PURINETHOL Reviews (MERCAPTOPURINE)Average Rating: 3.5 (315 Ratings)Filter ResultsCompare PURINETHOL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on PURINETHOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PURINETHOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | Ulcerative Colitis | Hospitalized for two weeks, supresed my bone marrow had to have blood and plattelet transfusions. | BE CAREFUL AND GET BLOOD WORK DONE VERY OFTEN. | M | 26 | 5 weeks | 11/24/2004 | 3 | Crohns | Tired, Irritable, headaches | I am on Pentasa (4000mg daily) and have just started 6MP. Boy can it make you irritable. I was dignosed with Crohns when I was 17yo. I have been on various drugs and to date have been fortunate not to have had surgery. My symptoms have increased over the last year or so, so my doc started me on 6MP. I sure hope that it makes as much a difference as I have been reading. | M | 34 | 3 weeks | 11/4/2004 | 4 | ulcerative colitis | extreme fatigue | i have had uc for 9 years. i was on and off of prednisone until two years ago. i started taking purinethol and after a few monthes was doing the best i'd ever been since i was a teenager. however, i have heard horror stories about purinethol and that is why i'm reading these ratings. most of it looks good!!!!!! | F | 28 | 2 days | 10/29/2004 | 5 | Crohn's Disease | None | Been on this for 6 years, first at 75mg then at 100mg daily. Has worked fine and has allowed me to get off Prednisone finally. I found that the use of Budesonide was very useful in the actual termination of the Prednisone. That's the new designer version of prednisone that concentrates its effects in your bowel area. The only problem I had recently was when I cut my dose back down to 75mg and had a flareup which caused me to be hospitalized recently. I'll stay at 100mg in the future. I do have to use a lot of Pentasa (14/day) but I find that the use of Multivitamins, folic acid, and Vitamin E capsules mitigate the fatigue side-effects of it. | M | 43 | 6 years | 10/2/2004 | 3 | Crohns | weight gain, joint pain, swollen face and belly, teeth and gum sensitivity to cold, increased need for sugar, major hair loss. | I was put on Purenithol after a 10 day stay in the hospital for the worst flare-up in 15 years. I am currently taking 75 mgs a day. I do not like taking this drug and would prefer to take something else. Does anyone know of a less potentially damaging alternative? | F | 34 | 2 months | 9/23/2004 | 3 | UC | fatigue,insomnia and a burning rash-acne under my nostils and around my mouth | A little over a year ago I was on 4800 mgs of Asacol and it wasn't working. I went to get a second opinion and was prescribed 100 mg of purinethol and 2400 mgs of Asacol. It worked wonders for the first 6 months. Now, I have a rash on my face that burns,itches and looks like acne besides going to the bathroom 8 to 15 times a day. 24 days ago I was put on prednisone, the acne completely clared up and I loved the new found energy. 3 days ago I was taken off of the steroid and the rash is back full blown. Does anyone have a suggestion for the rash? | F | 40 | 13 days | 9/19/2004 | 5 | Chron's Disease | Hair Loss | I've known I have Chron's for about 5 years now, and been in and out of the hospital. I started purinethol about 2 months ago,and have already felt a huge difference. Thanks to God and purinethol I feel I am just now starting to get my life back . | F | 28 | 2 months | 9/14/2004 | 4 | Crohn's Disease | No side effects really other that brittle nails that split and break easily. | Almost a year ago I was hesitant about taking purinethol. I read the comments on this website which scared me. In October 2003 my doctor strongly suggested purinethol after and endoscopy & colonoscopy and upper GI. I waited until February 2004 to take it. If I had listened to my doctor and took it when he said to I may not have had a re-section due to a preforated intestine in July 2004. Get your blood done when the doctor tells you and you should be fine. | F | 24 | 7 months | 9/14/2004 | 3 | crohns disease | with an increase in doasgae I had dangerously low blood counts which put me at hig risk for heart attack and stoke, heart palipitations, dizziness, weakness, shortness of breath | 50 mg for 5 years, then increased to 75 mg due to development of fistula and increased again to 100mg while starting remicade. My doctor called and wanted me to go back down to 75 mg due to very low white and red blood cell counts. Five days later I was in the ER with heart palpiaitations and shortness of breath and a blood cell count that seemed impossibly low. By the end of the week I was in the hospital getting 4 units of blood and my bone marrow had shut down. | F | 58 | 6 years | 9/12/2004 | 3 | crohns | bone marrow toxicity, low immune system, dangerously low blood count, weakness, shortness of breath | I write this for my mother who has recently been taking off of this drug.Her Chrons was in remission until the recent development of fistulas. However, Her red blood cell count is dangerously low. She is on bed rest (indefinately) and at high risk for heart attack or stroke. GET YOUR BLOOD LEVELS CHECKED | F | 6 years | 9/8/2004 | 1 | Crohn's | Nothing really. Haven't seen any changes since I've been on it for around 5 years. | I'm still taking it because doctors feel that it's too hard to get back on it. I've been taking asacol and that hasn't really been doing much. I've been on enbrel and remicade, the enbrel was doing pretty good for the arthritis and the remicade was too big a hassle for the little results. Maybe I'm just different but my sed. rate has always been high and I'm currently on methotrexate and it seems to be working. | M | 17 | 5 years | 9/6/2004 | 1 | crohn's disease | None, I have not taken the drug yet. | I was diagnosed with Crohn's Disease 5 months ago. However, I am sure I have had the disease for at least four years and maybe even as many as 12 years (despite my efforts to uncover the source of my severe discomfort, I was undiagnosed and may have been misdiagnosed as having endometriosis - none was ever found with laparoscopy. Based on what I am reading, I am very lucky that my disease is being controlled by 400 mg of Asacol (9 times per day). I hope that everyone on 6mp, especially those that are having severe side effects, are aware that there is genetic testing that can and should be done to determine your tolerance for the drug before it is prescribed. I have been tested and can tolerate the drug if needed. I hope this helps. Good health to all. | F | 40 | 0 days | 8/31/2004 | 4 | Crohn's Disease | Slight diarhea, nothing to serious. | I have been diagnosed with crohn's disease about 3 months ago and i have been taking metronidazole to get rid of some abcess i had. Now i am taking pentasa and purinethol. And i have absolutly no pain. I have to be carefull with what i eat. For instance food that is very high in fiber and never eat popcorn!!!. I feel great and i do not think i will be getting off it any time soon. | M | 21 | 2 months | 8/21/2004 | 5 | Ulcer Colitis | No side effects I can eat whatever I want and I feel normal. | Been taking it since I was 15 years old and I had a bad case of ulcer colitis, this was the only medecine that worked instantly. | F | 20 | 5 years | 8/10/2004 | 4 | Ulcerative Colitis | Thirsty | Just started taking this drug 4 days ago. So far, I haven't noticed any side-effects at all, except that I am more thirsty than usual. The fact that it is a cancer drug scares the heck out of me, but I trust my doctor. I am on 50mg/day right now. | M | 28 | 4 days | 8/8/2004 | 3 | crohns disease | occassional headaches in the morning. | I was diagnosed w/crohns 21 yrs ago. I had a total colectomy w/ileorectal anastomosis @ age 27. On and off high dosages of prednisone for years. Was in remission from age 30 to current age 41. Recently relapsed and placed on 6mp. Although I never complained about the prednisone therapy, I did not want to go back on the drug unless absolutely necessary. MD wanted to try 6mp. So far in the last month of usage, abdominal pain decreasing, energy level increasing, stress management more tolerable. Unsure if related to the 6mp but hopeful. Accepting the fact that I came out of remission is harder to deal with than any side effect. | F | 41 | 32 days | 8/1/2004 | 1 | UC | Canker(sp) sores, low immune system, and of all things... leukemia. | Be very careful if you take this drug. I am writing on behalf of my husband who died of leukemia 1 1/2 years after beginning to take this drug. Always had his bloodwork, but some leukemia's develop soooo fast they may not catch it in your blood until it's totally taken over the marrow. Do you really want to play with your bone marrow to keep yourself from a flare-up ?? | M | 32 | 1.5 years | 7/29/2004 | 2 | Chrone's | Chills, sore stomach | F | 68 | 2 days | 7/24/2004 | 4 | Crohn's Disease | none that i can think of. | seems to be a very good drug. i have been on this medication for 12 years. the only time i stopped was 3 years ago on doctors advice. ( which was bad addvice ) the disease came back in full force after. i had to be re-operated on . now i am back on and am never comming off. | M | 27 | 12 years | 7/23/2004 | 3 | Collitis | elevated enzyme level in liver functions need to decrease dosage from 75 to 50mg daily then decrease more to 50mg every other day | Seemed to be working on controlling flare ups. But enzyme levels are too high, need to decrease. Do not know if continuation is possible. Anyone out there still see improvement when decreasing dosage? Prednisone seems to be the only thing that really helps flare ups but side effects are horrible. Any info will be helpful | F | 13 | 6 months | 7/23/2004 |