DIAMOX Reviews (ACETAZOLAMIDE)

Average Rating: 3.2 (196 Ratings)

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 DIURETICS

 Type: Brand name discontinued; available as generic

  

DIAMOX  (ACETAZOLAMIDE):  Acetazolamide is used to prevent and reduce the symptoms of altitude sickness. This medication can decrease headache, tiredness, nausea, dizziness, and shortness of breath that can occur when you climb quickly to high altitudes (generally above 10,000 feet/3,048 meters). It is particularly useful in situations when you cannot make a slow ascent. The best ways to prevent altitude sickness are climbing slowly, stopping for 24 hours during the climb to allow the body to adjust to the new height, and taking it easy the first 1 to 2 days. This drug is also used with other medications to treat a certain type of eye problem (open-angle glaucoma). Acetazolamide is a "water pill" (diuretic). It decreases the amount of fluid that can build up in the eye. It is also used to decrease a buildup of body fluids (edema) caused by congestive heart failure or certain medications. Acetazolamide can work less well over time, so it is usually used only for a short period. It has also been used with other medications to treat certain types of seizures (petit mal and unlocalized seizures).    (Sources: U.S. Centers for Medicare Services, FDA)

  

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Key to Ratings: 1=LOW (I would not recommend taking this medicine.)
5=HIGH (this medicine cured me or helped me a great deal.)

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RATING  REASONSIDE EFFECTS FOR DIAMOXCOMMENTSSEXAGEDURATION/
DOSAGE
DATE ADDED
 
 3  IIH EXTREME fatigue, complete loss of libido, myalgia, tinnitus, terrible short term memory. Haven't had any major headaches since starting Diamox and the chronic diahorrea has gone. Fatigue is so severe I can no longer work or drive a car. Numbness in whole calves and forearms and pain in chest is just the icing on the cake. M 32 2 weeks
250mg tid
3/30/2014
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 3  Intracranial hypertension I have experienced the same as the pamphlet described about the tingling feet legs etc. General fatigue (but then I'm a full time stay at home mom, full time student and janitor evenings) so it's hard to say what causes the fatigue. However, within 2 months on the medication my knees started aching, and progressively have gotten so bad that getting up and down from a seated position is nearly impossible without support, kicking anything is an absolute no as I feel my knee cap will pop out and I can't sit for too long without liftin my legs straight up to relieve the pain. Satisfied my edema is almost gone. Completely dissatisfied and terrified the damage on my knees may be permanent. I used to run marathon. I'm heart broken. I'd love suggestions, as I'm not sure what my options are. F 28 6 months
750mg
10/25/2013
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 4  Pseudotumor Cerebri tingling in hands, feet, lips, eyes hurt Headaches finally going away, Opening pressure was 330 on my spinal tap so they drained some fluid to bring the level back down, eyes hurt but I see a Neuro Opthamologist Overall after a couple weeks my headaches are not nearly as often or extreme..I am not overweight at all so they are testing me for Sarcoidosis to make sure its not that instead of pseudotumor cerebri F 15 3 weeks
500 MG 2X day
9/30/2013
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 4  IIH/PTC Initial: dehydration, frequent urination, cloudy urine, insomnia, acid reflux, taste changes, cold sensitivity, tingling in hands and feet, appetite loss Long-term: cognitive issues, face pains, fatigue, joint pain and stiffness, unusual sensations, dizziness Initially this drug brought no relief and many bad side effects. I had trouble concentrating in school and slept through most of the day. Then, after about 8 months, I began to adjust to it and notice fewer symptoms, and my papilledema all but disappeared along with my high pressure headaches. I still have other unexplained neuro issues, but this drug has done what it's supposed to. The side effects can be intolerable in the beginning, but if you stay hydrated and give yourself time to adjust, you may find some relief. F 19 11 months
500 mg 2X day
7/21/2013
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Patient History
 3  Psuedotumor/High Intercranial Press Lately, I've experienced fatigue, drops in blood sugar and hair loss. Diamox is also prescribed for glaucoma but I've developed glaucoma in both eyes although I've been on Diamox for 12 years for high intercranial pressures. I've had surgery for (3) CSF leaks over the last 10 years. F 63 12 days
250 2X day
7/14/2013
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 3  Intracranial hypertension Really bad tingling in hands feet and knees bad tension between my eyes I have Intracranial hypertension my pressure was 42 brought back down to 15 a week and half later went back upto 39 been put back down to 18 taking 250mg 4 times a day hoping will work currently having really bad head aches loss if weigh very thirsty fingers cross this medication will help F 22 2 weeks
250
6/12/2013
 2  IIH I have only got memory loss, I don't get any tingling but do have trouble sleeping. And I take 1 x 250mg 4 times a day F 21 4 weeks
250
2/3/2013
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 5  Cranial pressure, headaches and eye Bp dropped suddenly to 90/80 without warning. Couldn't move or speak for 5 days. Bp seems ok now, but constant nausea and diarreah. Was good for headaches but I am miserable and weak now . Dr still hasn't called me back yet. probably will change neuros. F 60 4 weeks
500
12/11/2012
 5  Increased pressure in brain to 31. I cannot sleep, neck and EXTREME back pain, tingling in fingers, numbness in face, slight blurry vision, very shaky, I can't concentrate on many things, sick feeling. F 13 1 days
1000
10/31/2012
 5  Papilledema tingling in hands, feet and head. loss of appetite. Some lethargy when starting the medication. I also had a tremor in my hands but I was also taking prednisone concurrently and would attribute that side effect to the prednisone. I found I was hit quite hard with the side effects of both medications at once including from the prednisone insomnia. I lost a few kilos but it didn't concern me and could also be attributed to the large amounts of water I was drinking. Although the side effects od Diamox are quite significant I found that drinking as much water as I physically could really made a difference to the severity of side effects. I don't drink soft drinks so I didn't have a concern with changing taste in regard to my other food. I would highly recommend just drinking as much as you can at strategic times when you're near a loo! I would get up to about 6L most days but I discussed privately with my boss that I wasn't 'slacking off' in regard to my frequent toilet breaks and she was quite understanding and discrete. When I was able to drink mass amounts of water I found I handled the meds quite well. The medication has done all it was prescribed to do. My optic discs have reduced as much as they are going to and I will be coming off the drugs in about 2months. I was able to avoid having a shunt surgically put in and neuro surgery so I don't feel I can complain as it saved my eyesight! There has been a delay in my husband and I being able to start a family, we wanted to stay on the side of caution for the sake of the babies health, at the end of the day I prefer eye si F 29 18 months
500 max 3X day
10/9/2012
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 4  Psuedotumor Cerebri/IHT Tingling in fingers, feet, lips, elbows, & knees. Loss of appetite, fatigue, difficulty concentrating. metallic taste to some foods. Cold air/water/food, etc makes all of the tingling areas tingle more. Especially cold food, the lip tingling gets pretty bad. Forgetfulness & trouble sleeping. It's important to drink plenty of fluids and get a good nights rest. A multivitamin may be helpful for those who have appetite loss; make sure you get all your nutrients. The symptoms are really intense the 1st couple of weeks and they do somewhat improve as you continue taking the drug. F 25 6 months
1500
7/12/2012
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 3  intercraniul hypertention I have to lay down for 4 hours after taking if I stand up my head hurts so bad and tingling in my heals. My opening pressure was over 40 and I have a 8 week old baby so I know I have to take them I've been told loads of water will help amazing amounts I will.not give up F 23 2 days
2x day
7/8/2012
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 4  IIH/PTC Some tingling in hands and heels and my upper lip area. Slight confusion - not so easy to concentrate and a bit forgetful. After reading all of the comments on this drug, I was afraid to take it. But so far, so good. These are side-effects I can live with. My appetite has decreased and I still have enough energy to workout twice a day. Losing weight is a huge factor in recovery, and I'm determined to do it. I'm not letting the Diamox take me down. F 46 10 days
500 mg 2X day
5/12/2012
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 4  pseudotumor cerebri(ih) Tingling in hands,feet,elbows...stiffness in knees,tired,thirsty,mind fog,stuttering,cold alot more than before,diarrhea...however it has helped with headaches & pressure F 24 1 months
2000mg
5/2/2012
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 4  pseudotumor cerebri Tingling in hands and feet, dizziness, require more sleep at night, carbonation tastes like liquid fire in mouth and throat, heartburn, hard time get thoughts out into words, dry mouth, stomach ache, lips tingle, sensitivity to sunlight, legs feel like I ran 5 miles, ringing in one ear, F 36 1 years
500 MG 4X day
4/12/2012
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 1  Pseudotumorcerebri Numbness in hands and feet nausea vomitting blurred vision headaches....ect F 34 1 years
4x
3/25/2012
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 5  Altitude Mountain Sickness Intermittent tingling in fingertips and bottom of feet the very first day At over 8000 feet of altitude, I had no symptoms of altitude mountain sickness at all, which I have always been afflicted with. F 55 5 days
250mg 2X day
3/21/2012
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 4  Intracranial hypertension Metallic taste, tingling in feet, napping is absolute must have now, slurring my speech, feel dizzy and uncoordinated. F 42 1 months
1000 mg da
3/17/2012
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 3  Pseudotumor cerebri So far I am extremely tired, soda tastes weird, Concentrating on one thing is impossible. Tingling in hands and feet, spider web feeling on the face, stomach pain, dehydrated, TIRED, Loud ringing in ears, thirsty F 39 6 days
250 3X day
3/7/2012
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Patient History
 1  Pseudotumor cerebri INCREDIBLY lethargic. Foggy brain, memory loss, nausea, tingling in the fingers and toes. Metallic taste with carbonated drinks and beer. Weight loss, loss of appetite. At first the diamox was a wonder drug, meaning my headaches and the pressure in my head subsided. Then, I slowly began feeling horrible. Headaches would return. Lack of energy, I developed swollen fatty knots under my skin. Found out that it was because of the diamox. I have been off of this drug for two weeks and I feel like my life has changed. The knots have decreased in size. People instantly see me and notice a shine skin and and all together better well being. This is a TERRIBLE drug and I am so thankful that I am off of it. F 32 2 years
500 4X day
2/20/2012
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