PROLIA Reviews (DENOSUMAB)Average Rating: 1.4 (285 Ratings)Filter ResultsCompare PROLIA with similar:
Type: Biological Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
Charts & graphs: Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PROLIA | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Osteoarthritis | Not sure | Is it normal to lose some of the med when having the injection | F | 56 | 3 times 60mg | 8/28/2017 | 1 | Osteopenia | Had my 3rd shot. No problem with the 1st 2. Not so lucky with this one. Having horrible bladder problems. So far 2 visits to the Urologist. Have tried several different meds for OAB. Nothing seems to work. Lido-cane in bladder didn't work either. Going to work is a nightmare. Will never get another shot again! I have contacted the FDA. | Please do your research before you consider this drug. After reading all these reviews I can't believe this is still on the market. I guess drug companies just care about the $$. | F | 63 | 18 months 2X O | 8/26/2017 | 1 | Osteoporosis | 2-17-2017: 1st Prolia shot. Next day got severe flu symptoms. Lost weight, 6 pounds! 3-29-2017: Asked my doctor about my flu symptoms and extreme pain. I was told Prolia NOT cause of reaction and to stay on it because good for bones. 4-2-2017: Blisters and canker sores developing inside my mouth. Very very tired. Rough skin spots on arms, forehead. Stomach issues. I am sure it is a reaction to Prolia. I am almost 2 months into it. 4-18-2017: Developed horrible aching in upper left arm and shoulder. Pain is now moving right arm. VERY foggy in head. Little desire to do anything except eat and watch TV. 4-21-2017: Back teeth are really aching! Left arm is getting much worse and spreading to neck and upper left back. 4-24-2017: The pain from my shot arm has moved deep into left shoulder and neck. I feel like I am suffering from whip-lash! 4-30-2017: Getting worse! My left hand and arm are becoming weak. Difficult to hold weight in left hand. Continue ---> | 5-2-2017: Left hand is very weak & left arm moves slowly. I need 2 hands to hold things. Upper teeth in my right jaw are aching again. 5-3-2016: Upper right teeth hurt badly with lots of swelling in the gum! 5-4-2017: Called dentist and made appointment. I know cause is the shot! 5-6-2017: Feel sick all day. Upper left arm and shoulder in chronic pain! Now back-of-neck VERY sore! Sleeping all day and night. 5-11-2017: So depressed! 5-12-2027: Woke up and so sleepy, went back to bed and slept until after 1pm. 5-16-2017: Shoulder ache keeping me awake. Neck too. Now shaky leg syndrome. Can't sleep. 5-17-2017: My left hand is tingling again and almost locked up on water bottle?? 5-18-2017: Went to my dentist on recomendation of my doctor. Dentist said "If only 1 tooth inflamed then it would be a dental issue" but not that. He saw whole row of teeth inflamed at the gum line, leading him to say "could be reaction to medication." 5-20-2017: Inflammation moving to right shoulder, and still all over left side and spine. Left arm and hand still week. Can't lift milk up to top shelf without right hand support. Reading and comprehending sentences now difficult. 5-22-2017: Another sleepless night due to extreme pain. It's like shards of glass are embedded in my upper left vertebrae. Please Lord, make it go away. 5-28-2017: I have given-up. Today I ate a lot of ice cream. 6-1-2017: Finally improving a little. | F | 70 | 6 months 1X AN | 8/23/2017 | 1 | Several osteoporosis | Several back pain joint pain muscle spasms rash sweats. Flu like symptoms. No energy. | Would never do it again. | F | 63 | 50 days Don't know | 8/16/2017 | 1 | Osteoporosis | I experienced severe hip and groin pain, tingling numbness is both hands and feet. Weakness through entire body. Had numerous blood tests, cat scans and MRI showing nothing wrong. When I went through my medical history I discovered all my symptoms occurred after my prolia shots. | I WILL NEVER HAVE ANOTHER SHOT AND STRONGLY RECOMMEND ANYONE THINKING ABOUT TAKING THIS DRUG TO RECONSIDER | F | 4 times | 8/15/2017 | 1 | Osteoporosis | Mouth, throat and tongue ulcers, When one leaves another comes. | Prolia has improved my overall dexa scan by 6% now osteopenia, however the side effects are unpleasant and painful. Hip, knee and finger pain, along with the mouth ulcers. | F | 60 | 2 years 1X O | 8/9/2017 | 1 | osteoporosis -3.7 | Severe hip and leg pains | Had no side effects after first shot, but within hours after the second shot had mild flu-like symptoms, which cleared up after a few days. A few weeks after the second shot, I began to have left hip pain, no mobility in that hip. Thinking it was something I had done in the gym with my trainer, we limited our workout. Pain did not improve. Then the right hip began to act up, too. Now, about two months after the second injection, I can barely walk. Pain is so severe at night that I can't sleep. I've been on osteoporosis drugs for for nearly twenty years (including Forteo, which gave me leg pains, but nothing like what I am experiencing now). I'm ready to give up. One thing is certain: I will never take this drug again. | F | 72 | 9 months 1X O | 7/28/2017 | 1 | Osteoporosis | I have osteopenia and suffered a stress fracture in my right heel. My doctors wanted me to start prolia. Unable to take pills due to gastric bypass. 1st shot no side effects. 2nd left groin pain but went away. 3rd shot severe right side groin, thigh, hip and back pain. Dictors did not believe it was the prolia. I waited 9 months fir the 4th shot because I was found to have lumbar disc disease pressing on a nerve. Doctors talked me into it and within 3 days my pain is worse then ever. I am beside myself. | F | 55 | 4 times 1 shot | 7/23/2017 | 1 | Osteoporosis | Generalized aches, moderate to severe shoulder, hip, back pain. | Initial dose of Prolia in May 2016. Second dose in December 2016. No side effects with first two injections. Third injection on June 9th, 2017. Ten days later experienced severe pain of shoulder which has spread to my hip and back. Also experiencing flu-like symptoms. It's now five weeks later and these symptoms persist. It gets more and more difficult to get out of bed. My doctors have no advice on what to expect or how to treat my symptoms except to use over-the-counter painkillers as needed. Will continue to take Calcium, Vit. D, and hope for the best. Nothing else to do since the drug will remain in my body for at least another 5 months. | F | 73 | 18 months | 7/14/2017 | 1 | Osteoporosis | I am feeling suicidal | F | 78 | 5 days | 7/10/2017 | 1 | osteoporsis | I have experienced most of the side effects. Weakened immune system-getting ill every 3-4 weeks. Flu like symptoms, pink eye, rash (which I thought was shingles), bronchitis, sinus problems, coughing, dizziness, problems walking, brain fog, hot/cold flashes, sciatica, gained10 lbs. quickly, frequent nausea, extreme fatigue, dental problems, low blood calcium, low blood protein, problems breathing. I just recently attributed these symptoms to Prolia. I have cancelled my 4th shot. And will never take this again.. | I would suggest to anyone to never take this drug. | F | 72 | 2 years 60 mg 1X O | 7/4/2017 | 3 | Osteoporosis-lumbar spine | Too much body pain to even start listing. Wasn't this bad before the Prolia meds. Hope it is actually helping my bone density.., if not, a total horrible waste of torture for nothing. | F | 56 | 7 months 2X O | 6/25/2017 | 3 | severe osteoporosis with fractures | None that I am aware of | After 11 years on Fosamax from 1997 thru 2008 with no known side effects,, I suffered 3 vertebral compression fractures 3 years ago, one of which was actually crushed. Started Prolia 2 years ago and thank God have not had any more compression fractures. Dr now wants me to try Forteo, Will see how that goes. | F | 83 | 2 years 1X day | 6/21/2017 | 2 | Osteoporosis | Started by tring oral osteo medication, which caused severe abdominal cramps for 2-3 days after each weekly pill, so doctor suggested the 6 month Prolia injection might be better tolerated. Just had my second injection, so don't know yet whether I am building bone density. About 1 month after first injection, developed severe anxiety. Doctor assured me this is not expected with Prolia, but took note. Symptom disappeared within a (horrific) month, and last 3 months of the first treatment there were no side effects. Three days after my second shot, I have abdominal cramping and diarrhea (3 days now), but feel fine otherwise. However.....since there are no solids left to pass after 3 days of every 30 minutes running to the bathroom, I am now leaking small blood clots when I cramp up. Doctor is on vacation, so I am managing on my own until I can talk to him, but if this is truly due to the Prolia, I will not have a third treatment. Cannot imagine how I am going to be able to go to work to | F | 61 | 7 months 1X O | 6/18/2017 | 1 | Osteopenia | Difficulty breathing, tightness to gain a full breath resulting in pain around sternum and rib cage. Swelling or tightness in back of throat made swallowing less natural to the point where my body didn't engage the swallowing mechanism. These side effects were the most difficult to experience - lasting approx 3 weeks. Other side effects lasting a day or so include the following: numbness in right hand and fingers, sciatica in right thigh, burned sensation on the roof of my mouth to the back of my throat, fatigue, and light-headedness. Now, a month later I am experiencing sudden weight gain. | I have had one injection of prolia. It is important that those describing side effects explain how long their symptoms have lasted. At this point, I am afraid to have a second injection, though my doctor feels that my body will experience less of a reaction. The inability to breath properly and not being able to catch my breath was frightening. The tightness in the back of my throat making it difficult to swallow was even more frightening, but this subsided more quickly than the breathing problem. | F | 66 | 1 times 1X O | 6/16/2017 | 1 | Osteoporosis | Swollen joints. Extreme joint and muscle pain. Jaw pain. Headache.Memory impairment. Weight gain. Fluid retention.Extreme fatigue. Hypocalcemia. Huperparathyroidism. Digestive disturbances . | Although I am not planning to take another shot, it will be months before this drug clears my system | F | 69 | 12 days 30 | 6/12/2017 | 2 | RA | F | 66 | 3 years | 6/11/2017 | 1 | Osteoporosis | No problem until 3rd shot. Projectile vomiting that night, couldn't sleep on my side any more. Was used to the chronic constipation from the first shot. Real problems started 10 days after the 3rd the 3rd shot, Prolia said that was the peak day. Unable to focus thoughts and very light headed, felt like I was going to pass out. Loss of appetite. Went home and laid down. Next day, still can't function normally. Feel like I am in a fog. | I took Prolia to keep from breaking bones but until this med is out of my system, I'm afraid I'll fall down because I'm dizzy. I want my life back. $2600. for shots that are destroying women's life, Shame on you. I'm sitting here trying to work and all I want to do is go home and get my feet up higher than my head. If there is a class action, I'm in. | F | 59 | 1.5 years 60 mg 2X O | 6/7/2017 | 1 | Osteoporosis | First dose. Initially pain at injection site. Six weeks later -debilitating stiffness and excruciating hip pain, followed by nausea, fatigue, and generally feeling unwell. Difficulty standing and walking. Aged 10+ years over night. | F | 81 | 1 times 1X O | 5/16/2017 | 1 | Ostopina | Just had my 4th shot, 1 every 6 months. My oncologist down played the side effects. I have an infected tooth and my oncologist said the side of effect of ONJ, the bone comimg out of the jaw so that it is exposed, is too high of a risk to get the tooth removed. This drug makes it so the bones in your jaws dissenergrate and the gum doesn't heal and the bone in your will become visible and infected. (Google it). The doctors must be getting a kick back from Amgen when they prescribe it. At first I did fine now I don't want to walk, play tennis or do fun things with my kids because I feel like I have the flu and my right arm hurts. When I wake up in the morning my teeth feel akward. Two years ago I read the side effects in the literature from Amgen and ONJ -jaw rot was a rare side effect now Amgen says it is a common side effect. Stay away from this drug...after 2 years you will be lethargic, 15 pounds heavier, your teeth will feel loose, your skin will be flaky, your bones will ache. I take the calcium supplements with vit D too. Don't let Amgen say your are having these side effects because you're not taking calcium. Finds other ways to get your bones strong. Amgen just wants money..this drug is very expensive. | The side effect of ONJ is horrible! Shame on Amgen for creating this drug and the doctors for prescribing it. I hope the CFO and the President of Amgen along with my oncologist get ONJ l and wake up every day feeling like their teeth are going to fall out. | F | 52 | 2 years Injection | 5/12/2017 |