BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Osteopenic Started Actonel June 2008 per Dr advice . Because of headaches and nausea it gave me, he switched me to Boniva . Continued with Boniva till now. My last dose was May 1 2009 and will be my last after finding out about this site.. Wish I had known about this site. I have developed stiff neck and shoulders for last 9 months and tried half a dozen different pillows but could be Boniva ? I didnt experience the flu symptoms everyone talks about but my knee joints have gotten so bad I have a difficult time getting up out of a chair or floor in the last 9 months or so. I can no longer exercise and since I started taking Actonel/Boniva have gained 55 lbs plus. I am only 5'2" and now weight 185 and so depressed. Could Boniva be causing this ? I dont eat that much and have never weighed so much in my life . I have tried every diet , Alli, but cant even loose 1 lb. I just keep gaining . could Boniva be causing this?? I had slight stiffness in joints prior to this but notice it has gotten I am so upset to think that Boniva has caused my leg joints to become as bad as they are. I thought it was because of my weight gain . Makes me mad to think that it may have also caused me to gain 55 plus pounds in 12 months ! F 61 12 months
5/9/2009
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 1  Osteoporosis I'm not sure these are related to Boniva or not. But, my blood protein, since I have been taking Boniva, has increased. Not drastically but in the last 2 years it has increased by 1.2. I have also noticed a heaviness in my jaw and some swelling in my cheeks. I have stopped taking it and will probably never take it again. F 57 2 years
5/8/2009
 1  diagnosed with osteoporosis After the 2nd dose I experienced severe heartburn and a cough which just wouldn't stop. The cough was caused by acid reflux which had burned and scarred my esophagus and I was put on mega doses of medication to counteract the condition. Nine months later I am still on the medication and if I miss a dose, I'm back with the acid reflux. Following my last dose of Boniva I've had extreme pain in my jaw which began during the night and was excruciating. The severity has lessened but both side of my jaw ache constantly and I have an appointment to find out if this is osteonecrosis or just TMJ. Anyone who has Boniva prescribed should read about the side effects before they take it and decide whether they want to risk taking it. F 78 11 months
5/5/2009
 1  3.5% bone loss in 1 year (spine) Within 2 hours of taking my first dose the end of April I got terrible indigestion, I took the pill as directed, lots of water and don't lie down. That afternoon I started with loose stool and the next day stabbing pain in my back, terrible bloating and weight gain in a matter of days along with swollen inside of ear. I wear hearing aids & thought I was trying to put the opposite aid in, this has continued as well as the bloat and gurgling stomach. I will not be taking this ever again! F 46 8 days
5/5/2009
 1  osteopenia Diarrhea lasting 12-14 hours. Pain in shoulder. The first dose caused explosive diarrhea for 5 hours and flu-like symptoms that kept me in be all day. Took a second dose one month later and have unstoppable diahrrea although no flu-like symptoms. Have decided to call my doctor and ask to try another medication. F 59 2 months
5/4/2009
 1  osteopenia Within hours of my first dose my hips and knees felt as if they were going to break. The second day not better. The second night woke up with fever and hurting all over. The severe stomach pain began on the third day and I feel like some one is stabbing me with a knife. Bowel problems and gas. Bloating and fatigue. I also wished I had visited this website last week. I also wonder how long these symptoms will last and if I will experience any different ones before the drug is out of my system. Will not take another dose. F 53 1 days
5/4/2009
 1  Osteopenia I was recently diagnosed as having Osteopenia. My doctor suggested that I try Boniva to help prevent it from progressing to Osteoporosis. I took my first monthly dose on 4/30/2009. Within 14 hours of taking it I experienced excruciating muscle and bone pain, mainly in the back and chest. This has now continued without relief for 3 days with no signs yet that it is diminishing. If I remain reasonably still and don't attempt to move, I am relatively (although not totally) pain free, but any attempt at simple movement results in severe pain. I am hoping that it will quickly get out of my system and the pain will subside so that I can get back to a normal life again. This was my first and last dose of Boniva. This pain has been so unbeleivably severe and incapacitating that I would NEVER consider taking another dose of this medication. I truly wish that I had discovered this web site and read the comments before I took Boniva. If I had read the comments in advance, I would have n F 62 3 days
5/3/2009
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 1   all listed on the insert - gi, headache, nausea, back muscle pain, flu- like F 67
5/2/2009
 2  Osteopenia After my first pill I had severe chest pain and like a burning feeling for a couple of days. It's been a month since I had the pill and I still have the chest discomfort. Also flu-like symptoms. I was about to take my second pill today but after reading all the comments I will discontinue. F 47 1 months
5/1/2009
 1  Not taking - I'm answering a ques. To the 57 year old F who asked about alternatives - please look into the basics: Calcium (not megadoses - 300 or so mg/day), Vit. D, Magnesium (often forgotten), Vit. K, natural progesterone cream, and weight bearing exercises. Read Dr. John Lee's What Your Doctor May Not Tell You About Menopause at your library or on Amazon for a thorough explanation, data to support his recommendations, and great practical advice. Also check out www.weightvest4osteoporosis.com for an easy way to work weightbearing exercise into your day. Here's my bottom line. NO treatment should be worse than the disease. Whatever happened to "First, do no harm?" The bisphosphonates actually set you up for long term fracture since they prevent osteoclast activity. Osteoclasts eat away at old bone so osteoblasts can come along and make new bone. You make new bone your whole life through this 2 step process. If you prevent the osteoclasts from doing their job by taking these so-called bone building drugs, then you will keep that old bone, making your numbers look better for a while, but the bone that stays is old bone that becomes brittle over time, setting you up for a serious fracture down the road. It blows my mind that the drug co's get away with peddling these drugs that not only cause all these horrible side effects, but they actually DO NOT WORK for their intended purpose over the long haul, which is what matters. I told my mother do NOT take any of these drugs, and I won't either. F 47 0 days
4/29/2009
 1  poor bone density scan My first does was on 1/1/09. Had mild gas/stomach cramping the first month but believed it would go away. Took my second dose. I will NOT be taking a third. My symptoms include: stomach cramps, toe cramps,numbness in fingers, head ache, gas, bloated stomach, heart racing, achy pelvic area, chest soreness to the point I feel as if I have broken ribs! My stomach makes constant gurgling noises that just won't quit. I was a healthy woman until I began taking this drug. I firmly believe that this drug is dangerous and should be taken off the market. I read a few comments stating that Boniva stays in your system for 5 years! I pray that this is not true! F 52 2 months
4/29/2009
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 1  Osteoporosis After my bone scan, my doctor said my spine was -2.9 and hips -1.3. Put me on Boniva. I took my first pill Tuesday 4/21/09, followed the instructions to the letter, even drank about 3 times the water since I suffer from acid reflux. That day all was good. On Wednesday about 2Pm I started hurting in my entire body, by 4:30 I had to leave work, took 2 ibuprofen thinking that would help. I could hardly make it to the car and drive home. Hurt all night and could barely get out of bed the next day. During this time I ate Ibuprofen with very little relief. I am 57 yrs old have never experienced pain this bad, ever. By Saturday the pain had eased quite a bit but I still hurt more that usual. No word back from doctor yet but the pharmacist told me one of the side affects was incapacitaing bone pain (DUH) and this stuff can stay in your system OVER A YEAR! So there is no way to get it out. I called my doctor again today and left a message that I needed to talk about this and that I wo If any one knows of a good site for alternative treatment (and I don't mean any more medication). I'm looking for a more natural way to strengthen my bones. I would recommend that this stuff be taken off the market and if anyone reading this is about to start this stuff, JUST DON'T. F 57 7 days
4/28/2009
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 1  osteopenia Low back pain, bilateral flank pain, knife-like pain between shoulder blades, chest soreness, swollen hands and stiff fingers upon awakening, difficulty getting out of bed or chair due to aches and pains, and general malaise, all severe enough to require prescription pain medication. I took the once monthly pill six days ago. I had a similar problem with Actonel, just not as severe. This has really devastated my quality of life. I can be up and around for an hour or so, then back to bed, sore and exhausted. I pray this will eventually wear off and I can feel better again. If my condition is permanent, then I am really angry. I wish I had known more about it. None of my symptoms were listed in the "possible side effects". Flu- like symptoms, my ass. This was my first and LAST dose of Boniva. F 63 6 days
4/27/2009
 1  Osteoporosis and I am on Prednisone Extreme flu like symptoms, Developed High blood pressure and only enough energy to stay out of bed 4 hours a day, bruising spots all over body. I have had to cancel all my outings and trips. I am so dissatisfied and only hope that in a few months I will feel better if it gets out of my system. I took the 3 month injection F 64 6 weeks
4/23/2009
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 3  Osteoporosis only in my forearms Over the last several months, I've developed a dry cough--I believe it's related to boniva from some other reading I've done. I've had severe leg cramps (charley horses painful enough to almost call 911); however, as long as I consume about 8 oz. of diet tonic water with quinine, I don't get the cramps. If, however, I skip a few nights of no tonic water, IT'S HORRENDOUS CRAMPING. F 60 2.5 years
4/22/2009
 2  Osteopenia Not sure if it was caused by Boniva, but I was recently diagnosed with polymyalgia -- very sore, stiff and achy in areas near the trunk -- upper thighs, pelvic area, upper arms, neck area. This is especially so upon getting up in the morning, after sitting for a while, and it was very hard just getting in and out of a car. M 55 3 years
4/22/2009
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 1  osteoporosis a pain so severe in my spine all the way down to my left leg snd imsomnia. DO NOT, UNDER ANY CIRCUMSTANCES, TAKE THIS PILL. I never used ti take pills, other than the very occasional over the counter Tylenol. Prior to Boniva, I was very lively and active. Today, I can barely walk, have take prescription Zolpidem to ease my imsomnia, Let alone the over the counter ibuprofen. F 86 60 days
4/22/2009
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 5  osteopenia None After taking once-a-month Boniva for two years, along with calcium as well as lifting weights, my bone density has improved slightly! I am delighted and will continue to take the Boniva F 62 2 years
4/20/2009
 1  osteoporosis leg pain, arm pain, sore throat, flu-like symptoms, bad headache, nausea, and severe stomach cramps Never again F 58 1 times
4/20/2009
 2  osteopenia I have taken Boniva for eleven months. In the beginning, I had no side-effects. At the six month dosage, I began having unexplained numbness in my right arm for short periods of time. At the end of seven months, I began experiencing left leg pain so severe that I was awakened at night. Pain subsided during the day. At the end of eleven months I am experiencing left leg and hip pain so severe that I cannot sleep. The pain has continued all day. I am now convinced that the cause is Boniva, because the doctor has been unable to determine any other reason. The leg and hip pain is unlike any pain I have ever had. I will not take Boniva again. I do hope that this pain goes away. It is about two weeks since my last and final dosage, and the pain is worse than ever. F 69 11 months
4/18/2009
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