PURINETHOL Reviews (MERCAPTOPURINE)Average Rating: 3.5 (315 Ratings)Filter ResultsCompare PURINETHOL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on PURINETHOL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR PURINETHOL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 1 | ulcerative colitis | extreme nausea (poss. in conjunction w. lexapro 20mg), weakness, tiredness, stomach pain, perhaps a sensitivity reaction to the drug (?) | I'm supposed to wait until 2 to 3 months have elapsed, to see if it's working &/or side fx have improved. I'm not a big complainer about physical symptoms, but I'm starting to feel a bit dehumanized. Will hopefully be getting second opinion soon. This drug is out of my league. | M | 36 | 3 weeks | 7/1/2003 | 1 | UC | None cause I wouldn't take it. | Had UC 10yrs ago and was hours away from surgery. Predisone worked and I went home. Did alternative medicine after and was in remission for 10 yrs. Slacked off and got UC again. Hospitalized for 6 days and went home on Predisone and Asacol. Started Alternative medicine with Dr. BOb Marshall, www.healthline.cc,. After a month and half am On 7mg of predisone and a few tablets of Asacol. My regualar doctor wants me to take Purinethol. Hey! I would rather do the food 4 your blood type diet, no white sugar, white flour, no coffee ect. I went to a UC support group and most of the people wouldn't change there diet and wasn't interested in my success with alternative meds. One guy was a junk food juckie. He had twinkies in his briefcase. Yoga is great and getting a handle on what is emotionally going on DOES HELP!! Hey I'll do anything and pay out of my pocket for ALt Med then get surgery on be on this drug. ALT med is about $100.00 a week cost. | F | 42 | 0 days | 6/27/2003 | 4 | Crohns | Got sick easier. Many flus which last approx 3 weeks. | well it helped but eventually it started not to work all by itself. I now stopped it to take Methotrexate a injection used in combination with Remicade (Infleximab). Remicade is supposed to help. Ask about methotrexate, it's 1 shot every week and it replaces purinethol 6mp in my case and it works better alone then purinethol with prenisone | M | 17 | 19 years | 6/23/2003 | 3 | Ulcerative Colitis | Bruise marks even though there was no trauma; slight swelling of ankles; tired all the time. | F | 6 months | 6/23/2003 | 5 | Colitis | Rapid hair loss with complete thinning. | F | 35 | 5 months | 6/14/2003 | 3 | Chrons | mild dry mouth | I've been on the Purinethol for 5 days now, my doctor said no alcoholic beverages but I have talked to one person who has had alcohol with this drug. Does anyone else drink while taking it and what side affects have accured? | M | 26 | 5 days | 6/10/2003 | 1 | Crohns | flu symptoms; aches,pains,chills,fever,vomiting,passing out,loss of muscle condition. Complete allergic re-action, after only one 100 mg. pill. Six weeks to recover, took another pill....exactly the same reactions only worse. | F | 63 | 1 days | 6/3/2003 | 4 | UC | only been on it for about 3 months now, no side effects that I can tell, but then again, it takes about 3 or 4 months for it to kick into your system, also on prednisone | I've been doing some reseach about UC and connections with food...there's this book that i picked up called | F | 22 | 3 months | 5/26/2003 | 5 | Crohns | Lowered immune system and dry mouth | Two years ago I was very ill and on Cipro, Flagyl, 6mp, Prednisone and Pentasa. Nothing seemed to work. I had an ileostomy and now am only on 6mp. I feel wondreful! | F | 24 | 4 years | 5/23/2003 | 5 | Ulcerative Colitis | I need to drink a normal amount of water or I will notice mild dehydration. I seem to get sick a little easier. The first two winters I caught the flu maybe four times per year and each one lasted three weeks or more (two times as long as normal) I got a flu shot every year after that and basically have been healthy. As long as I wash my hands regularly it doesn't matter much. | This drug made the UC go away. I completely forget that I am supposed to have Ulcerative Colitis except around check-up time. | M | 32 | 7 years | 5/22/2003 | 5 | Crohn's | Nothing noticable, nothing that was unmanagable. SOme chronic fatigue and sleeplessness, but is it the drug or other factors in my life, like ADHD and the Crohn's itself. Either way, long term potential side effects can be circumvented and watched for (and are being watched for very carefully) and are worth the risk as far as I am concerned compared to my life without this drug. | I was diagnosed with crohn's in 1991, I was 21 years old. I had no insurance and no way to afford medicines. I survived at first due to an angel in doctor's clothing who gave me samples to spare me the drug costs of Asacol. I was not perfectly healthy, but I survived. I moved serveral times after that, had some good doctors and some real quacks. and my disease got slowly worse. I've tried almost everything, asacol, prednisone, cortenemas, nothing really worked. in 97 I ended up in the hospital because I was throwing up, unable to keep even water down and suffering from raging fevers that I'd break within an hour or two only to start all over again. I went to the ER. On call that night was a Gasteroeneurologist who saved my life that night. He got me on antibiotics and a few other minor drugs and I was home in a week with a scheduled colonoscopy in a month. the night before I was due for the procedure I was unable to finish the colon flush they give you because of the vomiting again. I was in the hospital as an inpatient for my procedure the next morning. He also had me sign for an upper GI at the last minute on a hunch and discovered a bad case of acid reflux and got me on the Prilosec and I've been very happy. After the procedure he handed me the drug bible and told me to look up Purinethol. He had me weigh the long term potential side effects versus the potential results and gave me the choice to begin the 6MP treatment. It was October and he told me I should be in remission by New Years. He lied. I was in complete remission by thanksgiving. My relationship with this drug has been a little on again off again due to pregnancies but has in general been better and more open than my first marriage, and with better results. the marriage nearly killed me and the drug saved my life. I just got off an 8 month dalliance with Remacade. It was nice at first, the day after I was weak, suffered inexplicable backaches the week after, but then I was fine for about 5-6 weeks. I'd start bleeding 2 weeks before the next treatment. Last week I suffered a bout of Lupus like symptoms which I had not been warned about, primarily the wandering arthralgias that had me doubled over in the ER again afraid to move. I felt like a dead spider, with dry brittle bones and painful joints that even Darvocet couldn't ease. I am off the Remacade (though it is a wonderful drug, and many I have talked with while getting the infusions have been very happy with it (mostly arthritis patients) but it just isn't for me) I am temporarily back on the prednesone to knock out the pain (which occured in 6 hours thankfully) and am back on the 6MP. And now that they've declared it safe for pregnancies I'll never go off it again. | F | 33 | 4 years | 5/14/2003 | 3 | | 5/12/2003 | 2 | uc | rash, tired, change of bowel habits (worse than just UC symptoms) | I don't want to give up, but it's been over a year and it's doing nothing. | F | 47 | 1 years | 5/8/2003 | 5 | Ulcerative Colitis | Tendency to get colds often. Taking Vitamin C helps. | Feel great. The only drug that was affective with my disease. Have energy, lost the weight from Prednisone, and I now live my life without ever thinking about the UC. Can get sick easily though - I had a cold that lingered on throughout winter (nothing serious though) - this may be a result of being around people constantly at college. Having to take Tylenol Cold every once in a while is a side effect that is definately minor in comparison to those of other UC drugs. | M | 19 | 2.5 years | 4/30/2003 | 4 | U.C. | Nausia especially after eating and in the morning. Lowered Immune system. | Although I fell terrible right now, I know this med works. THANK GOD for this medicine because it is the ONLY thing that works for me asside from steroids (which I refuse to take again because I gained SO MUCH WEIGHT!) I took this drug about a year ago and it got my UC under control. I had taken asacol, pentasa, and others all with NO effect. I was able to stop taking the drug, and my UC was under control without drugs, but the slightest bit of stress and darned if it didnt flare right back up again. so I started taking it again about 1 week ago, and although it takes a few weeks to start working, I am excited to get it under control again. I dont think I will stop taking it again because I do hate the immediate side effects when I begin taking the drug. The Nausia is almost unbearable and makes me not want to eat, but if I dont eat I get nausiated too. It does go away eventually but it takes a week or two. SO- overall it works if you want to wait. If anyone else has experienced nausia, fell free to let me know. I really would like to talk about others experiences. Thanks!! | M | 23 | 1 years | 4/29/2003 | 5 | Crohn's Disease | Occasional headaches and definite irritability. But I can live with myself and so can my mate so it's better than the Crohn's! | So far, so good! After my first resection I don't ever want to have to face surgery again so my fingers are crossed for continued success with Purinethol. | F | 36 | 12 months | 4/21/2003 | 4 | Chrohn`s and colitis | So far just tiredness. | I was very hesitate about going on this drug. Am on Remicade also. Had abcesses on my anal area. 2 have healed completely, 1 is still open but doing great so far. Had a sore throat and sinus drainage probley from the Remicade. Doctor wants to stop Remicade in about a year and just take 50 mg of Purinethol. | F | 38 | 10 days | 4/12/2003 | 5 | uc | None | This was like a miracle drug for putting my UC into remission. WAs anemic while taking this( maybe coincidence) but a few shots of procrit and daily iron pill s took car of that. | M | 55 | 4 months | 4/9/2003 | 5 | Crohn's Disease | I was very afraid to take this medicine because of the side effects that I have read about. I have been on it since January, and I feel like I am a new person. The results were amazing. I did not get any of the side effects that I read about. | F | 33 | 4 days | 4/7/2003 | 4 | CROHN'S | SLIGHT HAIR LOSS, I'M NOT BALDING OR ANYTHING THOUGH. I HAVE JOINT PAIN, BUT I THINK THAT'S JUST CROHN'S IN GENERAL, NOT THE MEDS.. IT COULD BE THOUGH. | I WAS DIAGNOSED WITH CROHN'S WHEN I WAS 6 WEEKS PREGNANT WITH MY DAUGHTER IN FEBRUARY OF 2002. I HAD TO HAVE SURGERY RIGHT AWAY. I HAD A RIGHT HEMI-COLECTOMY DONE, AND HEALED RATHER QUICKLY. DURING MY PREGNANCY, I COULDN'T TAKE ANY MEDS. SO AFTER I HAD MY DAUGHTER, I STARTED THE 6MP AND PREDNISONE. I THINK THE THING THAT HELPED DURING PREGNANCY WAS TAKING VITAMINS. ANYWAY, ABOUT A MONTH AFTER STARTING THESE, I RELAPSED BAD. I WIND UP IN THE HOSPITAL FOR 4 DAYS, GOT TESTS DONE, AND THEY STUCK ME ON REMICADE. MY DOC SAID I'D BE ON 6MP FOR ABOUT 4 YEARS ALONG WITH THE REMICADE. I'M SCARED TO COME OFF OF THEM, BUT WE'LL SEE WHAT HAPPENS WHEN THAT TIME COMES. REMICADE IS AWESOME. I LOOK FOWARD TO GOING EVERY 8 WEEKS. I'M OFF THE STEROID, *THANK GOD*. I GAINED LIKE 15 POUNDS FROM THE PREDNISONE, BUT DROPPED THE WEIGHT AFTER I WAS OFF IT FOR LIKE A MONTH. WELL, I GUESS OVERALL, I AM SATISFIED WITH THE 6MP. IT'S BETTER THAN NOTHING! OH, AND JUST TO LET THOSE OF YOU QUESTIONING DRINKING WHILE BEING ON THIS DRUG HERE'S WHAT MY DOC SAID: As far as drinking while on 6mp, it is highly suggested that everyone ask their doctor first, cause everyones case can be different. Some people may have more severe Crohn's and some may even be on other meds that may not mix well with alcohol, etc... But I will tell you what my doctor has told me since so many have e-mailed and ask, it is easier to just post and save you the trouble. He told me that drinking occasionally is Ok, as long as I don't overdue it. He said the main problem with mixing alcohol and 6mp is it will lower the affect of the 6mp, therefore it will not work as well. Also, liver damage is a proven side effect of 6mp, and liver damage is also caused from drinking alcohol, so it's only adding fuel to the fire to mix the both of them. But he did say once in awhile would be Ok. I usually drink on the weekends here and there, and have had no side effects so far except for occasional diarrhea the next day, but that could just be from the alcohol itself, i'm not sure. I hope this has helped. | F | 26 | 6 months | 4/3/2003 |