LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (853 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Stage IV Endometriosis | Increase in migraines, joint pain, but no other side effects other than being cold for the first time in awhile! | So far, I love it. It has helped level my mood, controls my hot flashes that I started getting after my Laparotomy, and I don't have to deal with my period now for a while. UNFORTUNATELY, the pelvic pains have not gone away, and the ovarian cysts are starting to come back less than 3 months after having them surgically removed. | F | 25 | 2 months | 8/9/2009 | 3 | post-op shrink endo tissue | frequent hot flashes and night sweats w/ minimal sweating, vaginitis, crying fits, mood swings, severe depression | I've just received my fourth injection of six and up until last week I was doing just fine. I will not recommend nor condemn lupron but for the past couple of weeks, I've been experiencing psychological side effects that are totally new to me. I don't have a history of depression but the episodes of catatonic despair that are immediately followed by general happiness and comfort are jarring. I have anxiety at the onset of every hot flash and my moods are unpredictable and starting to frighten me. I've almost started crying at work many times for no reason and my love of life is pretty much gone and ability to bounce back from setbacks has fizzled. I was in pain before lupron and the drug is in fact working at minimizing the the tissue that is causing pain, but I'm not sure if I'm going in for my 5th injection. i don't think anyone on this forum is being dramatic when it comes to the psychological side effects; I've never experienced such a lack of control over my emotions and for me, i | F | 25 | 13 weeks | 10/22/2007 | 3 | Endo | Severe back pain, no sex drive, stomach pain, mood swings, Insomnia, Night sweats | I am 3 weeks into treatment. I am still on birth control so i havent had to many hot flashes but definitely have had many sleepless nights. I have no sex drive at all. I am curious to see what my next shot will bring. I have had no pelvic pain and no bleeding, but I am not sure if that has to do with the fact that i am still on birth control. Just curious to hear other peoples thoughts | F | 25 | 3 weeks | 9/26/2007 | 3 | Severe endometriosis | Hot flashes, severe migraines, severe mood swings, trouble sleeping, night sweats, (I'm getting a period at 43 days into lupron. I'm not sure if that's normal. I haven't had one at all in a year and only spotted one day after lap and d&c.) | F | 25 | 2 months 1.75/month | 5/28/2012 | 3 | Endo/infertility | hot flashes, increased appetite, mood swings | I cannot say if it worked or not...I will have my last injection July 1 and then can start trying to get pregnant again. If I get pregnant, obviously it worked, if not, then I am not sure. | F | 25 | 3 months 1X M | 6/15/2010 | 3 | Fibroids | Minor hot flashes, some weight gain, mood swings, horrible headaches (same headache for about a week this time) | I am taking Lupron to prepare for a myomectomy to remove large fibroids in about 2 weeks. The hope is that it will shrink my fiboids and also stop my periods to increase my hemoglobin. However, I still got my period last month and it was worse than usual-using an entire box of ultra absorbancy tampons/overnight pads in 4 days. The most annoying side effects are the mood swings and headaches. I haven't had problems with the headaches until the past 2 weeks or so, but I usually have a migraine-strength headache for at least a portion of each day. The mood swings have also been stressful--I'll go from being fine to being in a 'rage' to feeling depressed to fine again. I am hoping that the Lupron worked to shrink the friboids and to improve my blood count and that the headaches and mood swings go away SOON! | F | 25 | 1.5 months 1X O | 11/24/2010 | 3 | Endometriosis | Hot flashes, Severe Headaches, Neck Pain, Hair Loss, Memory Loss | It reduced the size/eliminated my cyst caused from my endometriosis. However, I don't know if it was worth it considering the side effects. I do know I want kids, which is why I wanted to try this option. Every day my neck cracks multiple times just from turning my head. It brings me to turns. It feels like my brain it swelling in my skull and pounding. The headaches are so severe that my doctor had to prescribe me codeine pills, which hardly keep the pain away. If I'm about to do something, I can forget within seconds of my thoughts. Within the first few months, I lost CHUNKS of hair. HORRIBLE medicine!!! | F | 25 | 6 months 30 MG 1X M | 4/28/2011 | 2 | Stage 4 Endometriosis | Hot flashes, night sweats, chills, severe fatigue, depression, loss of interest (in sex and pretty much everything else important to me), weakness (in general), bleeding and pelvic pain | I have only received (2) injections over a two month time span. After the first injection, I became very weak, tired and depressed and bled for two weeks non-stop. I could not even muster up enough energy to make phone calls or to properly care for myself. I am only a few days into injection number two and my symptoms have change a little. I am very fatigued and feel as though I could sleep for day, however, have insomnia. I am hungry but too tired to cook. I sweat so much that I have chills and I just feel bad in general. I have not had children, but want to proceed with a hysterectomy in order to feel some relief. I have given birth control and Lupron a chance but feel as though I am down to my last option. I suggest you try Lupron as iy may work for you, it just hasn't helped me :-( | F | 25 | 2 months | 1/19/2010 | 1 | endometriosis | I could barely walk..hot flashes no sex drive no pain relief loss of hair weight gain...divorce..due to mood swing depression anxiety...i was never like this before..and I also was not informed that it was chemotherapy.... | F | 25 | 6 months | 2/28/2014 | 1 | Endometriosis | Brain fog, Intense hot flashes, Bouts of rage, Change in body odor, Inability to control reactions & emotions, Weight gain (70 pounds in 6 months), Susceptibility to further weight gain, Inability to lose weight, Abdominal pain & hernias, Increased stomach fat, Irrational mood swings | Many symptoms resolved within 3-6 months of ending treatment. Body odor resolved eight years after ending treatment. Inability to lose weight is still on-going. Saliva testing shows long-term hormonal imbalances seven years after ending treatment. Weakened abdominal walls leading to hernias on both sides. No reduction in endometriosis symptoms while using drug. | F | 25 | 6 months | 6/19/2016 | 1 | endometriosis | Hot flashes, Lots of hot flashes, brain-fog, severe moodiness, Extreme forgetfulness, Weight loss, | At the time was taking it -and up to a year later, I would have recommended Depo Lupron. It helped with the pain of endo. for the 1st time in my life I wasn't doubled-over in pain, and could be active! But the side effects still continue and the pain comes back. 7 years later: I'm VERY forgetfull/ memory problems, to the point it's cost me friendships and jobs. I suffer Joint pain, insomnia, occasional hot flashes, became very sensitive to chemicals and stimulants (such as caffeine, medications, food additives) With such complicated, long-term side effects and not being able to find a doctor who will look into what happened to me as a result of luron, the desperation now is worse than just the pain of endo. (plus pain/endo back too) I strongly warn against Depo Lupron!! If anyone has had similar problems with MEMORY and other long-term side affects please e-mail me with what's helped or info on Doctors who have looked into this. Thanks | F | 25 | 6 months | 9/8/2009 | 1 | Post surgery endometriosis | hot flashes, moodiness, cold sweets, depression | I was given a lupron injection after having a laproscopic surgery to remove the endo. While in surgery it was discovered that I was having a tubal pregnancy and my left fallopian tube was removed. I was told after the procedure that because of the surprise tubal ligation, all the endometriosis was not removed being I had been under anestesia for 3 1/2 hours and they feared greater consequences if they didn't wrap things up. I was given the lupron without my consent (you know you sing the waver saying that the doctor can do what it must to treat you) anyway, I was told the purpose of the injection was clear up the rest of the endo that was not removed. My doctor told me that "she was amazed that I tolerated the pain of both the endo and tubal pregnancy so well, and was surprised I was able to walk." After receiving the first injection which was supposed to be re-administered after 3 months I experienced severe hot flashes, horrible cold night sweats, extreme moodiness and dispression. Even with the side effects I had decided to continue on the path my doctor had chosen for me and receive my second (and last injection) when I arrived at the doctors office for my injection, my doctor had left the practice. That was in August. I have since still experience severe endo pain. I have had a hard time finding a doctor that I trusted. Finally found a nurse practitioner who ran all kinds of test (blood, ultrasound, CT) and decided that the best route for me would be to go back | F | 25 | 3 months | 4/22/2009 | 1 | inoperable endometriosis | I had hot flashes, night sweats, fatigue, dizziness, and ended up with SEVERE pappilledema that caused me to briefly go blind and I needed a VP Shunt inserted into my brain/body because the pappilledema came from the Pseudotumor Cerebri that the Lupron caused. After 3 injections I had to stop any further 'treatment' with lupron and fight to save my vision. I will now need a new VP shunt at LEAST every 10 years for the rest of my life and am now at risk for blood clots in my brain, brain infections, seizures, and blindness if the shunt fails before I have time to have it replaced. | I was told it was SAFE and that I should take it for an entire year. | F | 25 | 3 months 3.75 mgt 1X M | 2/11/2012 | 1 | Endo - PCOS | Severe: anxiety, depression - I became so mean towards others and I felt out of control. All Over Achy-ness: My hips hurt the worst, about 3 weeks after my first shot I started getting severe pain in my left wrist, It is still there and seems to be becoming worse. Insomnia and Fatigue - I can't go to sleep I am so restless and ten in the end I am so tired I almost can't function. | I honestly don't feel this drug has helped me in the way the doctor said it would. As of right now I do not have the pressure and pain I had prior to Lupron, but the side effects that have occured along with the medication are not worth it. I came so close to losing my job, because I work 11 hour days and some days I could not stand being on me feet for just a couple of hours. I was also so moody I almost felt like I could hurt someone. I would say mean things, not realizing what I was doing until afterwards. I cry all the time, over stupid stuff. Somedays I feel like I have lost all self control. Along with the Lupron I am taking Aygestin and Lexapro, and I don't feel this is helping much. If I had to do it all over again, I would say no to taking this medication. | F | 25 | 4 months | 4/10/2008 | 1 | Endo | Pain, hot flashes, mood swings, loss of sex drive, nausea, developed a bleeding disorder | I would not recommend this drug to any woman needing it for endo. I had nausea, mood swings, hot flashes, extreme pain, loss of sex drive, vomitting, head aches, and 8 weeks after my last dosage I was diagnosed with ITP - a bleeding disorder caused by the Lupron having adverse effect on my immune system and making my immune system attack the platlettes in my blood cells. My last dose was in April 2008 and this bleeding disorder is something I still deal with. During my 6 months on Lupron, at 3.75 mg per dose every 28 days, it was not as effective on my stage 2 endo as my doctor had hoped it would be, and recommended an additional year of Lupron (until I told him to go to hell). I still deal with pain from endo on almost a daily basis, sex is very painful, and I am waiting to have a hysterectomy... at the ripe age of 25... no kids in my future. | F | 25 | 6 months | 1/13/2009 | 5 | Stage 4 Endometriosis | DO NOT BE SCARED of Lupron!!! Hot flashes, Night sweats, SOME foggy brain (loss of some short term memory or occasionally forgetting the word I was looking for however I was still able to perform my mentally demanding job very well), Occasional fatigue, SOME flu- like symptoms intermittently (not sure if this was the Lupron or just flu season). | I was absolutely terrified of going on Lupron & put it off for a long time SOLELY because of the reviews I found on this site & some others. DO NOT be scared! This drug changed my life for the better. Drs said that it was either Lupron or a bowel resection (after already having lap. surgery done- the Endo was in my intestines & could not simply be excised). I finally chose Lupron & after 6 months I am now pain free (relief started at 3 months). It is a million times better than living in pain or on pills! I would do it again in a heartbeat & wish that I had made the decision sooner. I have now been off for about 6 weeks & do not have any lingering side effects. | F | 24 | 6 months 1X M | 8/1/2011 | 5 | endometriosis | The only side effect I had was hot flashes. | I have stage 4 endometriosis. Since I was 15 years old my periods have been nightmares. Awful pain throughout my whole body and migraines. I have had two laparoscopic surgeries removing cysts on both of my ovaries and as much endometriosis as possible. I had been trying to get pregnant for the past three years. My only hope was Lupron. I had tried everything else first because I was scared of the side effects that I was reading about with Lupon. The only side effect I had was hot flashes. I did Lupon for 6 months. After not having my period for 7 months, I finally started my period back up again with little to no pain. The next month I found out I was pregnant! | F | 24 | 6 months 1X M | 9/12/2011 | 4 | Endometriosis | Some weight gain Night sweats Some mood swings | So far this drug has helped immensely, no more painful periods, no more periods for three weeks out of the month, and the side effects that I was terrified of are almost non-existent. I was afraid from reading sites like these, but I think part of the problem is people like me, who are loving what the shot is doing for them, don't take the time to express their thoughts. Yet the people who have had difficult experiences want everyone to know about it, so they post. Be cautious, read up, but don't always take other peoples experiences to heart. Everyone is different and will react in a different way. The slight negative side effects I have experienced so far are well worth the positive side effects I listed above. My quality of life is so much better than it has been in three years. I am taking the shot twice (1 shot every three months) and my second shot is scheduled for next week. I am slightly nervous again, in case any other side effects pop up, but other than that, I look forward to the continued relief that this affords me from my endo. | F | 24 | 3 months | 8/11/2005 | 4 | Egg Donation Cycle | Insomnia, hot flashes/sweats, concentration issues, very mild cramps, loss of appetite | Taking low dose (0.1cc/10 units) daily for 1 month (self-injection) to suppress ovaries prior to egg retrieval. Side effects incredibly mild. Can't say weight gain was an issue, as I have lost weight (intentionally, diet & exercise) since beginning treatment. I have also noticed my emotional eating has stopped entirely - may not be related. Woke up regularly 7.5 hours (on the dot) after shot for first 2 weeks, but since then my body adjusted. Still have mild insomnia, but not every night. Hot flashes 1-5 times daily. Cramps (never had cramps before) 2-3 times a week. Concentration (reading long, technical articles) difficult, but am able to watch TV/read novels normally. | F | 24 | 1 months | 6/28/2008 | 4 | Severe Endometriosis | I was scared to start Lupron after reading many women's reviews, but decided to give it a try based on my doctor's recommendations. All things considered, I didn't have a hard time with Lupron (I did also use add-back therapy). I had some breakthrough bleeding, which was a nuisance, and a higher incidence of mild headaches, but overall it wasn't bad. Of course, I don't know how my adhesions are looking now - I took six months of Lupron after a laparascopy - but if it helped to reduce them and lengthen my endo free time, then it was definitely worth it. | F | 24 | 6 months | 8/10/2008 |