BONIVA Reviews (IBANDRONATE SODIUM)

Average Rating: 1.3 (1602 Ratings)

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 BISPHOSPHONATES

 Type: Rx Drug

  

BONIVA  (IBANDRONATE SODIUM):  Ibandronate is used to prevent and treat certain types of bone loss (osteoporosis). Osteoporosis causes bones to become thinner and break more easily. Your chance of developing osteoporosis increases after menopause, as you age, or if you take corticosteroid medications (such as prednisone) for long periods. This medication works by slowing bone loss to help maintain strong bones and reduce the risk of broken bones (fractures). Ibandronate belongs to a class of medications called bisphosphonates.   FDA Approval Date: 2005-03-24 (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR BONIVACOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 1  osteoporosis I began having back pain about 20 hours after taking my first dose of the once monthly version of Boniva. The pain worsened over the next day to the point where I could barely move and it was only moderately responsive to over-the-counter pain medication. My research of the medication on line regarding this side effect was frightening because it sounded like for many people who have experienced muscle pain of this sort after taking this medication, it does not subside, and the pain and effect on my mobility was significant. The good news for me is that today -- three days after taking the drug -- I am feeling markedly better, with around an 80% reduction in the pain I'd been experiencing. I am hopeful that the remaining soreness will subside over the next few days. I will not take this medication again. F 51 1 days
12/4/2009
 1  Osteoporosis Approximately 18 hours after taking 1st dose was awaken with extreme stabbing pain in my back between my shoulder blades. Thought I was having a heart attack as the extreme stabbing pain started in my chest at the breast bone area. Then progressed into my shoulders. Haven't slept much since the onset of the pain. Have never had this much pain. If I don't move at all it is tolerable. At times my back and chest will go into spasms which hurts even worse (didn't think it could get any worse}. I took my first and last dose December 1. Today is December 3 and the pain is still as intense and the spasms are still extreme. I have tried to contact my Dr.'s office but they are off today!!! My husband started looking on the internet last night and discovered this site. He described my symptoms exactly and said many other women were experiencing the same thing. I will never take this type of medicine again and just wish the pain would stop. Please stop!!!!! I wish I would have researched the internet before beginning Boniva. If you haven't started don't. F 59 1 days
12/3/2009
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 4  osteopenia Not sure if this can be attributed to Boniva, but have had some leg cramps at night that haven't been helped by vitamin/mineral supplements as they should be. Have had more frequent migraines than normal just recently. However, in general have had very few side effects and increased bone density with this med. It has helped me more than hurt. Family history of osteoporosis together with low DEXA readings caused me to opt for Boniva after several months on weekly Actonel. Despite poor teeth, have had no tooth or jaw pain. No problem with GI upset. No particular joint troubles (I work out 3x weekly). My left hip does bother me at times, but this is due to an old injury along with slight arthritis. I feel it important for those having few side effects along with reduced bone loss to weigh in here. Not all the stories are bad ones. F 60 3 years
11/29/2009
 4  osteopenia Question if other women have had extra bone growths such as osteophytes since I seem to have them in several places. I, too hurt all over and just thought it was due to age. I have taken Boniva for several years and now wonder if it is causing my pain. .My dexa scan scores have improved F 61 3 years
11/28/2009
 1  replace fosomax and actonel I was just given inject-able, one dose every 3 month, boniva. i can't even eat a piece of dry bread without stomach pains some nausea and feel like i want to have bowel movement. On the second day i had to stop walking in the middle of the street the pain in my lower back was so severe. i am staying home today IS THIS GOING TO LAST FOR THREE MONTHS! i only weigh 108lbs i can't afford NOT to eat! and i thought it was from the turkey over thanksgiving!! i shall not take anymore bone meds! F 71 4 days
11/28/2009
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 1  Osteo Severe left leg pain, couldn't put any pressure on it to X-country ski & noticed I was using my right leg for all my weight. 1 week after my last injection 1 year ago I ended up in the ER thinking I had the flu but all tests confirmed it wasn't. The Dr. gave me 2 IV's and told me to go home and drink as much fluid as possible. I was off work 2 weeks and now 1 year later am experiencing severe tooth pain, have had 2 root canals last week on bottom left side. The first thing the Endodontist asked was if I had been on Boniva. This drug is most likely the culprit. I had him test the right side of my lower jaw & there are 2 more teeth that need root canals, I've never had such a problem and my jaws ache. He said the drug stays in the body 10 years! Do not take any drug for osteo, try vitamin D. My rheumy put me on 50,000 units a week for 8 weeks and then just 50,000 units once a month. My dexiscan came back in the normal range after trying this. F 56 12 months
11/26/2009
 1  osteopenia lower back pain, hamstring pain, right hip pain, problems with acid reflux I have taken boniva for a year, once monthly. It was prescribed for me because I was diagnosed with osteopenia, and osteo arthrithis of the spine. I have horrible lower back pain and leg pain. I wasn't sure what the cause of this might be until I went to a new chiropractor and he told me to check online for the side effects and that should tell me why I am having this pain. I have been a runner for 20 years of my life and in good shape. But now I hurt so badly all of the time. I am in some kind of pain. I have read the other comment on this site and have seen some that have said they heard that these symtoms are irreversible and the med stays in your body for 5 years. This is very very upseting to me and scary. I would like to know if anyone out there knows if this is factual or not. F 50 12 months
11/26/2009
 1  osteoporosis Severe bone pain I took Boniva for nineteen months, from September, 2007 through March 2009. I am now 69 years old and reasonably active for a woman my age. My experience with Boniva was uneventful for several months. In January, 2009 I began to be awakened at night by pain in my left thigh. It seemed to be in the femur, rather than the hip, and did not seem to correlate with physical activity. The pain was not constant, and seemed to travel from one area of my body to another, to my right knee or either ankle, to my left knee and back to my left thigh. There seemed to be no logical explanation for the pain. I knew that bone, joint or muscle pain were possible side effects of Boniva, so after calling my doctor, I stopped taking Boniva after my March, 2009 dose. Since that time, the pains in my lower extremities are less frequent, but I currently have pain in both my upper arms, again, not in the joints, but in the upper arm bone. This pain is at times excruciating and at times less severe, but never disappears completely. Again, it does not seem to be related to the degree of my physical activity. I am now convinced that my bone pain is caused by my Boniva use. I have read that ibandronate does not leave the body quickly (thus its use as a monthly, or now annual, medication.) I now wonder what this medication has done to my bones to cause this extreme discomfort. I feel the drug Boniva should be reviewed as to what permanent adverse effects are being caused by its use. F 69 19 months
11/24/2009
 1  Osteoprosis Severe pain and close to death experience. Paralysis. Unconscionable drug companies that for monetary profits they resort to creating literally poison. May God have mercy on their souls! Lawsuits are not sufficients as they should be tried in criminal courts for attempted mass murder. They are no better than the terrorists. F 72 1 days
11/23/2009
 1  Osteo Severe Reaction I just researched the FDA site which states that a common occurence of atrial fibrillation also can occur with not only Boniva but other listed drugs like fasomax. Please do not trust any other medication, try through natural food and exercise to address this illness. Do not trust like us any more the pharmaceutical companies as obviously they are not honestly disclosing major common side effects. I took the advice of previous users and I reported my mother's symptoms to both Roche and FDA. Please contact them: Roche at 888-835-2555 and FDA, form 3500, 1800-322-1088 or to speak to someone 888-463-6332 and their web site is www.fda.gov and you need to click on medwatch to find the form to submit electronically. I spoke to a staff member at FDA and she stated that there needs to be a volume of complaints from several people for them to recall but she said that most likely they will if they continue to receive complaints similar to ours. Please list all your symptoms as they need to know. Thank you and please email me at [email protected] if you need help. F 72 1 days
11/23/2009
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 1  Osteoporosis I took Boniva on Sept 1 and followed up with comments here on 9/17. I suffered back aches and soreness for nearly a month before I felt better, but the side-effects did eventually go away. I decided not to take it again. My doctor and I decided I would try a daily med (same class of drugs). I have taken Alendronate Sodium for almost two weeks now, 10 mg per day, and have no side effects whatsoever. It's generic, and so it's cheaper. You need to be upright and not eat for at least a 1/2 hour after taking it, which is really annoying since it's every day, but it is causing me no pain. Hopefully this lower dose will be tolerated by my body. Nothing was worth how I felt after taking Boniva. If anyone is interested they can email me for a progress report. The daily med is something to consider, so talk to your doctor if you are interested. If I start having side-effects from this drug I will update my post. F 62
11/20/2009
 1  osteporosis I took Boniva last year and quit it because of severe muscle ache and fatigue. I had to take it on weekends, because I could sleep. I would have missed work if I took it on a workday. My doctor talked me in to trying it again, but she put me on a weekly generic pill that is supposed to do the same as Boniva. It is just as bad, extremely sore muscles and joint pain. I am not taking any more. I am not taking any more, due to joint and muscle pain. F 56
11/20/2009
 1  osteoporosis It is impossiable to "briefly decribe" the side effects which I experienced, because there were so many and I am still experiencing some of them, but I will try to describe them briefly. I felt as if I was being stabbed in the shoulders, neck and ribs. I had rushing, shooting pains in my back, and limbs. I felt like I had a flu. I started limping and had trouble walking. I was dizzy and couldn't concentrate. My whole body ached as if I was run over by a semi. I felt pain in my jaw. I am still feeling the stiffness, and pain in my feet and limbs. I have had to take off work due to all of the side effects. I'm wondering if anybody has died from this medication. I didn't die but while I was on if I felt like I was going to die. It took me that last dose to realize what was causeing me all the pain. Now I'm wondering if my golden years will be nothing but pain, due to bonivia. This medication is posion. It is the worst medication I have ever taken. I only took it three times twice (weekly) and one (monthly). It has been at least two months since my last pill and I still feel like my body aged 50 years. I agree that this drug should be taken off the market. There is no warning that all of these side effects can occur and do not go away. I do think there should be a class action against this company. I can't believe that this is actually something that is being given to humans. If I knew then what I know now, I would never, never, never get near it. I wonder if when they tried this medication ont the rats if they became crippled? F 56 1 months
11/19/2009
 4  osteoporosis The first time that I took Boniva, I did experience a little dizziness. Once in a great while, I will get heart burn but I do not feel that it is serious enough to go see my Doctor. I almost refused to take Boniva after reading the horrible side effects other people have experienced but decided that I would try it and hope for the best. So far the side effects have been minimum. F 61 3 months
11/18/2009
 1  lost bone density Severe pain in back, ribs and chest. Extreme fatigue and dry burning eyes. Shooting pains in arms and legs. Took my first dose on Saturday and was happy that I didn't suffer any of the side effects. On Sunday I noticed a pain like a muscle pull under my shoulder blade but couldn't think of anything physical I had done. That night I was so sore and the next day I had muscle pain so bad in my ribs and chest it was like I had been beat up and could hardly breathe. Came home from work and had to go to bed. It's Wed now and while I feel better, I am sore and tired and my eyes are so dry, buring and blurry. I always read the side effects and never think they'll happen to me. Wish I had read these posts first. It will be my last dose because while I can take a day of pain, I am afraid it will get worse with each one. F 56 1 months
11/18/2009
 1  lost bone density Vision - an add on to my prior post.... I guess I also missed the vision side effects. I had lasik last year and it was great even though I wear reading glasses. Noticed the first night that I could hardly read with them and at work but thought it was just time to get stronger glasses. Now I am sure it is the Boniva. I am not a happy camper.... F 56 1 months
11/18/2009
 1  Ostio I fainted within 30 minutes of taking this and have had severe back leg and hip pain. My joints ache everyday and it has been 3 days I feel sick and have had stomache problems.This is the worst thing I have ever take and would not again or want anyone to take this. this was the first pill I was to take one monthly this is a poision pill F 46 1 days
11/16/2009
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 1  To prevent osteo Severe muscle and joint pain As I sat ready all of the side effects, I saw my life as it is today. I have such severe joint and muscle pain in my shoulders that I have to bend over in the shower to wash my hair. Changing clothes is a chore. I have been to my PC and to an orthodedic surgeon and to physical therapy and a chiropractor. I didn't realize it was the Boniva until I took a 3rd dose. Then I started having such severe pain in my hip that I almost couldn't put any pressure on my leg. My arms are still hurting and in the beginning I slept in my recliner because I couldn't put any pressure on my arms. I thank all of you for your input and I know the pain that you are going through. I also went to the emergency room because I had such a long wait to see the Dr. and was given steroids and Oxycodone. What a trip that med is. Stopped thaking it. Hopefully the pain will get less and less for all of us. F 61 3 months
11/15/2009
 1  osteoporosis Did Not Take It after reading about your website experiences. I want to thank everyone for warning me about Boniva. I was due to start taking it November 1, 2009. I even picked up the prescription! I was afraid because I have a lot of allergies to medicines. Then I read your website and I thank God I did. I feel all of you have saved my life and future pain and suffering. I bless you all for coming forward and warning us who did not know! I will continue to walk 5 miles a day, enjoy life and never listen to doctors and media again. I am 57 years young and very active. I have ulcerative colitis and I am sure this would have killed me. F 57 0 days
11/13/2009
 1  osteoporosis Severe abdominal cramps and spasms; flatulence; tooth pain; flu like symptoms; exteme lethargy. Before taking Boniva, I was a very healthy 71 year old womon with no chronic illnesses, aches or pains. I gave thanks daily for my good health. M 71 3 months
11/12/2009

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