LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (853 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
|
Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 2 | stage IV endo | many many hot flashes, depression, mood swings, crying jags | Even though I had never been confirmed as having endo, my mother had it, and I have looked forward to the day of my hysterectomy since I was 15 years old. So finally, at the age of 35, as a result of severe pain and a desire to finally have a child, I finally went to the doctor. In an effort to conceive, and reduce endo, dr. suggested lupron after the surgery to reduce the return of endo. I fully understood that neither surgery or lupron can or will "cure" endo. After 5 1/2 months of lupron, the vaginal ultrasound showed all the cysts had returned. So 2 1/2 years after child's birth, almost exactly 4 years after 1st laparoscopy, the pain from cysts have returned to original presurgery level. Was lupron worht it? no, i think that the surgery itslef helped more, at least for conceiving, removing cysts from both ovaries and fallopian tubes. Apparently, it didn't keep cysts from returning or growing during that "forced menopause". | F | 38 | 5 months | 3/23/2007 | 2 | fibroids, anemia | terrible hot flashes and night sweats, gained 20 pounds in five weeks without chanage indiet or activity. Depressed. | F | 38 | 2 times | 8/7/2007 | 1 | endometriosis | Permanent neurological problems. These began with severe nerve pain and increased to seizure and stroke-like issues. Don't touch this drug! I had one injection (lasting one month, supposedly) and feel will never be the same. For me, this has caused Multiple Sclerosis-like symptoms, with no clear causes on MRI's or other tests. | F | 38 | 1 months | 5/29/2007 | 1 | Endometriosis, Ovarian Cysts | MEMORY LOSS, SEVERE JOINT PAIN, ABDOMINAL PAIN, NEURALGIA, WEAKNESS AND NUMBNESS IN HANDS AND FEET WITH SEVERE SWELLING, MIGRAINES, DEPRESSION, OSTEOPENIA, URINARY PROBLEMS, YEAST INFECTIONS, SEVERE HOT FLASHES, NIGHT SWEATS CONSTANT PAIN AND FATIGUE | IF YOU ARE CONSIDERING USING LUPRON RESEARCH.... RESEARCH THERE ARE MANY, MANY SITES WITH WARNINGS... RUN FAST AND ASK FOR DIFFERENT SOLUTIONS... A GOOD DOCTOR WILL HAVE OPTIONS. THEY TELL YOU THESE SIDE EFFECTS ARE TEMPORARY ...THAT IS A BIG LIE.. I AM 7 YEARS LATER AFTER USING LUPRON AND STILL HAVING THESE PROBLEMS. AND TO TOP IT OFF IT DIDN'T EVEN HELP MY ENDOMETRIOSIS. FIRST I HAD 4 LAPROSCOPY'S, THEY DIDN'T HELP THEN I HAD MY RIGHT OVARY REMOVED FOR CYSTS. AFTER THAT I HAD TO HAVE A FULL HYSTERECTOMY. WHAT HELP DID THIS DO FOR ME? I WAS NEVER EVEN TOLD OF THESE SIDE EFFECTS, AND THE ONES I WAS TOLD ABOUT WERE SUPPOSED TO GO AWAY! WHAT A BIG FAT LIE!!!! I AM WORSE OFF NOW THAN I WAS BEFORE THIS I HAD ENDO, BUT NOW MY PROBLEMS ARE TOO NUMEROUS TO COUNT...PLEASE RUN HARD AND FAST AWAY FROM THIS POISON ** XX | F | 38 | 12 months | 1/10/2008 | 1 | Endometriosis | weight gain(primarily in the belly area), hot flashes, memory loss, severe depression, anxiety, lack of concentration, tingling in hands and arms | I had the laparoscopy procedure Nov 2006. After that the doctor suggested Lupron for 6 months. The first two months I experienced really bad hot flashes but then the depression and anxiety kicked in. I had suicidal thoughts(no history of this before), so the doctor put me on Wellbutrin and Ativan. The Wellbutrin made things worse. I completed the 6-month treatment in June 2007 but I continue to have problems with anxiety, depression, and memory loss in Nov 2007. The pain has gone away but I don't think it was worth it since I have all these other problems now. I would really think twice about using this medication again. | F | 38 | 6 months | 11/28/2007 | 1 | vaginal bleeding | severe hot flashes & swets, weakness,fatigue, memory loss,insomnia ( I was waking up every 15 min through the night, felt like i was loosing my mind), irritability, mood swings, crying with no reason, severe dizziness, vaginal dryness, bone and joints pain,weight gain 30lb | It was not worth it. Long lasting side effects. I did not see the benefits. My life was turned into a living hell. Now about one year after the treatment I still feel very tired and lifeless. I continue to gain weight. If I would have known about all these side effects I would not have taken it. I don't recommended it to anyone. I strongly believe this drug should be pulled out of the market. I hope somebody will take legal action against those who produce such a poison. I was in college during the treatment and I had to drop classes because I was extremely sick. Pure nightemare!!! | F | 38 | 3 months | 6/23/2008 | 1 | ENDOMETRIOSIS | WITH ONLY HAVING 1 SHOT I EXPERIENCED AND STILL EFFECTED BY : HOT FLASHES, NIGHT SWEATS, DEPRESSION, MOOD SWINGS, LOSS OF WEIGHT, HEART PALPITATIONS, FATIGUE, HANDS TINGLING, LEGS FEELING LIKE THEY WERE RUBBER BANDS, NAUSEA, DRY MOUTH, UNCONTROLLABLE SHAKING OF MY WHOLE BODY, EARLOBES FEELING ON FIRE, SEVERE ANXIETY THAT LEAD TO PANIC ATTACKS | AFTER HAVING ENDO REMOVED MY DR. PUT ME ON LUPRON DEPOT 3.75MG. THE SIDE EFFECTS HE TOLD ME ABOUT WAS HOT FLASHES, NIGHT SWEATS & DEPRESSION.THE FIRST WEEK THE EFFECTS WERE SO BAD. I WENT TO THE HOSPITAL THEN FOLLOWED UP WITH MY DR. TOLD HIM WHAT HAD BEEN GOING ON & HE STATED "I HAVE NEVER HEARD OF SUCH A THING". I SHOWED HIM THE INFO I PRINTED FROM THIS WEB SITE. HE OPENED UP A RED BOOK TO LUPRON & STARTED TELLING THE % OF PEOPLE WHO HAD THESE SIDE EFFECTS WHEN THIS DRUG WAS BEING STUDIED. AFTER GOING OVER ALL MY SIDE EFFECTS HE SAID WELL, YOUR THE ONE IT IS HITTING ACROSS THE BOARD. I WAS PUT ON ZOLOFT. 8-11 AROUND 2AM I WAS FEELING SICK, LIKE I COULD FAINT. BEFORE I KNEW IT MY HEART WAS RACING OUT OF MY CHEST,MY WHOLE BODY WAS SHAKING UNCONTROLLABLE ,HANDS TINGLED,LOWER JAW QUIVERING AND MY HANDS SEIZED UP.SPEACH WAS GETTING IMPAIRED.THE FEELING OF FIRE ON MY EARLOBES STARTED AND ALL OF THE SUDDEN IT FELT LIKE MY HEAD WAS GOING NUMB. MIND YOU ALL OF THIS WAS | F | 38 | 1 times | 8/19/2008 | 1 | OVARIAN CYSTS | Gnawing bone/joint pain, osteoporosis, osteoarthritis in all paired joint, neuropathy, blood disorder, autoimmune disorder | I wouldn't recommend this drug to my worst enemy. If you would like this drug taken off the market or at least its use limited, please go to: WWW.Petitions2congress Letters will be sent to your Congressmen and President Obama | F | 38 | 2 months | 5/27/2009 | 1 | breast cancer prevention | heart palpitations, anxiety, blurred vision, extreme depression, sucidal thoughts. | I would never give this drug to anyone. I thought the side effects were horrible and that is after already going through chemotherapy which i think was easier on me than taking this drug. | M | 38 | 7 months | 1/4/2010 | 1 | IVF | Fatigue, exhaustion, depression | Had to take for 14 days before IVF cycle and another 14 days after. Hate it. Makes me completely exhausted, cannot function during the day, have to lay down and take naps. Depressed, weepy, no motivation | F | 38 | 14 days 0.5mg/day | 7/1/2020 | 5 | endometriosis | hot flashes-now having some nausea but unsure if related to this | my incisional pain(my endometriosis set itself up in my c section incision)felt like a brand new incision each month and had gotten to the point of lasting 9 days or so and also started causing severe back pain-this injection has given me now 4 pain free months and i am ecstatic-i am preparing for my second injection next week... | F | 37 | 120 days | 9/9/2008 | 5 | Fibroids | Hot Flashes, minor mood swings, insominia, minor joint pain. | I started taking Lupron in January 08. I have had 3 shots now and I feel great. Yes, I do get the hot flashes and I do have some minor mood swings and a little bit of joint pain. In all it is worth it for me. I had a blood transfusion in December and one in January from bleeding from the fibroids. I am very thankful that my doctor that I have currently gave me the option of Lupron. My fibroids have gotten smaller and I am getting a hysterectomy in August. I occasionally have some minor spoting and after my first shot I bled like crazy for 2 weeks then it just went away. I would do it again if I had too. | F | 37 | 6 months | 6/13/2008 | 5 | endo w/ cronic pelvic pain | pain, bloating | I had surgery in Feb. 07 found lots of endo. Took 2 Lupron shots 1 April 07 other in July 07. So I did not have a period from Feb. 07 until Feb. 08. That was the WONDERFUL part. I hated all the hot flashes. Unfortunately I have to say that in Feb. 08 and March 08 periods were bad to the same chronic pain problems w/ major bloating. While on Lupron I was not bloated at all either. So now tomorrow we go and schedule for a complete hysterectomy. A friend of mine that works at the Drs. office went thru the same thing and after she finished the Lupron shots her symptoms came back as well | F | 37 | 6 months | 3/23/2008 | 5 | endo | hot flashes, some fluid retention | I take a monthly shot and have been on Lupron for 5 months, have 1 more month to go. My endo was reduced by 50% at 3 months. I read this site and was very frightened to take the drug but am glad I decided to try it. Worked well for me. | F | 37 | 5 days | 3/20/2007 | 4 | Endometriosis | depression, hot flashes, night sweats, confusion, mood swings, weight retention, vaginal dryness, loss of libido. | Con't..... Yes this a DRASTIC change from your norm, but I think the outcome will be good health. It feels like a horrible price to pay (I feel awful daily & struggle to see the glass 1/2 full sometimes), but perhaps in the end we'll be healthier, pain-free, & even able to conceive if we choose. Try to do something positive for yourselves during this time. I encourage all to find a strong support system & seek out a consistent and healthy diet and exercise plan. I started nutrisystem to easily stay in control & turn any hormonal weight gains into maintenance/slow weight loss as well as continuing to exercise 5-7x a week. Chin up! What does not kill us makes us stronger. Love from L.A., Sailor | F | 37 | 3.5 months | 6/5/2007 | 4 | Endometriosis | depression, hot flashes, night sweats, confusion, mood swings, weight retention, vaginal dryness, loss of libido. | I have been on Lupron since February. This is the roughest ride ever on SO many levels! As the menopausal state the drug puts you in is extreme, I would like to advise all to keep in communication w/ your doctor about ALL side effects. My doctor has put me on a low dosage of estrogen to take daily, & I'm now "functioning" like a human being, (though not quite in top form), & many of the physical side effects have subsided. I'm looking forward to the time (hopefully 4 months or less) when I am feeling like myself again. I remind myself daily there is a light at the end of the tunnel. Although the Lupron sentence feels long and unfair, I would like to tell you all the same. I'm lucky to have a great support system. An OB/GYN that truly cares, a great therapist, an empathetic mother, a boyfriend who knows I am not myself & reminds me this is all temporary, & good friends who can't grasp it but listen intently. Yes this a DRASTIC change from your norm, but I t | F | 37 | 3.5 months | 6/5/2007 | 4 | Endo, cyst, pel pain, heavy bleed | Hot flashes and night sweats,impaired memory, fatigue, dry skin, heavy bleeding (for about 7 days), depression and mood swings. 1st shot on my butt and the 2nd on the deltoid muscle. The pain went away faster with deltoid muscle; severe headaches, especially the first few days of the injection. Sometimes the headache went all day all night non stop, but it got better into the course. The vagina is dry and sometime itchy. The hot flashes got worse the 2nd month and the add-back therapy with norethindrone didn't seem to help at the beginning, but after 2 weeks, hot flashes decreased. I feel really tired the first few weeks and still now, but learn how to deal with it. Women say they gain weight on Lupron, I went from my normal 98lbs to 93.5 lbs in 7 weeks. And then after taking norethindrone, I go back to 98 lbs in 3 weeks. Memory loss is a big deal: I couldn't recall my ATM pin that I have for 10 yrs, had to use my credit card. I forgot appointments, conversations, things to do. I | After 1 yr on Mircette for heavy period/pain, I started to have more severe pelvic pain every day. Some day I would have pain for hours and it was so unbearable that I would clench my teeth and my hands to sustain the pain while I was at work. For over a year, after many nights waking up to take ibuprofen and not 1 day went by w/o the pain, I reluctantly agreed with my doctor to take Lupron. 1st shot (3.75 mg, once a month) on 2/13/08, 5 days later, I started my period and then the bleeding got heavier and heavier. Day 6 or 7 into the bleeding, I would sit on the toilet for 1/2hr and every few minutes a gush of blood clot just flushed out of my body. I had to change pads every few hours and I thought that I would bleed to death. I emailed my doctor about that and she replied if the bleeding soaked 1 pad per hour and for 3 hrs continuously, check in with urgent care or page her. Along with the bleeding, I also experienced cramping and pain. But just on the evening of day 8, the bleed | M | 37 | 57 days | 4/9/2008 | 4 | Endometriosis | No side effects. A few the first week, nothing bad. | Feeling so much better. Cut my pain meds from 6 a day to 2 a day. Lost 10lbs in a month. Feel better mentally and physically. More energy and back to running again...I missed that. | F | 37 | 2 months | 2/6/2008 | 4 | Fibroids | Migraine and couple of hot flashes, but let's say I already had those before... Everytime I get the injection, I get sore a bit around it but that's it ;) | I am 37 and taking this drug because of my anemia...so much bleeding I couldn't leave the house for 5 days. I had breakthrough bleeding and was driving me nuts. But now I barely have anything. I did have a period the first month and really bad but I never have pain while I have them. I workout 3 times a week and really take care of myself. My life is general is very good. I have 2 fibroids 9 cm size I hope the shrink and gives me a break for a while. I might try for a second child or have my uterus remove, will see. Good luck. | F | 37 | 2 months 3.75 mg 1X day | 12/16/2010 Patient History | 4 | Severe Endometriosis | minimal hot flashes, night sweats, loss of sex drive | I had my second of three shots on May 12, 2010 and so far I have been pain free. I would take the side effects that I am having over the pain I experienced for years. I have not gained a pound. I try to eat healthy, and exercise at least 3-4 times per week i.e. brisk walking for at least half hour using Leslie Sansone's walk-at-home program. I must say that I am happy with Lupron and what it has done for me. I guess everyone's body is different but some side effects can be controlled e.g. weight gain. I must mention that I have somewhat lost my sex drive but my husband understands and is very supportive. The priority right now is knowing that I am feeling much better. This too shall pass. | F | 37 | 2 months 1X M | 5/18/2010 |