PROLIA Reviews (DENOSUMAB)Average Rating: 1.4 (285 Ratings)Filter ResultsCompare PROLIA with similar:
Type: Biological Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
Charts & graphs: Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PROLIA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | osteopenia | severe back pains on side where shot was given. | will never take again | F | 77 | 2 times 1X O | 4/14/2016 | 1 | For osteoporosis | Was told there was no side effects. Have had Skin cellulitis, breaking out different places; pneumonia which i never before had in my life. Tired all the time. Wouldn't recommend it at all. | Wasn't given any papers about side effects. | F | 82 | 1 days | 4/13/2016 | 1 | osteoporosis | Sores in my mouth cant bite a sandwich extra pain in my thigh thought pain couldnt get any worsre and doctor in the huff as i wont take any more | F | 50 | 6 months ? | 4/13/2016 | 4 | Osteoporosis | I was scared to death to have this injection. But my dexa scan showed a 20% bone loss in my hips. I have fibromyalgia, cfs, and various other autoimmune illnesses. I also have horrible reactions to most medications. The nurse at my rheumatologist's office couldn't have been nicer. The shot was painless. She allowed me to sit and talk with her until I felt comfortable enough to leave. I was a bit achy the next day, but nothing that Tylenol didn't help. So far, so good. People are usually inclined to note the negative. It's only been 4 days since my injection. I'mean no longer fearful, and hope I can rebuild my bone mass. | F | 57 | 4 days 1X O | 4/8/2016 | 3 | Senile Osteoporosis | These injections HURT!! Then it burns for a few days at injection site. | They can't be given in the muscle, but in the arm area where most people have some fat. I don't really have any fat, and it's really painful to get. Then the injection site burns for a few days afterwards. Other than THAT, knock on wood, I have not had any other side effects that I'm aware of. I've had 3 shots so far, get my 4th in July and a follow up bone scan next January to see if it's working for me. | F | 46 | 60mg 2X O | 4/1/2016 | 1 | lightheadedness | I received Prolia for the first time on March 9, 2016 @ 9 am. I felt fine all day until about 4pm. My head felt light and I went to bed. About 10pm, I didn't feel any better. My daughter contacted the Arthritis Doctor. He suggested I take 2 Caltrate Calcium with Vitamin 3 and to repeat the dosages in the morning and I did. By morning my head was very light. My daughter called the doctor and he seemed puzzled and suggested that I have my problem checked out. I went to ER and had to use a wheelchair to go inside. After chest X-Ray, sonogram on my neck, sonogram of my heart and a MRI of my brain, all tests were negative. My lightheadedness and weakness of my legs did not improve. I remained in the hospital until March 15, 2016. The lightheadedness didn't improve until March 22, 2016. I saw my Primary Doctor and the Arthritis Doctor on March 21, 2016. Neither one did not have any idea as to what was wrong. I was still using the walker. The Arthritis Doctor said he would not recommend Prolia again. Today,March 27, 2016, I able to walk a little without the walker. I have been exercising my legs and will have physical therapy on Monday, March 28, 2016. It has been hard being very active one day and to not doing anything for over two weeks. | F | 74 | 1 times 1X day | 3/31/2016 | 5 | Osteoporosis with spinal fractures | NONE | Best bone builder out there. No fractures since 2011 | F | 76 | 4 years 60mg 2X O | 3/28/2016 | 1 | Osteoporosis | Excruciating pain in lower back and left hip, pain in left shoulder and eczema on many parts of my body | After having stomach and back pain while taking Fosamax and then Boniva, my doctor recommended taking Prolia. She said she had some patients on it and they weren't experiencing any problems. I was very hesitant to take it because of my experiences with the other drugs. Didn't want to have the same side effects and then be stuck with them for six months! So I researched Prolia and read some negative and positive things about it and waited about a year to finally just do it. But guess I'm one of the few who can't tolerate it. I have never ever...even after having 4 children...experienced such excruciating pain!!! After the first shot, I had slight back pain about 2 months later. After the 2nd one I had slightly more pain. After the 3rd one, December 3/15, I had the same pain but for a longer period. But 1 week ago today I was in the most excruciating pain ever, and have been flat on my back in bed ever since...crawling to the bathroom because it hurts too much to walk! If anyone has any suggestions for how to relieve the pain...other than Advil etc...which doesn't really help...please email me. I am done with any osteoporosis drugs and will figure out a healthier way to strengthen my bones!!! | F | 57 | 1.5 years 60mg 1X O | 3/11/2016 | 1 | Osteopenia | Fatigue, increased heartburn, lower back pain, headaches, ear pain, swelling foot | Had one injection won't have another one | F | 69 | 2 days | 3/8/2016 | 1 | Osteopenia | My legs are so weak, I struggle to get up off of a chair, kneel, climb stairs, and even walk. Hips, back and legs ache. Burning, tingling feet at night. First and last shot. | I refused the shot initially, but my doctor insisted. When I was due for my second shot, he insisted I get it again from my GP, who absolutely refused to give it to me. She said she did not want to be liable. Hmmm. | F | 75 | 6 months 60 mg | 3/7/2016 | 1 | Osteoporosis | 1st injection had terrible back pain for 2 weeks but went away, 2nd injection has been a living hell..after one week my right leg just stopped moving and I fell face first into kitchen counter. I've had severe bone pain, wakes me in middle of night..I continued to fall , sometimes 2 to 3 times a day, went to emergency room twice, had 3 cat scans and an MRI, no findings..this last 3 weeks I have a horrible rash or hives, my skin is purple, black and blue from scratching...I was active and walked everyday. | Don't take Prolia, it has changed my life, I don't know if it will ever leave my system.. | F | 73 | 1 years ? | 2/23/2016 | 1 | Osteoporosis | Ear congestion and severe posterior nosebleeds. | Never again. | F | 62 | 1 months 60 mg | 2/15/2016 | 1 | Osteoporosis | BRONJ Endless infections.. . UTI , chest. Low immunity Generally unwell low energy Memory loss | Hideous toxic drug | F | 62 | 2 years | 2/14/2016 | 1 | osteoporis | I take prolia shots 2 x yearly. Prior to starting prolia my carotid arteries in 2008 were clogged at 35% left carotid and 30% for the right. Now an arteriogram shows both severely clogged with my left carotid at 80%, surgery is scheduled 19 Feb 2016. Taking the prolia is the only lifestyle change that occurred. Could Prolia have contributed to the carotid artery stenosis. | I have taken 7 prolia shots and in March 2016 will take the next one if I decide to continue. I would be interested to know if anyone else has the clogged arteries after taking prolia for a while. | 73 | 2X O | 2/12/2016 | 1 | Extreme hip, groin and back pain about 45 days after shot. Stress fractures of sacrum seen in MRI and bone scan. Was extremely active before and now use Walker/cane. Dr says not Prolia. PT helps with muscle pain but not all pain. On pain meds | I was not given any written info about Prolia before shot. Feel lucky so far no dental issues but feel very unlucky to have taken Prolia. | F | 68 | 120 days 1X O | 2/11/2016 | 1 | Osteoporosis | My doc had someone call from his office to try to get me to take prolia. I declined. I believe they are getting kickbacks for recommending this dangerous drug. It's only supposed to be used for people with bone cancer. Thank you ladies for all of your reviews- you have confirmed my fears and suspicions regarding prolia and the other bone density drugs. They're all dangerous, have terrible side effects and they don't prevent fractures. Some seem to cause them. No discussion of what factors are causing my early osteoporosis or alternative safe treatments such as diet, supplementation, weight bearing exercise and in my case more testing and starting hrt again. I'm also eating 100g of prunes per day- read the study: the women who ate prunes had increased bone density with no suppression of the bone making process. Supplement vitamin k2 with vitamin D3- k2 makes sure calcium is absorbed into the bones. Get your calcium from food not supplements. Supplement minerals- you need 1part magnesium for 2 parts calcium. Go online and read about alternative treatments for this. Doctors should be ashamed to be poisoning patients with prolia and these other drugs. | I won't be taking it. | F | 54 | 1 days | 1/30/2016 | 2 | Osteoporosis | Within 1 week of my 1st injection I started picking up various viruses after being virus free for the previous year,that along with serious fatigue and flu like symptoms, and over the followig months-increased lower leg bone pain with weakness. +more | Including one virus in my mouth bringing sensitivity and tissue changes/patches along the side edges of my tongue which freaked the dentist out and almost made me get a biopsy for cancer. Cleared after 3 months, my tongue remains sensitive. The injection location on my arm stayed red and swollen the same amount of time I had these viruses, then disappeared. Strep-like. I had in my lifetime a previous bout of Epstein Barr and the theory is the injection lowered my immunity enough to reactivate mono. I am not dissatisfied, but I cannot take 3 months of that after each injection. Also an unusual finding showed up on my bloodwork about a month after injection, which was never there before, called monoclonal gammopathy which can be a precursor to multiple myeloma. Like others, I had increased, significant lower leg pain this year- bone pain. I attributed it to my osteoarthritis, but I am wondering if the increase in pain and weakness in my legs was caused by the Prolia. I am hesitant to blame Prolia because along with osteoporosis I have Degenerative disease in my spine and other related issues. From reviews on here I expected big spikes in my pre standing pain, but I only experienced my normal pain except my legs increased. I have enough issues without new ones, so after I talked with the dentist (I have some pre standing dental issues) and enough things to focus on wellness already.I will Instead focus on Vitamin D and K2 supplementation along with weight bearing activity | F | 56 | 1 times Standard i | 1/17/2016 | 1 | osteoporosis | Very painful left arm,bad chest infection. | F | 74 | 1 months 60mg | 1/16/2016 | 1 | osteoporosis | Within two months of the first injection a boney tumor began to grow on my right eye socket where eyebrow meets nose. Within weeks of the second injection the tumor doubled in size and a second one began to grow over my left eye. I have been to the Mayo Clinic and seen many experts. Will have a biopsy of the first tumor in January. Consensus of a variety of specialists is that "it that it quite possibly is the result of the Prolia." Timing of the tumors appearances coinciding with the Prolia shots is the only confirmation as no doctor seems to know much about Prolia. | I wish I had never taken it. It did increase my bone density by as much at 24% in my hip in LESS than one year. What drug works that well? It has to be doing damage in other locations. In my case the appearance of bone matter tumors on my eye sockets. | F | 69 | 1 years 2X O | 1/5/2016 | 1 | osteoporosis | was prescribed two shots per year. had first one and started with body pain/jaw problems. doctor gave shots in hip area saying it had nothing to do with prolia. felt so bad cancelled 2nd shot. doctor was very unkind to the fact i cancelled. had to have two teeth extracted in the next two years. then went back and got another shot in 2014. now experiencing full body pain. doctor still professing it had nothing to do with prolia. finally this year i had to have what teeth i had left all extracted. my dentist surgeon wanted to know the exact date of my last injection which i gave him. he then told me just how bad this drug really is and how dangerous it can be with having to have teeth extracted. he had nothing good to say about this drug. my family doctor seemed to think i had fibroymyalgia. she retired and now i have a new doctor who also said all the symptoms i am showing are from the prolia. just wonder how much Blythe Danner is getting to do her commericals???? | get it off the market! | F | 78 | 2 years 1X O | 12/29/2015 |