BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1605 Ratings)

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 BISPHOSPHONATES

 Type: Discontinued Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   (Sources: U.S. Centers for Medicare Services, FDA) FDA Approval Date: 2005-03-24

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  Ostopina I was doing therapy on my left knee when I started the Boniva. After the first month my knee's started hurting. It felt like someone had fill them with that expandable foam. I put it off to therapy. Not it. I did not take my third dose. Have not had therapy for over a month. My left knee doesn't feel as bad as my right. I am only 52 and can't get up or down with out assisting myself.Feel like I am 80 years old. Right knee still feels so thick and hurts really bad. Does anyone know if this stuff wears off or am I going to have to live with this pain for the rest of my life? Will never take it again. Will tell everyone I know to steer clear of this. F 52 2 months
150 mg 1X M
2/13/2010
Email
 1  Bone Loss Severe pain in stomach lasting days, feels like the flu. Every bone in my body hurts, including my teeth. Hard to breath. Can't stand very long. My daily 30 minute walks left me feeling winded and like my legs were tree trunks. Struggling to be my best at work. F 46 2 months
150 MG 1X M
2/12/2010
 1  osteopenia Terrible musculoskeletal pain. The pain started from muscles in spasms that lasted up to eight days before relaxing, then the nerve and bone pain remaining at the site that would gradually fade. Then the same thing would happen at a different site on my body. My resting heart rate is up nearly 20 beats per minute. A rheumatologist suggested to me that something else was going on at the same time in the biochemistry of those of us who had such bad reactions. It would be helpful to know what that it. Two weeks ago I had a pleurodesis, which is glueing the inner and outer pleural membranes of a lung together with talc or other modality. This is because of fluid buildup from advancing breast cancer. After the surgery the hospital nurses and technical staff commented that I hadn't had epidural anesthesia. The other pleurodesis patients they knew had epidurals, because of the significant pain from the procedure. I had just general anesthesia. I said, yes it hurt, but at its worst I didn't begin to hurt as much as I did on average every day during the four plus months that the Boniva reaction hurt me. We just looked at each other in silence. F 60 1 days
150 1X M
2/11/2010
 1  Ostersporosis I took once-monthly Boniva for the first time 10 days ago. Within hours I felt extreme nausea, severe abdominal cramping, fever, chills so bad I was shaking, my teeth and gums hurt, along with horrific headaches. I did not associate any of these symptoms with the Boniva. I thought I had an intestinal virus. I could not eat for days for fear of vomiting. Every bone in my body hurt so bad, it was painful to even lie down. I was dizzy and so miserable and the pain was so relentless. It wasn't until my husband mentioned my taking Boniva, that I looked up the side effects. Low and behold, this was happening to me. I will never take Boniva again, and will warn all my friends to do the same. I am looking into natural healthy alternatives. Doctors should never prescribe this medication. Take it off the market. F 65 1 weeks
150MG 1X M
2/11/2010
 1  osteoporosis severe hip and leg pain weight loss due to nausea nose bleeds loss of mobility twitching how can i make this stop F 54 6 months
1X M
2/11/2010
 1  osteopenia Severe chest pain, trouble taking deep breaths, muscle pains, and joint pain. That was the first day within 24 hours of taking one pill. Second day had troubles standing up and sitting down, let alone walking. I was taking double doses of Advil to try and be at least comfortable. Third day was stomach cramping, gas issues. I was afraid to eat because I was not sure if I would keep it down. At night it was unbearable to sleep. I had a hot pad on me just to be comfortable. I would wake up freezing but I was sweating. I will find a natural way to strengthen my bones. DO NOT TAKE F 44 1 days
150 1X M
2/10/2010
 1  osteosporosis back pain, severe chest pain, muscle aches--could hardly walk I am just being released from the hospital after taking my first (and last!) dose of Boniva. Within 24 hours of taking the first dose, i found myself in the emergency room with severe chest pains and pain and numbness down the entire right side of my body. I spent 2 days in the hospital as they were trying to make sure I did not have a heart condition. I am a healthy 52 year old female that blindly followed my doctor's advice to take this medicine. I only wish that I had checked out this website before! My chest pain is now tolerable but my muscles still ache and feel very tight. The discomfort is unreal. I will begin my own regiment of vitimin D and calcium supplement to combat my condition. This is a medicine that should not be on the market. I do intend to call the FDA and register a formal complaint. Hopefully, other unsuspecting women will be spared the pain the many of us have endured. F 52 1 days
150mg 1X M
2/9/2010
 1  osteopenia Within 24 hrs. of taking the once a month Boniva, I woke up shivering, excruciating low back pain ( could hardly walk), muscle and joint pain, chest wall pain in ribs, skin sensitivity. It was like a bad case of flu without the fever. Advil didnt even touch the pain. I finally took 20mg. prednisone and within a few hours the symptoms subsided. Today I still have a minimal amt. of back pain but still have the chest discomfort when taking a deep breath. I will never take this, or any Osteo. med again. Took the 150mg once a month on Friday and had these horrible symptoms on Saturday. F 53
150mg 1X M
2/7/2010
 1  osteopeina I am writing for my mother who is 82yrs old and started taking Boniva 3 days ago. She was awakened during the night, on the second day, with severe pain in her legs. The pain has not subsided and at times appears worse. I am going to report this event to the FDA and hope she will not continue to be in such severe pain as some of the other patients have reported. F 82 4 days
1X M
2/6/2010
 1  Osteoporosis Some nausea, bloating and headache. WEIGHT GAIN! I couldn't believe the weight gain. In 2 months I gain 10 pounds. It should be taken off of the market! F 57 2 months
1X M
2/5/2010
 1  Osteoporosis Red, tearing eyes. A doctor recently took me off of Boniva and thinks that this has been causing my problem for the past 6 years. No one, including myself, has ever connected it to Boniva until now. Has anyone experienced this condition? F 75 6 years
1X M
2/5/2010
Email
 1  Osteoporosis Terrible pain, broken femur I am writing this short note on behalf of my mother in law who is not very familiar with Internet communications. My mother in law has terrible problems after taking BONIVA for a while. Most recently her femur broke without any outside force and very likely because of this terrible drug. She was also experiencing incredible bone pain and she could only stand the pain by using extremely strong pain medication. I started to research the web when a physician mentioned that her broken femur could be a result of taking BONIVA. I am simply shocked to find all this information about terrible suffering on the Internet and I am convinced there are a lot of people out there that can't voice their suffering and make it public. IMHO this has nothing to do with "side effects' of a drug because it can destroy the life of people who took it. Please, everybody who has these kinds of terrible problems call FDA at 1800-322-1088 or to speak to someone 888-463-6332. There is a form 3500 that one can download from their web site at http://www.fda.gov/downloads/Safety/MedWatch/DownloadForms/UCM082725.pdf. You need to fill out and submit electronically or by mail to file an official complaint. I spoke to a staff member at FDA and she stated that there needs to be a volume of complaints from several people for them to recall but she said that most likely they will if they continue to receive complaints similar to ours. Please list all your symptoms as they need to know. F 74 3 years
1X M
2/3/2010
Email
 2  osteoporosis in one vertebral body Rotator cuff syndrome (both shoulders) requiring major surgery in one shoulder, plantar fasciitis for the last 15 months (both feet; orthotics, cortisone shots, night splints did not help - cannot walk without pain), thumb pad pain (both thumbs). I was looking for some kind of connective tissue disease that would explain my symptoms, but after researching it, I suspect the Boniva. Is this what Roche means by "severe muscle, bone and joint pain" as a possible side effect? No more Boniva. I'll take my chances with the osteoporosis, as my quality of life now sucks. I used to be a runner before Boniva, but now I can't even walk without pain. FML! F 54 5 years
2/1/2010
Email
 1  osteopenia Thankfully I decided to research this drug before starting the free sample my Dr. provided - I already have hip and knee pain and chronic colitis,I certainly don't need to add to it!! I take 50,000 units of Vitamin D weekly, cannot tolerate calcium supplements. My dexa readings have been the same for 4 years, osteopenia, so I am going to keep chasing my 5 grandchildren, eat my vegetarian diet, take Vitamin D, B12, B6 and pray daily. THANKS for adding your comments - you saved those of us who still had a choice of starting this horrible drug. Bless you all!! F 52 0 days
1/30/2010
Email
 4  Bone density score very bad A little flutter in my heart when I am bicycle riding up hill for a long distance at fast speed. No problems at all reported with Boniva. I have been on Fosamax and later switched to Boniva for 11 years total. M 53 5 years
1/26/2010
 2  osteoporosis I have experienced continuous, severe lower and upper back pain beginning after the 3rd time taking monthly boniva pill. The Muscle pain and stiffness in the left hip has been debilitating and both physical therapy and back shots do not help it. I had to stop walking 4 miles at the YMCA. Now, this past month my jaw has began to hurt. I have just discontinued Boniva and will not take it again. F 57 5 months
1/23/2010
 1  osteopenia/osteoporosis I refuse to take boniva or any other osteo drug after researching thoroughly and reading this site. From what I am reading, drug treatment should not even be necessary for osteopenia! Should be able to treat yourself, naturally, with supplements. Do your homework...........do not blindly accept what the Doctors are pushing. It sure sounds like they don't know all that much about these drugs! If this many people are having all these problems, how can these drugs be beneficial to your body???? F 67 0 days
1/23/2010
Email
 1  osteopenia rib pain that got worse with each injection, up to the pain level of almost going to the emergency room in the middle of the night, thought I was haviing heart problems. sternum pain, jaw pain, rash on side of chest, some difficulty breathing, no energy, unable to exercise due to pain levels. I can't wait to get this out of my system. I have researched how this drug works and see that it makes your bones denser, but more brittle, new types of fractures are being seen. I have always eaten a helathy diet, and exercised, now I am looking into the alkaline diet for bone health, check out Susan Ott's website on healthy bones naturally. There are other research based options out there. F 57 1 years
1/23/2010
Email
 1  Osteoporosis I have taken Boniva for four months. The first three months I experiences no side effects. But, this fourth pill has created severe heartburn in me. I have not able to sleep for four nights. I have the heartburn day and night and it never goes away. It is so hard to live with. The doctor told me to stop taking it and take Prilesic for the heartburn. I would not recommend taking this drug to anyone. I am planning to take extra calcium, vitamin D, magnesium, Vitamin K, vitamin A and herbs to correct the problem. F 60 4 months
1/22/2010
 1  ostopedia At first severe leg pain, then knee, then hip now I hurt all over. Muscle stiffness, pain. Unbearable! I took fosomax about 3 months. Stopped because of pain. But NOTHING like this. I have always been very active. Long walks. Large vegetable garden, chickens. I rode a motorcyle myself. I can hardly go up & down the stairs. M 58 2 months
1/21/2010

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