TRILEPTAL Reviews (OXCARBAZEPINE)Average Rating: 3.1 (368 Ratings)Filter ResultsCompare TRILEPTAL with similar:
Type: Rx Drug
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Results are sorted by Date added. Key to Ratings: 1=LOW (I would not recommend taking this medicine.) |
More on TRILEPTAL: Reviews Summary | Drug Safety Information
| RATING | REASON | SIDE EFFECTS FOR TRILEPTAL | COMMENTS | SEX | AGE | DURATION/ DOSAGE | DATE ADDED |
| 3 | Partial complex seizures | Partial complex seizures | M | 4 | 2 years | 7/29/2009 | 3 | epilepsy | trouble concentrating, depressed, irritable, not getting restful sleep (wake often and easily) | I have nocturnal epilepsy (seizures in my sleep), and was on Dilantin for 13 years. I had lots of memory problems and occasional breakthrough seizures. Switched to Keppra in the hopes of starting a family, but had several breakthrough seizures at night and auras (new for me) during the day. My MD added trileptal and told me it is necessary as an adjuntive therapy (wouldn't work alone?). Have had severe PMS-like symptoms since starting. I don't know if this is the answer to my problems, since pregnancy is not recommended while on this drug, and that's the whole reason I got off Dilantin. I was never depressed on Dilantin and this drug plus Keppra makes me want to cry a lot. | F | 30 | 1 weeks | 7/15/2009 | 3 | bipolar | weight gain (40 lbs over 4 years), itching, decreased sex drive | The medication seemed to work initially. I still have about 3 episodes a year. I've been on the medication for about 4 years and in that time I've gained about 40lbs. My doctor swears it's not because of the medication but rather because I turned 30. I'm finding a new doctor. She also asked if I had an eating disorder like anorexia. Other side effects: itching, fatigue. It doesn't seem to be helping me any more. It's almost like it stopped working. | F | 32 | 4 years | 7/13/2009 | 5 | Bipolar/Depression | When first taking I had itching and hives, I sometimes have a hard time finding words and forgetting what I am saying, but not terrible. | I started taking this when I was at a rehab facility for depression. The doctor (who is brilliant and renowned for chemical disorders) put me on effexor and trileptal. I had the worst ITCHING and HIVES I have ever had and since I was there for 28 days I begged him to take me off it. He said I would have to stick through it and it would make my life signifigantly better. He was completely right, after 2 weeks my body was completely back to normal with no itching or strange feelings. I would definately recommend if you are itching on this drug, DONT STOP just because of the itching...it will go away and it is worth it..BIG TIME!! I have felt better than ever and I feel like my depression/bipolar was a completely other life that I went through. | F | 26 | 8 years | 7/9/2009 | 5 | Epilepsy. | Weight gain, nightmares (only when i started), and fatigue. | Its amazing! I love it, i used to be on zonegran, and it was horrible....i was weak, tired and had seizurs a couple of times a month. The last straw was pulled with zonegran when i was swimming in a swim meet, and i had a seizur in the water. I had had ENOUGH..So then my doctor switched me to Trileptal. I have been seizur-free for over a year now. Its been great.. Every now and then i will have nightmares, or get tired, and i have gained 6 pounds since being on trileptal, but that doesn't matter, as long i as i feel great, and im seizur-free, thats all that counts!!!! :] | F | 16 | 2 years | 6/29/2009 | 3 | seizures | I experience pain and stiffness in my joints and muscles, a diminished sense of touch, fatigue, and an awkward gait. I used to love to walk and now I find it difficult. I have also gained weight while on this drug. It has worked on the seizures, but at significant personal cost. | I think I'm going to look into changing my medication. This is getting too much to bear. | F | 61 | 3 years | 6/27/2009 | 5 | Bipolar and Drinking | I was lucky... I LOST 10 lbs (not gain). I sleep better than ever and I have no real desire to drink anymore (which it appears that I was drinking to self medicate when I was actually bi-polar. My bi polar seems to be mild to medium. I also take it with Prozac (both are taken twice a day). | I haven't fealt this good since I can remember. I had been labled as Depressed (by my primary care Doctors), but a Psychiatrist I saw in April said I was bi-polar (not Depressed). I tried Lamictal first, but got a horible rash. Trileptal seems to be working wonders for me in a short time (phew! Finally). | F | 44 | 3 months | 6/19/2009 | 5 | Bipolar | Dizzy,Severe memory loss,Balance issues,Tiredness,High feeling,Numbness in tongue and fingers,Concentration issues,Difficulty speaking,Acne,Light sensitivity | This medication has cured me of my Bipolar issues completely. I had been on two Meds before this. As for the side effects,once I got off the name brand and went to generic most of these side effects were gone except the thinking trouble and acne. If you have Bipolar I would say this drug is still worth putting up with the side effects for. It did not make me gain weight or effect my sex drive! | F | 25 | 2 years | 6/14/2009 | 4 | manic mood cycling/Bypolar | I do get tired but thats because I take my full dose a hr before bed due to having a sleep disorder. It helps me sleep not all times but some times I can get dizzy and my eyes will get blurry but this is not all the time. There is no weight gain. | I have been taking this for 4 yrs now it has worked so well for me! I take a total of 750mg. In the past I've tried other meds and they were dreadful weight gain, more manic episodes,depression,I'm definitely recommending this med. If you have any questions feel free to email me I did sooo much research before started this med | F | 29 | 4 years | 6/11/2009 | 2 | BiPolar/Anxiety | Itching (everywhere) constantly, severe headaches, felt loopy. hard time concentrating | Did help with the mania/anxiety. But the itching was so bad I had to stop. I think I was allergic. | F | 35 | 1 months | 6/7/2009 | 4 | Trigeminal Neuralgia and 1 Seizure | With 150 mg 3x/day, I had very few side effects. Just a bit of tiredness. When dose increased to 300 mg 3x/day, became extremely tired all day and had numbness in tongue and lips with decreased taste ability. | Does help with pain of TN. | F | 29 | 5 months | 6/2/2009 | 2 | bipolar | feeling high, memory loss, numb lips and face, severe short term memory problems, severe headaches, always hungry, word finding problems, no sex drive, joint pain, foggy brain | I have had horrible side effects with this drug. I have problems with word finding and with putting together written sentences. I have such bad memory loss that I have to write everything down, and by the time I cross a room I forget what I'm doing. I'm constantly in a fog. I have woken up with headaches every day since the med increase. I have also had severe joint pain (which I think is going to go away). I was on lithium but due to kidney issues I had to go off of it. This med isn't the solution to my problems. I'm still depressed on it and I'm only at 600 mg. Not sure what to do if the side effects don't go away, there aren't any meds left for me to try :( I'm also on 100mg Seroquel and 200mg Lamictal. | F | 37 | 3 weeks | 5/6/2009 | 3 | bipolar, anxiext | tired more than anything. i can sleep for days no joke on average 16-20 hours. acne. tremors in sleep, confusion, can't find right word, sadated feeling like being drunk or high, thinking is foggy | i dont get as manic or depressed anymore but it is because i feel messed up. | F | 18 | 3 months | 4/27/2009 | 4 | complex partial seizures | Older daughter (6): some weight gain. Younger daughter (2): significant constipation and weight gain. | My 2 daughters (6 & 2) have epilepsy. This worked beautifully for the older one, she was seizure-free on T for 2 yrs and successfully weaned off last year. The little one has been on T for 1 yr and is still having breakthrough seizures and we continue to up the dose as she grows. Keeping fingers crossed. | F | 4 years | 4/21/2009 | 5 | mania | Anxiety when it starts to wear off | It has been extremely beneficial with keeping my moods in check and I am happy to be on it | F | 35 | 6 months | 4/10/2009 | 4 | counteract mania of corticosteroids | Numbness of tongue and lips (I had wondered what had caused this - thanks to this site I've found out)the side effects of Trileptal are similar to the symptoms of Lupus and the side effects of steroids - brain fog, word searching, weight gain etc and I had these before I went on Trileptal and after I stopped for 6 months. | I was on Trileptal for 1.5 yrs (600mg) and it did the job - helped me sleep and stopped the mania of steroids but when I reduced my steroids to 5mg per day I came off Trileptal (6 months ago). I went back on 2 wks ago because of sleep disturbance, anger, irritability, severe depression which we think was brought on by my starting to take Plaquenil. The GP prescribed an antidepressant that had "suicide attempt" as a 'common' side effect so I decided to go back on Trileptal instead and it's really helped my mood and sleeping - I feel almost 'content' which is a miracle. Have upped to 1200mg per day just to test effect. | F | 44 | 2 weeks | 3/8/2009 | 1 | epilepsy | severy itching after the first time perscribed. 4 days latter taken off and given some steroids to help get over the hives and itch | Dr. asked me to try the trileptal again, I did day before yesterday at 9am by Noon I was itching in several places, and by 3pm the hives started showing. The next morning most of the itch and hives were gone, Guess I can'n/won't take that drug again. | M | 66 | 4 days | 3/2/2009 | 1 | Bipolar II - Mixed State | I was put on this drug while staying in Horsham Clinic for severe depression and suicidal thoughts. I cannot say whether it did anything for my mood. I can report that I got the severe drug rash. Though less than 4% of patiences reportedly get it, it's a horrible experience that lasts for seven to ten days. To make matters worse, the doctors in the ER initially attributed the rash to my testing postitive for Mono and they did not take me off the Trileptal. They treated me with steriods to control the rash and as soon as I came off the steriods, the rash came back which is when they determined that it was, in fact, the trileptal. | About two months later, I saw an allergist who confirmed that I am allergic to this drug and to Lamictial. If you are sensitive to medication and you have a history of other allergies (I also have seasonal allergies and am allergic to wheat), I highly recommend you go for an allergy test before taking this medication. Even if you are allergic, they might be able to put you on the medication by doing an 'oral trial' where they send you to a compounding pharmacy to have the medication diluted and simply have you build it up in your system very slowly. Just be careful. These two drug rashes were among the most painful experiences of my life. | F | 33 | 12 days | 2/20/2009 | 4 | TIRED! | This is a good drug. I used to have very violent thoughts, with blood and gore everywhere. The trileptal got rid of them. It also got rid of my obsessive thoughts. It has given me a little bit of acne but not enough to be extremely noticeable. Basically my favorite thing about this drug was controlling my anger. | F | 18 | 2.5 months | 2/4/2009 | 4 | Trigeminal Neuralgia (drug failed) | I have tried lyrica,dilantan,tegretol,neurontin,cymbalta,amitryptaline,nortyptaline and trileptal had the least amount of side effects with the highest benefit. Have taken for 2 years 1800-2400mgs per day. Have numbness in lips, weight gain, high feeling, stuttering, brain fog, sleepiness (exhausion),trouble finding words and concentrating. At higher doses these side effects do not go away, but I have become more accepting of them and live my life around them so they are more tolerable. The side effects are alot nicer than the pain. It's all about ones perspective. | Trileptal helped my pain be more manageable. I cannot function without it. | F | 47 | 2 years | 1/3/2009 |