LUPRON Reviews (LEUPROLIDE ACETATE)Average Rating: 2.7 (853 Ratings)Filter ResultsCompare LUPRON with similar:
Type: Rx Drug
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Results are sorted by Age oldest to youngest. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 41 42 43 |
More on LUPRON: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR LUPRON | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Endometriosis | Caused campomelic dysplasia of my first baby (it was fatal), I have severe degenerative disc disease, anti MAG neuropathy, malignant melanoma twice, kidney stones, migraines, heart arrhythmia, | This drug has ruined my life. I took this drug almost 9 years ago, I was a healthy normal individual before this. It killed my first baby, and then within a span of five years I've had 4 spinal surgeries, my spine is now almost 2/3 metal rods and screws. I've had malignant melanoma twice 12 months apart, I have an auto immune related neuropathy that leaves me in excruciating pain, I get kidney stones on a regular basis and have had to have multiple surgeries, I've developed a heart arrhythmia, frequent migraines, and Luoron never took the endo away for me, I had a hysterectomy at 31. I'm now 36 and on permanent disability. It's like winning the power ball of medical problems, and all of it started after Lupron, just because you feel good now, doesn't mean you're going to stay that way, run far far away from this poison, the truth is going to come out! | F | 36 | 6 months 1X M | 2/11/2012 | 1 | Uterine Fibroids | Mood Swings, hot flashes, dizziness, blurred vision | If I would have known not only the side effects but also that it would not help shrink my fibroids (I went from having two to four total and the one is bigger than before) I would have never got the shot. I have had moderate hot flashes and most of the time upon standing and sometimes after I have been up for a while get a little dizzy. I have also experienced numbness in my arms at times. The worst experience for me is the mood swings. I will be fine one moment and can be crying my eyes out the next. Unfortunately (along with a few other reasons) the mood swings became too much for my boyfriend to handle (and yes he has said that) and he broke up with me, so you can just imagine how that has affected my moods and emotional stability. If I HAD ANY IDEA that all this would come from getting the shot(s) I WOULD NOT have ever got them!! The only thing I look forward to is that in less than a month the second shot should be wore off and hopefully the side effects disappear... | F | 36 | 6 months 1X O | 11/20/2011 | 1 | Pain with intercourse/ endometriosi | SEVERE DEPRESSION, night sweats, hot flashes, neck pain | I work in an OB/GYN office. I had been diagnosed with endometriosis causing my pain with intercourse three years ago. I was taking continuous OCP's and the pain was tolerable. Then the pain level statrted to increase. I was considering a hysterectomy, and my doctor convinced me to try Lupron. At first I thought it was a gift from God. ALL my pain was gone I felt great. Never so happy in my life, for about a month. Then over the next month I started to feel more and more depressed. I got my thrid shot and had a complete breakdown mentally. I almost ended up in the hospital.Severe episode of anger outburst threatened to kill my boyfriend, kill myself.... followed by a two hour crying spell. If my boyfriend hadnt been here I dont know what would have happened. I have NEVER had any other episodes of depression or anger issues prior to this medication. My PCP took me out of work and I am currently on Estrogen repalcement to try and counteract the effects of the lack of estrogen caused by the Lupron to see if I can bring my mood back to normal. I am feeling a little better. I will not be having any more injections, I am only hoping that after this month it will be mostly out of my system and my estrgen levels will return to normal. I am also having very severe neck pain and after reading some other posts on here now believe that is also from the Lupron as well. Be very careful if you decided to use this treatment. If you start to have symtoms of depression make your Doctor aware a | F | 36 | 3 months 3.75 1X M | 10/12/2011 | 5 | Endometriosis | Hot flashes | I was taking Lupron for 5 months due to endometriosis. I got my last shot one month ago and so far I feel as good as on the Lupron. So, during 5 months of treatment I was taking multivitamins (once a day/daily) plus calcium, magnesium, omega3 (3 times a day/ daily). I do not know which one of those helped but I NEVER had any side effects except hot flashes. Note, depression runs in our family. | F | 35 | 5 times 30 mg 1X M | 5/25/2011 | 5 | endometriosis and ovarian cysts | mild hot flashes, mood changes (depression, irritability), acne, weight loss | My experience with Lupron has been a positive one. I have hot flashes daily but they're pretty mild. No night sweats. I have a history of depression and needed to go back on Zoloft around the 2nd week of the first shot because of irritability and frequent crying spells. I felt better immediately. I expected to have weight gain but I actually began losing weight, about 5 lbs total. The worst side effect for me has probably been the acne. It's very stubborn despite using tretinoin cream and metronidazole cream to my face. Lucky for me, I haven't had any of the nightmare side effects some people describe. No pain, no memory loss, etc. I'm taking 1 shot/month x 6 mos. | F | 35 | 5 months 3.75 mg 1X M | 10/19/2010 | 5 | Severe endometriosis with cysts | Nothing bothersome. Very mild hot flashes. Mild vaginal dryness. If I were sexually active, I might to ask a doctor for a special lubricant, but I'm happy to have less discharge. I also have less acne. | I had almost no pain from the endometriosis until cysts started to leak, so I was very reluctant to take a drug with such a long list of possible side effects. But now a week after injection #4, I still feel fine. If your endo is mild, there may be better options for you, but 2 different doctors recommended this drug for me, to prevent the cysts from recurring after surgery. After 3 more months I'll go on something else. It's not a cure, but whatever helps, I'm happy with. I get a lot of exercise, healthy diet, and good supplements, so that may help. | F | 35 | 3 months | 3/6/2007 | 5 | Severe endometriosis with cysts | Nothing bothersome. Very mild hot flashes. Mild vaginal dryness. If I were sexually active, I might to ask a doctor for a special lubricant, but I'm happy to have less discharge. I also have less acne. | I had almost no pain from the endometriosis until cysts started to leak, so I was very reluctant to take a drug with such a long list of possible side effects. But now a week after injection #4, I still feel fine. If your endo is mild, there may be better options for you, but 2 different doctors recommended this drug for me, to prevent the cysts from recurring after surgery. After 3 more months I'll go on something else. It's not a cure, but whatever helps, I'm happy with. I get a lot of exercise, healthy diet, and good supplements, so that may help. | F | 35 | 3 months | 3/6/2007 | 5 | Endo Stage IV | Hot flashes, sleeplessness, weight loss | Had laparoscopy. A lot of small chocolate cysts, adhesions and scar tissue removed. I'm on Lupron for 4 to 6 months then moving to IVF. I've had 3 injections so far. Overall, I feel better than ever. I'm almost nervous to go off of it. | F | 35 | 3 months | 8/12/2009 | 4 | Fibroids causing anemia | Some hot flashes. A little fatigue, complete loss of sex drive. a little foggy in the head. Weight gain maybe - not sure?? | I was freaking out after the dr. prescribed this for me. Begrudgingly I took the shot. I have 2 submucosal fibroids which are about an inch around. The worst side effect I experience is the fogginess. I search and search for the right word and it never comes. The pros far outweigh the cons - this drug has turned me around to prepare for myomectomy. I was bleeding so heavily before lupron that I had to receive a transfusion. I was in and out of the ER. Long story short - I have since switched drs. New dr will do myomectomy and hysteroscopy (yeah!) Old dr. wanted to "try out" different birth control pills which do not work because fibroids have more estrogen receptors than normal uterine tissue and they feed off of those pills and just grow and grow. I am off of bcp's, and on my 2nd injection - the bleeding has stopped completely. It took a few weeks for that to happen. After the first shot, you should get a period within about a week. Mine lasted for about 4 days, tapered off to nothing. NO MORE BLEEDING!!! The reason for this is your uterus is shedding all of the extra stuff that has built up. I just had the 2nd shot last week and my stomach is now flat and I have no more fibroid pressure. I literally feel like my uterus (which was enlarged) is smaller. I really think the key is to exercise every day, take your iron, calcium and daily vitamin and REALLY watch what you eat. Yes, it is a lot of work, but I have not gained an ounce, in fact I have los | F | 35 | 6 weeks | 7/29/2009 | 4 | endometriomas | hot flashes, insomnia, decreased pain | After reading different reviews I was terrified to start Lupron as so many people had such negative things to say. Fortunately my experience was positive. My endometriomas shrank significantly and as a result I did not require surgery. My pain also decreased. Staying well hydrated helped to reduce the hot flashes. I would definitely recommend trying Lupon before agreeing to any surgery. | F | 35 | 6 months | 4/25/2009 | 4 | pre-surgery endometriosis ablation | hot flashes/night sweats, palipatations, brain dead, headaches, decreased sexual desire, vaginal dryness, joint and muscle pain, insomnia, fatigue | Just ending my two months before surgery. Hope the symtom are gone within a few weeks. The joint and muscle pain have been steadily increasing and are now almost unbearable but I hope it starts getting better. | F | 35 | 2 months | 8/13/2008 | 4 | Infertility | Hot flashes, interrupted sleep, weight gain, dizziness, headache. I am also diabetic and it seems to lower my blood sugars. | This drug worked for me, we have a healthy baby boy. | F | 35 | 14 days | 10/4/2008 | 4 | ENDOMETRIOSIS | I had one of the worst periods I have ever had 3 weeks after the first injection. I have actually lost 10 lb since the first shot. It is definitely helping me. Before I had so much pain it was a constant issue. Now I feel much better and am way more sexual active since it hardly hurts anymore. I did have the joint pains in the first month, but I think it was worth it so far. | F | 35 | 3 months 1X M | 5/25/2011 | 3 | Endometriosis | fatigue, insomnia, mood swings, severe muscle/joint aches, migranes (only a few), blurred vision (comes & goes), high blood pressure, hot flashes, night sweats. | I'm in my 3rd month of treatment. While the shot has taken away all of my pain and bleeding, it has left me with more side effects than I care to have. After suggestion from my doctor to try the ad-back therapy, I decided to try it...what could it hurt. But the side affects from the ad-back were actually worse than that of the side affects of the Lupron. Worse hot flashes, extreme mood swings, and horrible insomnia. After 1 week I stopped the ad-back and I am patiently waiting for the next 3 months to quickly pass and hope it has taken care of the issue. Next step for me is surgery. I would only recommend Lupron as a last ditched effort to save your Uterus and Ovaries. Try everything else first. If I had to do it all over, I would still suffer through these side affects rather than have the pain/bleeding or a radical hysterectomy at 35. | F | 35 | 6 months 3.75 1X W | 2/22/2010 | 3 | fibroids | hot flashes, joint pain, moodiness, forgetfulness, lack of interest, anger, paranoia, constantly tired but can't sleep | My Dr. recommended that I take lupron prior to myomectomy. He told me that I would experience menopause like symptoms. Nausea started immediately and has been continuous, especially following the shot. Hot flashes started in month two and have gotten progressively worst. Severe joint pain in my lower back, knees, and ankles. The worst symptom has to be the mood swings. I dont know if they have gotten worst or if I have gotten increasingly frustrated with it. I think it will have all been worth it if I can get pregnant after I heal from my surgery! | F | 35 | 4 months 3.75 1X M | 7/1/2011 | 3 | Endo | Too early for me to say. I am hoping to have mild side effects but after reading all these comments I am concerned. | I had my 1st shot on 7/19/07, so this is still all new for me. I am doing the add back therapy which is suppose to help with the side effects. I had the Lap surgery in May and it seems that my periods have got worse after the surgery so I am hoping for some kind of relief with the Lupron shot. I am really concerned after reading all the negative side effects of this medicine. I have also been trying for the last year to get pregnant with no success. So, I was told after 6 months of Lupron I should have a good chance. | F | 35 | 1 days | 7/20/2007 | 3 | endometriosis | headaches, hot flashes -- i am still very early in the process | After reading this forum, I had decided not to use this drug. I spoke with a nurses who was experienced in its use and some other doctors whp felt like I should proceed and that side effects are rare. Not to negate anyone's experiences here, but I decided to start a daily journal to give people a daily perspective of what this drug does. I have no idea how it will turn out, obviously. The link is http://lupronjournal.blogspot.com. I wish everyone peace and a successful treatment. | F | 35 | 4 days | 3/17/2008 | 3 | ENDOMETRIOSIS-PCOS | MIGRAINE, JOINT PAIN, BLOATING | I have taken 1 3 month shot and due for my second. At first, my symptoms of endo were really bad if not worse then I have noticed in the last couple of weeks that the pelvic pain is gone but the joint pain and abdominal bloating are my biggest problems now. I had a couple of migraines the first month but none since then. over all I think Lupron has helped with my endo but I am now concerned about joint pain and the swelling of my tummy. I plan on seeking advice from an endocrinologist (not sure if I spelled that correctly) since I have PCOS as well. Also will be making an appointment to see a gastroenterologist to check out the bloating. | F | 35 | 3 months | 10/5/2009 | 3 | ER positve Breast Cancer | I am taking Lupron as part of the Hormonal Treatement plan instead of taking Tamoxifin. Lupron as put me in "menopause" and enables me to take Arimedax for Post menopausal treatment. I have received the Lupron injections since 9/2005 and have no periods since. Would prefer not to be on this med as I am very concerned about the 'long-term' effects. | Pros: no periods, No Breast Cancer!! Cons: weight gain especially in the mid section, water retention, insomnia (very bad), joint aches, back ache, hot flashes, and real difficulty with an exacorbation of depression with irriatability, low mood, some mood swings, impatient. This has been the most difficult piece with this medication. You really have to weigh the pros and cons as it can become a quality of life issue. For me it is Lupron with Depression symptoms and knowing that it is not likely that my Breast CA will return or stopping the med and concern of a reoccurance. | F | 35 | 4.3 years | 11/12/2009 | 2 | pelvic adhesions, edonmetriosis | Mood swings, hot flashes, fatigue, joint ache, I felt 50 at 30. Very tiring. I went through years of pain went on lupron hell for 18 months only to be pain free for 25 months. I was told to repeat Lupron and did not want to. I went to chiropractor for something else and had several adjustments and was informed maybe this would help with the bladder and female organs. I thought yeah right. I am here to tell you I am pain free now and a true believer. Before trying Lupron try a chiropractor it has less side effects. | F | 35 | 18 months | 1/17/2008 |