DIAMOX Reviews (ACETAZOLAMIDE)Average Rating: 3.2 (196 Ratings)Filter ResultsCompare DIAMOX with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DIAMOX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DIAMOX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | IIH | I am on 1000mg per day and the side effects have been pretty status quo compared to what I've read on this board. That is: tingling in hands and feet, nausea, loss of appetite, some hair loss, foggy brain and difficulty remembering things. The most severe symptoms for me were the weakness, body aches and complete lack of energy. | I hope that this information can help someone else the way it has helped me. I went to my general practitioner and asked her if she knew of any ways to manage the symptoms so that I could function and not fall behind in my program (I am a phD candidate and am supposed to be working on my dissertation and graduating in the next year-I can't afford to not function). She told me that my symptoms were most likely due to dehydration (I had been drinking about 80oz a day). She increased me to 4 liters! It is A LOT OF WATER, but by the next morning I felt better. I have energy again and I don't hurt. My hair has also stopped falling out. I still have tingles, but they're annoying more than debilitating. She said a good test to determine if you are where you need to be hydration-wise (especially with this drug), is to continue increasing water intake until your urine is no longer yellow-but clear. My neurologist just put me on lacix as well, so I am most likely going to have to drink more, and watch electrolytes. Anyhow, I knew that I would have to increase my water intake because this drug was a diuretic, but I had NO idea as to how much. I needed to share though because it really has made all of the difference in the world! | F | 30 | 2 weeks 500MG 2X day | 2/3/2012 | 3 | IIH / Pseudotumor cerebri | ringing in ears (all day), numbness in fingers (sometimes painful), knee pain, tired, brain fog, daily diarrhea, loss of appetite, anything carbonated tastes like steel, weight loss, acidosis | I started with 500 MG daily and was taken up to 2,750 MG and got very sick with metabolic acidosis because of diamox. I'm back to 1,500 - 2,000 MG a day with better results. It takes 6 weeks to get used to this med and the ringing ears and diarrhea is probably the worse part for me. The positive is that it does reduce the head pressure and makes it possible for me to work and function. I'm still waiting to see my eyes get better though. I am not overweight but have lost 20 pounds while on this because I never feel hungry. | F | 44 | 3 months 1000 MG 2X day | 2/3/2012 | 3 | IIH | The usual with tingling,brain fog,feeling the cold alot more than normal,stomach acid,pains in the legs,heart palpalations but worst of all Kidney Stones now 4 times in 5 years be aware that even drinking loads of water you stand a good chance of getting them! | I have been off and on Diamox many times as I keep getting kidney stones,every time I start back on them I get the usual tingling and feeling like I'm a dumb ass all over again,I have also had to change my job to an indoor one as the fatigue was just too much for me,as for helping with the headaches they actually make them worse at first,if you can put up with all the horrible side effects when you start taking these and believe me you will want to stop, then eventually your body kind of gets use to it,only for you to start with horrible leg cramps and feeling cold when you go to bed and sometimes can't get to sleep which makes your headache even more and so the circle of shite continues until you either give up on them or get a shunt. The only thing that this drug did for me was make me a stronger willed person | M | 45 | 5 years 250 2X day | 1/22/2012 | 3 | Pseudotumor Cerebri | Intermittent tingling in hands, mouth and feet. Cloudy urine, but no increase in urination even though I have increased my water intake. Lack of appetite. Can't drink anything carbonated. Very tired. Hard to find words sometimes. Seems like I stutter more than before. Cold all the time now. | When I had my first LP I was at a pressure of 43. I was drained down to 20, then four days later was back up to 27 even after being on Diamox 500 mg/day for four days. Drained again to 14, then ended up with a spinal headache. Had a blood patch done, where they placed 20 cc of my own blood in the epidural space. Spinal headache gone. Now up to 250mg 4x/day. Both of my optic nerves have hemorrhaged and I have lost some of my color vision. Severe eye pain and pressure and headache are for the most part gone now. Hoping that this medicine works so that I don't have to have surgery. | F | 33 | 3 weeks 250 4X day | 1/15/2012 | 3 | IIH/Pseudo Tumor Cerebri | Tingling/pins and needles in fingers and toes and occasionally face (sometimes very painful), frequent urination, "mind fog", depression, headache, severe fatigue, change in taste of carbonated beverages. | Almost all of the side effects go away if you drink lots of water! Also, as you get used to the medication it gets much better (it just takes a few weeks to adjust). It works! My CSF pressure went down and optic nerve swelling decreased. However, every 2 months or so my IIH symptoms (visual problems and headache) come back and they need to adjust the dosage. I am trying to be optimistic that they will find a dosage that works for me, and combined with weight loss my IIH will go away. Don't assume the worst with this drug! At first it seems absolutely awful but it works and the side effects go away. | F | 21 | 6 months 500 MG 2X day | 1/14/2012 | 4 | Inter cranial hypertension | Severe pins and needles numbness in hands and feet lower back pain dizziness incresed thirst | F | 23 | 2 years 1000 | 12/29/2011 | 1 | Dizziness and Ringing in ears. | tinging in hands, pressure/tingling in nose/tongue/head/neck/shoulders/back/feet. lack of appetite. lack of sense of thirst. cloudy urine. confusion. drowsiness. numbness. lack of hand coordination. depression. | this is horrible stuff. i feel sicker than ever. doctors are unconcerned with side effects, though every website i see says to report tingling of extremities IMMEDIATELY, as it is counted as a SEVERE reaction. i feel horrible, and all i can do is lay down. i've been sick for over a year, and the doctor just gave this to me as an experiment. | F | 33 | 3 days 250 1X day | 12/26/2011 | 4 | Pseudotumor Cerebri | Tingling in hands, feey and around mouth. Heartburn, fatigue, brain fogginess, metalic taste when drinking carbonated beverages, intolerance to cold, burp up sulfer taste and loss of appetite. | F | 36 | 3 weeks 1000 day | 12/19/2011 | 5 | Pseudo tumor celibri | Tingly in hands, feet and face. Tired. Hard to grasp words, lost some weight. I was diagnose with pseudo tumor celibri 6 years ago. I was not able to move from my bed due to the extreme headache. They were so bad that I would have blackouts. I started taking this drug and slowly I stopes having pain, lost weight, pressure in my head and optic nevlrve decrese. I would take up to 4000mg a day with topamax. Now I only take 750mg and thank GOD, no pain. It gets better! Believe it! I am proof of it!!!!!! | F | 30 | 4 years 750 | 12/11/2011 | 4 | Pseudotumor Verebri | Fatigue, Confused, Disoriented, Weak, Stomach pain, Tingling in hands, feet, knees and spider web feeling on face. Memory problems & concentration problems; Dizziness; Diarrhea, Taste changes, I am always freezing even when it was 90 degrees this summer, some vision changes | After running mri's, every test you can think of and 62 blood tests they finally diagnosed me with PTC In Jan 2011. LP was 25 took me down to 17 then i had another in Nov it was 25-29 took me down to 17 ugh not sure what good the meds are doing if its not lowering my pressures but it sure is helping with some of the headaches!! My neurologist tried me on topamax and I had an allergic reaction so she put me on Diamox, had an allergic reaction then my husband was researching and found that the cause of my reaction was cause of how fast they upped my dosage. So I started over and am up to 4000mg a day. Its helped alot till the seasons changed and now the headaches are back full force. Sometimes I wonder why I go without my Diet Pepsi so Ill go without and have me a soda and I rememeber quick enough!! The side effects suck but even with the weather changes here what the diamox is controlling is so much better than what it could be!! | F | 33 | 8 months 1000 4X day | 12/3/2011 | 2 | Psuedo tumor cerebri | Extreme body pains?!...very weak and tired. Slow to think. worse headaches. Vision more blurry! Is this normal?! Im not overweight. My pressure was 19 on my LP but my papilledema continues to worsen. :( very frightened. | F | 23 | 4 days 250 mg | 11/29/2011 | 4 | Pseudotumor Cerebi | Severe tingling in hands and feet, tiredness, soda tasted really weird, things looked weird | My first neurologist gave me a small dosage, when I visited my neuroptomologist from John Hopkins, he told me that the dosage wasn't enough to do anything, so he raised my dosage 4x. I recently was taken off the medicine | F | 19 | 3 months 250 2X day | 11/2/2011 | 3 | PsuedoTumor Cerebri | Tired, Sleepy, Confused, Disoriented, Weak, Stomach pain, Tingling in fingers and feet. | I get so fustrated that I stop taking it some times. I am the sole provider and care taker of me. I cant afford to be all of those things. But I also cant afford not to see. I get so scared sometimes and my friends cant understand when I explain what I am going thru because I look fine. | F | 42 | 3 years 250 2X day | 10/20/2011 | 4 | Idiopathic IntercranialHypertension | Tingling in hands, feet, knees and spider web feeling on face. Decreased appetite. Dry itchy skin. Dry mouth, sometimes get confused. | I was diagnosed with IIH Sept 8 2011. It was nice to actually put a name to the "thing" that was causing issues in my daily life. I was waking up in the morning completely blind and it would last for about 30-45 seconds. I brought this to my doctor's attention and he sent me to an Opthalmoloist. From there I was seen by my neurologist who ordered the LP. I have had only 1 LP with an opening pressure of 32 that when we were done taking off a few tubes of fluid for testing went down to 12. Since the LP I have felt that my head doesn't feel as "full" as it was before and I am no longer waking up blind. It take a few seconds for my eyes to adjust, but I can see. I was started on the Diamox just after the LP and to me it seems that it is working. I am VERY thankful even with all the side effect for this drug. It was terrifying to me to think that I might not see my daughters grow up or to see my Husband return from his deployment next summer. There are so many FUTURE memories that this drug is going to help me see. I am so happy I came across this page it really helps to know others are having the same experiences I am. THANK YOU ALL!!! =) | F | 37 | 1 months 250mg 3X day | 10/16/2011 | 3 | PsuedoTumor Cerebri | Tingling in hands, feet, face, arms, and mouth; Memory problems & concentration problems; Dizziness; Vomiting; Diarrhea; Sharp stomach pains; Drowsiness; Change in taste. | Diamox helps a little for my PTC, but the side effects happen 24/7. It almost makes me stop taking it until I realize just how much it's helping my head. So if you think you'll have a problem with constantly being really tired, always having your hands or feet tingle, being sore or dizzy all the time, having an upset stomach, or not being able to taste things right.. Don't take this. Although it really does help, and so I don't mind the side effects TOO much.. Just know it'll make you feel pretty icky sometimes, but just fight through it and you'll be fine. | F | 19 | 1 years 250 MG 4X day | 9/26/2011 | 3 | pseudo Tumor Cerebri | the usual, tingling in face and feet, blurred vision at first but then improved vision, bitter taste with carbonated beverages, nasuea. | Started using using about five years ago 250mg usually I would get relief in a few weeks. Six months ago another episode was cured by the same dose, but this time it didn't seem to work, so I doubled the dose to 500mg 2X per day still no relief. My symptoms are pressure and fluid probably CSF in my ears. The pressure varies throughtout the day cannot correlate with anything, I missed a dose last week and it felt like my head was going to explode. Not sure what to do I definitely don't want to have a shunt too risky for infection, so I'm waiting this one out. I started with pseudo tumor when I was abour 20 and weighed about 120 lbs, I certainly didn't fit the usual profile. Had surgery to repair a CSF leak in my left ear in 91 it returned a few years later then faded away only to return again and again, Now both ears are full. Anyone have a similar experience? | M | 58 | 5 months 1G 1X day | 9/15/2011 | 4 | Glaucoma | Spider web feelings on my face, arms and neck, since using Diamox have been unable to drink carbonated drinks, taste horrible, skin dry and itchy; tingling in fingers and heels. I stay cold all the time, even in the hottest temps. | My eye pressure has decreased back to nomal since taking Diamox, But I can't wait to stop taking this drug, | F | 50 | 4 months 500 2X day | 9/5/2011 | 5 | pseudo cerbral tumor | i have noticed over the years weight gain,tired all the time,and numbness in face,tingling in hands and feet. also i had the shunt put in on nov. 6,2001. | F | 39 | 11 years 250 mg 1X day | 8/7/2011 | 4 | Pseudotumor Cerebri- IIH | Tingling in hands and feet (Paraesthesia), "Spider web" sensation on face, Taste alterations (Parageusia), Low blood pressure, Loss of Appetite, Dizziness, Fatigue, Short term memory loss, Confusion, Headaches | Went into the ER with vision loss, severe headache, and dizziness after visiting my Neuro-ophthalmologist who found Optic Nerve Swelling (Papilledema). After an MRI, Cranial CT Scan, and an Angiogram the possibility of a brain tumor or Epidural/Subdural Hematoma were ruled out. I had an LP, and pressure of 62ppm was dropped to 32 ppm. Four days later I had another LP to drop my pressure from 32ppm to 12ppm. I was put on the Diamox and Naproxen. I have had 4 more LP's since I was diagnose with IIH 3 months ago. The side effects are sometimes unbearable, but it's slowly starting to work. My doctor told me to give it 3 to 4 months to allow the medicine to start working properly. And so far my pressure has gone down slowly with each LP i have had. I have lost 35 pounds, and have since then gone off birth control since those are two very harmful factors when dealing with IIH. Take magnesium supplements, and eat lots of potassium (that will help with the tingling), drink PLENTY of fluids (since your peeing everything out), and excercise. The more I do, the more energized I feel... If you're willing to give it a chance, and it's working for you, STICK WITH IT! It's better than the alternative (Cerebral Shunt). I am still having LP's done on a fairly regular basis... But all in all I am counting my blessings. | F | 21 | 3 months 500 MG 3X day | 8/5/2011 | 1 | Pseudotumor Cerebri (IIH) | I experienced bad side effect (foggy brain, metabolic acidosis, tingling in tips of fingers and feet, carbonated drink bad taste, fatigue worst than tha simptoms of IIH) so I decided it was not the drug for me. | M | 34 | 4 days 250 mg 1X day | 8/4/2011 Patient History |