PURINETHOL Reviews (MERCAPTOPURINE)Average Rating: 3.5 (315 Ratings)Filter ResultsCompare PURINETHOL with similar:
Type: Rx Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on PURINETHOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PURINETHOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Ulcerative colitis | Hair loss, loss of sleep. | I have actually been able to go into a store and not search for a washroom upon entering the store. Wow! That was a huge improvement for me. I am currently taking 25MG of PURINETHOL and 10MG of PREDNISONE. I have been diagnosed with UC for 2 years now, it flared 4 months into my pregnancy. | F | 28 | 10 weeks | 11/27/2002 | 3 | ulcerative colitis | Hair loss, lots at first and now starting to not be too bad, loss of appetite, very tired, taking procrit shots every two weeks(was every week), very tired. | I am 22 years old and have had UC for about 7 years. I was having terrible trouble out of it over the summer and was hospitalized and told that if I didnt take 6mp that I would continue to have those hosp. visits and they would get more frequent. I was reluctant to try it for the following reasons: I want to have kids, liver damage, and the horror stories that I have heard about it. After extensive discussion with my husband and family I decided to give it a try but only after my Doc promised me that I could come off the med and still have children. I have been on it since this July-5 months now,along with Remicaide treatments every 8 weeks. It is doing well with the exception of the side effects that I mentioned above. I am now a little concerned that It may make me infertile, My Doc says that if I take it for a year and get myself under control that I can stop it and have kids and then resume it if necessary. It has really helped my Uc, I havent felt this good in years as far as the Uc goes, the tiredness and shots and hair loss sucks but my Uc is great. I can acutally go shopping w/o pinpointing the bathroom immediately upon entrance and using it 6 times or more while I am that one store. Any suggestions on the infertility? I would appreciate any insight you may offer if there are any women out there that know or have the same concerns. Please email me at [email protected]. Thanks! | F | 22 | 5 months | 11/23/2002 | 4 | Chron's | Sore throat | Also am on remicade, so not sure which is the cause , but has worked great, with only some sore throat. Does anyone know the effect of alcohol with purinethol, pharmacy told me to consult doctor, and doctor gave me no precise answers | M | 27 | 2 months | 11/21/2002 | 1 | Chrons | After two weeks got extremly high fever, and ended up in the emergency room, and three days in the hospital. Dr. suspected drug from the beginning even though it appeared I had a raging infection. | F | 61 | 15 days | 11/19/2002 | 1 | Crohns Disease | i haven't had any side effects but I would not recommend taking this medicine! | Out of all the medicines I'm taking for Crohns Disease I hate this one the most. I had to quit my job because my immune system was not strong enough to handle being around sick people. I can't get and cuts, scrapes, or bruises. How can you tell a 16 year old not to get cuts. I just want to give people a fair warning not to take this medicine. I have been on it for about 2 years and trying to get off of it for about 1 year. | F | 16 | 2 years | 11/17/2002 | 5 | ulcerative colitis | None except maybe strong hunger | Flare up after 5 yrs on Sulfasalizine. Went all the way up to 60 mg of Prednizone and still no help with colitis. Added 50mg of Purinethol and voila, colitis stopped. THis is a wonder drug for me. I am now down to 30 mg of Prednizone, tapering off 5 mg per week, up to 100 mg of Purinethol. Can't wait to get rid of Prednizone. | M | 56 | 5 weeks | 11/11/2002 | 5 | crohn's disease | SO far I have had no side effects. | I've only been on the medicine for 2 days, but I am very encouraged by everyone elses comments. Has anyone experienced and side effects from Prilosec, pentasa, or prednisone? BEcause i am on all of those also.. e-mail me at [email protected] | F | 14 | 2 days | 11/5/2002 | 1 | Chrohn's Disease | fever, swollen ankles, rash, severe diarhrea | My doctor decided to try me on Purinethol after trying 2 treatments of Remicade that didn't work. The worst part is he also wanted me to try Clarithromycin at the same time. The side effects I'm having point to the 6mp, but now I have to stop taking that and the clarithromycin. Does anybody know why they don't introduce one drug at a time? Who really knows what is helping and what is not? I had to reduce my steroid intake because my lower spine is starting to get osteoporosis—but I'm still on 20 mg of that a day also. | M | 42 | 10 days | 10/29/2002 | 5 | Crohn's | No side effects | I was diagnosed with Crohns when I was in my mid twenties - I am now 56. I first started taking Purinethol about 1985 and have been on it ever since. Crohn's is in remission and I have no immune nor weight problems. Once, I stopped taking the drug (without my Doctor's permission) for about two months and the Crohn's came back. He explained that it takes about two months for the drug to flush through my system. | F | 56 | 17 years | 10/25/2002 | 3 | Ulcerative Colitis | naseau | F | 36 | 3 weeks | 10/14/2002 | 5 | Crohn's | I didn't have any side effects. | I have had Crohn's for almost 30 years. After having three resections, as well as the normal course of prednisone horrors. I was the first person to get Remicade at our hospital, and it worked quite well. Took 6mp for several years and felt so good that I asked to be taken off the drug. Now I am considering going back on it. I never want to take prednisone again and hope that I can catch a remission again. | F | 57 | 3 years | 10/4/2002 | 1 | Crohn's Disease | Have been on it for four months. Have been in a ten month bout that they can's control. Did the Remicade in February which I had used a few years before and developed swelling around my heart and lupus like symptoms. No one told me the Purinethol was Chemo until I was hospitalized two weeks ago. I have dark patches on my face, black spots on my lip ,joint pain, my hair has been falling out and I feel like I have the flu constantly. I was hospitalized with a cough that wouldn't go away. The nurses in the hospital told me it was chemo. They wanted me to double flush the toilet and wash my hands really well after handling the pills. I have a four year old and a ten month old and NO ONE told me this, I don't know what they could have been exposed to.To add insult to injury , I have been telling my doctor for months about these issues and he never told me it was from the Purinethol. After researching the drug I am telling him I am going off of it. When I first went on it, I was told only that it would help build my blood back up, and work on the Crohn's. The only side effect I was told about was the potential liver problems. I feel lied to and am very angry. | F | 35 | 4 months | 10/2/2002 | 1 | Crohn's Disease | Have been on it for four months. Have been in a ten month bout that they can's control. Did the Remicade in February which I had used a few years before and developed swelling around my heart and lupus like symptoms. No one told me the Purinethol was Chemo until I was hospitalized two weeks ago. I have dark patches on my face, black spots on my lip ,joint pain, my hair has been falling out and I feel like I have the flu constantly. I was hospitalized with a cough that wouldn't go away. The nurses in the hospital told me it was chemo. They wanted me to double flush the toilet and wash my hands really well after handling the pills. I have a four year old and a ten month old and NO ONE told me this, I don't know what they could have been exposed to.To add insult to injury , I have been telling my doctor for months about these issues and he never told me it was from the Purinethol. After researching the drug I am telling him I am going off of it. When I first went on it, I was told only that it would help build my blood back up, and work on the Crohn's. The only side effect I was told about was the potential liver problems. I feel lied to and am very angry. | F | 35 | 4 months | 10/2/2002 | 5 | crohn's | None that I'm aware of--occasional anemia could be chalked up to either the 6mp or just being female. | This drug seemed to do a lot for me, really stabilized my Crohn's. After taking it for 7+ years, and undergoing regular liver function testing, my results sent warning bells to my dr. a couple of weeks ago. She told me to cut back to half my dosage (from 100mg/day to 50mg/day) for a couple of months and in the meantime come back for more thorough testing. I got a voicemail telling me to stop the 6mp immediately, exactly a week ago today. I don't know what will happen down the road, but my Crohn's has been 'behaving'. I've made sure to get back on my exercise regimen right away as that definitely helps. Guess we'll see what happens, got my fingers crossed. I sure enjoyed being on it, much better than prednisone or asacol for me. It took me almost 2 years to get all the prednisone out of my system after being on it for almost 8 years. | F | 36 | 7 years | 9/23/2002 | 3 | colitis | none so far | well ive only been on it for two days i was only put on this cuase ive been on predisone for almost a year now and im allergic to asacol and those drugs so this is the only other medication they suggested so im hoping it works if and comments u can give me Email me at [email protected] | F | 16 | | 9/23/2002 | 3 | Crohns/Colitis | I do know I am losing hair daily and can not sleep. Tho, this could be partially to blame on the Prednisone and Asacol and other 13 meds I take daily. | I've been on 6mp for about 5 yrs now. I just recently, in July, went from 75mg daily to 100mg daily. All of a sudden my Liver Profile is out of whack. I'm in dangerous levels and taking me off the 6mp for 4 weeks started bringing down my ALT and AST. However this last Liver Profile shows that tho my ALT is still coming down slowly, the AST is beginning to rise again. One of my doctors says my Liver is probably 70% gone. My Crohns/Colitis is in check right now, but at the cost of my Liver. | F | 50 | 5 years | 9/20/2002 | 5 | Autoimmune Hepatitis | none | F | 42 | 4 months | 9/15/2002 | 4 | Crohn's | None. | It brought me out of a three month flare up. Have been taking it for 3+ years. Everything was going great and my Dr. decided to lower my dosage and maybe take me off of it, saying you really shouldn't take it for more than 3 years. I began having symtoms. I then went back to 50mg daily and am doing fine once again. I have not experienced any side effects unlike the horrible side effects of prednisone and cyclosporine. Very pleased. I feel even better about staying on it after seeing that some have been taking it for 7+ years. | F | 35 | | 9/15/2002 | 2 | crohn's disease | none so far. although i have been taking only for a short time blood work ahs been okay but they just recently increased my dose not sure this is the drug for me | do not like the fact that the doctors who subcribe it do not give all the info on it and the drug stores give the same info as doctors | F | 41 | 3 months | 9/14/2002 | 5 | Crohn's | No side effects so far. | Feeling much better | F | 43 | 4 months | 9/13/2002 |