD. Surprisingly, that was the one thing that did not bother me much on the Boniva. F 57 1 months
1/22/2007
 4  borderline osteoporosis I have been on boniva for 16 mths, have not had a bone scan since beginning drug. I take the pill about 5:30 am, walk for 1 hr, no side effects to really mention, other than the 1st day is always a little headache but goes away. I find that walking right after taking Boniva will help the drug get into the intestine quicker without feeling nausea, or upper digestive disorders. I will be re-checked in another few mths to see my status. Walking, weight training is also a PLUS to strengthen any person's bones. Sometimes I do feel some bone pain about my neck and shoulders but only when I have failed to go the gym on a regular program. It's also so convenient to only take this pill once a month and I will say I am not a pill taker, but this one is a must.... F 58 16 months
1/13/2007
 1  osteoporosis After taking 3 monthly doses of Boniva, I have aching lower back and hips, and leg aches and weakness. I had switched from Fosamax, which made me nauseous after full glass of water on an empty stomach. I can not sit for very long and have trouble going up and down stairs. I suddenly feel 90 years old! I saw my PCP this week and she recommended PT first, and I just went to PT today. She didn't find any misalignment. I will do exercises she prescribed, but after reading this web site, I will not take another Boniva as I feel there's no other reason for my pain. Why aren't patients given all the facts? After reading about the small advantage for taking this versus the side effects, I would have stuck with calcium and vitamin D. I hope this pain will start to subside and not last long. Do doctors report to FDA or manufacturer every time a patient has side effects? I used to work in a physician's office, and I never saw any such reporting. F 59 5 times
1/12/2007
 1  osteopenia tightness in chest, pain radiating from jaw, swelling on left side if face and tongue, hives if you experience a problem, it persists for many months. I had symptoms for up to 4 months after taking the drug. F 55 1 times
1/10/2007
 1  7% reduction of bone in hip Took one dose and began to feel flu-like symptoms a few days later. I also started having a dry cough and then terrible tigtness in my chest. I had burning in my throat and tingling numbness in my mouth and gums. My entire family including myself are in the dental field and I was well aware of the research and problems the drug companies are having with these drugs regarding the jaw and failure of dental implants and extractions. My doctor assured me that I was seeing a skewered portion of the population. After two weeks of thinking I had pneumonia, I saw my internist who immediately told me not to take the next dose of Boniva and to start on prilosec. She determined that I had severe reflux from the Boniva. I have contacted the physician who prescribed the Boniva to update him, but he seems to think this may just be a coincidence and that I developed reflux at the same time I started the Boniva. I will not go back on this drug. Reflux is miserable to live with and I although th I will not take this drug again. F 60 1 days
1/9/2007
 1  Bone Loss Lower back pain, Hip pain, Shoulders ache, Wrists hurt, Joint pain, Fluid Retention. I WISH I HAD FOUND THIS SITE BEFORE TAKING MY 3RD DOSE OF BONIVA !!!! I started on Fosamax and Actenol which gave me terrible nausea and diarrhea 2 yrs ago. I refused to take them. My gynecologist told me in September that I HAVE to start a bone supplement after my 2nd bone density test. She recommended Boniva because it was just once a month. At first I thought my aches & pains were just age related. I even saw my PCP who put me on prednisone for 8 days thinking it was a pinched nerve causing my pain. All my aches and pains started within a week after taking my first dose. I started to think my problems were caused by the Boniva after my 2nd dose. I pulled up patient info from the manufacturer which did list the problems I am having minus the fluid retention. I started to search further for side effects and came across this site. The longer I have taken the Boniva the more I hurt. I am not one to take pain meds but I am almost to that point. I WILL NOT TAKE ANOTHER ONE!!! I ho F 53 3 days
1/8/2007
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 1  severe osteoporosis it has been since Oct 31 when I first took this medicine and have put a previous post to the side effects that occured not long after taking. I am still not right as of today . I sometimes get so fatigued I can barely lift my arms and my legs won't even move and I have to spend the day in bed. I still am having mouth pain teeth and jaw. We should have all called poison control after taking this. I would rather have drank drain cleaner might not have been so bad. Hope more people read this before they take . Wouldn't give this to my worst enemy F 48 1 days
1/2/2007
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 1  Minor calcium absorbtion deficiency Within 2 day experienced naussea, diahreah, stomach cramping, flu-like shivers, mild heart-burn. Then 1 day of relief before my sternum tightened and chest pains/ribs began to ache. By day 5 I felt like I was hit by a train. Deep joint and bone/muscle pain roving from ribs to shoulders to back and finally really hitting my left shoulder at day 10. Had to be on a combo of Tramadol and Hydrocod just to endure 45 days straight of time-released evil on my body. I started cutting my pain meditation in half last week to see if it was ok. I had evidence of a minor bone density deficiency following a broken leg while ice skating. My doctor tested for a variety of treatment options and recommended BONIVA for its once a month convenience. It has now been 55 days since I took the one and only monthly pill, and this is my first full day without any pain meds just to see what's really going on. My left shoulder still has a deep ache (I find it interesting how many others specifically define their left shoulder, and not their right), and the right side of my spine just above my waist is still aching. My arms and hands are now back to normal I think. My neck, shoulders and knees are still a bit cranky, but it seems to have finally let up. I still have a deep ache in my groin region that is difficult to discern between organs or pelvic bones/joints. I will NEVER take this med, or any thing like it again. I'm really mad that there was no real warning that I MIGHT be alergic to some BONIVA compounds, and it would have been M 58 1 days
12/30/2006
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 1  Osteoporous After the first month of taking Boniva, I had hip pain. Took it for 10 months, 150 MG , once a month. Each month more pains, cramps, leg aches, numbness,neck and shoulder problems and headaches. I stopped in Dec. Still experiencing terrible days and down time more than up It has been a terrible experience and never will I take it again. I was very active and now I want to do nothing, I ache so bad. All over too. Thought I had fibromyalgia but finally pin-pointed all my aches to Boniva. I am still a very sick person from this drug. Aches, pains, stiffness, neck, joints,feet burn, legs numb and ache. Hip bones hurt, Headaches. backaches, The only problem I have not experienced in my body is the throat and esophagus. No prob there but the rest of my body is killing me. I contribute it all to Boniva. For sure. I am living with pains each day now. when oh when will it stop? F 80 10 months
12/29/2006
 1  osteopenia After taking my first dose the very next day I ran a fever and was so sick I could hardly get out of bed. Called my doctor and she said probably a virus, not the Boniva. I have taken 5 doses and since then have had bronchitus twice, aches & pains, insomnia & a sever attack of IBS. My stomach was cramping so bad that every time I took a bite of food I would cramp up. I am now on Nexium for reflux and when I lay down at night I hear gurgling in my throat. After reading all the comments I realize that I have not been well since I started taking Boniva. I am going to discontinue it and discuss other options other than taking drugs. Hopefully I will be able to eliminate the Nexium as well. F 58 5 months
12/28/2006
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 1  Osteoporosis Took Boniva Friday morning. That evening my right elbow began to ache badly. By Sat. morning my entire right upper arm and shoulder was extremely painful, I could not lift my arm without pain. My right hand was COLD. I went to the ER Sun. a.m. thinking I had torn my rotator cuff. 10 out of 10 pain. I finally put 2 & 2 together Sun eve when I found this page and also discovered a rash on the right side of my chest. Ruined my Christmas, couldn't lift my cat or use my right hand to even feed myself. THIS STUFF IS POISON. I took charcoal and drank LOTS of water & tea to rid my system of this drug. I WOULD NOT RECOMMEND IT TO ANYONE AND TELL EVERYONE I KNOW ABOUT IT'S DANGERS. DO NOT TAKE THIS DRUG FOR ANYTHING. THE PAIN I EXPERIENCED WAS EXTREME AND TOTALLY FROM THIS DRUG. MY SYMPTOMS ARE DECREASING NOW 3 DAYS AFTER TAKEN ONE DOSE OF Boniva. F 50 1 days
12/26/2006
 1  osteopenia Three (3) days after taking Boniva (Nov 22, 2005) I began having severe pains in my right hip, as well as my lower leg bone. A month later, I attempted one more dose and the pain only increased in severity. It is now more than a year later and the pain has only gotten worse. Does anyone know the half life of Boniva? Roche indicates that very few patients have these problems and, those who do,return to normal once Boniva is discontinued. F 63 2 months
12/26/2006
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 1  Osteopenia Took first dose of Boniva 7/23/06, a Sunday. Felt a little off Monday. Tuesday felt like sharp cramps rolling from my stomach down through the intestinal region and back up again. Went home from work, missed rest of week because of unremitting pain, severe exhaustion. No appetite. Most could eat for three days was a couple graham crackers. Went to work Monday. Felt so bad Tuesday had a co-worker take me to doctor. Felt like most of the major systems of my body including heart and head were trying to short circuit. Severe pain in right hip. Urine sample and hip x-ray were normal. Dragged into work Wednesday and Thursday. Felt so bad Friday at noon I went to ER. Spent five hours there while they analyzed blood samples for everything, including auto immune diseases.I was afraid I was having a heart attack or stroke.EKG was normal. ER doctor aid to try increasing B-12 because of the numbness, tingling and weakness in my arms and legs. My dr. referred me to a neurologist. Had 2 MRi I can't reccommend it, nor Fosamax or Actonel. Used to walk 18 blocks on my lunch hour. If I can get my strength back, I will try this again. Am trying more natural vitamins and calcium formula. Hope to stave off full-blown osteoporosis naturally. Always been told I look 20 to 30 years younger than I am, but now feel 30 years older.Just bought a condo instead of little house in the country I wanted, because of my deteriorating health. Am putting the pieces of this puzzle together. Have fibromyalgia and forlast two years plus, I thought it was getting worse. I was practically an invalid. No strength, no energy, couldn't even pull the cord on lawn mower without taking nap to recover. This coincides with the time I began taking Fosamax and has gotten worse over last two years.Still having recurring episodes of "Boniva attack", but they are milder and more infrequent the farther out from the initial dose. I have no life since taking these drugs. Sometimes it feels like my chest F 60 1 months
12/21/2006
 1  Osteopenia After first dose within a day or so had severe, deep hip joint and spinal pain. Flu like symptons with nausea, vomiting on the day after first dose. Horrid acid reflux, severe abdominal pain with cramps and bloating and diarrhea. 2nd month experienced horrible chest pains that make me think I was having a heart attack. Side effects usually start within a day of taking the medication and last for about 2-1/2 - 3 weeks. Just in time to take the next dose. Then it all starts again. I was on Fosamax for 3 years after breaking a vertebrae and being diagnosed with osteopenia. Had to quit taking Foxamax because of acid reflux and doctor prescribed Boniva. I did have some hip pain while on Fosamax and was diagnosed with bursitis, but wonder if the Fosamax attributed to the pain I was feeling. I've only taken 4 months worth and wish I had never heard of this medicine. The joint pain has been unbelievable and there are days that I'm unable to bend down, sit, stand or find a comfortable position in a reclining position. Between the pain and the miserable feeling of nausea, bloating and the diarrhea there is absolutely nothing to recommend this drug. I'll never take Boniva or Fosamax or anything similar again. F 55 4 months
12/19/2006
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 5  mild osteoporosis taking monthly boniva. no side effects. take with 8 oz. water before, then 8 oz after, to offset any GI effects. was on Fosamax, then began Tamoxifen and the two together gave me joint and muscle pain. since quitting Fosamax, joint and muscle pain have gone away. After quittinig Fosamax, which combined with Tamoxifen gave me a lot of joint and muscle pain, and starting monthly Boniva, the muscle and joint pain went away in about a month. I have no GI symptoms and a small amt. of right hip stiffness and pain which I've had for several years. If you have to take something for osteoporosis or osteopenia, would recommend monthly Boniva. Can still play golf, garden and take care of the house. Very little physical restriction. F 68 9 months
12/18/2006
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 1  ostoporosis After the second month, I had sever pain in my arms and thighs. The pain in my left arm was so severe, I cried. I've been off of it for a month, and just when I think the pain is gone, back it comes for at least a day. I'm an active, vital person. I work, I exercise...normally, I'm a whirlwind. I am going on increased calcium with magnesium and zinc - which is what I was advised to do. I'm also going to up my weight bearing exercises. Don't take this medicine! F 62 3 days
12/17/2006
 1  have osteopenia severe pain in joints, loss of appetite,becoming anemic, neck pain, movement difficult, listlessness, feeling shaky was a healthy and happy person with a life that became unbearable after taking boniva for just 2 months F 77 2 months
12/11/2006
 1  osteopenia I have taken Boniva 3-months. After a period of time I noticed my hips, back, knees, legs, and arms hurting abnormally. It is painful to sit in a chair or on the floor and get up, squat, and get in and out of a car. I dread doing any of these. When I finish with this post I'll stand and hobble away like an old lady! It is unbelievable. I was so discouraged a week or so ago, because I imagined myself living out my life getting worse and worse. I never considered it could be the Boniva, but after reading your posts, I can't help but think Boniva is the reason I am living in hell. I'm supposed to take pill number 4 in the morning, but I quit. I will never take it again. These problems began after I started taking Boniva. My lower back had a previous problem, but got much worse. Like many of you, I'll increase calcium & vitamin D and try to walk more. I have a few other things going on -- terrible pain on my lower right side, cloudy and odd smelling urine, and heartburn. I am a mess! I will never take Boniva or anything like it again. In fact, I think it should be taken off the market. It appears it causes more harm than good. F 59 90 months
12/11/2006
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 1  Osteopenia I posted earlier, but put 90 months. Sheesh, I meant 90 days. I'm sure you all figured it out. F 59 90 days
12/11/2006

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