PURINETHOL Reviews (MERCAPTOPURINE)Average Rating: 3.5 (315 Ratings)Filter ResultsCompare PURINETHOL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on PURINETHOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PURINETHOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 5 | Crohn's | Just nauseated if I take it and stay up at night. I take it at night right before bed so I don't get sick. Otherwise, no side effects. I do have significant hair thinning but I'm also taking the max dose of Asacol daily too. Have also been on 40mg Prednisone for 5 months since my dx 9 months ago. | I started out at 50 mgs and at 100 mgs. I started using Remicade prior to Purinethol and developed antibodies to it. The Purinethol is reversing that reaction and I am now getting 6+ weeks at 10mg/kg instead of 3 weeks. Should have started Purinethol MUCH sooner. I feel like a million bucks. DRINK WATER. Lots of it. Take it easy on the booze - it all breaks down in your liver and you WILL get sick if you like to party hardy. | F | 35 | 3 months | 1/28/2004 | 5 | Ulcerative Colitis | Chronic fatigue, loss of appetite (have lost pretty much all excess body weight) Morning nausea- gagging but has made the UC a non issue in exchange. | M | 42 | 7 months | 1/28/2004 | 3 | Liver Disease | Just started this drug and this morning I was alarmed about the hair loss,I get very tired also.Will I go as far as going bald and loosing all my haiR? | I need answers,my Dr's would not discuss the side effects with me. | F | 41 | 1 months | 1/19/2004 | 3 | Crohn's Disease | Joint pain(could be from Crohn's though as I have heard), Tired alot. Naps during the day. Then ended up in the hospital with Pancreatitis. | I do have to say that the drig has helped me out in regards to an entro vescular(<-- Spelling?) fistula that connected my bowel to my bladder and I was urinating fecal matter with air bubbles. Kind of weirded me out in a big way since I wasnt under the following of a doctor at the time. Fianlly admitted I truly had Crohn's and got insurance and a whole slew of doctors behind me to get me back to health. I have been on-off 6mp for a little over four years. The last two years I have been on the drug straight. three days before New Year's eve into '04, I went to the hospital from what I thought was a horrible flare up and was uncontrollable with my normal pain medecine. While in the E.R., the attending Dr. asked me if I knew I had pancreatitis. I said hell no!!!! My new G.I. contributes the pancreatitis to the 6mp. I am not saying that you could get pancreatitis, or wont. But that has been my experience with 6mp. If not for the pancreatitis, I would reccomend this drug to anyone that was in my condition. It did heal the fistula. | M | 31 | 4 years | 1/17/2004 | 3 | Ulcerative colitis | Extreme chronic fatigue, dehydration with frequent urination (dry mouth and dry eye syndrome), very susceptible to illnesses and infections, leg cramps, general achiness, normal illnesses last much longer, frequent mouth/gum infections, more difficult to lose weight. | While Purinethol seems to have helped versus other meds I was taking, I still had major flare-ups while on it. It wasn't until I changed my diet that I started to see real results and healing. Yes, diet DOES matter!!!! Keep away from all starches, sugars, grains, etc. and you will heal! Please research the | F | 55 | 7 years | 1/16/2004 | 3 | UC | I have not started to take Purinethol as of yet. | I was diagnosed with UC about 6mo ago. I have been suffereing from IBS since early teens that I can remember. I have been taking Asacol for 6mo now and cortenema's for 1mo. I realized no difference on Asacol, however I thought Cortenema's helped mildly. Mainly with the bleeding. My doc wants me off the steriods b/c of the bone marrow issue. He prescribed Purinethol which by book definition sounds very scary for me as I am 25 years old. I am looking for some good advice as whether to start this or not. I have been suffering from a really bad flare up for over a year now. I believe due to work related stress and general life style. My family relatives are Pharmacists and from there perspective it offers to many risks to be on at such a young age. Unfortunatley every day seems to be worse than the next. Any advice regarding Purinethol would be greatly appreciated. Has anyone ever tried Welbutrin to help with UC/Chrone's? | M | 25 | 0 days | 1/16/2004 | 4 | crohn's disease | When the doctor first prescribed me the medicine when i was 16, i suffered from loss of hair and lack of sleep so my doctor stopped giving me the med. I am back on it at age 21 and i haven't noticed any severe side effects maybe some fatigue. | I was diagnosed with crohn's when i was 16 but i have suffered from it for as long as i can remember. I have had three surgeries; two were to remove absesses and one was a resection. Pentasa worked for about 1 year but stopped working. Purinethol has done wonders for me. However, i have had one abses since being on the med But i do feel alot better than i used to. I still suffer from syptoms of crohn's but they are better now that i am on the med. I personally think that sleep is one of the best cures. | F | 21 | 1 years | 1/13/2004 | 4 | UC | Very tired, weight gain- inability to lose weight, hair loss-I'm used to a head of thick wonderful hair and it's thin now | This drug helps my UC but side effects are very frustrating. | F | 44 | 2 months | 1/2/2004 | 5 | chrones disease | I have taken this for 12 years and have had none except easier to bruise. My last 2 scopes have shown no sign of the disease or infections. | While anyone taking medicine for long term has to worry about unknown side effects, I have observed none. I drink alcohol in very moderate amounts ( never more than one beer or mixed drink)and have seen no problems with it. | M | 54 | 12 years | 12/29/2003 | 5 | Ulcerative Colitis | Have had colitis since I quit smoking 12 years ago. Tried Sulfasalizine, Prednisone (up to 60 mg), enemas, you name it. Nothing worked for more than a few days. Then the doc suggested Purinethol, 100mg. It work OVERNIGHT! I realize it isn't supposed to work that fast but it did in my case. Absolutely no symptoms at all for the last two years. I forget I even have the disease! Amazing! | M | 57 | 2 years | 12/26/2003 | 4 | UC | Aching Calves, hot flashes, very tired, dry mouth,daily hair loss Flu like symptoms, and stayed sick longer than usual. | Well, it started out as a horrible drug. But I watched my body very closely. I started to see a cycle being female. 2 weeks before my period my UC would flare up pretty bad. I had lots of bad symptoms while on Ortho Erva Patch. There aren't much studies about Birth COntrol and UC. I have switched to Yamin concetraceptive and am so much better. I was down to 3 BM's per day and yesterday I didn't even have one. I'm working with my obgyn and staying on active pills for 9 weeks straigt to see what is happening with my hormones that may be triggering my UC. I was first diagnosed in 1999 during my 7th month of pregnancy and have been battling this thing for quite some time. Asacol, Cortenemas, Prednisone you name it, nothing worked. I'm on 50 mg of the Purinethol daily and will be talking to doc about weening off of it. So, keep in tune with you bodies. Also, to help with loose stools, go to GNC and buy Millers Wheat. Sprinkled it over Raisan Bran or make muffins and eat it daily. You will see a tremendous result! It does work. Try to cut back on sugars, Soda, cakes and pasta's since the carbs turn to sugar. Hope my infor helps others. | F | 34 | 3 days | 12/5/2003 | 4 | Crohn's disease | Body ache, hair loss | F | 51 | 300 days | 12/1/2003 | 5 | Crohn's | None that I know of. | I have been taking this drug for 7 years now and I don't even remember what it was like to be sick. Granted it didn't start working for about a year and half. Sometimes I wonder what the long term side-effects will be, but nothing can be as bad as the way I felt all of those years ago in my prednisone induced insanity. | M | 31 | 7 years | 11/17/2003 | 4 | Crohn's | Tiredness - slight dry mouth. | Have been taking this med for about 10 weeks now. The past 2 weeks I notice that I am very sluggish at wake-up time and occasionaly nodd of during the day. It has been helpful in decreasing my prednisone intake, The goal is to be off of prednisone 100% . I am currently taking Asacol, Prednisone and 6MP. 25mg of 6mp is ths dosage I ingest. I do go for periodic blood tests to keep an eye on the White Blood count. On a whole, I see this working as I am able to decrease prednisone to a level that I was never able to reach. Each month I am able to drop the level by 1/2 mg . Doesnt sound like much, But any decrease is a PLUS as far as I am concerned. | M | 32 | 70 days | 11/13/2003 | 3 | UC | While this supposedly put my last flare up into remission, I have suffered cyst-like acne on my face, a horrible taste in my mouth, irritability, and hair loss. I have decided after a lot of prayer, to go off this medication, and see what happens...4 days and counting.... | F | 32 | 6 months | 11/4/2003 | 2 | Crohns Disease | I am a 16 yr. old girl and i was diagnosed with Crohns Disease about 1.5 years ago and I have been taking Remicade which did wonders for me they also put me on Asacol and that did not help me at all! My sympotons are coming back and my doctor recently prescribed Purinethol 50mg and I have not took it yet! Im scared of the side effects so if you have any advice or inputs on this please e-mail me at [email protected]!! Thank you!! | F | 16 | 0 days | 11/4/2003 | 5 | Crohns Disease | No side effects for me, but please read my comments. | I have had no problems, but I am considering discontinuing the drug. For those of you unaware, this drug can cause bone marrow toxicity and myelodysplasia. Although this condition is rare, it does happen. My father was on this drug for Crohn's, and the doctors believe his myelodysplasia was caused by the purinethol. He was on 75 mg/day. The risks increase with age, especially patients over 60. Please get the required blood tests; they are CRITICAL. And please work closely with your doctor while taking this drug. | F | 35 | 8 years | 11/1/2003 | 5 | CROHNS DISEASE | SLEEPLESSNESS | SINCE I'VE BEEN DIAGNOSED IN 1999, NO OTHER MEDS HELPED ME. REMICADE INFUSIONS AND PURITHENOL ARE THE BEST THINGS SINCE BREAD AND BUTTER. | F | 34 | 3 days | 10/30/2003 | 4 | crohns disease | None initially, but feel increased tiredness now after 2.5 years on the drug. My white count is also down considerably, therefore infections last longer. | First flare-up at age 25, undiagnosed until I obstructed and required a resection 2 years later.Controlled on Pentesa until taken off 7 years later as no symptoms.A year later the disease reoccurred- ending in a 2nd resection and colostomy formation. Started purinethol and have had no more symptoms of crohns since.Do I have long remissions or is the drug working well? | M | 38 | 2.5 years | 10/30/2003 | 2 | for ulcerative colitis | After 2 weeks my amylase was slightly elevated. After 3 weeks it was elevated more, accompanied by nausea, vomiting, fever and abdominal pain. The fever and the pain stopped the day after I stopped taking the drug. The first four days on the drug I felt better and thought it was the answer to my problem. I was diagnosed with UC June 2003, but probably had it in 2002, but did not go to a doctor and have it diagnosed. | F | 57 | 21 days | 10/30/2003 |