DIAMOX Reviews (ACETAZOLAMIDE)Average Rating: 3.2 (196 Ratings)Filter ResultsCompare DIAMOX with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DIAMOX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DIAMOX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | IIH | I am still on this drug but I hate it, I am constantly tired and get extremely slow and confused where I feel thick and ditsy and that is not me. I have had severe joint pain which seems to be getting worse from day 1 and my neurologist has brushed it off and believes that it is nothing to do with Diamox, I've been referred to several joint consultants and none of them can tell me why I'm getting these pains. I feel as if my body is weak and I also tend to get a tight head and random blurry vision which can last for 20 minutes then go back to normal. My libido has also gone completely. | F | 23 | 2 years 2000MG | 12/29/2015 | 3 | IIh | Tingling on hands feet spider gave sensation on face. Lost of appetite and headaches. Blurry vision and makes me feel so tired. But has help me with my papilledema. | F | 25 | 4 months 1000 | 12/17/2015 | 4 | CSF Pressure | Loss of appetite/weight loss, carbonated drinks taste terrible, caffeine exacerbates pressure, frequent urination due to increased water intake, headaches, occasional tingling in hands and feet. | F | 53 | 6 weeks 250mg 2X day | 11/4/2015 | 5 | Chiari 1 | Tingling in hands/feet. I am cold all the time. The initial side effects of taste issues went away. I have joint pain- knees especially and I have no grip in my hands at times. I do struggle with fatigue off and on. Foggy brain and inability to focus at times. I am now wondering if this med is what is killing my libido?? | It is a relief to find this page. I felt like I was going crazy at times. I am not that old yet I can't remember things and my quick wit seems to be going rapidly:( I thought I had an undetected autoimmune issue but after reading all these posts- I think the joint issues are b/c of this med. I am now experiencing decreased libido for the last year or so and am wondering if this med is why. I did go off of it for 5 days and ended up with an rare form of migraine that mimics a seizure and was hospitalized. Clearly the side effects are worth it. That was very scary! | F | 35 | 4 years 250 1X day | 7/31/2015 | 4 | PTC | Tingling and numbness in hands, feet, lower legs, and lower half of face. Some indigestion and heartburn at the beginning and when dose was increased. | The drug is saving my sight. When the PTC kicked in with the headaches, vertigo, horrible tinnitus, dizziness, vomiting, nausea, I wasn't paying much attention to my sight at first. When I did...I was shocked at how blurry and difficult it was to focus. I was diagnosed with secondary glaucoma do to the pressure, and had already lost some vision. The Diamox was increased, and eye drops added to the long list of medications and no further damage to my sight has occurred. As much as I dislike the tingling, the numbness, and it increases whenever the dose is increased, I won't go off until the PTC is resolved. That unfortunately hasn't shown any sign of happening. | F | 47 | 3 years 500 2X day | 7/16/2015 | 3 | IIH | Taking for iih - Tiredness dizzy, head ache on occasion, pins n needles r the worst keep me up at night I am taking 1000mg 2 twice a day have no appetite feel sick most days... I suffer massively with anxiety so not having he best time with these! | I feel they are working as my lights spots in my eyes are much better I am still experiencing headaches but think that is the meds not the iih its a different headache so I'm sticking with it still don't know why I have it if it's weight related I hopefully won't have to be on them for a long distance as I am losing weight! | F | 26 | 3 weeks 1009mh | 6/22/2015 | 5 | IIH / PTC | Tingling (Lips and feet), Heart Burn, Acid Reflux, Fatigue | Diagnosed with PTC. Constant headaches for a year. Noticed when I was a child I couldn't wear headbands or pull my hair back to tight, car sickness when traveling to the mountains. I have been headache free for 4 days! I'll take the side effects. | F | 36 | 2 weeks 300 | 6/17/2015 | 4 | Puedotumor Cerebri/IIH | Tingling in fingers and toes, fatigue,dry mouth, loss of appetite. frequent urination. diarrhea, cramping, joint pain | I was diagnosed with Psuedotumor 2months ago. About a month before I was having severe headaches that had me screaming and in tears. I had to stay in complete darkness and everyone had to speak in a whisper because light and sound triggered the headache. I thought I had a brain tumor or an aneurysm. Drs. said it was just migraines and that they were normal for a woman in her first trimester. A couple weeks later I was back in the hospital because my double vision had greatly increased and my right eye stopped moving. A new Dr. finally diagnosed me with pseudotumor and started me on Diamox. It is true that the side effects can be horrible. I started out taking 1,000mg and was increased to 2,000mg after my opthamologist noticed that my optic nerve swelling hadn't gone down. However, I have read that it may take time to find out what dosage may be right for the individual. Also, my headaches and the pressure I was feeling at the beginning haven't returned. The pressure that I felt in my head is mild and the headaches can be controlled with tylenol. My eye also started to move again. Alot of the side effects also died down. As a reminder, you have to make sure you take in potassium and drink lots of water!!! The disorder is still difficult for me, especially since I'm pregnant. But I try to remind myself that every cure or treatment is going to come with side effects and what will happen if I stop taking it. | F | 32 | 2 months 2,000 mg 4X day | 6/7/2015 | 4 | Pseuodotumor | Low energy, tingling in hands pain in shoulders and arms. Dry mouth, diarrhea. | Diamox does work for my pseudotumor but side effects can be a bit harsh. I recommend it. | F | 34 | 10 years 2000mg | 6/3/2015 | 3 | semicircular canal dehiscence | upset stomach, altered taste of food and drinks, lethargy, metallic taste in mouth, headaches, tingling in feet, hands and face | I am taking this to reduce the pressure and fluid in my head caused by superior semicircular canal dehiscence on my right side, and thinning on my left side. There has been some relief, but it isn't consistent and there is still pressure, and a feeling of my ears being stopped up, as well as the same pain associated with decreasing altitude (as if descending in a plane). | F | 46 | 1 months 500 2X day | 5/11/2015 | 1 | during eye catract operation | Memory loss.balance losing had to hospitalised as could not stand properly .Nero physicians attended and was advised for surgery . even got l.p. done. even after 10 days over I do not get my taste and yet not feeling well please advice what is to be done.??????????? | Will request scientific to find alternate of it. | M | 68 | 4 days 250mg | 2/26/2015 | 4 | Pseudotumor celebri | Tingling in fingers, fatigue, really thirsty, forgetful/short term memory loss, mind fogginess?/mental slowness I guess, stomach aches, felt very bad, loss of appetite | I lost 12 pounds while on diamox (I still am) because of loss of appetite, the whole time I've been on it ive felt mentally slow or mentally foggy, I've been drinking about a gallon of water a day. Still on it, the basic bad feeling hasn't been as bad but I've been out of school and unable to really do much :-( I really think it did and is helping though. | F | 13 | 1 weeks 1500 | 1/19/2015 | 4 | Pseudotumor | Dry mouth, cloudy urine, diarrhea, tingling in hands and feet. Forgetfulness, confusion, I'm really tired all the time. Sensitive to sun light, my skin hurts once in awhile like a bad sun burn. Lose of weight. | I've been on this medicine for a long time just recently they tried to take me off of it and pressure went up. Sad to say I'm back on the medicine. For thoughs of you who legs are cramping you are lacking potassium eat more bananas or take it in pill form. Also just met with a specialist and there is a new surgery that has been successful for those of us who can't function normally on this medicine its brain stenting. I have been meeting with a specialist to see if this is right for me. My advice is to stay on the medicine it gets better. Look at all you options. | F | 36 | 5 years 500mg | 1/14/2015 | 4 | pseudo tumor cerbri | Tingling in lip,fingers and toes,cloudy frequent urination. Confused forgetful,constipation, weight loss, change in taste buds | The medicine work great for the headaches,flashes floaters and ringing in my ears | 23 | 5 months | 12/17/2014 | 3 | Pseudotumor Cerebri | Tingling in hands, feet, and lips. Very tired and exahausted all the time. Mind is foggy and I get confused easily and much more forgetful. Extreme heartburn. Pop and beer tastes terrible. Ear ringing. Bad neck pain/soreness. Cloudy urine. Frequent urination. Headaches are gone and vision has improved. Just wish I could function normally. | F | 23 | 2 months 500 x2 | 9/16/2014 | 3 | Intracranial hypertension | When I first started taking Diamox, the first 2 weeks were unbearable and my dose increased to 2000MG per day, and was reduced to 1000MG because I couldn’t handle the side effects. Continual cramping in legs and feet especially at night, wakes me up about 6 times per night and the painful cramping lasted 20 minutes each episode. Pins and needles in lips, feet and arms all day. Continual ringing in ears that I couldn’t have a conversation or go to work. Tired all the time, loss of appetite. | Lost 10 kg (22 pounds) since starting this medication due to loss of appetite. Still get the cramping in my legs but magnesium tablets seem to help as well as drinking lots of water. Slowly starting to regain my energy levels and feeling less tired. Have had 6 appoints with the neuro since and my optic nerves swelling have reduced as well as the intracranial pressure. Scheduled in for another lumbar puncture soon. My vision hasn't improved but has actually deteriorated slightly, but the headaches have completely stoped. | F | 26 | 3 months 250MG 4X day | 9/8/2014 | 4 | idiopathic intercranial hypertension | My symptomes are the same as everyone else on here, the food, the soda, the weight loss, trouble sleeping... I feel like a walking talking side effect! Lol I am extreme in these few other things... I am extremely sensitive to light, i wear special tinted glasses indoors to block out light. Numbness and tingling in hands and feet goes up my arms and legs if I get cold even when it's warm out. I have a hard time regulating my temperature so I am cold often. I have ringing in my ears like my head is in a washing machine, there are times i lose my hearing. I have a sound sensitivity and I wear special ear plugs. I tire easily. My mood changes. I am starting to losing my hair. With all that said I recommend Diamox to all who truly have IIH! It Changed my life by making mine manageable again. These side effects are no picnic but they are a drop in the bucket to what I was suffering with before this medication. I've read some of the posts and it is sad that so many people gave up on this medicine after only a few weeks. It took me a month and a few LPs to get feeling like I was moving in the right direction. | F | 36 | 10 months 2000mg day | 8/4/2014 | 4 | Pseudotumor Cerebri | PTC manifested by loud pulsations in ear for 13 years and persistent vertigo for one year. Finally diagnosed 8 months ago. After beginning Diamox: frequent tingling in fingers and toes, severe nausea, loss of appetite, lethargy and cloudy urine. Now appetite great, tingling occasionally, cloudy urine persists. Pulsations in ear very minimal and vertigo resolved. I have great energy, work out 3X/week and have lost 25 pounds. I feel fabulous! | F | 52 | 8 months 250mg 2X/D | 6/18/2014 | 5 | IIH | Tingliness in hands, feet, and face, loss of appetite, thirst (don't like drinking water but would drink lots of orange juice), little bit of diarrhoea, nausea, sleeping problems, bad short term memory | Has really helped to reduce the swelling of my optic nerves might be able to get off the medication in 3-4 months at next appointment if all swelling is gone. | F | 22 | 1 years 250mg 2X day | 5/17/2014 | 5 | Pseudo Tumor Cerebri | Fingers, toes and lips tingle, soda tastes awful, appetite isnt the same as some foods taste different. My sleeping pattern is off, I seem to have more restless nights. And really bad heart burn...its awful! | The ringing in my ear has stopped and I have had no headaches since taking the medicine. I was originally prescribed to take 2 pills a day but I didnt like the way it made me feel so I talked with my DR and they said one a day is fine. | F | 29 | 30 days 500 mg 1X day | 4/14/2014 |