PLAQUENIL Reviews (HYDROXYCHLOROQUINE SULFATE)Average Rating: 3.2 (667 Ratings)Filter ResultsCompare PLAQUENIL with similar:
Type: Rx Drug
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Results are sorted by length of time drug was taken from shortest to longest duration (reviews with no time reported listed first). Key to Ratings: 1=LOW (I would not recommend taking this medicine.) Page: 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 |
More on PLAQUENIL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PLAQUENIL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | RA | None, untill my last eye test when the Doctor found pigmentation at the back of my eyes. | F | 62 | 9 years | 2/6/2002 | 4 | Sjogren's Syndrome | Nausea (briefly); bloating and gas | I have recently been taken off Plaquenil due to extreme pain in the muscles in my legs. I am very worried that the joint pain, rashes and fatigue will once again overtake my life. Has anyone found anything over the counter that has helped with joint pain? | F | 44 | 9 years | 3/24/2008 | 4 | SLE Lupus | Some gas, indigetion, and blurred vision, thinning of hair. | Many of the reviews report some kind of stomach distress, I can say that taking a probiotic daily has me helped huge. However after taking plaquenil for nine years I am considering getting off, due to the fact over the last couple years I have more tremors in my hands, more hair thinning and now wondering if plaquenil can affect your bones negatively. I am experiencing more low back pain. Also interrupted sleep. More blurred vision than in the past and more muscle pain. I get the eye exam each year. My doctor tells me, my low white blood cell count is due to the plaquenil. I will pray about what to do. I certainly do not want a flare. It seems the negatives of plaquenil are out weighting the positives. | F | 60 | 9 years | 3/14/2009 | 4 | Lupus/Rheumatoid Arthritis | This has been a miracle drug for me. At age 16 I was unable to get out of bed due to pain and fatigue. After a month of taking plaquenil 400 mg. each morning I slowly improved. I had no hives or allergic reactions. My vision has grown increasingly blurry and I have noticed this fluctuates depending on how stressed or tired I am. I am 25 now and have to wear 1.75 strength reader glasses, and anticipate having to wear glasses daily within the next decade, but this side-effect is worth it considering how helpful Plaquenil has been for me. | I read a lot of the reviews from other patients and my sympathies go out to all of you. We all know our bodies are very sensitive, so I would not write off this drug, it really does work miracles for some people. I have found that high doses of Vitamin D (5000 I.U. every day for 2 weeks) and high doses of buffered Vitamin C (1000 mg. every 2-4 hours) has really helped my inflammation and well being. Good luck to you all. | F | 25 | 9 years 400 1X day | 6/30/2012 | 3 | Stystemic Lupus Erathematosis | Flashing lights when I went outside. Eye dr first diagnosed as floaters. With field vision test later there was found permanent damage. It seems to be a progressive loss for me. | Plaquenil helped me tremendously in taking care of SLE. After a period 9yrs it had built up in my retina. I think it is a good drug, but must be diligently followed by opthamologist who does field vision tests regularly. | F | 54 | 9 years | 6/13/2009 | 5 | Mixed Connective Tissue Disease | Few side effects exist that I can specifically attribute to Plaquenil but currently having substantial problems with short-term memory and decreased ability to concentrate. Would love to know if other users (especially long-term users) are having similar problems, to determine if Plaquenil is reason. | Plaquenil has helped me manage a Lupus-type condition for many years. I have fewer flare-ups and overall have become more stable each year. | F | 35 | 10 years | 8/27/2002 | 5 | Lupus | I have been taking this for more than 20yrs. If you give it a chance barring side effects it does work. I got a little diarrhea at beginning but calms down. Best to start slow then increase. I have tried not to take it and my joints get very bad. I am faithful about eye exams. Very satisfied. | F | 56 | 10 years 200 2xd | 7/18/2012 | 4 | RA | None that I could link directly to this drug. | I currently discontinued use of plaquenil and noticed a large amount of fever and sweating. I guess I have been on it for so long I didnt realize it's benefits. | F | 22 | 10 years | 3/4/2002 | 1 | I was on plaquenil for Raynauds. | I took Plaquenil for 10 years. I was not told about the eye problems it could cause. I have very severe eye problems--can't drive at night--very hard to read--have been to several Ophtamoligists and eye specialists here and abroad...nothing can be done. There is severe damage to both eyes caused by this drug.I am now on Tracleer which is helping Raynauds much better--and can cause no further damage to my eyesight. | If you use it--please have your eyes checked regularly by a specialist. | F | 74 | 10 years | 10/18/2007 | 1 | Systemic Lupus | Bulls-eye retinopathy in both eyes, despite at least once-yearly checks, when I got blurry spots doctors dismissed it at 1st, until my retinas were permanently damaged. | I have ring shape blurry/blind spots in both eyes, right worse than left. The plaquenil helped with the lupus symptoms for the ten years I took it but you MUST be EXTREMELY VIGILANT about the eye problems and if you get any vision issue at all, go get checked immediately and do not let them dismiss your symptoms. The damage to my eyes is now irreversible and may continue to get worse. | F | 38 | 10 years 200 mg 2X day | 1/20/2012 | 5 | ra | none | dr. said only use the name brand.... said many patients on the generic had severe problems. Use with 2mg. prednisome and am in remission (for many years) | F | 63 | 11 years 200 1X day | 6/10/2015 | 1 | RA | Bullseye maculopothy. I've lost most of my central vision in both eyes. I experienced white flashes which my ophthalmologist dismissed. Within a few months, the blindness occurred suddenly. I had retinal examinations twice a year. I have good peripheral vision, a large doughnut shape of no vision, and a tiny area of poor central vision. | Blindness stinks. This drug was not worth this. | F | 54 | 12 years 200 mg 2X day | 9/5/2010 | 1 | lupus | cardiomyopathy | after taking plaquenil for 12 years i find out i do not have lupus.my dr. at the Mayo clinic took me off plaquenil. I now have what is called a hard heart,the blood is not pumped out like it should causing irregular heart beats with water build up around the heart and lungs. My comment is be sure of your diagnosis. Do you have lupus? | F | 78 | 12 years | 2/11/2004 | 3 | SLE/MCTD | Developed gastro-reflux, more pain, ulcer, dark pimples on face, peeling rash on hands and feet(not sure whether from plaquenil or condition), red spots on legs, bruises(not sure how I got them), rash above ears at base of hairline, and a foul body odor. | I took plaquenil for 13 years. After having a foul body odor for over 3 years, I stopped taking the medication. The odor stopped. My doctor has prescribed other drugs for me. I hope and pray they will help with very little side effects. | F | 55 | 13 years | 12/25/2005 | 5 | SLE | I have had no side effects. It took a few months before I got the full benefit. I believe this medication gave me by life back. | I have tried to go off a few times over the years but my symptoms always increase, ie. joint pain, mouth sores, sunburn/rashes, fatigue worsens. I no longer try to go off and my rheumatologist and I agree that I'll have my eyes checked regularly and stay on it as long as it works. | F | 49 | 15 years 200 2X day | 5/16/2010 | 5 | RA | None of note. | Has worked very well for me in conjunction with methotrexate. I live a fairly normal life. | F | 37 | 15 years | 9/24/2002 | 5 | SLE | I saw no improvement to extreme fatigue, weakness, body aches, headaches, joint pain until about 5 months after taking Plaquenil. Dose of 400mg a day. I too, tried to discontinue this drug and after 3 weeks I could not get out of bed. My original symptoms were back and felt worse because I had lived without them for several years. | Please be very careful with the eye exams. I had some brief episodes of blindness and more indepth testing was done (ERG) and this detected Plaquenil toxicity. I am told it has progressed to 'irreversible' state. If caught before any symptoms can be reversible for most patients. I was very diligent in getting eye exams every 6 months. | F | 52 | 15 years | 3/17/2009 | 5 | SLE | It's been too long to remember. Similar side effects to what everyone describes, hair loss etc. | Can't live without it. Felt so much better after many years and tried going down from 400 to 200mg. What a huge mistake. I though I was going to die. Had severe dizziness, numbness and tingeling, dull headache, ringing in ears, fatique,arthritus and joint pain like never before.Why did'nt my Dr. say this might happen. Was I a guenapig??? Relieved to hear this has happened to other. Also I took this through both pregnencies fine. I WILL NEVER GO OFF, unless my vision gets effected. | F | 42 | 15 years | 11/23/2008 | 4 | SLE,Osteoarthritis,Rhumetoid Arthri | Dilated Cardiomyopathy after 15+ years on Plaquenil. | Started taking Plaquenil to get weened off of Prednisone. Have only been able to get down to 10mgs of Prednisone. Joint pain increases any lower. On Prednisone 30 years. | F | 52 | 15 years | 1/31/2005 | 1 | rheumatoid arthritis | After being told to have my retinas checks twice a year which I did and the retina tests supposedly coming back fine, I now have plaquenil retinopathy in BOTH eyes. This came on very sudden. I would like to know if anyone out there has ever filed a civil lawsuit because of this drug. | F | 45 | 15 years 400 1X day | 4/15/2010 |