BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  for osteoporosis I had no side effects for about 2 years. Then I began having terrible pain in all my teeth with brushing. I almost could not brush my teeth it was so painful. I quit taking Boniva and, after a couple of weeks, the pain began to go away. I have not taken boniva since then and my teeth are occasionally sensitive with brushing. I will not, of course, take boniva again. F 63 2 years
11/12/2009
 1  osteoporosis I took Boniva on 11/1/09 and have had severe back,muscle pain and major headaches. It is 4 days later and I feel just as bad but I feel like I have broncitis as well. I posted before but decided to let everyone know that I called the maker of Boniva to let them know what is happening to me. They said they would like to hear from others with adverse effects. The information is sent to the FDA and if enough people call red flags will go up. The number for Smith Glaxo Kline is 1-888-825-5249. The more people that call the more people we all can help. F 63 1 days
11/6/2009
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 1  osteopenia Severe bone, joint & muscle pain. It's been 37 days since I took Boniva and I am in so much pain I can't function. I've been to the doctor twice. He prescribed Vicoden for the pain, but it doesn't help much. Two weeks later he put me on a Medril dose pack. I had about two days relief from that but then the pain came back as bad as before. He did labs. Everything came back normal except my SED rate, which means that I have inflammation. Duh! This really sucks!! I filed a report to Roche via telephone at 888-835-2555. I also submitted a report to the FDA, form 3500, 1800-322-1088 or to speak to someone from the FDA 888-463-6332. Please contact them. We need to get the word out so that others don't suffer like we have. M 52 5 months
11/6/2009
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 1  osteopenia Extreme pain in arms, hands, wrists, shoulders neck and elbows. Gradually spread to my rib cage, back, hips and feet. I went from feeling well and moving well to being nearly incapacitated within 8 hours of taking this drug. Will not take Boniva again. Scary experience! F 62 1 days
11/5/2009
 1  Osteoporosis Dizziness,nausea, severe vomiting. The first month of taking Boniva I experienced pain in my teeth, fatigue & nausea...so I tried it another month. Terribly sick, feeling dizzy, pain in teeth and the worse.....severe vomiting. I will never do this to myself again. Going the natural route. Why would a doctor even prescribe this type of medication. Oh yeah....big market!! Never concerned of what the side effects are! F 49 2 months
11/3/2009
 1  osteoporosis I took my first dose of Boniva on 11/1/09 and will never take another one. I had the chills and nothing could warm me. I thought I had the flu because I also had aches and pains and the most severe muscle pains I have ever felt. I am not a screamer but the pain was that bad. Neck and headache pain were horrible and my family was very concerned because I usually have a high tolerence to pain. I called my doctor the next day still thinking I had the flu. The nurse asked me if I started any new medications and I told her I took Boniva and she thought it could be that since I did not seem to have many flu like symtons. I also have a very salty taste in my mouth. What a terrible medicine. I would tell everyone to think long and hard before taking this medication. It was supposed to help me not cause such major pains. They must be paying Sally alot of money to take it. F 63 1 days
11/3/2009
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 1  osteopenia I first noticed a sensation of stone bruises on bottom of feet and a burning elbow. Later I have had shoulder pain falsely diagnosed as full tear in the rotator cuff. Recently, burning sensation in an old rib fracture and hip pain. My feet gradually improved after stopping taking Boniva. I used a strong Wahl vibrator on my elbow. It hurt like hell, but seemed to knock off crystalized deposits. The pain left my elbow but radiated slowly away. Then it hit my shoulder. But, that also came right after having a flu shot where I think the idiot hit the bone. I have experienced a lot of relief using magnets, including an 85% improvement in the shoulder, after canceling rotator cuff surgery! I did very little exercise therapy. The fractured rib and hip are fairly new developments. When will it end? It has been one year and 11 months since I took this poison. My life is not ruined, but diminished. I feel very sorry for the many serious victims on this forum. F 58 2 months
11/3/2009
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 1  osteopenia Within 24 hours after my first dose I was in the ER with back spasms so bad I could not move. I spent 4 days (and $25,000+) in the hospital while they ruled out heart and stomach problems. Doctors finally agreed that it was a reaction to the Boniva. Of course, I had told them when I arrived that I thought it was caused by the Boniva. Not sure what will happen now but my doctor wants to wait several months to make sure that the ONE pill has completely been flushed from my body. Currently am just going to physical therapy 2 times a week for lower back and core strengthening. 62 1 days
11/2/2009
 1  osteopenia I am experiencing severe aching in my bones and jaw, feeling terribly tired and achy within 24 hours of taking (followed directions exactly) my first monthly dose. I will seek another option for my condition. I have a family history of osteoporosis, and I was led to believe this was a reasonable solution. Reading these comments is very scary. F 62 1 months
11/1/2009
 1  osteopenia Strange bruising: sudden dark red bruising on the back of both legs after leaning on a fence, very tender, causing my doctor to recommend ultra sound to rule out a blood clot. Nothing was found. Then 2 weeks later, I see a small similarly dark red and sore red bruise in the joint of my little finger, once again with no cause. I've also had acid reflux when I lay down to watch TV. I'm stopping Boniva and will see if the bruising and acid reflux goes away. F 59 1 years
10/29/2009
 3  osteopenia I started Boniva 2 1/2 years ago. I was told to take a Pepcid AC the night before, then the next morning take the Boniva wait one hour and take another Pepcid AC and then eat breakfast. I have eperienced very little and most of the time no stomach discomofort. Once on the Boniva I began to experience leg pain in my calves and thighs with difficulty walking at times. This has continued the 2 years I have been on the Boniva. I called my OBGYN physician who prescribed the drug and was told my symptoms were not coming from the Boniva. I went to my primary care physician and he performed a physical and did blood work, everything came back normal. He did prescribe a medication for arthritis but it did not help. I contiuned to take the Boniva and the leg and knee pain continued. Last year I went to an orthopedic doctor and was diagnosed with bursitis in my knees. Very painful. I was sent to therapy for several months in which it did help some yet the symptoms still remained. I continued doing I am upset that my OBGYN doctor told me that my leg pain would not be coming from the Boniva. Being off of it for the 4 months I have been able to tell a big difference. Nothing else in my life has changed as far as taking other medications. F 57 2 years
10/27/2009
 1  Osteopenia Severe muscle and bone pain in 90% of joints. Sleep impossible with leg cramps & stiffness (painful to chg position). Stiffness after short periods of inactivity. Difficulty doing simple tasks (dressing, getting out of bed, stooping or bending) Initally diagnosed with Rheumatoid Arthritis, Fybromyalgia and Osteoarthritis & Bursitus. Expensive bloodwork & Dr. visits to specialists ruled out RA & Fybromyalgia. Symptoms have improved somewhat after 6 weeks but continue to require scripts for muscle relaxers & pain meds. My life for the last months has changed dramatically. I feel 80 yrs. old. Hope it will eventually change. I want to feel normal again!!!! I will never take this pill again!!!! F 57 2 months
10/22/2009
 1  osteopenia Pretty much about the same as all of you but mostly daily mid-back pain, daily doses of vicodin, side effects from vicodin, nausea, weight loss and more now than I can even remember. Over two years I had bone scans, four CAT scans and four MRI's, chiropractic treatment, acupuncture and saw every specialist who might remotely know how to stop the pain. Two trips even to Cedars-Sinai in LA but nobody could find anything that would be causing the pain so nobody had any idea of how to get rid of it except for vicodin relief. BUT it turns out that Boniva might not have been the complete culprit. Although all the experts "gave up", I couldn't. After continuing reading, researching and talking to other people I saw where mid back pain is a frequent symptom of gall bladder problems. So had my family doctor send me for a sonogram of my gall bladder. Sure enough, the bladder was in bad shape. Stones, cysts and "junk". Made an immediate appointment to have it taken out and my back pain was immediately gone. The sonagram is quick, easy, relatively cheap and should be everyone's first step in trying to find the cause for much of the problems documented here. Get it done. You don't have to be in your 70's to have gall bladder problems and not know it because you don't have some of the more classic symptoms. Research "gall bladder symptoms". I have talked with people as young as 37 who had the same experience. It's a quick, easy way to start the process of elimination and may save you years of pain and drug addiction. The vicodin withdrawal was longer and more painful than the gall bladder surgery. I did it "cold turkey". M 73 7 months
10/22/2009
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 1  To prevent osteoporosis Horrendous experience. Took Boniva on 9/07/09. Less than 24 hours after taking Boniva I could not walk, severe pains in head,chest,arms,legs, stomach.... Including nausea, gastric pain. Was taken by ambulance to emergency hospital where it was diagnosed as a reaction to Boniva. Neck still painful when I turn my head. This is worse than kidney stones and childbirth combined. DO NOT TAKE. This medication should be banned. I was a healthy, professional woman who was active and usually healthy. I became totally debilitated and bed ridden for weeks after taking ONE Boniva pill. Horrible gastric pains, headache,complete body aches including back, arms, hips, legs. Nauseated. Unable to get out of bed. Even my hands ached. Unable to move neck for days. My neck is still stiff and hurts when I turn it. This medication should be pulled off the market and a class action suit should be filed against the drug company. Imagine .. if it takes 30 to 60 days to recover from this time released pill-- what will happen to the women who are considering the new 1 yr shot of this poison? Sally Fields should also be ashamed for pitching this dangerous drug. F 79 1 times
10/21/2009
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 1  osteoporosis Jaw and tooth pain. Lower right and lower left. ALso developed tendonitis in both arms. Very painful. I am extremely worried about what this drug has done to my teeth and jaw bones. I am living with the constant pain. I have been to the dentist numerous times and they do no know what is wrong, but I do after reading these comments. F 57 3 years
10/21/2009
 1  osteoporosis My wife began to take this product 4 months ago. She has exhibited some of the side effects mentioned on this web site. Such as, joint pain and muscle pain, pain in her extremeties, hard to walk up the steps or go up curb, pain in legs and hips and hard to sleep at night, hard to turn over at night, sore calf muscles like a shin splint, for no reason. Her back constantly goes out and she is unable to recover, her back would go out occasionally and she would recover. Since she started this product it has become progressively worse, to the point she is unable to recover. Talked to a nurse today who said she had problems with this type of drug, and now it fianlly makes sense to me. It is the Boniva. I told my wife, you are off this product immediately. I forbid you to use it. I said if you use it I will divorce you, of course I won't, but that is how strong I feel about it. M 46 4 months
10/21/2009
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 1  osteoporosis Swelling & numbness in both legs from my feet to my calves, have had double mastectomy within an hour of receiving injection the breast scar felt a terrible burning, 2 weeks later still burning, feel achey all over, heart feels like skipping a beat or racing....feel like heart will stop. Was told is can suppress your immune system, if you're a cancer survivor you don't want this drug. F 58 1 times
10/16/2009
 1  osteopenia I have horrible bone pain and joint pain. I can hardly walk. Even my skin hurts to touch. After I sit for awhile, I have trouble standing. I have pain in my feet, calves, thighs, rib cage, back, shoulders, neck, hands, fingers, arms, elbows, sides of face. Before taking Boniva, I was in good health. I will NEVER take this again. I am depressed that I can't do anything. It's really affected the quality of my life. I wish I had found this website before now. I plan on getting in touch with the drug company and the FDA. This pill does more harm than good! It should be taken off the market. I WANT MY LIFE BACK!! F 52 5 months
10/15/2009
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 1   My doctor recommended fosamax, but decided to go on my own and am glad I did. I take womens vitamins, extra calcium, fish oil (omega-3, cod-liver oil), I take herbs (horsetail herb tea is great for building bones), Oscal and Caltrate is good, and exercise, especially weight strengthing. Natural is good, and no side effects. F 55 0 days
10/13/2009
 1  Osteoporosis I actually never took the drug because I had done a great deal of reading before it was prescribed and decided that osteo drugs were not for me, particularly the bisphosphonates. I was lucky enough to find this site a couple of years ago. I would like to invite you all to join the forum over at www.inspire.com. There's a link to the National Osteoporosis Foundation. You will find lots of info about treating osteoporosis without drugs....and with drugs. I refused this medication, was sent to an endocrinologist who placed me on megadose of vitamin D for 4 months to raise my D levels. My bones began to remodel themselves. Still in the osteo range but tremendous improvement. 2008 dexa scores were -4.14 in hips and -3.56 in spine. After supplementation, 2009 dexa scores were -3.0 in both hips and spine. Please join us. F 62 0 days
10/9/2009

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