BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  osteopenia the evening after the first injection intravenously I developed a black eye. By morning I had a very red eye and cheek which were burning and swollen. The opthalmologist called it toxic conjunctivitis and treated me with steroids. He told me never to take it again as I could lose my eyesight. In the history of taking this there are supposed to be only 4 other people this has happened to. My rheumatologist was upset and said it has never happened to anyone else he has had .Also I have developed pain in my knee so bad that I am only getting 1 hr of sleep a night. I have no idea if it is connected but I really feel it is. I personally will never take again ! F 74 1 days
3/16/2009
 1  osteopenia Extreme back muscle pain. Original post 11/17/2008. Took 2 doses in December 2006 and January 2007. I am still experiencing back and rib pain. Had a bad back spasm last week but it only lasted 1 night. Missed work the next day. The last bad episode was 6 months ago and the spasms lasted 3 weeks.I am still taking Advil and aspirin to relieve the pain. Hydrocondone and Flexiril does not work for me. I do feel the spasms are getting less frequent and at least the Advil is helping with the back and rib ache now. Maybe it is finally getting out of my system after 3 years and I am hoping it will all go away. I hate to think I will have to stay like this even if it is better it is still pretty bad. I will never trust the FDA again. F 55 2 months
3/16/2009
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 1  osteopenia You name it - jaw, shoulder, knee, ankle, back pain. I've thought all along it was due to the normal aging process, but not after reading these comments. My daily walking and exercising routine is non-existent now. I cannot believe I haven't made the connection before today. How are we supposed to increase bone density with weight bearing exercises when it is so painful just to walk? We are responsible for our own health - listen to your body. I am and I will stop taking this drug. F 57 4 years
3/15/2009
 2  Chemotheropy led to early menopause Started taking Boniva Feb 5, 2009. First day was fine by second night suffered from a severe fever and other flu like symptoms. Bone aches, cough, headache etc. This lasted two additional nights. Took Boniva again in March, exact same pattern, three nights of severe fever and flu symptons. Done, will never take this medicine again. Only warnings state mild flu like symptons. These symptoms were not mild, they were severe and they did not improve after second dose. The pattern is very clear, I find it very hard to believe this was not discovered and is not communicated. F 41 2 months
3/12/2009
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 1  osteoporsis Originally posted Feb. 2009 - thigh pain After reading many of your comments I am appalled that this drug is still on the market. It has impacted my life so much I can hardly do my job. I need to move around to different buildings carrying a laptop which is almost impossible to do. My leg pain is very bad and my legs feel like they are stiff and won't move. They have purchased a rolling cart for me but most of the areas are on 2nd or 3rd floors with no elevators. Stairs are impossible so I am using the freight elevators. They have also granted me permisson to drive in the gate so I can park close to the buildings. I have a doctors appt. on Monday so I'll see what she says. Five years to get this out of my system brings me to tears. This drug should be taken off the market. No one needs to go through what I am or many others. Let me tell you physical therapy doesn't help either. I am eating motrin like they're candy and they do nothing for me. If someone has a solution please let me know. F 58 1 years
3/12/2009
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 1  Osteopenia I went to my Gyn doctor for the results of my bone density study on Thursday, March 5th. She prescribed Boniva because my spine showed a decreased level of density. My hips were great as I walk 6 miles a day. I also do Pilates (private lessons) twice a week for the past 2 years. I took the first pill on Friday morning and had a normal day on Friday. By the time I went to bed my entire body felt like I had the flu. It got worse the next day and I ended up in bed for 3 days unable to move, back, shoulders, arms, hands all hurting and weak. Called my doctor on Monday morning and did not hear from her so called again on Tuesday and again on Wednesday. Finally spoke to the nurse and she said that the doctor does not believe it is the Boniva. I disagree. I have never in my entire life have had a back pain. My Pilates has made all muscles supporting my back very strong. I am convinced it is the Boniva F 56 1 days
3/11/2009
 1  decreased bone density Knot in my stomach, pain in hip joint, made me walk with a limp. Now severe diarrhea for 3 months, every day. IBS like symptoms. Can not get diahrrea to stop. Have had a 36 lb weight loss, secondary to diahrrea, and inability to eat. Had flu like symptoms. Initially did not attribute this to Boniva, however now feel it is the only thing possible. Do not recommend this drug until further studies are done. It is a dangerous drug with lots of side effects that are not listed. No one discusses these issues with you. The company does not describe any of these side effects except as a percentage of patients affected in broad terms such as gastrointestional upsets. Does not list diahrrea as a side effect at all. Would not have taken this drug if I had known all the side effects, and they were honest about the drug. F 63 3 months
3/10/2009
 1  Osteoporis I have had occasional bouts of nausea, etc., but nothing that lasts more than a day or two after a dose. My bigger concern is that it appears to be making my osteoarthritis worse. I have had 2 back surgeries - the last one major - to remove over grown facets from the L-5 vertebra and fusing it to the S-1. Relief was incredible! However, in the past 2 months, I have noticed about a week after each dose new arthritic pain - first in one hip and now the entire area that had been fused during surgery. I have no proof that the Boniva is responsible for this, but since it prevents bone degradation and enhances new bone growth, it makes me very suspicious, especially since I have the tendency for arthritic over growth anyway. F 60 3.5 years
3/9/2009
 1  osteopenia Muscle aches, back and rib pain. I am a very physically fit, active, 49 y/o. I lift weights, run, do P90x, and skydive regularly. Took first dose Saturday morning and felt great all day. Went for a 4 mile run. Sunday spent the day skydiving and started feeling a little achy in my back and chest toward the end of day. Went to bed at 9pm (which is unusual) and woke up at midnight in severe pain in my back and ribs. It hurt to breath deeply and yawn. I painfully tossed and turned all night and called out for my morning kettlebell workout. Made it to work, but still in a lot of pain. It's now 8:30am and I don't know if I'll last at work all day. I will see my doctor on Tuesday late afternoon and will tell her about these side effects. I printed several pages from this web page to share with my doctor. F 49 1 days
3/9/2009
 1  osteoporosis Severe, severe bone pain, muscle pain, inability to walk. I originally posted comments on 5-13-06 and 5-17-06. After about 1-2 years, my side effects from Boniva ended. But, like most of you, I wondered what to do about my osteoporosis. I was afraid to take any other meds as they all have some side effects that were disturbing to me. In 2007, my bone density was -3.8. My physician kept pushing all the meds on me, and I refused each one. Instead, I started taking a new calcium supplement 3 times a day giving me 150% of the RDA for calcium. Eventhough, my new calcium had magnesium, I increased my magnesium, too. I've been on this regime for a little over 2 years. I just had a new bone density. I'm now at a -1.3!!!! Still not perfect, but much improved without drugs. My physician was very pleased and did not push any drugs. He told me to keep doing what I'm doing. Also, since taking the extra calcium and magnesium, I have fallen several times and have had no fractures. I've done nothing else (like weight bearing exercises) to help. F 55 90 days
3/8/2009
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 2  Osteopenia Severe rib, back, leg and joint pain. F 53 3 months
3/7/2009
 1  osteopenia Started with heartburn, then stomach and abdominal pain, diarrhea/constipation. Bloated belly with extreme gas. Woke up one morning with swollen face and both arms/hands swollen: this improved after a few days. Also severe flu-like muscle aches and pains which have persisted. Extreme fatigue. Now fingers are swollen, all are stiff. Pain widespread but hands, arms, neck, calves and my back are the worst. Pain is debilitating. Difficult to walk. I have a pre-existing seizure disorder and now I have many more seizures than before taking Boniva. This has seriously setback my recovery and therapy for a traumatic brain injury which I sustained 3 years ago. F 53 3 times
3/6/2009
 1  Pre-osteoperosis I took my first Boniva 5 days ago. I am 56 years old but very energetic and in good shape. On the second day I started having stomach pains. I thought it was something I ate. I was very gassy and constipated. My lips were extremely dry even though I was drinking a lot of water. The 3rd day, I hardly had the energy to get out of bed. Now it is day 5 and I am still experiencing stomach pain, dryness, constipation, and fatigue. I feel light headed and just want to lie in bed. I will definitely ask my doctor about alternatives to Boniva. F 56 5 days
3/6/2009
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 2  osteopenia The day after I had the Boniva IV, I was in excruciating pain! My lower back was in so much pain that when I went to sit down, I came very close to passing out. I had to crawl out of bed. I should have gone to the ER for some morphine or something. It lasted 2 days and nights severely and then started getting better. It has been 3 months now and it is time to get another IV. Since I have taken this medicine, I have gained 10 pounds of "water" weight. At least I think it's water weight. When I take my socks off, there is a huge indention on my leg. Having second thoughts about taking this second dose. F 57 1 times
3/5/2009
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 1  bone scan showed moderate osteo slight headache and spacey. Most of all, terrible stomach cramps, gas, slight nausea. Had two 3-month infusions of boniva with no side effects. New doctor said to try one month pill instead. Big mistake. I will never take Boniva in any form again. F 69 7 months
3/5/2009
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 1  Beginning of Osteoperosis Took it for the 1st time on March 2nd. That evening had fever and flu-like symptoms. Woke up with pain down my neck and back (thought I slept funny) but my whole body is stiff and I am very tired. Will not take it again! This drug should not be approved. All I want to do is sleep. F 57 3 days
3/5/2009
 1  osteopenia I took my first dose 2 days ago being vigilant about following the directions closely. I had hoped that this could help me get ahead of any further bone loss and maybe even gain some of the loss back. Yesterday, I began experiencing SEVERE pain in my abdomen and my back felt very achy. By evening, I could hardly breath it hurt so much and my whole body ached. I could not sleep all night and today feel it even more severely... as though I've been beaten all over my body with a bat. The pain in my abdomen is relentless and takes my breath away. It feels as though it's on fire. If this is the result of a single dose of Boniva and not just an isolated case as evidenced by this site, it should be off the market today!! Concerned how long this is going to last. Too weak and do not feel well enough to do anything. Very upsetting. Got out of bed and came online because I felt desperate to investigate any potential side effects not listed in their insert, not sure if this could possibly be Stay away from it!Stick to calcium and vitamin D instead with moderate exercises like walking, swimming, yoga and some light weight bearing exercises. F 52 2 days
3/3/2009
 2  bone loss I haven't yet seen my Dr again so I can't confirm the cause as Boniva, but these joint pains are within the last two months. My pains are different depending location; the right shoulder, lower back, and now the left knee. Unlike flu symptoms, mine happened about one a month, so far I don't have all three at once. However, the knee and shoulder never felt like this before! Does anyone know where to find the research that indicates how long (five years?) it takes to pass from the body? Are there any unique characteristics of the joint pains? 1 pill a month F 54 3 months
3/2/2009
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 1  Ostoporosis DXA Scan -3 Took my first dose on Sunday 3/1/09. Today is Monday 3/2/09. My chest hurts all the way to my back like I have been working out too hard. The calcium I have been taking up to this point has made me very gassy and very constipated. I have taken Ibuprofen for the pain, but it has not let up yet. Will wait a few more days. F 49 2 days
3/2/2009
 1  BONE LOSS STARTED BONIVA ON 1/13/09. I EXPERIENCED LIGHT-HEADNESS,STOMACH CRAMPS, JOINT PAINS. ON 2/13/09 I TOOK 2ND DOSE GOT SO SICK I COULD NOT GO TO WORK FOR 5 DAYS. I HAD SEVERE STOMACH PAIN, NAUSEA,BACK PAIN, MY LEGS HURT. ONE HAND AND ONE LEG ARE STILL SWOLLEN AND PAINFUL. I WILL NEVER TAKE THIS DRUG AGAIN. I BELIEVE I SHOULD NOT HAVE BEEN GIVEN BONIVA BECAUSE I WAS DIAGNOSED WITH GASTRITIS,PEPTIC ULCERS, ETC. I WAS HESITANT TO TAKE THIS DRUG, BUT THE DOCTOR WAS ADAMANT THAT I DO, BECAUSE HE BELIEVED THAT IT WOULD HELP ME. IT MAY BE HELPFUL FOR THE BONE LOSS, BUT THE SIDE EFECTS ARE SO AWFUL, I DO NOT THINK IT IS WORTHWHILE. I WILL JUST CONTINUE TAKING CALCIUM DAILY. F 75 2 months
3/1/2009
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