PURINETHOL Reviews (MERCAPTOPURINE)Average Rating: 3.5 (315 Ratings)Filter ResultsCompare PURINETHOL with similar:
Type: Rx Drug
|
Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on PURINETHOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PURINETHOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | Crohn's of large | been so long so not sure what is Crohn's, what is purinethol and what is just me | Been taking for so long I don't know. But recently talked to sister in law who was on it just a year, and said she felt so much better energy and mood wise after getting off of it. Got me thinking. I can't remember ever not feeling tired in my adult life, unless I drink a lot of coffee. Maybe that would be the case anyway. I have had 5 episodes of bad depression in 20 years and still is low grade. As far as the crohn's, purinethol has always helped and when I tried to get off it, I immediately had terrible pain. I have only had to have one surgery so far and on 50mg now, I feel lucky but wonder why my fatigue/ mood issues exist. | M | 38 | 20 years | 12/26/2008 | 3 | Crohn's disease | Excessive nausea, lack of appetite, fatigue, headaches, mouth sores, thinning hair. Have some days where I can't get out of bed, which is depressing as hell. | Been on the drug about 5-6 weeks so far, running to the bathroom less but also unable to eat bc I feel so lousy, so that may be why. Stomach cramps and joint swelling have not reduced, was told must be on drug 4 months to see positive results. Not sure if hair is thinning bc of drug or because of nutrition issues due to lack of eating. So far, this drug sucks. | F | 36 | 6 weeks | 11/29/2008 | 3 | Ulcerative Colitis | Extreme fatigue, manic mood swings & depression, weight gain, , headaches, bloating, hair loss, back pain, menstrual issues | I'm trying 6-MP in lieu of prednisone. 150 mg per day. So far I've had no colitis symptoms, but I've only been off the prednisone for 5 weeks. Anyone who suffers from UC or Crohns knows how unbearable those symptoms are.....in comparison to being sick (and compared to prednisone), the side effects of 6-MP are bearable, but its still no picnic. | F | 35 | 3 months | 10/23/2008 | 4 | Ulcerative colitis | I don't gain weight is very unstable, I shed hair like crazy, I haven't grown in a while, and I get kidney infections constantly | My gastroenterologist thinks I have an eating disorder all because this drug has caused me to lose 12 pounds in the last three months, but i've gained weight to, but then I lose it all | M | 15 | 3 years | 9/12/2008 | 3 | crohn's | very tired, weak, problems with menstruation | i was doing ok until the doctor increased the doseage because he wanted to get me off the prednisone. he took me off the purinethol when my blood work wasn't too good. now i'm waiting to feel better. | F | 40 | 6 months | 8/30/2008 | 4 | Ulcerative Colitis | When I get bruised or cut it takes months to heal, and I experience vertigo constantly and sweat more easily. I got used to all side effects though | It helps me way more than any other drug i've taken in the 5 years since I was diagnosed | M | 15 | 3 years | 8/11/2008 | 4 | Crohn's Disease | Fatigue, anemia. shingles, cold sores | Purinethol was a better choice for me than prednisone at the time. I was to stay on it for 2 years; it has been 25 years. I am now having tests to make certain I am in remission so I can stop it. The fatigue has become increasingly worse. | F | 55 | 25 years | 7/3/2008 | 3 | Crohns Disease | Nausea, bad taste in mouth, tiredness, sore joints, bloating (appeared in the last couple of days) generally feel unwell | I have had Crohns for 20yrs and lots of surgery. Recently had major flare up again & very reluctantly went back to medication. Not convinced this is the drug for me if I feel this unwell taking it. Only good thing is the diarrhoea has slowed down. | F | 43 | 1 months | 6/2/2008 | 5 | Crohn | Skin problems,tirednees, alcohol intolerence | Havenīt feelt better since I startede using this drug. Can live with the skin problem as long as my diseas is fine. No fisteals and no hurting joints any longer | F | 39 | 4 years | 4/22/2008 | 4 | crohn's disease | Anxiety, Panic Attacks, heart palpitations, nausea all happened as I tapered off the drug. Nausea when I started it, but was great for my crohn's. | Was on the drug for a year, started to taper off and everything kicked in. It was hard to get off the drug, but it did great for my Crohn's in combination with a holistic diet this drug is a miracle! | M | 31 | 1 years | 4/2/2008 | 3 | Crohn's | The first week I experienced dizziness/vertigo while lying down, and an insatiable appetite. I've gained weight, felt less motivated, more tired and lazy, a bit "down". | After the first week of taking Purinethal, my Crohn's flare cleared up tremendously, but that lasted three or four days. Then I started having mild flare symptoms again. My doctor says that this is normal and it will take about 8 weeks for the meds to become in sync with my body, at which point I will start to improve again and stay stable. | F | 28 | 1 months | 3/17/2008 | 4 | Crohn's | I have not had too many side effects, just darkening of skin and extreme dehydration when I wake up in the morning. | Been on it for 7 years. I am female, 35 yrs old, and 125 lbs. My dosage was 50 gr daily and then after a flare-up and surgery, I have been on 100 grams a day. I am curious if anyone else is on 100grams or more? It seems most people are on 50-75 grams. | F | 35 | 7 years | 12/11/2007 | 4 | Crohns0 | I seem to get colds easier than before. Of course having a 2 year old who brings home a lot of things from preschool, I can't be 100% sure purinethol is the cause. | M | 46 | 10 months | 12/10/2007 | 2 | Crohns Disease | Nausea; developed lung cancer at an early age (44 yrs old). I smoked cigarettes, unfortunately, despite several doctors' repeated advice that I should quit, while I had Crohn's symptoms. | 6mp stopped working and I ended up having a small bowel resection after 10 yrs of Crohn's. Thank god I haven't had any symptoms return since the operation. But, I did develop lung cancer at a relatively early age, I believe partly due to the 6mp. I had my right lung removed 4 years ago. Don't smoke w/ 6mp!!!!! | M | 7 years | 12/3/2007 | 1 | Ulcerative Colitis | Bacterial Imbalance and Candida. BLOATED and EXHAUSTED every day. Lethargic, depressed, constipated, out-of-it, cold/flu every couple of months, tons of sinus infections. | I've been in the hospital 6 times in the past 15 years with Colitis. So I know that nothing is worse than a flare-up of Ulcerative Colitis, I agree.... However, please try to treat this disease HOLISTICALLY. Acupuncture, Herbs, Yoga, Therapy, DIET. Stop looking for a quick fix. This disease requires lifestyle changes and active management. You can't just pop a pill like they tell you. (I know, I've tried that route). After 1 year of 6MP, I had the aforementioned symptoms. They've been with me for 3 years since I stopped the drug. Currently working with a Holistic Doctor to treat all of this and get myself "back on track." I've been symptom-free on NO MEDS for 3 yrs. They think IBD is a genetic autoimmune condition - fine. Make LIFESTYLE changes. NO DAIRY. TAKE PROBIOTICS. See a Holistic Practitioner. Get out of the Western Medical System!!!! Western MDs and Pharmaceutical companies don't make money when you're healthy. | F | 30 | 1 years | 11/24/2007 | 3 | Crohn's | Dizziness and vertigo throughout the day, extreme sleepiness just after taking | Have only been taking it a week (50 mg), but haven't seen much about vertigo, so thought I'd post to let others know how it feels to me. I take the 6 mp at night because shortly after taking, I experience extreme fatigue -- almost as if I can't move. Am hoping that these side effects will subside over the first few months. | F | 44 | 7 days | 11/5/2007 | 3 | Crohn's Disease | hair loss, joint & body aches, excessive sweating, extreme tiredness | I'm very leary about this medication. I was on it in 2002-2003 and stopped taking it because I hated the way it made my body feel. I also had Remicade Infusions in 2003. I cannot tell if it helped. I was hospitalized this past August for a really bad Crohn's flare up. My doctors brought up 6MP again and even though I had been against it for the last few years, I decided to trust them since they stated many patients are on it with high success rate. I've been on Prednisone since March and am finally down to only 10 mg a day (I wean by 5 mg per week). I've been on 6MP again since August and started at 50mg a day and now am taking 75mg a day. My blood work so far has been good but the way I feel is horrible. I'm tired of waking up every day and feeling like I have the flu. I don't know which is the lesser of two evils. I've also come down with a bad cold/cough this week and fear that my immune system is very weak. Raising a 3 year old isn't easy when you constantly feel horrible | F | 41 | 4 months | 11/1/2007 | 3 | Crohn's | None initially. However, after about 2 years on 100 mg. I began to develop skin cancers. | My dosage was eventually reduced after some blood work to 75 mg. and I stayed there for the next 4 years or so. The skin cancers began to appear in greater numbers, first as basal cell then as the more aggressive squamous cell. No doctor made the connection; they all assumed I spent too much time in the sun. I discovered on my own the increased risk of squamous cell development in patients taking purinethol and I asked both my gastro and my dermatologist about it. Neither would admit it although they acknowledged the studies I found. After developing a new series of squamous cell cancers a few months ago, I just stopped the medication. If anyone is interested, try natural flax oil softgel capsules. I feel better than I have in years. Purinethol seems to have stopped the flares, but it has ravaged my skin. I'm better off without it, and if you'll research GI studies using flax oil in Crohn's patients, I think you'll be surprised. Looks like the best kept secret in the world of Crohn's. | M | 52 | 6 years | 10/23/2007 | 4 | Crohnes Disease | None for the first several years but recently after getting married when my wife couldn't get pregnant I found I had a low sperm count and soon after developed atrial fibrillation in my heart. I found other accounts of these side effects with others on the internet and soon hope to be off of the drug. If these problems go away I will definitely attribute it to the drug. Please ask your Dr. about fertility if you are on this drug. The answer may shock you. | This drug probably saved my life but I beleive it caused other problems that I hope can be resolved and not affect me for the rest of my life. | M | 29 | 8 years | 9/20/2007 | 3 | Crohn's | Hair Loss & Nausea | I want to know if the hair loss eventually stops? | F | 49 | 1 months | 8/31/2007 |