DIAMOX Reviews (ACETAZOLAMIDE)Average Rating: 3.2 (196 Ratings)Filter ResultsCompare DIAMOX with similar:
Type: Brand name discontinued; available as generic
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on DIAMOX: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR DIAMOX | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 4 | pseudotumor cerebri | tingling in tips of fingers and feet. also some tingling on lips and tongue. fatigue. | I started taking Diamox when I was having severe headaches. Saw neurologist after seeing my regular doc 3x. Had LP 2 days after seeing neurologist. My pressure was at 43 and had 14cc of fluid removed. Having another LP and possibly a 3rd. Increased my Diamox from 1x a day at 250mg to 2x a day at 250mg. Had double vision for over a month and it is now starting to go away after taking diamox 2x a day. | F | 23 | 3 weeks 250 2X day | 8/1/2011 | 5 | Psuedo-tumor Cerebri | At first there was tingling in the toes and fingers, Spider-web feeling on my lips, frequent bathroom visits, loss of sex drive, carbinated drinks and chocolate have a metalic taste, dry mouth | My optical nerves were swelled at 4+ and my vision was almost gone. It would completely go for about 30 sec or so when I would stand or move my head fast. I had major blind spots in both eyes and the rest of my field of vision was blurry, so bad to the point I couldn't drive anymore. And headaches... the worst ever! But I have always had headaches. Went to my eye doctor and he determined thats probably what it was. Sent me to a neurologist. She done a spinal tap and my back pressure was at 42. They drained it down to 15 and started me on Diamox the same day. This was 45 days ago. I have visited my dr.'s since then and my optical nerves have still been swollen to 4+. My neurologist has increased Diamox by 1/250mg pill every week to where now I am on 7 a day. 2 days ago I went back to my eye dr. and my optical nerve swelling is at 1. He says this is an indication that my back pressure is going down as well. I am dieting and currently have lost 13 lbs. The hardest part is not being able to drink dt. dr. pepper, but then this may be a good thing to as soda makes you retain water!!! The other symptoms are nothing I can't deal with in order to be able to see my children grow up. THANKS DIAMOX!!! | F | 31 | 45 days 1750mg 1X day | 6/17/2011 | 4 | Pseudo Tumor Cerbi | Tingling lips and fingers, bad heartburn, nauseau, very sleepy | This medicine has significantly reduced the pressure in my eyes (originally in 200 range) now my left eye is near normal levels and my right eye is getting there. My headaches are starting to return but I am not sure if it is allergy related. | F | 31 | 2 months 500 mg 2X day | 5/1/2011 | 3 | IIH | Dryness under nose, dry skin, very strong heartburn, feeling of "not fully being there", fatigue, brain fog, "spacing out", carbonated sodas suddenly tasting disgusting, increased urination | On it for IIH, prescribed by Neuro Opthamologist. Side effects are piling on but there doesn't seem to be another choice for me. I'm hoping to be able to finish my semester at college. Does help my IIH headaches, only get mild headaches about 1-2 times a day. vision got better but hasn't for a few days, crossing my fingers on that. | F | 21 | 2.5 weeks 4X day | 3/18/2011 | 4 | Psuedo Tumor | Tingling in hands, feet, leg cramps, nausia, appitite loss, unable to drink carbonated drinks | I have been taking this on and off for 2 years. I am not over weight and the doctors have no idea why this is happening, and yet they still tell me to lose weight. I weigh 145 lbs and I am 5 foot 7 inches. When taking the diamox like I am supposed to it makes me tired, and I lose my ambition. My condition has gotten better, but as soon as I take a lower dose or not take it at all, my migraines come back. It is like a lose lose situation. | F | 22 | 2 years 250 3X day | 3/8/2011 | 4 | Pseudo Tumor Cerebri/IIHT | Pins and needles in hands and feet, occasional stabbing pains in legs, slightly light headed, severe fatigue for the first few days. | I started taking the generic for the pseudo tumor cerebri a few months ago then lost my insurance. I was on it just long enough to get up to the 1000mg a day and past the extreme fatigue. In myself, the fatigue went for about 2 weeks then once I started losing the weight I got some energy back. Had to make a complete diet change to aid weight loss. Now have some financial assistance so back on the generic diamox. It was starting to work for me so I'm hoping to get that back. It seems to be a 50/50 chance that it will work for someone, everyone's body chemistry is different. For me this is the only thing standing between me and surgery. LPs are out of the question, the first (and only) one that I had put me in the ER 4 times with the worst migraine I have ever had. Getting past the initial side effects is my big challenge but I'm down 60lbs with 55lbs to go and I think this will work for me... I hope! One important thing to remember is that Diamox (and generic) destroys electrolites so you need to be replacing them. I've found that making a drink that's about 70% pedialyte and 30% ginger ale makes it easiest to get them back. Also I am prone to kidney stones, and diamox can produce them even in people who've never had one so hitting my 4 liter a day limit on water is super important. | F | 29 | 3 weeks 250 2X day | 3/4/2011 | 3 | Pseudo Tumor Cerebri | Blurred or foggy vision, dry mouth, tingling in extremedies, loss of apetite,soda and other drinks taste strange,fatigued, loss of memory, sex drive gone. | I dont know if glaucoma is a side effect of the Pseudutomor cerebri but the both presented themselves around the same time. I've gone from being super active to a couch potatoe, when diagnosed to weighted 254lbs my last weight in was 232lbs. purely from loss of apetite I'm so tired I can barely get my mail. | F | 43 | 6 months 500 2X day | 2/19/2011 | 3 | Idio. Intracranial Hypertension | Tingling and numbing in feet, hands (most finger tips), spine, lips; increased urination, drowsiness (especially for the first few days after a dosage increase), foggy thoughts (usually only after a dosage increase) | F | 20 | 1 months 500 mg 2X day | 2/2/2011 | 4 | Psuedo Tumor (is diagnosis so far) | Tingling in hands, feet, only sometimes. I'm a runner and have experienced muscle fatigue. All in all, mind over matter plays a big part in this drug. Don't let it win! You have to be in control and not let it control you. | I am a "different" sort of case, my doctors would say. I am 4'11 and 110 lbs. Before taking the drug I had a spinal tap to reduce my pressure and weighed 115 WITH muscle. After taking I don't have as much energy to run, but am starting to get back into it. I've noticed if I remember to take the medicine at the same time each day my body and mind react better to it. I have just began to really get used to it. Instead of running 3-5 miles per day, like I used to, I have resently started a new routine to help with seasonal blues and not being able to do as much. I walk .5 miles on the treadmill (until sunnier weather), run 1 mile and walk .5 more. I recommend doing as much excersize as possible to increase your energy level! It helps with energy and mentality. No more excuses and complaining, just do it :) | F | 30 | 10 months 1000mg 2X day | 1/27/2011 | 4 | Pseudotumor Cerebi | Tingling in hands and feet; aching in legs; heartburn, nausea, dizziness and afternoon drowsiness; decrease of headaches and appetite; increased volume of tinnitus... | LP relieved pressure of 28 ppm to 12 ppm - removed 4 cc's of CSF. Trying to drink 2 glasses of fluid with each dosage. By cutting back sugar intake and sodium intake (approx. 1,500 mg a day) - have lost 10 lbs. in past three weeks, with one lb a day since starting medication. First three days, only took half a pill to ease into side effects. | F | 46 | 5 days 250 4X day | 1/19/2011 | 5 | pseudotumor cerebri with sys lupus | Tingling of the hands, feet, and face. Feet and hands stay cold all the time. Loss of appetite as well as no longer able to drink carbonated drinks. Insomnia, with extreme fatigue. Loss of weight and frequent urination like a pregnant woman! | This medication is saving my life. I went from having seizures and being practically blind to being able to drive again and be seizure free. However, I no longer feel like doing anything but laying on the couch. I have constant kidney pain and miss Dr. Pepper so bad...but it's for a good cause!!! | F | 27 | 45 days 500 MG 2X day | 12/28/2010 | 5 | IIH | Paraesthesia (pins and needles), taste changes (especially to carbonated drinks), ++ fatigue, dry mouth and eyes, lowered insulin requirements/hypoglycemia (Type 1 Diabetes), sensitivity to the cold, constipation. | Diamox has greatly improved my IIH symptoms. I rarely have pressure headaches (unless I forget to take a dose). And the papilloedema in my eyes has completely resolved. The intensity of the side-effects of Diamox has somewhat diminished the longer I have stayed on the medication. Pins and needles, hypoglycemia, constipation and sensitivity to the cold continue. The fatigue and dehydration were incredible when I first started on the medication. Whenever I "stopped" I'd fall asleep. It was nothing to 'nap' for 6 hours. I needed eye drops several times a day for lubrication. I've also lost weight (10kg/22lbs) despite eating more for the frequent hypoglycemic episodes. | F | 35 | 17 months 250mg 3X day | 11/19/2010 | 3 | Glaucoma | When I first started taking Diamox at age 14, and any time I've increased the dosage, I got tingling in my face, limbs, and even "glutes", but nothing very serious. At 24, I went off the drug for a couple of years, and when I resumed, I got the tingling and the cold plus indigestion, irregularity, trouble concentrating, frequent "spacing out" spells, crippling depression, and chronic, debilitating fatigue. | I have a love-hate relationship with Diamox. It is the only drug that has controlled my eye pressure, but it makes me feel like a wrung-out dishrag. I am legally blind, but it is thanks to mountains of Diamox and a few outstanding ophthalmologists that I am not totally blind. However, as I have gotten older, it seems the side effects have gotten worse. I've missed work, appointments, birthdays, even my grandmother's funeral because I was just too exhausted. If I manage to run an errand or just stay up a full day, I have to sleep 18-20 hours a day for the next few days to "recharge my battery". I've wanted to get off this stuff for years; I'm trying a new surgery next year. Diamox may be saving my sight, but it's eating my life. | F | 44 | 30 years 375 mg 2X day | 11/18/2010 | 5 | PseudoTumor Cerebri w/ Papilledema | Severe abdominal cramping/bloating/pain. Heartburn. Mild tingling in feet, hands and face. Significantly altered taste, unable to taste carbonation in soda, increased need for sleep, metabolic acidosis, decreased libido and significant weight loss. | During initial lumbar punctures, hospitalization and diagnosis my headaches got much worse than before treatment. Headaches are now about once a week. Papilledema got much better, first 3/4 in both eyes @hospital and now 1/4 and 2/4. In almost 5 months of being on Diamox I have lost 37lbs. Starting at 226lbs down to 189lbs. I try to eat easily digested foods because the few times I get hungry I have heartburn and cramp the next day. I need tons of sleep and yawn several times per hour. In my case, ALL the side effects suck but I've tried and tried and never had enough motivation to loose weight. Being overweight is my only risk factor for Pseudotumor cerebri so loosing the weight could potentially cure me. | F | 22 | 4.5 months 750mg 2X day | 11/13/2010 | 2 | psuedotumor cerebri | Tingling in heads and feet, sometimes around my mouth. Tired all the time. Stupid, forgetful and just not myself. Dizzy and clumsy. Soreness in neck and shoulders. | I will deal with the side effects to save my vision....but I wish there was another way. I can not function like this. I am only a fraction of what I used to be. | F | 37 | 3 months 500 2X day | 10/9/2010 | 3 | Pseudo tumor cerebri | Pins and needles feeling on bottoms of feet, knees, and mouth, also in hands, but that has been less frequent. It's not painful, just annoying. Frequent heart burn. Ringing in ears. More frequent urination. | I have not had a migraine since I started this medication, so it has helped in that reguard. Not sure if it has helpedwith my vision yet. The side effects are mostly just annoying. Acidic foods make the tingling in the mouth worse. | F | 29 | 14 days 500mg 2X day | 10/8/2010 | 3 | nothing yet a bit of pins and needles in left foot | is it safe to drink with these tablets | F | 33 | 1 days 250 4X day | 9/17/2010 | 2 | Pseudotumor cerebri | Tingling in feet, hands, lips. Dizziness. Frequent urination. Loss of memory. Forgetfulness. Soda taste really bad. | I had spinal tap on July 30,2010. Pressure was mildly elevated. 2 weeks later went back to Nero and he put me on Diamox 500mg twice daily. So been on med for 7 days now. Hasen't inpressed me yet. I will give it some more time and hope it starts to help. Still have everyday pressure headaches and my ears really feel like alot of pressure in them. | F | 24 | 7 days 500mg 2X day | 8/19/2010 | 3 | Epilepsy | Lack of sex drive. I used to want to have sex every day, but about two weeks after I started having diamox my sex drive died. | My weight has remain the same which is a good thing. I still get a few headaches which can be quite bad. Epilepsy is better controlled. I believe there is something better to control it. | F | 27 | 2 years 250mg 1X day | 5/29/2010 | 5 | Primary Alveolar Hypovent. Syndrome | Tingling of extremeties, mental sluggishness, loss of appetite, weight loss, total loss of senses of smell and taste, fatigue, diminished memory, fatigue, urinary frequency. | Diamox stimulates respiration and has saved my life. Loss of taste and smell is annoying, but I'd rather breathe. | F | 63 | 13 years 500 Mg 2X day | 5/4/2010 |